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Imbruvica
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Eating proper foods
Have been on
imbruvica
for a month and half Need info in eating foods Can you eat fresh fruits and vegetables??
Have been on
imbruvica
for a month and half Need info in eating foods Can you eat fresh fruits and vegetables??
budcrawford
in
CLL Support
5 years ago
Coronavirus vs CLL
Friends, Been on
Imbruvica
for two years now and all blood parameters have been normal. Where do we stand on travel now that a pandemic has been declared? If all your blood markers are normal, does this mean your immune system is functioning properly? Many thanks
Friends, Been on
Imbruvica
for two years now and all blood parameters have been normal. Where do we stand on travel now that a pandemic has been declared? If all your blood markers are normal, does this mean your immune system is functioning properly? Many thanks
ObiYan
in
CLL Support
5 years ago
Could anyone share their thoughts on the use of Imbruvica (ibrutinib)?
what have your experiences been with using
Imbruvica
(ibrutinib)? side effects? lifestyle changes?
what have your experiences been with using
Imbruvica
(ibrutinib)? side effects? lifestyle changes?
note2
in
CLL America Support
5 years ago
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Could anyone share their thoughts on the use of Imbruvica (ibrutinib)?
what have your experiences been with using
Imbruvica
(ibrutinib)? side effects? lifestyle changes?
what have your experiences been with using
Imbruvica
(ibrutinib)? side effects? lifestyle changes?
note2
in
Leukaemia Support
5 years ago
Could anyone share their thoughts on the use of Imbruvica (ibrutinib)?
what have your experiences been with using
Imbruvica
(ibrutinib)? side effects? lifestyle changes?
what have your experiences been with using
Imbruvica
(ibrutinib)? side effects? lifestyle changes?
note2
in
CLL Support
5 years ago
Have you experienced occasional difficulty swallowing food while taking Imbruvica?
Swallowing Issues and
Imbruvica
Swallowing Issues and
Imbruvica
lizfuccillo
in
CLL Support
5 years ago
CLL Specialist Recommendation
Hello All, I have been on
Imbruvica
for several months. However, I see a hematologist/oncologist. I would like to see a CLL Specialist. Any recommendations in Virginia or bordering States? Thanks
Hello All, I have been on
Imbruvica
for several months. However, I see a hematologist/oncologist. I would like to see a CLL Specialist. Any recommendations in Virginia or bordering States? Thanks
Wahoowa
in
CLL Support
5 years ago
Bloodwork on imbruvica
Just got my bloodwork back My WBC WAS 230,000 On
imbruvica
for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects
imbruvica
is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!!
Just got my bloodwork back My WBC WAS 230,000 On
imbruvica
for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects
imbruvica
is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!!
littledab
in
CLL Support
5 years ago
LDH jump in CLL
My 65 year old mom has CLL (trisomy 12), and has been on
Imbruvica
for about a year now. Her LDH level at diagnosis was 427 (Normal is 84-246). She has steadily declined, and over the past several months has been maintaining in the 180's/190's. Today she was 242.
My 65 year old mom has CLL (trisomy 12), and has been on
Imbruvica
for about a year now. Her LDH level at diagnosis was 427 (Normal is 84-246). She has steadily declined, and over the past several months has been maintaining in the 180's/190's. Today she was 242.
DaughterofCLLfighter
in
CLL Support
5 years ago
Taking venetoclax and having a difficult time
I took
imbruvica
for 3 years and it stopped working. They started me on venetoclax and ramped it up to 50. My counts got so bad the doctor has temporary taken me off venetoclax. How long on venetoclax before you get to feeling better. This medicine is something else. I have never been so sick.
I took
imbruvica
for 3 years and it stopped working. They started me on venetoclax and ramped it up to 50. My counts got so bad the doctor has temporary taken me off venetoclax. How long on venetoclax before you get to feeling better. This medicine is something else. I have never been so sick.
Jamstev71
in
CLL Support
5 years ago
Wondering if anyone has experience with shifting from Imbruvica to Calquence. I have been on Imbruvica for 5 months with bad side effects.
Imbruvica
switch to Calquence
Imbruvica
switch to Calquence
Mansil
in
CLL Support
5 years ago
Imbruvica-Mouth Sores
I started
Imbruvica
420 mg a month ago. I am having a real problem with mouth sores. Anybody else?
I started
Imbruvica
420 mg a month ago. I am having a real problem with mouth sores. Anybody else?
Wahoowa
in
CLL Support
5 years ago
New member
Was started on
Imbruvica
at that time. It has really done it's job. My most recent tests showed mostly normal. However, doctor said latest research indicated that if you tolerated the medicine well, advise to stay on it at least 2 years.
Was started on
Imbruvica
at that time. It has really done it's job. My most recent tests showed mostly normal. However, doctor said latest research indicated that if you tolerated the medicine well, advise to stay on it at least 2 years.
LinnyPooh
in
CLL Support
5 years ago
Side effect or sickness?
I can't decide if I'm sick because it seems to come and go or am having a side effect of
imbruvica
.
I can't decide if I'm sick because it seems to come and go or am having a side effect of
imbruvica
.
siciliansoul
in
CLL Support
5 years ago
Switching from 3 Imbruvica capsules to 1 420 mg Tablet
Has anyone had a problem switching to the
Imbruvica
tablet? I am having some new side effects and possibly having an allergy, itching. I have stopped until I hear from the doctor. Nan
Has anyone had a problem switching to the
Imbruvica
tablet? I am having some new side effects and possibly having an allergy, itching. I have stopped until I hear from the doctor. Nan
Zeit
in
CLL Support
5 years ago
Long term imbruvica users.....
Has anyone been on
imbruvica
for over 5yrs? Drs only seem to talk about 5yrs. They never mention anything beyond that. My bf has been on it with no side effects for 2yrs. We are starting to worry/wonder if this is too good to be true and the 5yr question keeps popping up. What happens after year 5?
Has anyone been on
imbruvica
for over 5yrs? Drs only seem to talk about 5yrs. They never mention anything beyond that. My bf has been on it with no side effects for 2yrs. We are starting to worry/wonder if this is too good to be true and the 5yr question keeps popping up. What happens after year 5?
Beefcakesgirl
in
CLL Support
5 years ago
Red Blotches
I've been on
Imbruvica
now for a few months and am showing more signs of Small to Medium size blotches around my neck, arms and back. Any recommendations to treat them. Thanks Rosa
I've been on
Imbruvica
now for a few months and am showing more signs of Small to Medium size blotches around my neck, arms and back. Any recommendations to treat them. Thanks Rosa
brooklyn7672
in
CLL Support
5 years ago
Support Group
Where can I find a support group that we can attend for my wife who is taking
Imbruvica
? We live in Bellflower CA. Thanks
Where can I find a support group that we can attend for my wife who is taking
Imbruvica
? We live in Bellflower CA. Thanks
brooklyn7672
in
CLL Support
5 years ago
Chilled Feeling
Have Ben on
Imbruvica
since September 2017. Last several months I get the chills in late afternoon and into the evening, even with heavy sweatshirt on or wrapped in a blanket. I asked oncologist if it is related to lymphoma or
Imbruvica
but did not get a definitive reply.
Have Ben on
Imbruvica
since September 2017. Last several months I get the chills in late afternoon and into the evening, even with heavy sweatshirt on or wrapped in a blanket. I asked oncologist if it is related to lymphoma or
Imbruvica
but did not get a definitive reply.
Agatesup
in
CLL Support
5 years ago
Imbruvica MADE IN CHINA....How will the Coronavirus effect it?
I understand that the
Imbruvica
(ibrutinib) pills many of us are taking are MADE IN CHINA or at least many of the ingredients are. Does anyone having any information on what the future availability or efficacy of the product will be considering what is going on with the Coronavirus?
I understand that the
Imbruvica
(ibrutinib) pills many of us are taking are MADE IN CHINA or at least many of the ingredients are. Does anyone having any information on what the future availability or efficacy of the product will be considering what is going on with the Coronavirus?
jdolinger
in
CLL Support
5 years ago
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