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Ibrutinib
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Sternum pain after starting Ibrutinib
I assume it is related to the
Ibrutinib
and to joint pains, but my onco does not think so. He will consult with a chest surgeon . Thank you for your help. Godeon
I assume it is related to the
Ibrutinib
and to joint pains, but my onco does not think so. He will consult with a chest surgeon . Thank you for your help. Godeon
GIDI
in
CLL Support
7 years ago
Ibrutinib and diarrhoea
Started
Ibrutinib
3 months ago on the
Ibrutinib
/Venetoclax Trial. No side effects until start of week 8...diarrhoea. Didn't bother me at first as only once a day at my "usual time".
Started
Ibrutinib
3 months ago on the
Ibrutinib
/Venetoclax Trial. No side effects until start of week 8...diarrhoea. Didn't bother me at first as only once a day at my "usual time".
catnapcrew
in
CLL Support
7 years ago
Ibrutinib pain in cll
My dad who is a 56 yrs old had suffered from
ibrutinib
pain. It was mainly in knee and legs. As we know normal analgesics such as acetaminophen or gabapentin have interaction with imbruvica. We started using morphin each 4h. The pain strength was reduced but a dull pain was remained.
My dad who is a 56 yrs old had suffered from
ibrutinib
pain. It was mainly in knee and legs. As we know normal analgesics such as acetaminophen or gabapentin have interaction with imbruvica. We started using morphin each 4h. The pain strength was reduced but a dull pain was remained.
Aliyeh
in
CLL Support
7 years ago
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chlorambucil + obinutuzumba
Also considering clinical trials with
ibrutinib
+obintuzumab+venetoclax as one arm and second arm is
ibrutinib
+obintuzumab. Max time on these drugs is 2 years. Any comments as to choosing one over the other.
Also considering clinical trials with
ibrutinib
+obintuzumab+venetoclax as one arm and second arm is
ibrutinib
+obintuzumab. Max time on these drugs is 2 years. Any comments as to choosing one over the other.
eoravillo
in
CLL Support
7 years ago
Ibrutinib severe bone pain
We have started
ibrutinib
from last week. One capsul each two days.(mon, wed, fri...) but from the first dose he experienced a severe bone pain on his both legs. All pain killers except morphin have interaction with
ibrutinib
so we went through it.
We have started
ibrutinib
from last week. One capsul each two days.(mon, wed, fri...) but from the first dose he experienced a severe bone pain on his both legs. All pain killers except morphin have interaction with
ibrutinib
so we went through it.
Aliyeh
in
CLL Support
7 years ago
Ibrutinib as frontline??
I've read posts on here which seem to claim that the new immunotherapies such as
Ibrutinib
have a better outcome when used as a first treatment, instead of FCR. Also that the residual toxiticies of FCR, negatively affect
ibrutinib
.
I've read posts on here which seem to claim that the new immunotherapies such as
Ibrutinib
have a better outcome when used as a first treatment, instead of FCR. Also that the residual toxiticies of FCR, negatively affect
ibrutinib
.
bendintheroad1
in
CLL Support
7 years ago
Fiebre (Fever with Ibrutinib - dose reduction)
Estoy en mi 5 semana de
ibrutinib
y mis efectos adversos comenzaron a aparecer. Fiebre no muy alta pero constante . A otros les pasa asi? Me redujeron la dosis a 1 pastilla por dia 140mg. Gracias
Estoy en mi 5 semana de
ibrutinib
y mis efectos adversos comenzaron a aparecer. Fiebre no muy alta pero constante . A otros les pasa asi? Me redujeron la dosis a 1 pastilla por dia 140mg. Gracias
Bixilon
in
CLL Support
7 years ago
Summer Delivery of Ibrutinib
The "GLACIER ICE' packs that Diplomat Pharmacy uses for summer time shipments of
ibrutinib
are perfect for cooling my fresh-picked, blanched green beans! Sorry, I couldn't resist. gardening-girl
The "GLACIER ICE' packs that Diplomat Pharmacy uses for summer time shipments of
ibrutinib
are perfect for cooling my fresh-picked, blanched green beans! Sorry, I couldn't resist. gardening-girl
gardening-girl
in
CLL Support
7 years ago
Ibrutinib/ Venetoclax Trial
Have now completed 10 months of the
Ibrutinib
Venetoclax trial and my white count is now 4.3.On the whole have been ok apart from an onward going problem with cystitis. Wondered if there was anyone else on the same trial and how they were doing.
Have now completed 10 months of the
Ibrutinib
Venetoclax trial and my white count is now 4.3.On the whole have been ok apart from an onward going problem with cystitis. Wondered if there was anyone else on the same trial and how they were doing.
SueKRM
in
CLL Support
7 years ago
Questions now that I'm 3 wks into using ibrutinib
I'm curious to know what users of
ibrutinib
have to say as well. - how serious are the bruising and red pinpoint spots on my arms/legs? - am I doubly susceptible to picking up infections and developing skin cancer now that I'm on this medication?
I'm curious to know what users of
ibrutinib
have to say as well. - how serious are the bruising and red pinpoint spots on my arms/legs? - am I doubly susceptible to picking up infections and developing skin cancer now that I'm on this medication?
esplanade
in
CLL America Support
7 years ago
CLL Rash
Hi, I'm 62 and been on
Ibrutinib
for 3 years. Treatment is going well and blood results are normal for the first time since 2011. Previously treated in a clinical trial called Artic Trial. It was brutal several admission to hospital , pneumonia and fluid on lungs.
Hi, I'm 62 and been on
Ibrutinib
for 3 years. Treatment is going well and blood results are normal for the first time since 2011. Previously treated in a clinical trial called Artic Trial. It was brutal several admission to hospital , pneumonia and fluid on lungs.
Fastbike14
in
CLL Support
7 years ago
Ibrutinib/Venetoclax and travel insurance
Has anybody in UK tried to get travel insurance while in
Ibrutinib
and/or Venetoclax? Same question also for anyone who has in a trial? In my most recent visit for a checkup the doctor (when asked) told me they were OK with me travelling again within Europe given my current blood results.
Has anybody in UK tried to get travel insurance while in
Ibrutinib
and/or Venetoclax? Same question also for anyone who has in a trial? In my most recent visit for a checkup the doctor (when asked) told me they were OK with me travelling again within Europe given my current blood results.
Oleboyredw-uk
in
CLL Support
7 years ago
Splitting nails
Will be starting
ibrutinib
soon with prednisone . Right now taking prednisone because my hemoglobin is 7.5 and they can't find blood to be transfused. I have to many antibodies in my blood. Feeling tired, resting and tv.
Will be starting
ibrutinib
soon with prednisone . Right now taking prednisone because my hemoglobin is 7.5 and they can't find blood to be transfused. I have to many antibodies in my blood. Feeling tired, resting and tv.
Corkyrissa
in
CLL Support
7 years ago
Venetoclax -> Ibrutinib
He could not afford
Ibrutinib
but got enrolled into a 2-year Venetoclax trial. Meanwhile, we are seeking opportunities to get
Ibrutinib
which is less expensive than Venetoclax. Hopefully, by the end of this 2-year period, he could get it.
He could not afford
Ibrutinib
but got enrolled into a 2-year Venetoclax trial. Meanwhile, we are seeking opportunities to get
Ibrutinib
which is less expensive than Venetoclax. Hopefully, by the end of this 2-year period, he could get it.
artkula
in
CLL Support
7 years ago
FISH test result changed post chemo
Hospital think
Ibrutinib
only option. He has IVIG infusions for repeated infections. Anyone else been in this situation. Was a total shock to find these deletions and am very worried re prognosis. Any input gratefully received. We live in UK.
Hospital think
Ibrutinib
only option. He has IVIG infusions for repeated infections. Anyone else been in this situation. Was a total shock to find these deletions and am very worried re prognosis. Any input gratefully received. We live in UK.
lemsford
in
CLL Support
7 years ago
CLL TREATMENT
States antibioties and rituxamab.....the other says
ibrutinib
..... Is ibrutnib contra indicated in use due to autoimmune thrombocytopenia?
States antibioties and rituxamab.....the other says
ibrutinib
..... Is ibrutnib contra indicated in use due to autoimmune thrombocytopenia?
vdarr1
in
Leukaemia Support
7 years ago
Ibrutinib/Vebetoclax Journey August update
Well, another trip to hospital yesterday, delayed slightly as holiday in UK caused a lot of appointment moves. Nothing significant to report on the numbers front, this was a 'small month' with only three blood samples taken. I do have some sort of irritating rash/skin problem in two fingers if my left
Well, another trip to hospital yesterday, delayed slightly as holiday in UK caused a lot of appointment moves. Nothing significant to report on the numbers front, this was a 'small month' with only three blood samples taken. I do have some sort of irritating rash/skin problem in two fingers if my left
Oleboyredw-uk
in
CLL Support
7 years ago
Ibrutinib & hair
Are there any side effects regarding hair? I've read about nails & muscle cramps. Trying to prepare myself before I start.
Are there any side effects regarding hair? I've read about nails & muscle cramps. Trying to prepare myself before I start.
CoBubby
in
CLL Support
7 years ago
Acidez con Ibrutinub
Algunos sufren de acidez con
ibrutinib
? A pesar de usar omeprazol de 20mg. Sufro de acidez. No se si podre agregar un amtiacido? Aca en Argentina se usa Mylanta .pero no se si tomarlo. Como lo solucionan? Gracias
Algunos sufren de acidez con
ibrutinib
? A pesar de usar omeprazol de 20mg. Sufro de acidez. No se si podre agregar un amtiacido? Aca en Argentina se usa Mylanta .pero no se si tomarlo. Como lo solucionan? Gracias
Bixilon
in
CLL Support
7 years ago
High fever as side effect of Ibrutinib ?
My hemarologist does not think the high fever is a side effect of
Ibrutinib
. I do think it is. I have no other infection . Did anyone suffer from high fever as a side effect from
Ibrutinib
? Thank you for your support.
My hemarologist does not think the high fever is a side effect of
Ibrutinib
. I do think it is. I have no other infection . Did anyone suffer from high fever as a side effect from
Ibrutinib
? Thank you for your support.
GIDI
in
CLL Support
7 years ago
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