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Jobs worth GP strikes again, I'm so mad
The last thing was giving him exactly 30
heparin
to tide him over until he saw the Prof again at end of May. But no follow up appointment, this guy only works part time too.
The last thing was giving him exactly 30
heparin
to tide him over until he saw the Prof again at end of May. But no follow up appointment, this guy only works part time too.
Jade
in
Hughes Syndrome APS Forum
11 years ago
Now just on heparin 100mg due to procedure on thursday i get confused as ehat is ideal level
Because of procedure told to just take
heparin
and leave warfarin until after all of my ops over. What is the ideal inr on
heparin
i had tia whilst the haem dept tryng to get their heads together two years ago. And then they put me on warfarin. Mind you it was only 40mg then.
Because of procedure told to just take
heparin
and leave warfarin until after all of my ops over. What is the ideal inr on
heparin
i had tia whilst the haem dept tryng to get their heads together two years ago. And then they put me on warfarin. Mind you it was only 40mg then.
daisy11
in
Hughes Syndrome APS Forum
11 years ago
Warfarin v heparin
I had a three month trial of
heparin
in 2008 and from what I can recall felt good. Then I went onto warfarin but this coincided with the first of four shoulder operations.
I had a three month trial of
heparin
in 2008 and from what I can recall felt good. Then I went onto warfarin but this coincided with the first of four shoulder operations.
panda60
in
Hughes Syndrome APS Forum
11 years ago
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I went from being excited because I had a diagnosis & a treatment , to totally depressed and frustrated.
They gave me Arixta which is another type of low molecular
heparin
. After 1 week of warfarin my INR is 2.5 & I feel nothing like I did with the clexane. I do not know if you get to a INr of 2.5-3.5 do you instantly feel better. Will my body stop aching. Will the swelling go down in my feet & legs.
They gave me Arixta which is another type of low molecular
heparin
. After 1 week of warfarin my INR is 2.5 & I feel nothing like I did with the clexane. I do not know if you get to a INr of 2.5-3.5 do you instantly feel better. Will my body stop aching. Will the swelling go down in my feet & legs.
designer16
in
Hughes Syndrome APS Forum
11 years ago
Scared and upset!
They gave me
heparin
and I am now on warfarin and they tell me I'm safe. I then had an episode in A&E the day before New Year's Eve and that really freaked me out.
They gave me
heparin
and I am now on warfarin and they tell me I'm safe. I then had an episode in A&E the day before New Year's Eve and that really freaked me out.
Hettyw
in
Atrial Fibrillation Support
11 years ago
Evidence for Clopidogrel as well as Wafarin
I think that as INR will not seem to go up despite ever increasing Wafarin dose they are going to suggest
Heparin
(have needle phobia).
I think that as INR will not seem to go up despite ever increasing Wafarin dose they are going to suggest
Heparin
(have needle phobia).
Elaine77c
in
Hughes Syndrome APS Forum
11 years ago
LAS-is it hughes syndrome?
All that was said was i needed to stay in range and was given
heparin
injections to be taken if my inr fell below 2. I asked the registrar if there were any support groups and she said no.
All that was said was i needed to stay in range and was given
heparin
injections to be taken if my inr fell below 2. I asked the registrar if there were any support groups and she said no.
elt-las
in
Hughes Syndrome APS Forum
11 years ago
It's official.....
I once told her that my INR was well below 2 and this was worrying, she didn't really understand why this was an issue, a couple days later I had frantic phone calls from her as she had spoken to my consultant who was very worried about this and wanted me to have
heparin
injections if it was still low
I once told her that my INR was well below 2 and this was worrying, she didn't really understand why this was an issue, a couple days later I had frantic phone calls from her as she had spoken to my consultant who was very worried about this and wanted me to have
heparin
injections if it was still low
Elaine77c
in
Hughes Syndrome APS Forum
11 years ago
Low INR but still bruising
Hello, I am on Warfarin with target 3-4.5 and
Heparin
if it falls below 3.
Hello, I am on Warfarin with target 3-4.5 and
Heparin
if it falls below 3.
daisy11
in
Hughes Syndrome APS Forum
11 years ago
Strep b meningitis
My daughter was 5 week old on 23/6/12when she had strep b meningitis. In the evening she was very restless and started vomiting and rolling back. We took her to A & E and they just grabbed her away from us and started giving her antibiotics and her lumber puncture. She spend one day at royal Berkshire
My daughter was 5 week old on 23/6/12when she had strep b meningitis. In the evening she was very restless and started vomiting and rolling back. We took her to A & E and they just grabbed her away from us and started giving her antibiotics and her lumber puncture. She spend one day at royal Berkshire
sanaakram
in
Meningitis Now
11 years ago
Big smiles all around!!
My son aged 15months had his first follow up appointment at the hospital today since recovering from meningococcal meningitis its been just over 2months now and as much as it was eventful in the fact our son is scared of Dr's now and hates to be looked at the Dr was very happy with his recovery so far
My son aged 15months had his first follow up appointment at the hospital today since recovering from meningococcal meningitis its been just over 2months now and as much as it was eventful in the fact our son is scared of Dr's now and hates to be looked at the Dr was very happy with his recovery so far
kat12
in
Meningitis Now
11 years ago
Desperate, Can You Help Me?
I tried to talk to him about
Heparin
or Xarelta, and he said they are not approved by FDA for APS. I said neither is Coumadin and of course he became angry. Also had to fire my gp, he just kept repeating “aps does not cause those symptoms” and urging me to see a psychiatrist.
I tried to talk to him about
Heparin
or Xarelta, and he said they are not approved by FDA for APS. I said neither is Coumadin and of course he became angry. Also had to fire my gp, he just kept repeating “aps does not cause those symptoms” and urging me to see a psychiatrist.
Bell990
in
Hughes Syndrome APS Forum
11 years ago
How often do we need bone scans if we are taking Low Molecular Weight Heparin ?
Also have any of you had significant bone loss. I take the calcium tablets that have Ben subscribed. I haven't been to see my consultant in London for a couple of years mainly because of the cost. I will go later this year though. I could get gp to refer me for dexa scan before then if I should be
Also have any of you had significant bone loss. I take the calcium tablets that have Ben subscribed. I haven't been to see my consultant in London for a couple of years mainly because of the cost. I will go later this year though. I could get gp to refer me for dexa scan before then if I should be
Annslack
in
Hughes Syndrome APS Forum
11 years ago
I am wondering about long term effects of Group B Strep
My son was born on April 4, 2013. He seemed totally normal and healthy. Within hours he was grunting, crying and wouldn't latch. He was evaluated and admitted to the NICU. The GBS culture grew positive in 8 hours (this is crazy to me because he is my 3rd child and every GBS test I received with each
My son was born on April 4, 2013. He seemed totally normal and healthy. Within hours he was grunting, crying and wouldn't latch. He was evaluated and admitted to the NICU. The GBS culture grew positive in 8 hours (this is crazy to me because he is my 3rd child and every GBS test I received with each
elizap123
in
Group B Strep Support
11 years ago
Just been diagnosed.
My story is that in February this year, 2013 I experienced a full feeling in my ear and some loss of hearing. After suffering from excesive ear wax in previous years I thought that may have been the problem. It wasn't. Soon after the hearing loss I noticed a lack of balance, generally feeling 'tipsy
My story is that in February this year, 2013 I experienced a full feeling in my ear and some loss of hearing. After suffering from excesive ear wax in previous years I thought that may have been the problem. It wasn't. Soon after the hearing loss I noticed a lack of balance, generally feeling 'tipsy
robert77
in
Acoustic Neuroma Support
11 years ago
Is it worth me asking for a trial of heparin?
I'm seeing Prof K a week on Friday and was wondering whether he would consider alternatives,
heparin
maybe, or whether this is something I just have to put up with.
I'm seeing Prof K a week on Friday and was wondering whether he would consider alternatives,
heparin
maybe, or whether this is something I just have to put up with.
Paleosooze
in
Hughes Syndrome APS Forum
11 years ago
Any success stories out there? Newly diagnosed.
I also had thrombophlebitis during the pregnancy too that was treated with
heparin
. Sadly I also needed aspirin as this apparently crosses the placenta so will need that in future pregnancies as well. Last weekend I woke up with visual disturbance.
I also had thrombophlebitis during the pregnancy too that was treated with
heparin
. Sadly I also needed aspirin as this apparently crosses the placenta so will need that in future pregnancies as well. Last weekend I woke up with visual disturbance.
Hidden
in
Hughes Syndrome APS Forum
11 years ago
Trying for another baby
I had
Heparin
injections daily and a 75g aspirin but he still had to be delivered early. I am overweight and I know that losing weight will hopefully help and we have been told that they would give me a higher dose of
heparin
. thoughts welcomed....
I had
Heparin
injections daily and a 75g aspirin but he still had to be delivered early. I am overweight and I know that losing weight will hopefully help and we have been told that they would give me a higher dose of
heparin
. thoughts welcomed....
Gembob27
in
Hughes Syndrome APS Forum
12 years ago
We won't be defeated yet...
We went to my sons routine hearing test today due to the meningococcal meningitis that he had and the results weren't as good as I hoped, my son has glue ear in both ears and has to go back in 3months to see if his hearing has improved if not he will be refereed. Has anyone had hearing loss/problems
We went to my sons routine hearing test today due to the meningococcal meningitis that he had and the results weren't as good as I hoped, my son has glue ear in both ears and has to go back in 3months to see if his hearing has improved if not he will be refereed. Has anyone had hearing loss/problems
kat12
in
Meningitis Now
11 years ago
Is so proud of her little fighter...
My 13month old son has recently recovered from meningococcal meningitis and has his hearing test tomorrow!! I'm feeling pretty positive about this...
My 13month old son has recently recovered from meningococcal meningitis and has his hearing test tomorrow!! I'm feeling pretty positive about this...
kat12
in
Meningitis Now
11 years ago
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