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Disease Flare During Temporary Interruption of Ibrutinib Therapy in Patients with Chronic Lymphocytic Leukemia ( CLL ) - Pseudo Richters
Several of us have reported our CLL symptoms have come roaring back after discontinuing Ibrutinib/
imbruvica
with even a few cases of what's been termed pseudo-Richters, where some patients appear to have even undergone unnecessary R-CHOP chemoimmunotherapy as our member Priss69 has reported:
Several of us have reported our CLL symptoms have come roaring back after discontinuing Ibrutinib/
imbruvica
with even a few cases of what's been termed pseudo-Richters, where some patients appear to have even undergone unnecessary R-CHOP chemoimmunotherapy as our member Priss69 has reported:
AussieNeil
Partner
in
CLL Support
4 years ago
Light headed, nausea, diarrhea
Just finishing week 2 on
imbruvica
. No issues until today. Woke up lightheaded, nauseous, and diarrhea. Is this common?
Just finishing week 2 on
imbruvica
. No issues until today. Woke up lightheaded, nauseous, and diarrhea. Is this common?
Cali69
in
CLL Support
4 years ago
Bruises & Rash
I have been taking 140mg of
Imbruvica
for 3 months and I have been breaking out with lots of Bruises which have been manageable. Any suggestions to keep them at bay. Also, for the past few days, I've broken out in with a really bad rash around my neck.
I have been taking 140mg of
Imbruvica
for 3 months and I have been breaking out with lots of Bruises which have been manageable. Any suggestions to keep them at bay. Also, for the past few days, I've broken out in with a really bad rash around my neck.
brooklyn7672
in
CLL Support
4 years ago
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Imbruvica-related issues: Qs + comments
* If I were to stop taking
Imbruvica
and develop what’s known as
Imbruvica
withdrawal syndrome—according to an
Imbruvica
site, 25% have developed withdrawal symptoms—and then started taking Calquence or Venetoclax, do you know whether I would still get
Imbruvica
withdrawal symptoms—along with possible
* If I were to stop taking
Imbruvica
and develop what’s known as
Imbruvica
withdrawal syndrome—according to an
Imbruvica
site, 25% have developed withdrawal symptoms—and then started taking Calquence or Venetoclax, do you know whether I would still get
Imbruvica
withdrawal symptoms—along with possible
Pogee
in
CLL Support
4 years ago
UPDATE 9/22/20
Thank god and imbrutinib/
Imbruvica
420mg 1 x daily. So to all stay strong and focused as I have for 13 yrs 3 months and so I must still say F-off CLL as I’ve kicked you ass again today and I hope any and all who read this can try to do the same
Thank god and imbrutinib/
Imbruvica
420mg 1 x daily. So to all stay strong and focused as I have for 13 yrs 3 months and so I must still say F-off CLL as I’ve kicked you ass again today and I hope any and all who read this can try to do the same
haposwald
in
CLL Support
4 years ago
Muscle fatigue and height WBC
1 week into
imbruvica
. Experiencing muscle fatigue and weakness. WBC went from 55 to 215. Dr said it’s normal. Anyone have any suggestions for dealing with the muscle fatigue?
1 week into
imbruvica
. Experiencing muscle fatigue and weakness. WBC went from 55 to 215. Dr said it’s normal. Anyone have any suggestions for dealing with the muscle fatigue?
Cali69
in
CLL Support
4 years ago
Rash Side Effect. Imbruvica
Imbruvica
Imbruvica
obtom2
in
CLL Support
4 years ago
ClassyLady3 introduction
I am new on
Imbruvica
, and have had some side effects. The drug is working, though. I appreciate all of the information you all share as we all learn how to live with CLL/SLL after diagnosis.
I am new on
Imbruvica
, and have had some side effects. The drug is working, though. I appreciate all of the information you all share as we all learn how to live with CLL/SLL after diagnosis.
ClassyLady3
in
CLL Support
4 years ago
Bilirubin high from imbruvica
I have been on
imbruvica
for 1 year, my numbers are back to some normalcy, but my bilirubin is up due to the
imbruvica
. Possibly switching to Calquence, has anyone else had similar issue?
I have been on
imbruvica
for 1 year, my numbers are back to some normalcy, but my bilirubin is up due to the
imbruvica
. Possibly switching to Calquence, has anyone else had similar issue?
Tweetybird1962
in
CLL Support
4 years ago
ANC very low
but the doctor took me off
imbruvica
for two weeks and Bactrim that I’ve been taken every other day.. due to low ANC .. absolute neutrophil count any thoughts are welcome! Thank you!!
but the doctor took me off
imbruvica
for two weeks and Bactrim that I’ve been taken every other day.. due to low ANC .. absolute neutrophil count any thoughts are welcome! Thank you!!
littledab
in
CLL Support
4 years ago
Covid-like symptoms every 5 months so far.
I have been on
Imbruvica
420mg for about 3 years, with no side effects. These symptoms just manifested about February of this year(2020). Otherwise no side effects from the medication.
I have been on
Imbruvica
420mg for about 3 years, with no side effects. These symptoms just manifested about February of this year(2020). Otherwise no side effects from the medication.
wondering1
in
CLL Support
4 years ago
Side effects from Imbruvica
Hello, I’m on
Imbruvica
for almost 3 years. Have some side effects: UTI, palpitation in my heart, gain wait, broken nails ( not growing), noise in my head. Did anyone experience the same side effects?
Hello, I’m on
Imbruvica
for almost 3 years. Have some side effects: UTI, palpitation in my heart, gain wait, broken nails ( not growing), noise in my head. Did anyone experience the same side effects?
farber
in
CLL Support
4 years ago
Would Imbruvica lower immunity levels? For how long?
As I heard that one important side effect is that we are prone to serious infections
As I heard that one important side effect is that we are prone to serious infections
AshGS
in
CLL Support
4 years ago
Go off imbruvica
Because he relapsed on
imbruvica
, at the 50 mg dose, the doctors put him off
imbruvica
, in the 50 mg dose and in few days the nodes increased quickly and had fever. So the doctors gave him
imbruvica
again. As I told, he his now on the 400 mg full dose, and also with
imbruvica
, indeed its fails.
Because he relapsed on
imbruvica
, at the 50 mg dose, the doctors put him off
imbruvica
, in the 50 mg dose and in few days the nodes increased quickly and had fever. So the doctors gave him
imbruvica
again. As I told, he his now on the 400 mg full dose, and also with
imbruvica
, indeed its fails.
Cgr2018
in
CLL Support
4 years ago
Walking By Faith Not By Sight
My doctor said my
imbruvica
is still working but mentioned a possibility of adding Venetoclax if Id like. I’m curious if those of you that added the meds did it because
imbruvica
stopped working, or to help with some symptoms. Also, is it normal for your lymph nodes to swell sometimes?
My doctor said my
imbruvica
is still working but mentioned a possibility of adding Venetoclax if Id like. I’m curious if those of you that added the meds did it because
imbruvica
stopped working, or to help with some symptoms. Also, is it normal for your lymph nodes to swell sometimes?
Danid18
in
CLL Support
4 years ago
Joint Pain
I was on
Imbruvica
for 6 months and started having joint pain. My Dr switched me to Calquence to see if I would get any relief. Joint pain continues. It is affecting my sleep. PCP ran blood tests and saw nothing to cause joint pain. Any insights/advice? Thanks
I was on
Imbruvica
for 6 months and started having joint pain. My Dr switched me to Calquence to see if I would get any relief. Joint pain continues. It is affecting my sleep. PCP ran blood tests and saw nothing to cause joint pain. Any insights/advice? Thanks
Wahoowa
in
CLL Support
4 years ago
Imbruvica and hair loss
I’ve been taking
Imbruvica
for 5 months and at 4 months started losing my hair. At this point I’ve lost more than 60% and need to buy a wig. Does anyone know if this is permanent or temporary? Thanks.
I’ve been taking
Imbruvica
for 5 months and at 4 months started losing my hair. At this point I’ve lost more than 60% and need to buy a wig. Does anyone know if this is permanent or temporary? Thanks.
dancingqueenaa
in
CLL Support
4 years ago
Rottie 1934
Does anyone had anything like this on their body while on
imbruvica
?
Does anyone had anything like this on their body while on
imbruvica
?
Rottie1934
in
CLL Support
4 years ago
Searching for patients using calquence
Will begin calquence in one more week after 24 months on
imbruvica
...heard that side effects are less severe. My only concern are headaches which I very rarely suffer from. Any of you members experienced this switch?
Will begin calquence in one more week after 24 months on
imbruvica
...heard that side effects are less severe. My only concern are headaches which I very rarely suffer from. Any of you members experienced this switch?
Redpower
in
CLL America Support
4 years ago
Forearm Pain from Imbruvica
I take 140mg of
Imbruvica
. Thanks
I take 140mg of
Imbruvica
. Thanks
brooklyn7672
in
CLL Support
4 years ago
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