Search
Search
About
Log in
Join
Experiences with
Imbruvica
Posts
Communities
842 public posts
Filter results
One year good results with Imbruvica:
I started with 420 GM
Imbruvica
. The initial and only reaction was a severe rash on the face. Now after one year on
Imbruvica
420 GM, the rash has vanished since over a half a year, and my CBC is close to normal.
I started with 420 GM
Imbruvica
. The initial and only reaction was a severe rash on the face. Now after one year on
Imbruvica
420 GM, the rash has vanished since over a half a year, and my CBC is close to normal.
vog292
in
CLL Support
5 years ago
CLL Specialist
Going from Ofatumumba to
imbruvica
overnight. With no testing other than CBC ,and whatever goes with it. CT scans every 4 months. Do we need a CLL Specialist? Hubby had
imbruvica
for short time. Retuxium before that. Is on Itrocanizol for Histoplasmosis of the brain.
Going from Ofatumumba to
imbruvica
overnight. With no testing other than CBC ,and whatever goes with it. CT scans every 4 months. Do we need a CLL Specialist? Hubby had
imbruvica
for short time. Retuxium before that. Is on Itrocanizol for Histoplasmosis of the brain.
Hidden
in
CLL Support
5 years ago
YABTKi or Yet Another BTK inhibitor - the A to Z list of Bruton's Tyrosine Kinase Inhibitors for CLL following Ibrutinib's success
Ibrutinib/
Imbruvica
(covalent) (First approved) Where this all started, following FDA approval for MCL in November 2013 and CLL in July 2014. [i](In early 2024, we have about 13 years of accumulated treatment data for CLL.)
Ibrutinib/
Imbruvica
(covalent) (First approved) Where this all started, following FDA approval for MCL in November 2013 and CLL in July 2014. [i](In early 2024, we have about 13 years of accumulated treatment data for CLL.)
AussieNeil
Partner
in
CLL Support
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Treatment Coverage Under Medicare
Hello everyone, My husband is Medicare eligible and currently on watch and wait, but he is nearing treatment most likely with a drug such as
Imbruvica
or Venetoclax. Does anyone here know how these new drugs are classified per Medicare?
Hello everyone, My husband is Medicare eligible and currently on watch and wait, but he is nearing treatment most likely with a drug such as
Imbruvica
or Venetoclax. Does anyone here know how these new drugs are classified per Medicare?
bingbang
in
CLL Support
5 years ago
Ginger ?
Does ginger interfere with Imbrutinib (
Imbruvica
) ?
Does ginger interfere with Imbrutinib (
Imbruvica
) ?
vog292
in
CLL Support
5 years ago
Any information on CoQ10 (Ubiquinol) while on Imbruvica for CLL ?
I have CLL and take
Imbruvica
. The pharmacist at my oncology group has no objection. Any ideas about pro or con, and whether it is useful ?
I have CLL and take
Imbruvica
. The pharmacist at my oncology group has no objection. Any ideas about pro or con, and whether it is useful ?
vog292
in
CLL Support
5 years ago
Very tired
Hello, I’m taking
Imbruvica
for 2 years, my numbers is excellent, but I feel very tired. In the morning I have energy, but afternoon is gone.
Hello, I’m taking
Imbruvica
for 2 years, my numbers is excellent, but I feel very tired. In the morning I have energy, but afternoon is gone.
farber
in
CLL Support
5 years ago
Soy beans (edamame) ?
I wonder what is known about soy beans (edamame) in the diet, if one has CLL and takes
Imbruvica
? (Also in general the pro and con in relation to soy)
I wonder what is known about soy beans (edamame) in the diet, if one has CLL and takes
Imbruvica
? (Also in general the pro and con in relation to soy)
vog292
in
CLL Support
5 years ago
Imbruvica and elbow cyst
I have been on
Imbruvica
25+ months. At midday today, I realized I have a golf ball sized bag of fluid on my left elbow. Have never had such a “cyst” before this time. Has anyone else experienced this? Perhaps no connection to
Imbruvica
.
I have been on
Imbruvica
25+ months. At midday today, I realized I have a golf ball sized bag of fluid on my left elbow. Have never had such a “cyst” before this time. Has anyone else experienced this? Perhaps no connection to
Imbruvica
.
Agatesup
in
CLL Support
5 years ago
Bone Marrow at 65% after 6 months Imbruvica and ^ months of Gazyva
I understand that
Imbruvica
continues to work at the cancer, but I am wondering if I should be seeing better results in the bone marrow after 8 months of
Imbruvica
and 6 Gazyva treatments? Thoughts?
I understand that
Imbruvica
continues to work at the cancer, but I am wondering if I should be seeing better results in the bone marrow after 8 months of
Imbruvica
and 6 Gazyva treatments? Thoughts?
alijoel
in
CLL Support
5 years ago
Bumps
I’m on
IMBRUVICA
420 mg. Has anyone ever experienced little red itchy bumps on their body?
I’m on
IMBRUVICA
420 mg. Has anyone ever experienced little red itchy bumps on their body?
Jaming
in
CLL Support
5 years ago
Imbruvica and low platelets
Could this be the
imbruvica
causing this and is this a concern?
Could this be the
imbruvica
causing this and is this a concern?
Jamstev71
in
CLL Support
5 years ago
Starting Treatment
Imbruvica
will cost me $10K a year out of pocket, which is doable but will really stretch my budget. I think I'd rather do Chemo which is covered by insurance, finite (6 months), and seems to produce good results with my type of CLL.
Imbruvica
will cost me $10K a year out of pocket, which is doable but will really stretch my budget. I think I'd rather do Chemo which is covered by insurance, finite (6 months), and seems to produce good results with my type of CLL.
12Caine12
in
CLL Support
5 years ago
Quad muscles
Am 77 years old and have been on
Imbruvica
for 25 months. At present, quadriceps are weak - I have difficulty getting off chairs and couches. I do walk 5+ miles each day with no pain. Perhaps the quads are just from being an elderly male. Any comments will be appreciated. Thanks!
Am 77 years old and have been on
Imbruvica
for 25 months. At present, quadriceps are weak - I have difficulty getting off chairs and couches. I do walk 5+ miles each day with no pain. Perhaps the quads are just from being an elderly male. Any comments will be appreciated. Thanks!
Agatesup
in
CLL Support
5 years ago
Started imbruvica
My cll is back & I started
imbruvica
3 days ago. I'm feeling much stronger,and I think my lymph nodes are getting smaller. So far no side effects. I see my doctor for blood tests this coming Thursday......
My cll is back & I started
imbruvica
3 days ago. I'm feeling much stronger,and I think my lymph nodes are getting smaller. So far no side effects. I see my doctor for blood tests this coming Thursday......
habsrule
in
CLL Support
5 years ago
Imbruvica and A Fib
I started
Imbruvica
420mg on Feb 1 2019 which was reduced to 280mg mid July. Recently I have been diagnosed with A-Fib. We knew when we started with
Imbruvica
that one side effect was A fib. Of course, we do not know that
Imbruvica
caused me to get A Fib. Any comments?
I started
Imbruvica
420mg on Feb 1 2019 which was reduced to 280mg mid July. Recently I have been diagnosed with A-Fib. We knew when we started with
Imbruvica
that one side effect was A fib. Of course, we do not know that
Imbruvica
caused me to get A Fib. Any comments?
BobTerry62
in
CLL Support
5 years ago
Flavored water
Can you use flavored water if you are taking
imbruvica
?
Can you use flavored water if you are taking
imbruvica
?
tootsie2
in
CLL Support
5 years ago
New to Imbruvica
I’ve been taking
Imbruvica
for only 35 days and I’ve had no side affects. Turbinator
I’ve been taking
Imbruvica
for only 35 days and I’ve had no side affects. Turbinator
Turbinator
in
CLL Support
5 years ago
Imbruvica and UTI
I am a male and have been on
Imbruvica
for 2 years. Have had 3 bouts with UTI over last 5 months. Anyone else on
Imbruvica
experience UTI? I am always healthy and clean.
I am a male and have been on
Imbruvica
for 2 years. Have had 3 bouts with UTI over last 5 months. Anyone else on
Imbruvica
experience UTI? I am always healthy and clean.
Agatesup
in
CLL Support
5 years ago
Financial help for Imbruvica
I'm in California, on Medicare with EnvisionRX Plus and have been told I'll need to start
Imbruvica
at a cost of nealy $10k a year out of pocket, not to mention the possiblility of other Rx's due to complications. Is there any financial aid out there I can research? Thanks in advance.
I'm in California, on Medicare with EnvisionRX Plus and have been told I'll need to start
Imbruvica
at a cost of nealy $10k a year out of pocket, not to mention the possiblility of other Rx's due to complications. Is there any financial aid out there I can research? Thanks in advance.
12Caine12
in
CLL Support
5 years ago
1
...
17
18
19
...
43
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
CLL Support
807 results
CLL America Support
14 results
Leukaemia Support
9 results
View top 10 communities
Sort by
Most Relevant
Newest