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Implantable cardioverter defibrillator (ICD)

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4,623 public posts

Mirena or endo pain?

Hi all, I had my laparoscopy in December 2020 to remove endo. During the op I had the mirena coil inserted. Now 14 months later, I’m still having pain most days. I finally have a gyno appt coming up in a few weeks and I think they’re going to suggest having my coil taken out, which feels like a really
Hi all, I had my laparoscopy in December 2020 to remove endo. During the op I had the mirena coil inserted. Now 14 months later, I’m still having pain most days. I finally have a gyno appt coming up in a few weeks and I think they’re going to suggest having my coil taken out, which feels like a really
LondonEndo325 profile image
LondonEndo325
in Endometriosis UK
1 year ago

I'm new here

Hi everyone, I'm so glad I came across this page as I feel reassured and more educated already. I went on the pill at 15, to stop my extremely heavy and painful periods and since then everything was fine - periods were regular, a normal amount of pain etc. A year ago, at 22, I decided I no longer wanted
Hi everyone, I'm so glad I came across this page as I feel reassured and more educated already. I went on the pill at 15, to stop my extremely heavy and painful periods and since then everything was fine - periods were regular, a normal amount of pain etc. A year ago, at 22, I decided I no longer wanted
cbradbury profile image
cbradbury
in Endometriosis UK
1 year ago

Contraceptive Coil

Hi, I have stage 4 endometriosis and It has been suggested that I have the coil fitted. I have heard nothing but bad things about having a coil. I was wondering if anyone else has any opinions on if a coil is bad or ok?
Hi, I have stage 4 endometriosis and It has been suggested that I have the coil fitted. I have heard nothing but bad things about having a coil. I was wondering if anyone else has any opinions on if a coil is bad or ok?
Sazle profile image
Sazle
in Endometriosis UK
1 year ago
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Mirena coil and HRT, severe Endo

Hi all first post of new year. Was wandering your experiences . On 20th November 2021 I had my ovaries removed and Severe rectal vaginal Endo also treated. During this surgery I had a mirena coil inserted and also HRT patches. I have bleed from day 1 although settled it’s now a brown discharge quite
Hi all first post of new year. Was wandering your experiences . On 20th November 2021 I had my ovaries removed and Severe rectal vaginal Endo also treated. During this surgery I had a mirena coil inserted and also HRT patches. I have bleed from day 1 although settled it’s now a brown discharge quite
Chicken2012 profile image
Chicken2012
in Endometriosis UK
1 year ago

Hormones affecting vaginal dryness

Hi I’ve been on microgynon for a year and it’s made me really dry and loss of libido, my gp changed me to Yasmin and it’s not improved at all. I’m considering going on the copper IUD but all I hear are negative things. Clearly there’s downsides to any contraceptive. But just wanted peoples advice or
Hi I’ve been on microgynon for a year and it’s made me really dry and loss of libido, my gp changed me to Yasmin and it’s not improved at all. I’m considering going on the copper IUD but all I hear are negative things. Clearly there’s downsides to any contraceptive. But just wanted peoples advice or
S_hennessy profile image
S_hennessy
in BASHH
1 year ago

2nd op/Prostap/Provera - which to choose ..?

Hello everyone, I am hoping for a bit of help/advice on behalf of my 19-year old daughter, who, after having a laperascopy a year ago to drain her ovarian cysts, has been told they are filling up again. She has been given the option of progesterone treatment (provera), Prostap for 1 year, or surgery
Hello everyone, I am hoping for a bit of help/advice on behalf of my 19-year old daughter, who, after having a laperascopy a year ago to drain her ovarian cysts, has been told they are filling up again. She has been given the option of progesterone treatment (provera), Prostap for 1 year, or surgery
Claire49 profile image
Claire49
in Endometriosis UK
1 year ago

Merina coil at 56

Hello I’m 56 in a couple of weeks just been diagnosed endo after biopsy and MRI I had horrific bleeding emergency trip to hospital as bleed was so bad. coil fitted 5 weeks ago I’m old lol no menopause yet as I’ve not stopped bleeding. Anyone else my age ? Just trying to get my head around all this.
Hello I’m 56 in a couple of weeks just been diagnosed endo after biopsy and MRI I had horrific bleeding emergency trip to hospital as bleed was so bad. coil fitted 5 weeks ago I’m old lol no menopause yet as I’ve not stopped bleeding. Anyone else my age ? Just trying to get my head around all this.
Catmum66 profile image
Catmum66
in Endometriosis UK
1 year ago

Mirena coil malposition, low lying

Hi everyone I currently have the Mirena coil which was inserted/replaced during my lap in March 2021. I just had an internal ultrasound due to ongoing add increasing pain to check if any new cysts and luckily none found. However my Mirena is low lying at 7mm low. I have a history of expulsion and malpositioned
Hi everyone I currently have the Mirena coil which was inserted/replaced during my lap in March 2021. I just had an internal ultrasound due to ongoing add increasing pain to check if any new cysts and luckily none found. However my Mirena is low lying at 7mm low. I have a history of expulsion and malpositioned
Claire_Alexandra profile image
Claire_Alexandra
in Endometriosis UK
1 year ago

Could this be bowel endo?

Hi all I had a laparoscopy in October and I told them beforehand that I felt like I had bowel endo, as I often bled from my back passage during my period as well as diarrhoea. They informed me that they would check the surface but wouldn’t check inside. So I had the surgery and they found endo but she
Hi all I had a laparoscopy in October and I told them beforehand that I felt like I had bowel endo, as I often bled from my back passage during my period as well as diarrhoea. They informed me that they would check the surface but wouldn’t check inside. So I had the surgery and they found endo but she
DalmatianGirl profile image
DalmatianGirl
in Endometriosis UK
1 year ago

Josh Downie has Fatal Heart Attack at 24

I know someone who had stents at 30 and someone else who was fitted with an ICD at the same age. https://www.bbc.co.uk/news/uk-england-nottinghamshire-57058626
I know someone who had stents at 30 and someone else who was fitted with an ICD at the same age. https://www.bbc.co.uk/news/uk-england-nottinghamshire-57058626
MichaelJH profile image
MichaelJH
Heart Starin British Heart Foundation
2 years ago

Cannot find an answer to this!

I’m really struggling with perimenopausal hormone fluctuations. My thyroid levels are stable and have been for a while now, however at the beginning of my cycle when my protestors drops and oestrogen increases, I feel awful and it takes a couple of weeks to level out again. I had been using bioidential
I’m really struggling with perimenopausal hormone fluctuations. My thyroid levels are stable and have been for a while now, however at the beginning of my cycle when my protestors drops and oestrogen increases, I feel awful and it takes a couple of weeks to level out again. I had been using bioidential
Murphysmum profile image
Murphysmum
in Thyroid UK
1 year ago

Contraceptive whilst on Decapeptyl - do I really need one?

Has anyone else been in this situation and what were you advised about contraception? I’ve been on Decapeptyl injections for 8 years and these have successfully managed by endometriosis. I have no pain or other symptoms whatsoever now. I get bone scans every 3 years to check my bone density and I’ve
Has anyone else been in this situation and what were you advised about contraception? I’ve been on Decapeptyl injections for 8 years and these have successfully managed by endometriosis. I have no pain or other symptoms whatsoever now. I get bone scans every 3 years to check my bone density and I’ve
Endo1973 profile image
Endo1973
in Endometriosis UK
1 year ago

Pain around ICD

I had an ICD fitted in December. I am still very aware of it and have a stinging sensation in the area and sometimes down my arm. I cannot sleep on either side without feeling discomfort. I have reported this. I had a lot of pain after surgery which was ascribed to a frozen shoulder.
I had an ICD fitted in December. I am still very aware of it and have a stinging sensation in the area and sometimes down my arm. I cannot sleep on either side without feeling discomfort. I have reported this. I had a lot of pain after surgery which was ascribed to a frozen shoulder.
Amaryllis20 profile image
Amaryllis20
in British Heart Foundation
2 years ago

Private laparoscopy

Hey there. I’m a 32 year old female, I had horrendous hyperemesis gravidarium while pregnant and since then my health hasn’t been the same. I’ve developed suspected endometriosis, which became terrible last year and I have a c section niche. Since having my covid booster I’m having a period every 12
Hey there. I’m a 32 year old female, I had horrendous hyperemesis gravidarium while pregnant and since then my health hasn’t been the same. I’ve developed suspected endometriosis, which became terrible last year and I have a c section niche. Since having my covid booster I’m having a period every 12
LS07 profile image
LS07
in Endometriosis UK
1 year ago

Stupid question but...

Why don't all endo sufferers who aren't TTC on the pill to stop the monthly bleeding? Surely bleeding each month just creates more endo, so the first thing to do would be stop the bleeding? My Dr is recommending the coil which "might" stop my periods, it also "might" make me bleed really heavily for
Why don't all endo sufferers who aren't TTC on the pill to stop the monthly bleeding? Surely bleeding each month just creates more endo, so the first thing to do would be stop the bleeding? My Dr is recommending the coil which "might" stop my periods, it also "might" make me bleed really heavily for
Jenn2022 profile image
Jenn2022
in Endometriosis UK
1 year ago

Icd implant

Hi all hope all is well im new here and i have had quadruple heart surgery lord knows how many stents i think its about 10 now im due to go in to hospital on the 30th of this month to have an icd implant done and im worried sick anxiety level is up through the roof any suggestions on how to make my
Hi all hope all is well im new here and i have had quadruple heart surgery lord knows how many stents i think its about 10 now im due to go in to hospital on the 30th of this month to have an icd implant done and im worried sick anxiety level is up through the roof any suggestions on how to make my
Garry56 profile image
Garry56
in British Heart Foundation
2 years ago

Question about ultrasound and anyone else suffering the Irish healthcare system

Does ultrasound actually show anything other than if you are pregnant? I have quite advanced endometriosis and all I've had are ultrasound and the one lap that diagnosed me in 2018. I'm in pain and bloated and fed up with the constant BS from Irish medical professionals, after paying €200 euros for a
Does ultrasound actually show anything other than if you are pregnant? I have quite advanced endometriosis and all I've had are ultrasound and the one lap that diagnosed me in 2018. I'm in pain and bloated and fed up with the constant BS from Irish medical professionals, after paying €200 euros for a
Escapologygirl profile image
Escapologygirl
in Endometriosis UK
1 year ago

Cyst pain - do i need to worry it’s ruptured?

Hey all, Had a laparoscopy in October removing endo from my pelvis and a coil fitted. A few weeks later I was having agonising pain so referred for an ultrasound to check my coil was in the right place, and it was but they found a 5cm cyst on my right ovary which had either grown super fast or been
Hey all, Had a laparoscopy in October removing endo from my pelvis and a coil fitted. A few weeks later I was having agonising pain so referred for an ultrasound to check my coil was in the right place, and it was but they found a 5cm cyst on my right ovary which had either grown super fast or been
DalmatianGirl profile image
DalmatianGirl
in Endometriosis UK
1 year ago

How to decide whether to have a hysterectomy

Hi, I'm newly diagnosed with stage 4 endo including 6 cm cyst and endo on anterior rectal wall. I've seen a private Dr who has advised I'd need surgery rather than just trying hormone treatment and my options are either a lap to remove what they can or a full hysterectomy. I'm 45, so fertility isn't
Hi, I'm newly diagnosed with stage 4 endo including 6 cm cyst and endo on anterior rectal wall. I've seen a private Dr who has advised I'd need surgery rather than just trying hormone treatment and my options are either a lap to remove what they can or a full hysterectomy. I'm 45, so fertility isn't
Jenn2022 profile image
Jenn2022
in Endometriosis UK
1 year ago

Coil contraceptive side effects

Hi everyone, I’m just curious to know if coil contraceptive cause continuous flu ? I have only had it about a month now. Thanks
Hi everyone, I’m just curious to know if coil contraceptive cause continuous flu ? I have only had it about a month now. Thanks
Joyinme91 profile image
Joyinme91
in BASHH
1 year ago
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