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Experiences with
Implantable cardioverter defibrillator (ICD)
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My Four Year Journey
Another worry now… Apparently it’s pace and ablate and an
ICD
for me as a next step. Any comments would be very appreciated and welcome. ♥️
Another worry now… Apparently it’s pace and ablate and an
ICD
for me as a next step. Any comments would be very appreciated and welcome. ♥️
Slidingdoors99
in
Atrial Fibrillation Support
26 days ago
Post ICD Implant-week 2
Hi all, I was hoping to get some feedback/advice from ideally ladies who have undergone
ICD
implant surgery. Today marks two weeks from getting an
ICD
. It is placed under the muscle and towards my armpit, over my left breast.
Hi all, I was hoping to get some feedback/advice from ideally ladies who have undergone
ICD
implant surgery. Today marks two weeks from getting an
ICD
. It is placed under the muscle and towards my armpit, over my left breast.
CamomilleTea
in
British Heart Foundation
8 months ago
AFIB help
Would a pacemaker or
ICD
be a better option? We both just feel so hopeless and powerless waiting for the NHS. Just looking for some support or hope.
Would a pacemaker or
ICD
be a better option? We both just feel so hopeless and powerless waiting for the NHS. Just looking for some support or hope.
ConcernedWifeyy
in
Atrial Fibrillation Support
1 month ago
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New diagnosis of HF and Cardiomyopathy
I'm therefore being referred for
ICD
and my consultant mentioned a transplant if necessary. I'm scared, annoyed, sad and anxious all of the time. I'm a social worker, I love my job and don't want to stop.
I'm therefore being referred for
ICD
and my consultant mentioned a transplant if necessary. I'm scared, annoyed, sad and anxious all of the time. I'm a social worker, I love my job and don't want to stop.
SparkleandShine1
in
British Heart Foundation
3 months ago
Mrs Ben
Hi, I am having an
ICD
fitted for heart failure. Could anyone please advise on how it works and how they feel about having the device. Does it affect your driving. Thank you.
Hi, I am having an
ICD
fitted for heart failure. Could anyone please advise on how it works and how they feel about having the device. Does it affect your driving. Thank you.
A246
in
British Heart Foundation
8 months ago
scaring of the heart
I had an
ICD
fitted, this because I had 2 cardiac arrests 🙈. I’ve had many scans and MRI and they found scaring on my heart ❤️ I’ve had genetics blood test to see if this is hereditary. I suffer from really low blood pressure. This can drop as low as 65/44. Normal for me is 101/54.
I had an
ICD
fitted, this because I had 2 cardiac arrests 🙈. I’ve had many scans and MRI and they found scaring on my heart ❤️ I’ve had genetics blood test to see if this is hereditary. I suffer from really low blood pressure. This can drop as low as 65/44. Normal for me is 101/54.
MRSDJW
in
British Heart Foundation
4 months ago
Sotolol V Nebivolol
After a time in intensive care and CCU he was fitted with an
ICD
, he has a dangerous LV arrithmya . He left hospital on Bisoprolol still, amongst a lot of other meds. On 13th Jan his
ICD
delivered a shock, again he had gone into arrest , thank goodness for the
ICD
.
After a time in intensive care and CCU he was fitted with an
ICD
, he has a dangerous LV arrithmya . He left hospital on Bisoprolol still, amongst a lot of other meds. On 13th Jan his
ICD
delivered a shock, again he had gone into arrest , thank goodness for the
ICD
.
Gazania27
in
British Heart Foundation
6 months ago
ICD insertion and went for Heart Transplant
Hi friends, I have insertion of
ICD
on 5th April, 2024 from City Hospital, Nottingham but I am enlisted in waiting list of heart transplant from Royal popwarth Hospital, Cambridge.
Hi friends, I have insertion of
ICD
on 5th April, 2024 from City Hospital, Nottingham but I am enlisted in waiting list of heart transplant from Royal popwarth Hospital, Cambridge.
MIS_G
in
British Heart Foundation
5 months ago
Impulse Control Disorder on Dopamine Agonists. TV Drama Mr Bates v The Post Office
We have had members on here who have lost homes, marriages, careers and money because of
ICD
. One GP simply told one patient to join Gamblers Anonymous. Enough! It's time to fight back against the ignorance and negligence.
We have had members on here who have lost homes, marriages, careers and money because of
ICD
. One GP simply told one patient to join Gamblers Anonymous. Enough! It's time to fight back against the ignorance and negligence.
Joolsg
in
Restless Legs Syndrome
6 months ago
What's it like getting a crtd / icd shock
Give me the unvarnished truth! 😆I'm 44, very fit, have a very high pain tolerance, want to here honest experiences about people who have had the big shock... Rather than the version from the doctor, who has never experienced it. I've heard it's like being punched in the chest. But punched by who? Mike
Give me the unvarnished truth! 😆I'm 44, very fit, have a very high pain tolerance, want to here honest experiences about people who have had the big shock... Rather than the version from the doctor, who has never experienced it. I've heard it's like being punched in the chest. But punched by who? Mike
Maradona10
in
British Heart Foundation
5 months ago
Statins
I ended up with severe EF and now have an
ICD
. Recent blood tests have shown I have a lowered blood platelet. I am booked in with my GP on 15//2 but am concerned what is causing this. I have read it could be Statins. Is there anyone out there with experience of this ?
I ended up with severe EF and now have an
ICD
. Recent blood tests have shown I have a lowered blood platelet. I am booked in with my GP on 15//2 but am concerned what is causing this. I have read it could be Statins. Is there anyone out there with experience of this ?
Fieldhouse
in
British Heart Foundation
8 months ago
Looking for tips and experience of regaining fitness after an ICD implant for LVT.
The second
ICD
implant and lead revision seems to be healing well and it will be coming up to 4 weeks in a couple of days. I have been increasing my walking, including hills, over that time, without problems.
The second
ICD
implant and lead revision seems to be healing well and it will be coming up to 4 weeks in a couple of days. I have been increasing my walking, including hills, over that time, without problems.
Chinkoflight
in
British Heart Foundation
4 months ago
Do you have an S-ICD with the Latitude box? If so how often does the white heart button flash for you?
However mine flashes every monday and I'm not sure if that is normal and I also understand that pressing it too often runs down the battery in your S-
ICD
.
However mine flashes every monday and I'm not sure if that is normal and I also understand that pressing it too often runs down the battery in your S-
ICD
.
MrHocum
in
Heart Rhythm Disorders Support
2 months ago
Anyone have an S-ICD with the Latitude box? How often does the white heart button flash for you?
However mine flashes every monday and I'm not sure if that is normal and I also understand that pressing it too often runs down the battery in your S-
ICD
.
However mine flashes every monday and I'm not sure if that is normal and I also understand that pressing it too often runs down the battery in your S-
ICD
.
MrHocum
in
British Heart Foundation
2 months ago
recovering after ICD shock - advice about the future
I recently received a shock from my
ICD
at a mainline station in London and spent 2 nights in hospital. My device went off as I was in tachycardia which was 240-260 beats. My condition had been well controlled, following treatment about 8 years ago.
I recently received a shock from my
ICD
at a mainline station in London and spent 2 nights in hospital. My device went off as I was in tachycardia which was 240-260 beats. My condition had been well controlled, following treatment about 8 years ago.
ShaneDullerhit
in
British Heart Foundation
5 months ago
Getting fit again after an ICD implant and LVT diagnosis - tips and experience please.
The second
ICD
implant and lead revision seems to be healing well and it will be coming up to 4 weeks in a couple of days. I have been increasing my walking, including hills, over that time, without problems.
The second
ICD
implant and lead revision seems to be healing well and it will be coming up to 4 weeks in a couple of days. I have been increasing my walking, including hills, over that time, without problems.
Chinkoflight
in
Atrial Fibrillation Support
4 months ago
Three Distinct MS Subtypes Identified
ecd=WNL_EVE_240411_mdedge&
icd
=login_success_email_match_norm&print=1
ecd=WNL_EVE_240411_mdedge&
icd
=login_success_email_match_norm&print=1
BettysMom
in
My MSAA Community
6 months ago
Boston Scientific IV/ICD lead problem - any experience to share please.
Has anyone subsequently had a different device fitted eg sub cutaneous
ICD
? I hope this set of questions is not too specific.
Has anyone subsequently had a different device fitted eg sub cutaneous
ICD
? I hope this set of questions is not too specific.
Chinkoflight
in
British Heart Foundation
6 months ago
Cardiac MRI Scan
I was referred by the electrocardiologist for an MRI to assess the scar tissue etc before looking at an
ICD
... Went along this morning and couldn't do it.
I was referred by the electrocardiologist for an MRI to assess the scar tissue etc before looking at an
ICD
... Went along this morning and couldn't do it.
DaiHatsu
in
British Heart Foundation
8 months ago
ICD advised
My sister has the
ICD
fitted and shes fine but we lead very different lives. Im just at a loss for the real donts.
My sister has the
ICD
fitted and shes fine but we lead very different lives. Im just at a loss for the real donts.
GymLover83
in
British Heart Foundation
10 months ago
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