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Ibrutinib
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Venetoclax/Ibrutinib update
Hi I wanted to follow up with everyone. I started the V&I clinical trial Oct 2017. When i started my cancer was at 30% infiltration in my bone marrow. I just recieved my last BMB results and i am now at 0.01%. Im in remission!!!!! Dr. Thompson at MDA says my next BMB results should show MRD!!! If you
Hi I wanted to follow up with everyone. I started the V&I clinical trial Oct 2017. When i started my cancer was at 30% infiltration in my bone marrow. I just recieved my last BMB results and i am now at 0.01%. Im in remission!!!!! Dr. Thompson at MDA says my next BMB results should show MRD!!! If you
BCTexas
in
CLL Support
6 years ago
Joint Pain
What is the cause of joint pain with
ibrutinib
?
What is the cause of joint pain with
ibrutinib
?
ibrutinibpain
in
CLL Support
6 years ago
Ibrutinib my story update
Mick https://www.nottinghampost.com/news/health/
ibrutinib
-cancer-drug-nhs-1681366
Mick https://www.nottinghampost.com/news/health/
ibrutinib
-cancer-drug-nhs-1681366
Mick491
in
CLL Support
6 years ago
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A remembrance of P.C. Venkat - plus
Hi All, I am emailing from the Kafe Kerouac on High St. in Columbus OH on the ending of my 7th year for successful containment of my CLL with PCI-32765 (
Ibrutinib
/Imbruvica).
Hi All, I am emailing from the Kafe Kerouac on High St. in Columbus OH on the ending of my 7th year for successful containment of my CLL with PCI-32765 (
Ibrutinib
/Imbruvica).
ThreeWs
in
CLL Support
6 years ago
Iron infusion?
I am really confused...has anyone else had iron infusions when on
ibrutinib
? Is low ferritin caused by
ibrutinib
? Will see my hemo/oncologist before I go get the iron transfusion! Don't want to have transfusion if it is not necessary
I am really confused...has anyone else had iron infusions when on
ibrutinib
? Is low ferritin caused by
ibrutinib
? Will see my hemo/oncologist before I go get the iron transfusion! Don't want to have transfusion if it is not necessary
joycecanada
in
CLL Support
6 years ago
Medical update
If anyone still has not signed the petition regarding
Ibrutinib
please do. It could be you next. Stay well all. Mick
If anyone still has not signed the petition regarding
Ibrutinib
please do. It could be you next. Stay well all. Mick
Mick491
in
CLL Support
6 years ago
Ibrutinib petition
It's hoped to keep me going and well enough for a trial that maybe available in August of which
Ibrutinib
is used. If you have not already signed the petition please do and please share with your friends and family. Thankyou Mick Smith MBE https://petition.parliament.uk/petitions/220038
It's hoped to keep me going and well enough for a trial that maybe available in August of which
Ibrutinib
is used. If you have not already signed the petition please do and please share with your friends and family. Thankyou Mick Smith MBE https://petition.parliament.uk/petitions/220038
Mick491
in
CLL Support
6 years ago
Study shedding more light on how Ibrutinib works
Interesting paper on the mode of action of
Ibrutinib
and idealisb. This might explain some of the clinical manifestations of treatment, and would support the idea of combining one of these drugs with another drug.
Interesting paper on the mode of action of
Ibrutinib
and idealisb. This might explain some of the clinical manifestations of treatment, and would support the idea of combining one of these drugs with another drug.
AdrianUK
in
CLL Support
6 years ago
Not MRD- yet
Although a full remission due to the excellent synergy of
Ibrutinib
(9 periods) and Venetoclax (6 periods) there is still a level of approx 10 percent of cll disease in my pb. Ofcourse I hoped to be one of the succesful cohort Dr.
Although a full remission due to the excellent synergy of
Ibrutinib
(9 periods) and Venetoclax (6 periods) there is still a level of approx 10 percent of cll disease in my pb. Ofcourse I hoped to be one of the succesful cohort Dr.
Yvbb
in
CLL Support
6 years ago
Forearm rash
I am on
Ibrutinib
(3years) now. Apart from another visit to doctor any advice? Thanks Foolish
I am on
Ibrutinib
(3years) now. Apart from another visit to doctor any advice? Thanks Foolish
foolish
in
CLL Support
6 years ago
Sleep deprived
Can you take melatonin if you’re on
Ibrutinib
?
Can you take melatonin if you’re on
Ibrutinib
?
SunnyCA
in
CLL Support
6 years ago
Ibrutinib only (FLAIR) - 3 months in
The doctor said 'slowness of the rising bloods with
Ibrutinib
with-out any helpers does take its time, but it get there, which what counts'. He also said the he was always amazed how people get fit quickly after starting IB.
The doctor said 'slowness of the rising bloods with
Ibrutinib
with-out any helpers does take its time, but it get there, which what counts'. He also said the he was always amazed how people get fit quickly after starting IB.
zaax
in
CLL Support
6 years ago
Ibrutinib and mouth sores anyone?
I have been on
Ibrutinib
for almost 3 months and being treated for painful mouth sores. Anyone experienced this? It’s been almost 3 weeks and taking antibiotic 200MG Diflucan for 7 days.
I have been on
Ibrutinib
for almost 3 months and being treated for painful mouth sores. Anyone experienced this? It’s been almost 3 weeks and taking antibiotic 200MG Diflucan for 7 days.
eoravillo
in
CLL Support
6 years ago
Ibrutinib
I have just taken delivery of my first month's pack of
Ibrutinib
and will have my first dose later.
I have just taken delivery of my first month's pack of
Ibrutinib
and will have my first dose later.
jaypax
in
CLL Support
6 years ago
CLL, Ibrutinib and kidney filtration
Is
Ibrutinib
causing this? Will this be reversed if my whites reach normal levels in the next few months? I am getting worried about my kidneys.
Is
Ibrutinib
causing this? Will this be reversed if my whites reach normal levels in the next few months? I am getting worried about my kidneys.
Mos1
in
CLL Support
6 years ago
Will reducing Ibrutinib dosage increase neutrophils?
We have not been able to see our regular oncology doctor for a month now. So, when a substitute doctor from Miami (who is a hematologist and oncologist) talked with us....he has decided to reduce my husband's dosage from 420 to 280? My husband's neutrophils have dropped to .8 from 1.3 and 2.3. Does
We have not been able to see our regular oncology doctor for a month now. So, when a substitute doctor from Miami (who is a hematologist and oncologist) talked with us....he has decided to reduce my husband's dosage from 420 to 280? My husband's neutrophils have dropped to .8 from 1.3 and 2.3. Does
kathymac52
in
CLL Support
6 years ago
CLL: FLAIR Trial site list and update to design
----------------------------------------------- We are due to close the
ibrutinib
+ rituximab arm in the very near future.
----------------------------------------------- We are due to close the
ibrutinib
+ rituximab arm in the very near future.
AdrianUK
in
Leukaemia CARE
6 years ago
HG and platelet number for starting therapy
How much number of hemoglobin and platelet when you started chemotherapy (or
ibrutinib
etc.). Thank you. Miee
How much number of hemoglobin and platelet when you started chemotherapy (or
ibrutinib
etc.). Thank you. Miee
Miee
in
CLL Support
6 years ago
Platelets dropping after 7 Months on Ibrutinib
I am being tested every 2 weeks now but worried that I may becoming
Ibrutinib
resistant. Has anyone else experienced this? Thanks!
I am being tested every 2 weeks now but worried that I may becoming
Ibrutinib
resistant. Has anyone else experienced this? Thanks!
naddude
in
CLL Support
6 years ago
New Clinical Trial of Ibrutinib + Venetoclax for people relapsing on Ibrutinib
Yesterday I started a new clinical trial at UCSD for people that have relapsed on
Ibrutinib
. I had been a part of the RESONATE trial and have been on
Ibrutinib
for 4 1/2 years. Early this year began a trend of increasing ALC and enlarging lymph nodes.
Yesterday I started a new clinical trial at UCSD for people that have relapsed on
Ibrutinib
. I had been a part of the RESONATE trial and have been on
Ibrutinib
for 4 1/2 years. Early this year began a trend of increasing ALC and enlarging lymph nodes.
Teegolf47
in
CLL Support
6 years ago
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