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Ibrutinib
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Venetoclax plus Rituximab
http://www.cancernetwork.com/chronic-lymphocytic-leukemia/venetoclax-rituximab-improves-survival-relapsedrefractory-cll —Dennis, 71,
Ibrutinib
http://www.cancernetwork.com/chronic-lymphocytic-leukemia/venetoclax-rituximab-improves-survival-relapsedrefractory-cll —Dennis, 71,
Ibrutinib
Fant1924
in
CLL Support
7 years ago
Loss of a great man
He tried
Ibrutinib
July 2016 and had a beautiful response the first 6 weeks which was one of the last times I’ve heard my father say “boy I feel great”. In mid August 2016, the dose was increased and the toxicity levels and side effects became too much to bear.
He tried
Ibrutinib
July 2016 and had a beautiful response the first 6 weeks which was one of the last times I’ve heard my father say “boy I feel great”. In mid August 2016, the dose was increased and the toxicity levels and side effects became too much to bear.
Stevediam
in
CLL Support
7 years ago
New
I looked up prices and there is no way I will be able to afford
ibrutinib
. I can not put my family in the poor house.
I looked up prices and there is no way I will be able to afford
ibrutinib
. I can not put my family in the poor house.
joann504
in
CLL Support
7 years ago
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Cll with thrush
Husband now going to start
ibrutinib
which was delayed as we had not received appointment for his has lung condition of plural effusion, Eventually received appointment to for 12th February when they will aspirate and seeing cll consultant on 4th March to hopefully commence treatment.
Husband now going to start
ibrutinib
which was delayed as we had not received appointment for his has lung condition of plural effusion, Eventually received appointment to for 12th February when they will aspirate and seeing cll consultant on 4th March to hopefully commence treatment.
Fannynorthy
in
CLL Support
7 years ago
Neutropenia with Ibrutinib
The doctor says it is very unlikely to be linked to
Ibrutinib
. Yet, neutropenia is stated as one of the side effects. Otherwise, the response to
Ibrutinib
is fine so far with manageable AFIB.
The doctor says it is very unlikely to be linked to
Ibrutinib
. Yet, neutropenia is stated as one of the side effects. Otherwise, the response to
Ibrutinib
is fine so far with manageable AFIB.
artkula
in
CLL Support
7 years ago
SERIOUSLY sore throat!
I'm seeing my consultant tomorrow, but my question is this: do
Ibrutinib
side effects get better??
I'm seeing my consultant tomorrow, but my question is this: do
Ibrutinib
side effects get better??
UKfulloflife
in
CLL Support
7 years ago
When is the best time of day to take Venetoclax
I an TP53 depleated and failed
Ibrutinib
after 3 months due to very sever side effects, such as A-FIB , uncontrolled Parkinsonian tremor , asceptic hemingitis, constant fever and sever bones' pain. 2 weeks after stopping IB my lymph nodes are back. Thanks Gidi
I an TP53 depleated and failed
Ibrutinib
after 3 months due to very sever side effects, such as A-FIB , uncontrolled Parkinsonian tremor , asceptic hemingitis, constant fever and sever bones' pain. 2 weeks after stopping IB my lymph nodes are back. Thanks Gidi
GIDI
in
CLL Support
7 years ago
Pain
Exactly on my capitate and middle finger (
ibrutinib
since november 2017 )... Anyone with this kind of pain? Terrible..both shoulders are still "killing" with pain also...
Exactly on my capitate and middle finger (
ibrutinib
since november 2017 )... Anyone with this kind of pain? Terrible..both shoulders are still "killing" with pain also...
Deta1961
in
CLL Support
7 years ago
This is my rant for the day
Today is my first day without taking
Ibrutinib
since April 2, 2017. Last November my company made the decision to change insurance providers.
Today is my first day without taking
Ibrutinib
since April 2, 2017. Last November my company made the decision to change insurance providers.
pilantd
in
CLL Support
7 years ago
This trial is going to reopen- Called CAPTIVATE. Ibrutinib plus venetoclax study sponsored by Pharmacyclics - Study Number PCYC-1142 .
Title: Phase 2 Study of the Combination of
Ibrutinib
Plus Venetoclax in Subjects With Treatment-naïve Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma Be well, Hoffy
Title: Phase 2 Study of the Combination of
Ibrutinib
Plus Venetoclax in Subjects With Treatment-naïve Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma Be well, Hoffy
Hoffy
in
CLL Support
7 years ago
Ibrutinib / Venetoclax (Ramp up)
Hi everyone. Well its been a while since the last time I posted. I wanted to share my experience so far on the Clinical Trial I'm on IB with V. I have been on IB now since October and experienced every side effect you can think of in the beginning.. Nothing serious. Muscle cramps.. Burning in my finger
Hi everyone. Well its been a while since the last time I posted. I wanted to share my experience so far on the Clinical Trial I'm on IB with V. I have been on IB now since October and experienced every side effect you can think of in the beginning.. Nothing serious. Muscle cramps.. Burning in my finger
BCTexas
in
CLL Support
7 years ago
Spots with Ibrutinib
Have been on
Ibrutinib
for over a year and had few side effects. But just lately have experienced blemishes on my skin. Is this a possible side effect?
Have been on
Ibrutinib
for over a year and had few side effects. But just lately have experienced blemishes on my skin. Is this a possible side effect?
Broadbent
in
CLL Support
7 years ago
CLL Programme on BBC Radio 4
., there is a programme on BBC Radio4 on CLL; seems to be focussing on a Venetoclax/
Ibrutinib
trial at Leeds. Reporter is Simon Cox, a senior BBC reporter who has CLL. There is also a "story" on the BBC News app today (6th).
., there is a programme on BBC Radio4 on CLL; seems to be focussing on a Venetoclax/
Ibrutinib
trial at Leeds. Reporter is Simon Cox, a senior BBC reporter who has CLL. There is also a "story" on the BBC News app today (6th).
MR2Don
in
CLL Support
7 years ago
Ibrutinib and Shingrix issues
“
Ibrutinib
is an immunosuppressant drug, which may diminish the therapeutic effect of Vaccines (Inactivated). So we would not recommend any vaccinations during this treatment.” I found this dissapointing.
“
Ibrutinib
is an immunosuppressant drug, which may diminish the therapeutic effect of Vaccines (Inactivated). So we would not recommend any vaccinations during this treatment.” I found this dissapointing.
Roydeane
in
CLL Support
7 years ago
18months after FLAIR trial and hip arthritis looms....
18 months since abandoning FLAIR trial of
Ibrutinib
and Rituximab have been pretty well but the blood results are worsening and more treatment suggested soon- though I see two consultants and one wants to "nip it in the bud" (I thought it didn't make any difference) and the other thinks I am fine for
18 months since abandoning FLAIR trial of
Ibrutinib
and Rituximab have been pretty well but the blood results are worsening and more treatment suggested soon- though I see two consultants and one wants to "nip it in the bud" (I thought it didn't make any difference) and the other thinks I am fine for
romarin
in
CLL Support
7 years ago
flair trial started today
Hi feeling positive after a 5 year w&w today I started my trial of inbrutinib and venetoclax for 1st line treatment here in uk On
ibrutinib
for 8 weeks then add venetoclax over a few weeks untill I reach higher dose . Been reading posts on treatment and Im hoping for a minimum side effect journey
Hi feeling positive after a 5 year w&w today I started my trial of inbrutinib and venetoclax for 1st line treatment here in uk On
ibrutinib
for 8 weeks then add venetoclax over a few weeks untill I reach higher dose . Been reading posts on treatment and Im hoping for a minimum side effect journey
buzzybab
in
CLL Support
7 years ago
Watch and wait is over
I am going to Dana Farber and taking part of a study that combines
Ibrutinib
with standard FCR treatment. I will take the
Ibrutinib
daily for the next 2 years and finished my 1st cycle of FCR 12/19.
I am going to Dana Farber and taking part of a study that combines
Ibrutinib
with standard FCR treatment. I will take the
Ibrutinib
daily for the next 2 years and finished my 1st cycle of FCR 12/19.
Mosaicgigi
in
CLL Support
7 years ago
Venetoclax and spleen enlarging
My husband is on an
ibrutinib
venetoclax combo trial. His spleen reduced after initial few months on
ibrutinib
but after 4 doses of Ven, it looks nearly as large as before treatment. Anyone on Ven experience something similar? Thank you.
My husband is on an
ibrutinib
venetoclax combo trial. His spleen reduced after initial few months on
ibrutinib
but after 4 doses of Ven, it looks nearly as large as before treatment. Anyone on Ven experience something similar? Thank you.
Barbshow
in
CLL America Support
7 years ago
Falling Platelets with Venetoclax
I started Venetoclax in October when
Ibrutinib
became ineffective after three years with the white blood cell count rising and the platelets falling. I had no problems with the ramp up or serious side effects on the full dose.
I started Venetoclax in October when
Ibrutinib
became ineffective after three years with the white blood cell count rising and the platelets falling. I had no problems with the ramp up or serious side effects on the full dose.
prbild
in
CLL America Support
7 years ago
Please can you tell me your symptoms and the levels of your WBC when you were started on Ibrutinib...
Today it is 183 and my consultant wants to start me on
Ibrutinib
- I am VERY nervous because it is still a fairly new treatment. Please can you tell me your symptoms and the levels of your WBC when you were started on
Ibrutinib
.
Today it is 183 and my consultant wants to start me on
Ibrutinib
- I am VERY nervous because it is still a fairly new treatment. Please can you tell me your symptoms and the levels of your WBC when you were started on
Ibrutinib
.
RitaBa
in
CLL Support
7 years ago
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