Search
Search
About
Log in
Join
Experiences with
Imbruvica
Posts
Communities
841 public posts
Filter results
Imbruvica and low Hemoglobin
I started on
Imbruvica
April 13. After some weeks needed blood transfusion 3 bags to improve my hemoglobin which was at 66. Then I felt pretty good for some weeks and lately past few days don’t feel right . Kind of unsteady after a light activity .
I started on
Imbruvica
April 13. After some weeks needed blood transfusion 3 bags to improve my hemoglobin which was at 66. Then I felt pretty good for some weeks and lately past few days don’t feel right . Kind of unsteady after a light activity .
Kmegood
in
CLL Support
4 years ago
Ibutrinib plus venetoclax?
And give again
imbruvica
and 100 mg of venetoclax. The doctor said today that when they put off
imbruvica
with this low dose of venetoclax sometimes the cll progression is rapidly. As I said, they put again
imbruvica
and rump up 100 mg of venetoclax. And will put all the labels ok.
And give again
imbruvica
and 100 mg of venetoclax. The doctor said today that when they put off
imbruvica
with this low dose of venetoclax sometimes the cll progression is rapidly. As I said, they put again
imbruvica
and rump up 100 mg of venetoclax. And will put all the labels ok.
Cgr2018
in
CLL Support
4 years ago
ANC is zero
I'm on
imbruvica
and have rituxan infusions 1x per month. They wouldn't give me my infusion last Friday because of the low ANC and told me to stop taking
imbruvica
. I go back Friday to see what they're going to do with me. I'm really bummed because
imbruvica
was making me feel so much better.
I'm on
imbruvica
and have rituxan infusions 1x per month. They wouldn't give me my infusion last Friday because of the low ANC and told me to stop taking
imbruvica
. I go back Friday to see what they're going to do with me. I'm really bummed because
imbruvica
was making me feel so much better.
yellowgreentc
in
CLL Support
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Imbruvica side effects
I started 420mg
Imbruvica
June of 2019 and lasted 2 months because of bad side effects. Dr lowered to 280mg Oct 2019 and lasted 7 months, with some side effects diminishing. Dr now lowered it to 140 because my spleen was good along with other tests, however; my platelets and WBC are too low.
I started 420mg
Imbruvica
June of 2019 and lasted 2 months because of bad side effects. Dr lowered to 280mg Oct 2019 and lasted 7 months, with some side effects diminishing. Dr now lowered it to 140 because my spleen was good along with other tests, however; my platelets and WBC are too low.
brooklyn7672
in
CLL Support
4 years ago
CLL and Reumatoid Athuritis
I have been on
Imbruvica
for six months. My joints are really starting to ache and stiffen. My shoulders, hips, back and hands. Is there any relationship between CLL and RA? Thanks, Jim
I have been on
Imbruvica
for six months. My joints are really starting to ache and stiffen. My shoulders, hips, back and hands. Is there any relationship between CLL and RA? Thanks, Jim
Wahoowa
in
CLL Support
4 years ago
Hear Heartbeat in Ear
I have CLL, been taking
Imbruvica
since November of 2018. WBC down to 40,000 from 247,000, just recently started hearing heartbeat in right ear when laying down, Feels like water in your ear after swimming, anybody else ever had this?
I have CLL, been taking
Imbruvica
since November of 2018. WBC down to 40,000 from 247,000, just recently started hearing heartbeat in right ear when laying down, Feels like water in your ear after swimming, anybody else ever had this?
Die-Hard
in
CLL Support
4 years ago
Joint pain and Imbruvica
I know some people have had to quit
Imbruvica
for that very reason. I have already talked to my doctor about this problem but they don’t seem too interested in helping me. I already take a low dose pain medicine for my back but it doesn’t help much. Anybody have any suggestions?
I know some people have had to quit
Imbruvica
for that very reason. I have already talked to my doctor about this problem but they don’t seem too interested in helping me. I already take a low dose pain medicine for my back but it doesn’t help much. Anybody have any suggestions?
BATony
in
CLL Support
4 years ago
How effective is venetoclax for 17p tp53?
His treatments with
imbruvica
stops working and he relapsed. He is 17p to53zHe is now on the rump up in 50 mg per week. His node in the neck wents down at the first day on 20 mg. But still a little bit inflamate. Will it totally dessapear when he increase the dose during the next weeks?
His treatments with
imbruvica
stops working and he relapsed. He is 17p to53zHe is now on the rump up in 50 mg per week. His node in the neck wents down at the first day on 20 mg. But still a little bit inflamate. Will it totally dessapear when he increase the dose during the next weeks?
Cgr2018
in
CLL Support
4 years ago
Bloodwork and FaceTime With oncologist
I’m so happy I’ve been on
Imbruvica
for almost 5 months, with 230,000 w/b Now mine is almost normal 11,000.. just amazing how these pills are working!!! I am so grateful!! I have more energy now than the past 2 years.. Thank you all for taking the time out to read this great news!!
I’m so happy I’ve been on
Imbruvica
for almost 5 months, with 230,000 w/b Now mine is almost normal 11,000.. just amazing how these pills are working!!! I am so grateful!! I have more energy now than the past 2 years.. Thank you all for taking the time out to read this great news!!
littledab
in
CLL Support
4 years ago
Bloodwork and FaceTime With oncologist
I’m so happy I’ve been on
Imbruvica
for almost 5 months, with 230,000 w/b Now mine is almost normal 11,000.. just amazing how these pills are working!!! I am so grateful!! I have more energy now than the past 2 years.. Thank you all for taking the time out to read this great news!!
I’m so happy I’ve been on
Imbruvica
for almost 5 months, with 230,000 w/b Now mine is almost normal 11,000.. just amazing how these pills are working!!! I am so grateful!! I have more energy now than the past 2 years.. Thank you all for taking the time out to read this great news!!
littledab
in
Leukaemia Support
4 years ago
Imbruvica and Gazyva
I have been on
Imbruvica
3 months with really no major side effects but lab work is still high/low, wbc is still high, liver enzymes are high, platelet and hemoglobin is low. My oncologist wants me to try Gazyva for a couple of months to jumpstart the
Imbruvica
. Has anyone had this treatment?
I have been on
Imbruvica
3 months with really no major side effects but lab work is still high/low, wbc is still high, liver enzymes are high, platelet and hemoglobin is low. My oncologist wants me to try Gazyva for a couple of months to jumpstart the
Imbruvica
. Has anyone had this treatment?
HeyWhat72
in
CLL Support
4 years ago
imbruvica
How long has anyone been on
Imbruvica
and how are you feeling.
How long has anyone been on
Imbruvica
and how are you feeling.
brooklyn7672
in
CLL Support
4 years ago
Ventoclax. Node bigger than 2 months ago
He he in
imbruvica
since 2018, and doing great with his 11q and 17p selections. As I told you, this month a node in this neck grows a little big. He has a gastrointestinal problem last week. He still have the node little big.
He he in
imbruvica
since 2018, and doing great with his 11q and 17p selections. As I told you, this month a node in this neck grows a little big. He has a gastrointestinal problem last week. He still have the node little big.
Cgr2018
in
CLL Support
4 years ago
Imbruvica cost exact figures
The total cost of one year of
Imbruvica
420 mg. tablets, assuming United Health Care is accurate (and I assume they are) is $191,533.68. My copay last year was $652 a month after I went into the "catastrophic stage", which happens in January of each year. Then it went up to $701.83.
The total cost of one year of
Imbruvica
420 mg. tablets, assuming United Health Care is accurate (and I assume they are) is $191,533.68. My copay last year was $652 a month after I went into the "catastrophic stage", which happens in January of each year. Then it went up to $701.83.
DelrayDave
in
CLL Support
4 years ago
Has anyone experience face and neck swelling while taking Imbruvica?
I have been on
Imbruvica
for 9 months. I had a rocky start and encountered many side effects (nosebleeds, bruising, severe heartburn, difficulty swallowing) over the first 6 months. As my body adjusted to the medicine most of the side effects went away.
I have been on
Imbruvica
for 9 months. I had a rocky start and encountered many side effects (nosebleeds, bruising, severe heartburn, difficulty swallowing) over the first 6 months. As my body adjusted to the medicine most of the side effects went away.
lizfuccillo
in
CLL Support
4 years ago
Imbruvica cost increase CORRECTION
I now discover that Abbvie did NOT increase their price. For some reason my copay under Medicare Part D has gone up without any increase in the price of the drug. I have no idea why. I will find out. I apologize for assuming, understandably, that the drug cost had gone up.
I now discover that Abbvie did NOT increase their price. For some reason my copay under Medicare Part D has gone up without any increase in the price of the drug. I have no idea why. I will find out. I apologize for assuming, understandably, that the drug cost had gone up.
DelrayDave
in
CLL Support
4 years ago
CLL Treatment
Is this common when taking
Imbruvica
? My counts kept getting worse so it came to a point that my relapse needed this treatment .
Is this common when taking
Imbruvica
? My counts kept getting worse so it came to a point that my relapse needed this treatment .
Kmegood
in
CLL Support
4 years ago
Imbruvica fails?? Whats next?
His levels in analytics are normal levels in febrary, doing great Edith
imbruvica
, and he looks very healthy, practice sports, weight gain, ....but im always very affraid if ibutrinib fails, and he relapse.
His levels in analytics are normal levels in febrary, doing great Edith
imbruvica
, and he looks very healthy, practice sports, weight gain, ....but im always very affraid if ibutrinib fails, and he relapse.
Cgr2018
in
CLL Support
4 years ago
Three-drug GIV combo promising against high-risk CLL - Patients with deletion 17p or TP53 (from EHA Congress)
[i]For patients with high-risk chronic lymphocytic leukemia (CLL), first-line therapy with a triple combination of targeted agents obinutuzumab (Gazyva), ibrutinib (
Imbruvica
), and venetoclax (Venclexta) showed encouraging response rates in the phase 2 CLL2-GIVe trial.
[i]For patients with high-risk chronic lymphocytic leukemia (CLL), first-line therapy with a triple combination of targeted agents obinutuzumab (Gazyva), ibrutinib (
Imbruvica
), and venetoclax (Venclexta) showed encouraging response rates in the phase 2 CLL2-GIVe trial.
AussieNeil
Partner
in
CLL Support
4 years ago
3 Months of Imbruvica update
Imbruvica
has been my friend!
Imbruvica
has been my friend!
12Caine12
in
CLL Support
4 years ago
1
...
12
13
14
...
43
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
CLL Support
806 results
CLL America Support
14 results
Leukaemia Support
9 results
View top 10 communities
Sort by
Most Relevant
Newest