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Image-guided radiation therapy (IGRT)
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Anyone have a dramatic drop in WBC bordering on neutropenia from pelvic radiation (not chemo)?
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
StephH72
in
Advanced Prostate Cancer
1 year ago
new immune therapy phase 1-2 trial: targeting NK cells
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
Maxone73
in
Advanced Prostate Cancer
9 months ago
PSA at 0.285
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
Formosan
in
Advanced Prostate Cancer
3 months ago
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Can I trust a second opinion?
It's not that I don't trust my MO, but he seems to be quite SOC, and doesn't offer options unless I bring them up. Which I have been doing. I even seem to have a reputation for having good questions. Which I am glad to hear, but frankly I don't feel I'm as well educated as all that 🙄. It could be that
It's not that I don't trust my MO, but he seems to be quite SOC, and doesn't offer options unless I bring them up. Which I have been doing. I even seem to have a reputation for having good questions. Which I am glad to hear, but frankly I don't feel I'm as well educated as all that 🙄. It could be that
Lewellen
in
Advanced Prostate Cancer
3 months ago
Silent Reflux and B12 Deficiency- Any Link?
Hello! I was diagnosed with low B12 following a blood test in December last year, on injections but only had 3 of the 6 loading doses then was moved on to one every three months due to severe side effects that worried my GP. Had my first of the 3 monthly ones a few weeks ago and all went well. I saw
Hello! I was diagnosed with low B12 following a blood test in December last year, on injections but only had 3 of the 6 loading doses then was moved on to one every three months due to severe side effects that worried my GP. Had my first of the 3 monthly ones a few weeks ago and all went well. I saw
Hidden
in
Pernicious Anaemia Society
3 months ago
Test results advice please
I was diagnosed Type 2 hypothyroid about 10 years ago. I am currently on 150 mg levothyroxine. I am late 40s, and am on HRT daily: oestrogen 5 pumps, testosterone 1/8 packet; double cerelle ( progesterone ). I am absolutely shattered and feeling constantly unwell. I am struggling with everything - physically
I was diagnosed Type 2 hypothyroid about 10 years ago. I am currently on 150 mg levothyroxine. I am late 40s, and am on HRT daily: oestrogen 5 pumps, testosterone 1/8 packet; double cerelle ( progesterone ). I am absolutely shattered and feeling constantly unwell. I am struggling with everything - physically
strawberryflower
in
Thyroid UK
3 months ago
Hormone Therapy
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
debbiejayn
in
Advanced Prostate Cancer
3 months ago
The continuing saga of Scout and Coco, Not all change is welcome.
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
Scout4answers
in
Advanced Prostate Cancer
3 months ago
Need for less thyroid hormone replacement in summer
Hello everyone, Just a general question as to whether any of you find that you need less thyroid hormone in the summer months? I’ve been well on a dose of combination t4/t3 for about 8 months now- having found my sweet spot last October. However over the past couple of weeks I’ve been experiencing
Hello everyone, Just a general question as to whether any of you find that you need less thyroid hormone in the summer months? I’ve been well on a dose of combination t4/t3 for about 8 months now- having found my sweet spot last October. However over the past couple of weeks I’ve been experiencing
LucyYoga
in
Thyroid UK
3 months ago
Surgeon in Liverpool as requested thyroid bloods and thyroid antibodies 🤗
Hi everyone ❤️ Just posting this, as some members who have been following my struggle with thyroid medication these past 4 years, I decided to discontinue the T4 teva, the silly endo put me back on after taking me off the t3 which was not working due to gastric issues, forgetting also that teva t4 did
Hi everyone ❤️ Just posting this, as some members who have been following my struggle with thyroid medication these past 4 years, I decided to discontinue the T4 teva, the silly endo put me back on after taking me off the t3 which was not working due to gastric issues, forgetting also that teva t4 did
birkie
in
Thyroid UK
6 months ago
Are teeth affected by ADT or Xtandi?
after about 2 months of Lupron and Xtandi my teeth are tender and sore. Any correlation?
after about 2 months of Lupron and Xtandi my teeth are tender and sore. Any correlation?
CousinGrandpa
in
Prostate Cancer Network
3 months ago
Elgard v Lupron
I’ve experienced slowly increasing side effects over the past six to nine months. I passed it off to age and time on ADT, but I’ve recently discovered that I was switched from Lupron Depot to Eligard last November. Everything I read says the SEs should be the same. Has anyone else experienced the
I’ve experienced slowly increasing side effects over the past six to nine months. I passed it off to age and time on ADT, but I’ve recently discovered that I was switched from Lupron Depot to Eligard last November. Everything I read says the SEs should be the same. Has anyone else experienced the
Papa1
in
Advanced Prostate Cancer
3 months ago
Advice on blood test results
10 years after full thyroidectomy (goitre with 4 nodules) and years of somewhat very unstable hormone replacement levels (on levothyroxine only), here are my most recent blood tests done early morning without taking Levothyroxine: 0.48TSH and Free T4: 12.4 I had asked a full panel but got this only
10 years after full thyroidectomy (goitre with 4 nodules) and years of somewhat very unstable hormone replacement levels (on levothyroxine only), here are my most recent blood tests done early morning without taking Levothyroxine: 0.48TSH and Free T4: 12.4 I had asked a full panel but got this only
Lily1970
in
Thyroid UK
3 months ago
PSA still undetectable and testosterone doubles to 1.6
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Brysonal
in
Fight Prostate Cancer
3 months ago
Docetaxel
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
JolleySprings
in
Advanced Prostate Cancer
3 months ago
10 weeks in, not feeling great
I am a 57 year old woman, and had an Nstemi 10 weeks ago, and one stent fitted. I am on 2.5 bisoprolol, tricagrelor, 10 of ramipril, 80 statins and also aspirin. My ejection fraction was poor at 45 (which I found a bit upsetting when it transpired I was the lowest in the rehab class) I was on HRT before
I am a 57 year old woman, and had an Nstemi 10 weeks ago, and one stent fitted. I am on 2.5 bisoprolol, tricagrelor, 10 of ramipril, 80 statins and also aspirin. My ejection fraction was poor at 45 (which I found a bit upsetting when it transpired I was the lowest in the rehab class) I was on HRT before
Pinksock2
in
British Heart Foundation
3 months ago
New to this group/been dealing with FND for a few years
Hi! I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a Functional Neurological Disorder/Functional Movement Disorder diagnosis. I am now in Cognitive Behavioral Therapy to re-train my brain and Physical Therapy to address the physical side of things and it
Hi! I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a Functional Neurological Disorder/Functional Movement Disorder diagnosis. I am now in Cognitive Behavioral Therapy to re-train my brain and Physical Therapy to address the physical side of things and it
eclipsetucker
in
Functional Neurological Disorder - FND Hope
3 months ago
Is PSMA PET Scan worth it when PSA<0.2
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
Maxi54
in
Advanced Prostate Cancer
3 months ago
metallic taste in mouth during pelvic radiation
Has anyone dealt with a metallic taste in mouth during radiation to prostate bed? Husband is 3/4 of the way through his IMRT pelvic radiation and the last few days the sour metallic taste is ever present plus he’s been nauseous with vomiting occasionally and more fatigue. Anyone experienced this during
Has anyone dealt with a metallic taste in mouth during radiation to prostate bed? Husband is 3/4 of the way through his IMRT pelvic radiation and the last few days the sour metallic taste is ever present plus he’s been nauseous with vomiting occasionally and more fatigue. Anyone experienced this during
StephH72
in
Advanced Prostate Cancer
1 year ago
hysterectomy
hi all I’ve just had an appointment with my consultant and looking for some advice..I’m 42 with severe endo and he’s advised a total hysterectomy with hrt.. but he’s advised me the wait will be another yr 😞 AGAIN! Anyway because of the wait he has suggested I start the process early by having an injection
hi all I’ve just had an appointment with my consultant and looking for some advice..I’m 42 with severe endo and he’s advised a total hysterectomy with hrt.. but he’s advised me the wait will be another yr 😞 AGAIN! Anyway because of the wait he has suggested I start the process early by having an injection
Peetzo
in
Endometriosis UK
3 months ago
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