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Ibrutinib
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Nails after/with Ibrutinib
Yes, ladies and gentlemen, you can have nails after (or in my case still on low dose)
Ibrutinib
. Almost 4 years on Biotin and on only 140
Ibrutinib
a day and my nails are finally growing again. Still lots of ridges and white markings but all one length. This post will probably jinx me!
Yes, ladies and gentlemen, you can have nails after (or in my case still on low dose)
Ibrutinib
. Almost 4 years on Biotin and on only 140
Ibrutinib
a day and my nails are finally growing again. Still lots of ridges and white markings but all one length. This post will probably jinx me!
BeckyLUSA
in
CLL Support
3 years ago
CLL 17p - Rituximab/Imbruvica then Rituximab/Venetoclax or enter in a clinical trial ?
(it should be ok but we wait for a response...probably next week) Last Tuesday and Friday, her current hemato - who's aware of the above trial - advises her to take rituximab +
ibrutinib
and then switch to veneto +
ibrutinib
in September...
(it should be ok but we wait for a response...probably next week) Last Tuesday and Friday, her current hemato - who's aware of the above trial - advises her to take rituximab +
ibrutinib
and then switch to veneto +
ibrutinib
in September...
Noham027
in
CLL Support
3 years ago
Important SARS-CoV-2 and Covid-19 information for Chronic Lymphocytic Leukaemia/CLL patients
However, vaccination is very strongly recommended for them, even for those taking a BTK inhibitor like
ibrutinib
or acalabrutinib which may impair their vaccination response further.
However, vaccination is very strongly recommended for them, even for those taking a BTK inhibitor like
ibrutinib
or acalabrutinib which may impair their vaccination response further.
CLLerinOz
Administrator
in
CLL Support
3 years ago
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This is more evidence that those of us on ibrutinib could get better outcomes if we contract covid 19
https://lymphomahub.com/medical-information/immunological-effects-of-
ibrutinib
-for-patients-with-cll-and-covid-19
https://lymphomahub.com/medical-information/immunological-effects-of-
ibrutinib
-for-patients-with-cll-and-covid-19
zaax
in
CLL Support
3 years ago
Proctitis and Venetoclax
Am wondering if anyone else has experienced this while taking Venetoclax or
Ibrutinib
?
Am wondering if anyone else has experienced this while taking Venetoclax or
Ibrutinib
?
Lady_Lymington
in
CLL Support
3 years ago
What’s the next step.
Options are 1/ Venetoclax. 2 years 2/
Ibrutinib
indefinitely. Or 3 Acalabrutinib indefinitely. I’m sure these are correct. Mind is swimming at the minute. Does anyone have any experience or advice. Billy.
Options are 1/ Venetoclax. 2 years 2/
Ibrutinib
indefinitely. Or 3 Acalabrutinib indefinitely. I’m sure these are correct. Mind is swimming at the minute. Does anyone have any experience or advice. Billy.
Billys60
in
CLL Support
3 years ago
Acalabrutinib and early morning headaches
I have been on Acalabrutinib for 2weeks after 3.5 years of
ibrutinib
. I now frequently get headaches (mid forehead) about 4:00 a.m. I get out of bed at 7:00 a.m. The headache then begins to diminish and usually gone after an hour or so. I am not certain if it is related to the medication.
I have been on Acalabrutinib for 2weeks after 3.5 years of
ibrutinib
. I now frequently get headaches (mid forehead) about 4:00 a.m. I get out of bed at 7:00 a.m. The headache then begins to diminish and usually gone after an hour or so. I am not certain if it is related to the medication.
Agatesup
in
CLL Support
3 years ago
First results of a head-to-head trial of acalabrutinib versus ibrutinib in previously treated chronic lymphocytic leukemia.
It's worth having a look at if trying to decide between
Ibrutinib
or Acalabrutinib. https://meetinglibrary.asco.org/record/201554/abstract Jackie
It's worth having a look at if trying to decide between
Ibrutinib
or Acalabrutinib. https://meetinglibrary.asco.org/record/201554/abstract Jackie
Jm954
Administrator
in
CLL Support
3 years ago
CLL Research: Phase 2 CAPTIVATE Study Suggests Role for Fixed-Duration Treatment of CLL/SLL
I personally am affected by this research as I was able to attain uMRD seven months after adding venetoclax to the
ibrutinib
I had taken for more than three years.
I personally am affected by this research as I was able to attain uMRD seven months after adding venetoclax to the
ibrutinib
I had taken for more than three years.
WinJ3
in
CLL Support
3 years ago
Pfizer Vaccine/Ibrutinib
Just asking as I have seen a couple of people mention on another CLL site that
Ibrutinib
might affect the vaccine efficacy. Just asking for my husband. He has been on
ibrutinib
for 2-years which is working really well. He has had one vaccine, but not both yet.
Just asking as I have seen a couple of people mention on another CLL site that
Ibrutinib
might affect the vaccine efficacy. Just asking for my husband. He has been on
ibrutinib
for 2-years which is working really well. He has had one vaccine, but not both yet.
shellsb
in
CLL Support
3 years ago
CLL + Trisomy 8?
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and
Ibrutinib
trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and
Ibrutinib
trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
RyStock
in
CLL Support
3 years ago
CLL + Trisomy 8
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and
Ibrutinib
trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and
Ibrutinib
trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
RyStock
in
CLL America Support
3 years ago
Ibrutinib to Acalabrutinib
After more than 4.5 years on
Ibrutinib
, I was switched to Acalabrutinub 6 days ago. I started having diarrhea the 6th night and had a headache about 4:00 a.m. Has anyone experienced the same problems- and how long did they last? Any comments will be appreciated.
After more than 4.5 years on
Ibrutinib
, I was switched to Acalabrutinub 6 days ago. I started having diarrhea the 6th night and had a headache about 4:00 a.m. Has anyone experienced the same problems- and how long did they last? Any comments will be appreciated.
Agatesup
in
CLL Support
3 years ago
Mutated p53 gene
My dad has been told he has a mutated p53 gene (i think that’s right) and that his treatment will be either
ibrutinib
or another drug I can’t remember the name of at the minute. Has anyone any advice/information about this treatment and what to expect? Is it different from chemotherapy?
My dad has been told he has a mutated p53 gene (i think that’s right) and that his treatment will be either
ibrutinib
or another drug I can’t remember the name of at the minute. Has anyone any advice/information about this treatment and what to expect? Is it different from chemotherapy?
Tomaitch21
in
CLL Support
3 years ago
When Ibrutinib side effects become too much
I’m wondering what were the breaking points when people taking
Ibrutinib
decided it was time to make a change to another drug or drug combo and did this alleviate side effects. In particular, the muscle pain and stiffness.
I’m wondering what were the breaking points when people taking
Ibrutinib
decided it was time to make a change to another drug or drug combo and did this alleviate side effects. In particular, the muscle pain and stiffness.
Mprm
in
CLL Support
3 years ago
Roundup
You do need to show medical treatment, in my case
ibrutinib
. I also had a secondary bladder cancer developed. The payouts are not that big, so no one is getting rich. The average is probably 25k.
You do need to show medical treatment, in my case
ibrutinib
. I also had a secondary bladder cancer developed. The payouts are not that big, so no one is getting rich. The average is probably 25k.
barger1951
in
CLL Support
3 years ago
Obinutumab plus venetoclax in cll
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started
ibrutinib
in 2016 and stopped
ibrutinib
in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started
ibrutinib
in 2016 and stopped
ibrutinib
in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
Rameshchag
in
CLL Support
3 years ago
Obinutuzumab and venetoclax in relapsed cll,
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started
ibrutinib
in 2016 and stopped
ibrutinib
in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started
ibrutinib
in 2016 and stopped
ibrutinib
in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
Rameshchag
in
CLL America Support
3 years ago
Ibrutinib and low platelet
Hello, my father have been taking
ibrutinib
for a month. His WBC has decreased but his platelet count has decreased and doktor stopped
ibrutinib
for test. Does anyone have any experience with this? Can it be increased with herbal medicines or foods?
Hello, my father have been taking
ibrutinib
for a month. His WBC has decreased but his platelet count has decreased and doktor stopped
ibrutinib
for test. Does anyone have any experience with this? Can it be increased with herbal medicines or foods?
Elnaazz
in
CLL Support
3 years ago
Tophaceous Gout and CLL Drugs
I noticed on the prescribing information of Venclexta there is significant mention of gout and problems like this, and I honestly haven’t gone back to check
Ibrutinib
, but these things all started with what our local ER classified as bouts of cellulitis, which was plausible due to the potential for
Ibrutinib
I noticed on the prescribing information of Venclexta there is significant mention of gout and problems like this, and I honestly haven’t gone back to check
Ibrutinib
, but these things all started with what our local ER classified as bouts of cellulitis, which was plausible due to the potential for
Ibrutinib
KevinCLLITP
in
CLL Support
3 years ago
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