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Imbruvica
I've been on
Imbruvica
now for 4 weeks and to my surprise have had minor side effects. So, I have questions. 1. I get blisters in my mouth that start about an hour after I take the pill. I rinse and manage them very well. When do you think this will go away. 2.
I've been on
Imbruvica
now for 4 weeks and to my surprise have had minor side effects. So, I have questions. 1. I get blisters in my mouth that start about an hour after I take the pill. I rinse and manage them very well. When do you think this will go away. 2.
oso7672
in
CLL Support
5 years ago
New to Site
I've been on
Imbruvica
for 5 years. This site was a great find as I'm happy to be able to speak with and learn from fellow survivors.
I've been on
Imbruvica
for 5 years. This site was a great find as I'm happy to be able to speak with and learn from fellow survivors.
ETFitz1
in
CLL Support
5 years ago
Dry Coughing with Imbruvica
I started with
Imbruvica
in April and as of July came down to about 60000. I have extreme Dry coughing staring in June. Not all the time but taking cough medicine to sleep at night Does anyone have that problem? Thank You Bob
I started with
Imbruvica
in April and as of July came down to about 60000. I have extreme Dry coughing staring in June. Not all the time but taking cough medicine to sleep at night Does anyone have that problem? Thank You Bob
melrose515
in
CLL America Support
5 years ago
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Hello, I’m taking
Imbruvica
1.5 years. My result is good, but since then had Cdiff infection and 4 times UTI. Can anyone recommend me any cure ?
Hello, I’m taking
Imbruvica
1.5 years. My result is good, but since then had Cdiff infection and 4 times UTI. Can anyone recommend me any cure ?
farber
in
CLL Support
5 years ago
Imbruvica double dose
Hello, my mum has cll and is taking
imbruvica
. She suspects she took double dose today (3×140mg) twice. And her dr. Lives in another country, so its not easy to reach him. Anyone has experienced that before and cab advice on what to do? Shall she worry? Shall she not take tomorrows dose?
Hello, my mum has cll and is taking
imbruvica
. She suspects she took double dose today (3×140mg) twice. And her dr. Lives in another country, so its not easy to reach him. Anyone has experienced that before and cab advice on what to do? Shall she worry? Shall she not take tomorrows dose?
N_Sabry
in
CLL Support
5 years ago
14.07.2019.
No issues with side effects from the
Imbruvica
. Feeling a lot more mentally alert whereas previously I felt ' Foggy'. Physically doing ok, I have started using weights to rebuild strength in my arms and walk or cycle daily for stamina.
Imbruvica
my best friend & I seem to be very compatible.
No issues with side effects from the
Imbruvica
. Feeling a lot more mentally alert whereas previously I felt ' Foggy'. Physically doing ok, I have started using weights to rebuild strength in my arms and walk or cycle daily for stamina.
Imbruvica
my best friend & I seem to be very compatible.
Jacksc06
in
CLL Support
5 years ago
ALC Dropping Fast
I am continuing to take left over
Imbruvica
at 280mg. Wondering whether I need to reduce Venetoclax or reduce/stop
Imbruvica
? Would that allow Hg and platelets to recover? Thanks, Dennis, 72
I am continuing to take left over
Imbruvica
at 280mg. Wondering whether I need to reduce Venetoclax or reduce/stop
Imbruvica
? Would that allow Hg and platelets to recover? Thanks, Dennis, 72
Fant1924
in
CLL Support
5 years ago
Imbruvica
I had been on watch n wait for about 5 years my white count started at 14 and then when it got the 132 I was put on
imbruvica
. Over a period of about six weeks my white count as of last Wednesday was 302.
I had been on watch n wait for about 5 years my white count started at 14 and then when it got the 132 I was put on
imbruvica
. Over a period of about six weeks my white count as of last Wednesday was 302.
oldguy68
in
CLL Support
5 years ago
CLL side Effect.
I take
Imbruvica
420mg tabs for treatment. Tiredness also.
I take
Imbruvica
420mg tabs for treatment. Tiredness also.
elvs52
in
CLL Support
5 years ago
Bleeding in the lung
A friend of mine is on
Imbruvica
and after three yrs. On a low dose (1 tablet) has developed bleeding in the left lung. Anyone ever have this problem and what was the outcome?
A friend of mine is on
Imbruvica
and after three yrs. On a low dose (1 tablet) has developed bleeding in the left lung. Anyone ever have this problem and what was the outcome?
aboylan
in
CLL Support
5 years ago
Imbruvica Blisters
Hello, I'm on my 11th day on
Imbruvica
and am starting to see what looks like blood blisters in my mouth. They started happening a few days ago and are getting progressively worse. Has anyone experienced this condition and if so, what did you do to eliminate this condition.
Hello, I'm on my 11th day on
Imbruvica
and am starting to see what looks like blood blisters in my mouth. They started happening a few days ago and are getting progressively worse. Has anyone experienced this condition and if so, what did you do to eliminate this condition.
oso7672
in
CLL Support
5 years ago
Infection proneness after Imbruvica for CLL?
My chronic lymphocytic leukemia (CLL) has been treated with Rituximab and
Imbruvica
/ ibrutinib. My B-cells are gone, the bad, cancerous, but also the good ones. My Hb is 90, thrombocytes 62 and leukocytes 9.4.
My chronic lymphocytic leukemia (CLL) has been treated with Rituximab and
Imbruvica
/ ibrutinib. My B-cells are gone, the bad, cancerous, but also the good ones. My Hb is 90, thrombocytes 62 and leukocytes 9.4.
Veuveclique
in
CLL Support
5 years ago
Taking Imbruvica in Spain
I also have Thrombophilia and following two major pulmonary embolism last summer was put on Xarelto, but it's incompatible with
Imbruvica
,so my only other option is daily heparin injections. Can't fault the Spanish Health Service.
I also have Thrombophilia and following two major pulmonary embolism last summer was put on Xarelto, but it's incompatible with
Imbruvica
,so my only other option is daily heparin injections. Can't fault the Spanish Health Service.
Hidden
in
CLL Support
5 years ago
Pomegranates
Can not find good info on pomegranates and
imbruvica
-my 2nd home is a tiny farm -finally a bumper crop of my pomegranates --Anybody know of or have info on reactions?
Can not find good info on pomegranates and
imbruvica
-my 2nd home is a tiny farm -finally a bumper crop of my pomegranates --Anybody know of or have info on reactions?
wilhoitaz
in
CLL Support
5 years ago
Issues After Imbruvica
I continued on the
Imbruvica
/Venetoclax trial with no issues until May of 2018 when I had an Afib episode. After the 2nd episode a month later, I was reduced to 2 140mg of
Imbruvica
along with the 400 mg of Venetoclax. I also started Metoprolol 100mg.
I continued on the
Imbruvica
/Venetoclax trial with no issues until May of 2018 when I had an Afib episode. After the 2nd episode a month later, I was reduced to 2 140mg of
Imbruvica
along with the 400 mg of Venetoclax. I also started Metoprolol 100mg.
Louie_CC
in
CLL Support
5 years ago
Eye styes and Imbruvica, are they related?
Eye styes and
Imbruvica
- I have had two eye styes since I started IB in February, is this a unusual side effect of it when taken for CLL?
Eye styes and
Imbruvica
- I have had two eye styes since I started IB in February, is this a unusual side effect of it when taken for CLL?
narl
in
CLL Support
5 years ago
Thank you
Began
Imbruvica
five weeks ago with little side effects so far and wbc from 226 to 27 and Rbc up closer I look forward to reading the daily posts with the responses from the member.
Began
Imbruvica
five weeks ago with little side effects so far and wbc from 226 to 27 and Rbc up closer I look forward to reading the daily posts with the responses from the member.
dendrobium
in
Leukaemia CARE
5 years ago
Imbruvica Rosa
Well, I started my fist pill of
Imbruvica
yesterday at 6pm. Went to bed, everything was fine. Got up early, had a few sips of coffee & a banana and within 3 hours my stomach was full of knots, had nausea and threw up. It's now 3pm and still feel like crap. Any suggestions? Thanks all.
Well, I started my fist pill of
Imbruvica
yesterday at 6pm. Went to bed, everything was fine. Got up early, had a few sips of coffee & a banana and within 3 hours my stomach was full of knots, had nausea and threw up. It's now 3pm and still feel like crap. Any suggestions? Thanks all.
oso7672
in
CLL Support
5 years ago
Is neccesary to make a Bone marrow biopsy every year during the ibutrinib monotheraphy treatment?
He he is on monotherapy
imbruvica
treatment since july 2018, i mean, 12 months on treatment. Thanks!!!!
He he is on monotherapy
imbruvica
treatment since july 2018, i mean, 12 months on treatment. Thanks!!!!
Cgr2018
in
CLL Support
5 years ago
Constant feeling of being chilled
I have been on
Imbruvica
for 21 months. About three months ago, I have a chilled feeling - from my belt level to my scalp. I am wearing sweaters in June. Has anyone else experienced the chills? This my first post.
I have been on
Imbruvica
for 21 months. About three months ago, I have a chilled feeling - from my belt level to my scalp. I am wearing sweaters in June. Has anyone else experienced the chills? This my first post.
Agatesup
in
CLL Support
5 years ago
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