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Ibrutinib
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Good news š
Just had my monthly telephone consultation with my consultant and after 9 months on
Ibrutinib
and 9 weeks now on venetoclax my WBC and lymphocytes are normal. He said that at the moment this can be considered as ābeing in remissionā and to just keep on taking the tablets!
Just had my monthly telephone consultation with my consultant and after 9 months on
Ibrutinib
and 9 weeks now on venetoclax my WBC and lymphocytes are normal. He said that at the moment this can be considered as ābeing in remissionā and to just keep on taking the tablets!
Jooby59
in
CLL Support
4 years ago
Ibrutinib for chronic lymphocytic leukemia in the setting of respiratory failure from severe COVIDā19 infection: Case report and literature
Ibrutinib
for chronic lymphocytic leukemia in the setting of respiratory failure from severe COVIDā19 infection: Case report and literature review . I have seen parallels with other studies related to supplementation (NAC, EGCG, Quercetin, Vitamin D) for COVID19 and CLL.
Ibrutinib
for chronic lymphocytic leukemia in the setting of respiratory failure from severe COVIDā19 infection: Case report and literature review . I have seen parallels with other studies related to supplementation (NAC, EGCG, Quercetin, Vitamin D) for COVID19 and CLL.
velderve
in
CLL Support
4 years ago
Acalabrutinib Ibrutinib sun/tan
Hi, Please everyone who is on
ibrutinib
or Acalabrutinib and who has developed allergy reaction to sun or just have normal tan please respond. Thanks, Mik
Hi, Please everyone who is on
ibrutinib
or Acalabrutinib and who has developed allergy reaction to sun or just have normal tan please respond. Thanks, Mik
Mik_
in
CLL Support
4 years ago
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Some good news and hope
After 3 very sick years we were fortunate that she was able to access a clinical trial in the UK and in 2014 started a drug
Ibrutinib
which targets the cancer. Her bone marrow went from 96% cancer and today the cancer is at 0.01%.
After 3 very sick years we were fortunate that she was able to access a clinical trial in the UK and in 2014 started a drug
Ibrutinib
which targets the cancer. Her bone marrow went from 96% cancer and today the cancer is at 0.01%.
Irishcll
in
CLL Support
4 years ago
MRD Special Edition of The CLL Society Tribune (Minimal Residual Disease explained by the experts )
Tam Discusses Captivate Trial ā
Ibrutinib
+ Venetoclax in First-Line Treatment https://cllsociety.org/2020/09/ash-2019-dr-tam-discusses-captivate-trial-
ibrutinib
-venetoclax-in-first-line-treatment/ By Thomas. E. Henry III, MBA, RPh, CPh At ASH 2019 in Orlando, Dr. Brian Koffman interviewed Dr.
Tam Discusses Captivate Trial ā
Ibrutinib
+ Venetoclax in First-Line Treatment https://cllsociety.org/2020/09/ash-2019-dr-tam-discusses-captivate-trial-
ibrutinib
-venetoclax-in-first-line-treatment/ By Thomas. E. Henry III, MBA, RPh, CPh At ASH 2019 in Orlando, Dr. Brian Koffman interviewed Dr.
lankisterguy
Volunteer
in
CLL Support
4 years ago
Eczema
Eczema/rash on the back of my leg that started shortly after starting
Ibrutinib
about the size of a dime and has grown to about 3 inches by 3 inches currently. It is also very itchy.
Eczema/rash on the back of my leg that started shortly after starting
Ibrutinib
about the size of a dime and has grown to about 3 inches by 3 inches currently. It is also very itchy.
Murman
in
CLL Support
4 years ago
BTK inhibitors and IgG levels
I understand that
Ibrutinib
reverses T cell exhaustion and as the bone marrow clears out the immune system overall works better. However with continuing acalabrutinib use will the IgG eventually start rising or will ramain low ? If it remains low is my husband at increased risk of infection ?
I understand that
Ibrutinib
reverses T cell exhaustion and as the bone marrow clears out the immune system overall works better. However with continuing acalabrutinib use will the IgG eventually start rising or will ramain low ? If it remains low is my husband at increased risk of infection ?
ikahan
in
CLL Support
4 years ago
Anyone taking Liposomal C
Wanted to know if thereās any issue taking Liposomal C as I am currently on
Ibrutinib
. Anyone taking it?
Wanted to know if thereās any issue taking Liposomal C as I am currently on
Ibrutinib
. Anyone taking it?
steve_canada
in
CLL Support
4 years ago
IB vs venetoclax
They started her on
Ibrutinib
420mg daily today. They are hoping to shrink the spleen and lower the blood count with this drug. But after reading so many stories within this community, people seem to fair better with venetoclax vs. IB?? My mom is almost 77 years old, 5'5" and 130 lbs.
They started her on
Ibrutinib
420mg daily today. They are hoping to shrink the spleen and lower the blood count with this drug. But after reading so many stories within this community, people seem to fair better with venetoclax vs. IB?? My mom is almost 77 years old, 5'5" and 130 lbs.
Hawaii2018
in
CLL Support
4 years ago
Side effects of RCD Chemotherapy
This alternative therapy was decided by treating Hematologist after discontinuing
Ibrutinib
due to intolerance. Now after every cycle of RCD, I am experiencing extreme pain in my joints and having weakness with loosing body weight. Due to weakness I am mostly bedridden.
This alternative therapy was decided by treating Hematologist after discontinuing
Ibrutinib
due to intolerance. Now after every cycle of RCD, I am experiencing extreme pain in my joints and having weakness with loosing body weight. Due to weakness I am mostly bedridden.
CLL4
in
CLL Support
4 years ago
Disease Flare During Temporary Interruption of Ibrutinib Therapy in Patients with Chronic Lymphocytic Leukemia ( CLL ) - Pseudo Richters
[/i] [i]
Conclusion
[/i][i]: Temporary interruptions in
ibrutinib
treatment of patients with CLL are common, and [/i][i]
one quarter of patients
[/i][i] who held
ibrutinib
in this study experienced a disease flare.
[/i] [i]
Conclusion
[/i][i]: Temporary interruptions in
ibrutinib
treatment of patients with CLL are common, and [/i][i]
one quarter of patients
[/i][i] who held
ibrutinib
in this study experienced a disease flare.
AussieNeil
Partner
in
CLL Support
4 years ago
Chelt56 56
Have just started talking
Ibrutinib
and am having severe stomach cramps and diarrhoea. Has anyone else experienced this ?
Have just started talking
Ibrutinib
and am having severe stomach cramps and diarrhoea. Has anyone else experienced this ?
Chelt56
in
CLL Support
4 years ago
CLL and Lewy Bodies Dementia
His meds have been ublituximab and
ibrutinib
for CLL and nothing for LBD.
His meds have been ublituximab and
ibrutinib
for CLL and nothing for LBD.
120940
in
CLL America Support
4 years ago
Pain Following Dental Implant Unabated
CLL on
Ibrutinib
had dental implant 3 weeks ago - it looks like oral surgeon will have to remove it due to intractable pain. Anyone with this problem? Surgeon said Bone tissue (in jaw) looks good. Cone CT inconclusive. Thanks for any comments.
CLL on
Ibrutinib
had dental implant 3 weeks ago - it looks like oral surgeon will have to remove it due to intractable pain. Anyone with this problem? Surgeon said Bone tissue (in jaw) looks good. Cone CT inconclusive. Thanks for any comments.
MsChief
in
CLL Support
4 years ago
Interesting article on venetoclax obinutuzumab and Ibrutinib trial
https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-lymphocytic-leukemia/chronic-leukemia-cll-triple-therapy-phase-2-trial
https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-lymphocytic-leukemia/chronic-leukemia-cll-triple-therapy-phase-2-trial
Research123
in
CLL Support
4 years ago
Ibrutinib
I am 64 years old was diagnosed with CLL on 3rd March and started taking
Ibrutinib
from 3rd June. I continue taking
Ibrutinib
. During March/April/May I developed Lympth Nodes and was constantly tired.
I am 64 years old was diagnosed with CLL on 3rd March and started taking
Ibrutinib
from 3rd June. I continue taking
Ibrutinib
. During March/April/May I developed Lympth Nodes and was constantly tired.
Dym230109
in
CLL Support
4 years ago
CAR-T next week
I knew there was a CAR-T trial for CLL opening for those with stable disease on
ibrutinib
so switched to that and was able to screen for the trial after 6 months with that falling in June.
I knew there was a CAR-T trial for CLL opening for those with stable disease on
ibrutinib
so switched to that and was able to screen for the trial after 6 months with that falling in June.
DebinOzinLondon
in
CLL Support
4 years ago
Diuretics and BTK Inhibitors
Wondering if anyone is on diuretics/water pill such as lasix or aldactone, while taking
ibrutinib
/ BTK inhibitors. Wondering how this affects hydration. Confused if we drink lots of water to flush out bad cells, or to stay hydrated.
Wondering if anyone is on diuretics/water pill such as lasix or aldactone, while taking
ibrutinib
/ BTK inhibitors. Wondering how this affects hydration. Confused if we drink lots of water to flush out bad cells, or to stay hydrated.
Davidcara
in
CLL Support
4 years ago
Plural Effusion with CLL
Started clinical trial at Stanford,
Ibrutinib
and Obinutuzumab about week and half ago. WBC was >300 at start now done to 100 and lymph node size decreased significantly! Problem is CT scan showed large plural effusion at start of trial.
Started clinical trial at Stanford,
Ibrutinib
and Obinutuzumab about week and half ago. WBC was >300 at start now done to 100 and lymph node size decreased significantly! Problem is CT scan showed large plural effusion at start of trial.
kubie
in
CLL Support
4 years ago
Need advice on Acalabrutinib will start treament next month
My oncologist had taken me off of
Ibrutinib
after 10 weeks due to untolerable side everyday. I was advised to rest for one month and will start Acalabrutinib on Oct.
My oncologist had taken me off of
Ibrutinib
after 10 weeks due to untolerable side everyday. I was advised to rest for one month and will start Acalabrutinib on Oct.
zitchie
in
CLL Support
4 years ago
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