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Ibrutinib
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Metilprednisolon along with ibrutinib
Doctor recommend metilprednisolon medicine along with
ibrutinib
for my dad, Does anyone have any information that it is good to use or not?
Doctor recommend metilprednisolon medicine along with
ibrutinib
for my dad, Does anyone have any information that it is good to use or not?
Elnaazz
in
CLL Support
3 years ago
Experience of taking ibrutinib
Hi, my dad has been taking
ibrutinib
for a week, but it has increased a lot this week wbc increased from 370000 to 600000. Does anyone have any experience to help me?
Hi, my dad has been taking
ibrutinib
for a week, but it has increased a lot this week wbc increased from 370000 to 600000. Does anyone have any experience to help me?
Elnaazz
in
CLL Support
3 years ago
Astrazeneca and ibrutinib
I am from Argentina and I would like to know if anyone has received the Astrazeneca vaccine while being treated with
ibrutinib
. thanks and regards
I am from Argentina and I would like to know if anyone has received the Astrazeneca vaccine while being treated with
ibrutinib
. thanks and regards
Bixilon
in
CLL Support
3 years ago
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Insurance company recommendations
I have been taking
Ibrutinib
for Waldenstrom’s Macrobulinanemia for 6 months with good results. We are looking to go on a couple of cruises in the next 2-3 years but our current insurers will not cover my condition, I am a fit 74 year old. Can anyone recommend a UK insurance company?
I have been taking
Ibrutinib
for Waldenstrom’s Macrobulinanemia for 6 months with good results. We are looking to go on a couple of cruises in the next 2-3 years but our current insurers will not cover my condition, I am a fit 74 year old. Can anyone recommend a UK insurance company?
BasTel
in
CLL Support
3 years ago
NON RESPONDERS TO SARS COVID 19 Vaccine
I was diagnosed with CLL and have been on
Ibrutinib
treatment for over 3 years, doing fairly well. My second shot of moderna vaccine was two months ago and I decided to check my inmunological response by antispike SARS COV 19 test, the result was 0.1 (no response).
I was diagnosed with CLL and have been on
Ibrutinib
treatment for over 3 years, doing fairly well. My second shot of moderna vaccine was two months ago and I decided to check my inmunological response by antispike SARS COV 19 test, the result was 0.1 (no response).
JJSI
in
CLL Support
3 years ago
Ibrutinib and Anti-Inflammatory Medications
Used to use ibuprofen, but no longer due to
ibrutinib
. Any recommendations will be checked with my MD before use. I have used bio freeze. Considering Voltaren creme but, not to sure about it’s safety profile.
Used to use ibuprofen, but no longer due to
ibrutinib
. Any recommendations will be checked with my MD before use. I have used bio freeze. Considering Voltaren creme but, not to sure about it’s safety profile.
Davidcara
in
CLL Support
3 years ago
Post cataract surgery update etc etc
On the 7th April I stopped my
ibrutinib
10 days before my surgery. On Friday I saw my doctor because I had an msg like allergy/rash all over my body, so she requested a blood test. Apparently the blood test results showed my liver wasn’t functioning well and my kidneys were only 45% working.
On the 7th April I stopped my
ibrutinib
10 days before my surgery. On Friday I saw my doctor because I had an msg like allergy/rash all over my body, so she requested a blood test. Apparently the blood test results showed my liver wasn’t functioning well and my kidneys were only 45% working.
josephinef
in
CLL Support
3 years ago
Seeking CAR-T Advice
There is an option to be on this trial with and without
ibrutinib
. The off-target effects of
ibrutinib
may lower the risk of CRS and neurotoxicity and improve the health of your T cells prior to harvesting.
There is an option to be on this trial with and without
ibrutinib
. The off-target effects of
ibrutinib
may lower the risk of CRS and neurotoxicity and improve the health of your T cells prior to harvesting.
john-doe
in
CLL Support
3 years ago
Ibrutinib & Thyroid
Any other CLL peers on
Ibrutinib
who’ve had their thyroid removed feel as though you’re experiencing (moreso) extreme fatigue, lack of stamina, dizziness, joint/bone pain?
Any other CLL peers on
Ibrutinib
who’ve had their thyroid removed feel as though you’re experiencing (moreso) extreme fatigue, lack of stamina, dizziness, joint/bone pain?
Hidden
in
CLL Support
4 years ago
Cataract surgery
Has anyone had a cataract surgery without stopping their
ibrutinib
medication? Apparently I need this surgery and I’m worried about not taking my
ibrutinib
. I’ve been on it for 3 years and 3 months and going well. Thanking you all in advance. Kind regards from Josephine from Australia.
Has anyone had a cataract surgery without stopping their
ibrutinib
medication? Apparently I need this surgery and I’m worried about not taking my
ibrutinib
. I’ve been on it for 3 years and 3 months and going well. Thanking you all in advance. Kind regards from Josephine from Australia.
josephinef
in
CLL Support
4 years ago
Explosion of Data Come From Innovative Combos in CLL The progress made with novel combination regimens is unprecedented
Ianalumab/
Ibrutinib
Combo Shows Promising Activity in CLL https://click.email.onclive.com/?
Ianalumab/
Ibrutinib
Combo Shows Promising Activity in CLL https://click.email.onclive.com/?
lankisterguy
Volunteer
in
CLL Support
4 years ago
Teeth issues
And now at the ripe old age of 63 after a very intense two year period (after
Ibrutinib
) I have lost all but 9 of them, back and forth to the dentist every month for extractions and being told that all my roots were soft and getting infected through decay.
And now at the ripe old age of 63 after a very intense two year period (after
Ibrutinib
) I have lost all but 9 of them, back and forth to the dentist every month for extractions and being told that all my roots were soft and getting infected through decay.
saintjohn
in
CLL Support
4 years ago
Rashes with Ibrutinib
Hello, my mother is on
Ibrutinib
for an year now and her blood counts are gradually improving. However, today I observed rashes on her arm which are non-itchy yet; appear to be
Ibrutinib
related. Pic attached. Has anyone experienced these? thanks. Vik
Hello, my mother is on
Ibrutinib
for an year now and her blood counts are gradually improving. However, today I observed rashes on her arm which are non-itchy yet; appear to be
Ibrutinib
related. Pic attached. Has anyone experienced these? thanks. Vik
Vikpp
in
CLL Support
4 years ago
No detectable antibodies to 2nd Pfizer Covid vaccine.
She takes a daily low dose of
Ibrutinib
and 6 months ago she finished a 6 month treatment of prednisone (for a few weeks) and Rituximab for her CLL complication of AIHA.
She takes a daily low dose of
Ibrutinib
and 6 months ago she finished a 6 month treatment of prednisone (for a few weeks) and Rituximab for her CLL complication of AIHA.
Twin21
in
CLL Support
3 years ago
Negative IgG antibodies from 1st shot of Pfizer’s Covid Vaccine
We read that while on
ibrutinib
seroconversion from vaccines can be extremely low.
We read that while on
ibrutinib
seroconversion from vaccines can be extremely low.
Twin21
in
CLL Support
4 years ago
Worthwhile: an article, a presentation, and a table
The article includes among other things how NOTCH can point to limited effectiveness of
ibrutinib
(once you start treatment), on how a mutation may mean non-responsiveness to chemo for patients who are fit, under age 65, and umIGHV, involvement of NOTCH with Richter’s transformation, also involvement
The article includes among other things how NOTCH can point to limited effectiveness of
ibrutinib
(once you start treatment), on how a mutation may mean non-responsiveness to chemo for patients who are fit, under age 65, and umIGHV, involvement of NOTCH with Richter’s transformation, also involvement
Luap001
in
CLL Support
3 years ago
Ibrutinib ..Sore Infected Fingers (paronychia)
Has anyone with CLL on
Ibrutinib
suffered with this? My mum seems to be getting one side effect after another. She is on a second course of anti biotics (currently stopped the
ibrutinib
) and there isn't much improvement?
Has anyone with CLL on
Ibrutinib
suffered with this? My mum seems to be getting one side effect after another. She is on a second course of anti biotics (currently stopped the
ibrutinib
) and there isn't much improvement?
mouseygirl
in
CLL Support
4 years ago
Ibrutinib back ache
I have bet
ibrutinib
four years with great success and still doing well but in all that time I have suffered Lower back ache have controlled it with CBD oil and back stretching etc it's not as though it stops me but it's nearly always present have others had similar or is it just me
I have bet
ibrutinib
four years with great success and still doing well but in all that time I have suffered Lower back ache have controlled it with CBD oil and back stretching etc it's not as though it stops me but it's nearly always present have others had similar or is it just me
cartwheels
in
CLL Support
4 years ago
Acalabrutinib used by NHS
I think from what I've read you should be able to take this longer than
ibrutinib
as it has less side-effects.
I think from what I've read you should be able to take this longer than
ibrutinib
as it has less side-effects.
Research123
in
CLL Support
4 years ago
lots of bloodwork
hi, i'm new here AND i write on behalf of my husband, ken, as he's not big on communicating. he started
ibrutinib
3/10/21. his oncologist wants him to have his blood drawn every week for at least the first month. is this normal?
hi, i'm new here AND i write on behalf of my husband, ken, as he's not big on communicating. he started
ibrutinib
3/10/21. his oncologist wants him to have his blood drawn every week for at least the first month. is this normal?
imdfox24
in
CLL Support
4 years ago
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