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Ibrutinib
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COVID risk to CLL patients with the reopening of schools
As some of you know my wife Jan was diagnosed in 2011 age 39 after 3 years very sick she was fortunate to get on an
Ibrutinib
trial in Leeds in 2014. Thankfully bloods are good now but her immune system never recovered and she has repeated infections and must have IVIG's monthly since 2012.
As some of you know my wife Jan was diagnosed in 2011 age 39 after 3 years very sick she was fortunate to get on an
Ibrutinib
trial in Leeds in 2014. Thankfully bloods are good now but her immune system never recovered and she has repeated infections and must have IVIG's monthly since 2012.
Irishcll
in
CLL Support
4 years ago
COVID risk to CLL Patients with the reopening of schools in Ireland
As some of you know my wife Jan was diagnosed in 2011 age 39 after 3 years very sick she was fortunate to get on an
Ibrutinib
trial in Leeds in 2014. Thankfully bloods are good now but her immune system never recovered and she has repeated infections and must have IVIG's monthly since 2012.
As some of you know my wife Jan was diagnosed in 2011 age 39 after 3 years very sick she was fortunate to get on an
Ibrutinib
trial in Leeds in 2014. Thankfully bloods are good now but her immune system never recovered and she has repeated infections and must have IVIG's monthly since 2012.
Irishcll
in
CLL Ireland
4 years ago
Shingrex?
I will be starting my fifth month on
ibrutinib
and wasn’t able to get the booster in a timely fashion, any thoughts? Michael
I will be starting my fifth month on
ibrutinib
and wasn’t able to get the booster in a timely fashion, any thoughts? Michael
Moqua
in
CLL Support
4 years ago
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Hair loss on Ibrutinib
I started taking
Ibrutinib
on July 4th. I also started taking 10,000 mg of Biotin. My hair seems to be breaking off. Is this a temporary side effect or a lasting one? Thanks for your comments.
I started taking
Ibrutinib
on July 4th. I also started taking 10,000 mg of Biotin. My hair seems to be breaking off. Is this a temporary side effect or a lasting one? Thanks for your comments.
Kyranbigeyes
in
CLL Support
4 years ago
Ibrutinib and Covid 19
Five patients on
Ibrutinib
full dose experienced this when they caught the Coronavirus and a sixth who had stopped taking
Ibrutinib
got ill and was hospitalised was given a full dose and immediately recovered.
Five patients on
Ibrutinib
full dose experienced this when they caught the Coronavirus and a sixth who had stopped taking
Ibrutinib
got ill and was hospitalised was given a full dose and immediately recovered.
Berrytog
in
CLL Support
4 years ago
Ibrutinib and Tylenol with codeine
Beastly toothache for 4 days and extra strength Tylenol isn't doing a thing to cut the pain. Can I safely take Tylenol with codeine until I am able to get into a dentist?
Beastly toothache for 4 days and extra strength Tylenol isn't doing a thing to cut the pain. Can I safely take Tylenol with codeine until I am able to get into a dentist?
Imbub
in
CLL Support
4 years ago
Stopping Ibrutinib?
Does this look like
Ibrutinib
is not working?
Does this look like
Ibrutinib
is not working?
kathymac52
in
CLL Support
4 years ago
My mom has been on Ibrutinib for 1year.Her latest report shows low platelet count 120 with giant platelets. HB and TLC ok. Significance?
Mom has been on
Ibrutinib
for a year and a half.Her latest report shows low platelet count120 with giant platelets. HB and TLC ok. What does that signify?
Mom has been on
Ibrutinib
for a year and a half.Her latest report shows low platelet count120 with giant platelets. HB and TLC ok. What does that signify?
Kamlesh70
in
CLL Support
4 years ago
Tp53 (17p13.2)
How effective is
Ibrutinib
with Rituximab (6 rounds) for a Tp53 deletion.
How effective is
Ibrutinib
with Rituximab (6 rounds) for a Tp53 deletion.
ANA4
in
CLL Support
4 years ago
An investigation into the fake Richters is about to open
He has proposed an extensive study to know how RT behaves once
Ibrutinib
is withdrawn. Patients with RT are coming out and after being given
Ibrutinib
again they have been biopsied and there is no trace of RT in their nodes.
He has proposed an extensive study to know how RT behaves once
Ibrutinib
is withdrawn. Patients with RT are coming out and after being given
Ibrutinib
again they have been biopsied and there is no trace of RT in their nodes.
Priss69
in
CLL Support
4 years ago
Clemastine (Tavegyl), an over-the-counter drug, found to be effective at inducing LMP and cell death
This study proposes a potential novel treatment strategy for CLL, repurposing FDA-approved allergy medications in combination with the targeted therapy
ibrutinib
to enhance drug efficacy." — Antihistamines are synergistic with Bruton’s tyrosine kinase inhibiter
ibrutinib
mediated by lysosome disruption
This study proposes a potential novel treatment strategy for CLL, repurposing FDA-approved allergy medications in combination with the targeted therapy
ibrutinib
to enhance drug efficacy." — Antihistamines are synergistic with Bruton’s tyrosine kinase inhibiter
ibrutinib
mediated by lysosome disruption
Pogee
in
CLL Support
4 years ago
Ibrutinib and Dryness
On
ibrutinib
for 3 months now ( first line treatment). Starting to feel dried out. Drinking 80 ounces of water a day. specifically the soles of my feet are very dry but, gold bond helps with that. The troublesome issue is my nostrils. Using saline and water soluble jelly, but still very dry.
On
ibrutinib
for 3 months now ( first line treatment). Starting to feel dried out. Drinking 80 ounces of water a day. specifically the soles of my feet are very dry but, gold bond helps with that. The troublesome issue is my nostrils. Using saline and water soluble jelly, but still very dry.
Davidcara
in
CLL Support
4 years ago
Cramps and muscle spasms
Could it be a side effect or
Ibrutinib
?
Could it be a side effect or
Ibrutinib
?
210savannah
in
CLL Support
4 years ago
Hip Joint Pain
I'm wondering whether this is "simply" the onset of arthiritis that is unrelated to the
Ibrutinib
or whether it could be caused by taking the
Ibrutinib
. Thoughts anyone?
I'm wondering whether this is "simply" the onset of arthiritis that is unrelated to the
Ibrutinib
or whether it could be caused by taking the
Ibrutinib
. Thoughts anyone?
michaeledward
in
CLL Support
4 years ago
CLL side effects
Hi everybody , I am 78 years old male, I have been on
Ibrutinib
for 3 years with excellent control of my CLL , with minimal side effects (bruising ) except for important dental decay, with multiple and frecuent visits to the dentist.
Hi everybody , I am 78 years old male, I have been on
Ibrutinib
for 3 years with excellent control of my CLL , with minimal side effects (bruising ) except for important dental decay, with multiple and frecuent visits to the dentist.
JJSI
in
CLL Support
4 years ago
Ibrutinib and returning of symptoms of tiredness and fatigue
I started
Ibrutinib
on the 6th June and within about 3 weeks my Lymph Nodes had gone down and I was no longer tired or fatigued and felt 100%. From 2nd August my Lymph Nodes are starting to increase again and I feel tired and fatigued and have a slight cough and slight sweating at night.
I started
Ibrutinib
on the 6th June and within about 3 weeks my Lymph Nodes had gone down and I was no longer tired or fatigued and felt 100%. From 2nd August my Lymph Nodes are starting to increase again and I feel tired and fatigued and have a slight cough and slight sweating at night.
Dym230109
in
CLL Support
4 years ago
CT Scan After Treatment
Started
ibrutinib
3 months ago. Labs have responded nicely to treatment. Neck nodes have disappeared. Before treatment had swollen nodes in abdomen and chest per CT Scan, and I think my spleen was around 17cm.
Started
ibrutinib
3 months ago. Labs have responded nicely to treatment. Neck nodes have disappeared. Before treatment had swollen nodes in abdomen and chest per CT Scan, and I think my spleen was around 17cm.
Davidcara
in
CLL America Support
4 years ago
Stopping ibrutinib before a dental visit.
I started
ibrutinib
in September 2019. The hematologist told me to stop
ibrutinib
3-5 days before a dental visit because of bleeding. I have a dental appointment Monday. I stopped
ibrutinib
Wednesday and wonder if there any symptoms that can occur ?
I started
ibrutinib
in September 2019. The hematologist told me to stop
ibrutinib
3-5 days before a dental visit because of bleeding. I have a dental appointment Monday. I stopped
ibrutinib
Wednesday and wonder if there any symptoms that can occur ?
U2me
in
CLL Support
4 years ago
Osteoarthritis returned now Ibrutinib stopped!
Lots of people have said their arthritis has got worse since being on
Ibrutinib
. After taking it for 9 months I stopped taking it 2 weeks ago and already my osteoarthritis has returned! Coincidence? Or did
Ibrutinib
suppress the inflammation? 🤔
Lots of people have said their arthritis has got worse since being on
Ibrutinib
. After taking it for 9 months I stopped taking it 2 weeks ago and already my osteoarthritis has returned! Coincidence? Or did
Ibrutinib
suppress the inflammation? 🤔
Jooby59
in
CLL Support
4 years ago
Richter transformation after quitting ibrutinib: a diagnostic error
The topic of the connection between
Ibrutinib
and the Richter transformation is getting very interesting. In the group that I have on Facebook every day people are entering that once
Ibrutinib
left a few days for an operation or biopsy for another movement, Richter was diagnosed.
The topic of the connection between
Ibrutinib
and the Richter transformation is getting very interesting. In the group that I have on Facebook every day people are entering that once
Ibrutinib
left a few days for an operation or biopsy for another movement, Richter was diagnosed.
Priss69
in
CLL Support
4 years ago
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