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Hi, I am new to this site and thyroid issues so I'd be grateful for some advice as I have my first endo appointment this week.
I was diagonised with stage 4 Hodgkin's lymphoma in oct 2012, 7 different types of chemo and 2 stem cell transplants later I'm still here and hodgkins free for 11 months. Due to treatments I have a non functioning spleen so I was on 961mg septrin, 500mg of amoxicillin & Aciclovir every day. Many meds
I was diagonised with stage 4 Hodgkin's lymphoma in oct 2012, 7 different types of chemo and 2 stem cell transplants later I'm still here and hodgkins free for 11 months. Due to treatments I have a non functioning spleen so I was on 961mg septrin, 500mg of amoxicillin & Aciclovir every day. Many meds
Hidden
in
Thyroid UK
9 years ago
Heparin
Hi all, to anyone who is having
heparin
injections, do you find that you have lots of lumps under the skin? I've been using arnica cream but it doesn't really help. Can anyone recommend anything else?. Thanks elfie.
Hi all, to anyone who is having
heparin
injections, do you find that you have lots of lumps under the skin? I've been using arnica cream but it doesn't really help. Can anyone recommend anything else?. Thanks elfie.
Elfie1
in
Hughes Syndrome APS Forum
9 years ago
Huhghes Syndrome and a whole lot mine!
I am allergic to
heparin
. Tried Lovenox and Arixtra and got 2 cases of H.I.T. Beem doing 4 shots, 28 per week of Iprivask. I am always nauseas. I shave my body and only wear a tank top and shorts. I am unable to controlmy body temperature.
I am allergic to
heparin
. Tried Lovenox and Arixtra and got 2 cases of H.I.T. Beem doing 4 shots, 28 per week of Iprivask. I am always nauseas. I shave my body and only wear a tank top and shorts. I am unable to controlmy body temperature.
cleanerug
in
Hughes Syndrome APS Forum
9 years ago
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operation 3 weeks ago, dvt??
one week no change and getting progressivley worse 2nd gp said not sure what it is so gave another weeks supply of antibiotics, i had a popliteal dvt 2 years ago after surgery to remove a growth in my right leg, i also have thrombophillia facto v leiden blood disorder, and my surgeon didnt give the
heparin
one week no change and getting progressivley worse 2nd gp said not sure what it is so gave another weeks supply of antibiotics, i had a popliteal dvt 2 years ago after surgery to remove a growth in my right leg, i also have thrombophillia facto v leiden blood disorder, and my surgeon didnt give the
heparin
emmalou81
in
Anticoagulation Support
9 years ago
Hearing test post bacterial meningitis
My little girl had bacterial meningitis at 10 days old but was aggressively treated and seems to have made a good recovery. She is now 10 months old and we went today for a hearing test ( she has already had one at 2 months old that was fine). I noticed that she didn't react to quiet sounds consistently
My little girl had bacterial meningitis at 10 days old but was aggressively treated and seems to have made a good recovery. She is now 10 months old and we went today for a hearing test ( she has already had one at 2 months old that was fine). I noticed that she didn't react to quiet sounds consistently
Catte
in
Meningitis Now
9 years ago
B12 & Hearing Loss
Hi! Does anyone else suffer from hearing loss- low pitch sounds? I ask my GP for a referral over 2 years ago for a hearing test. I was told there was nothing wrong with my hearing. I asked for another referral in January 2015. It's taken 6 months to get an appointment. I was at hearing clinic yesterday
Hi! Does anyone else suffer from hearing loss- low pitch sounds? I ask my GP for a referral over 2 years ago for a hearing test. I was told there was nothing wrong with my hearing. I asked for another referral in January 2015. It's taken 6 months to get an appointment. I was at hearing clinic yesterday
PoDundee
in
Pernicious Anaemia Society
9 years ago
Professor Graham Hughes' Blog May 2015
I had figured on at least a trial of
heparin
and possibly onto anticoagulants such as warfarin. What is this patient teaching us? Many lessons. Firstly, that Hughes syndrome is very much a ‘neurological’ disease. We have only scratched at the surface of this aspect of the disease.
I had figured on at least a trial of
heparin
and possibly onto anticoagulants such as warfarin. What is this patient teaching us? Many lessons. Firstly, that Hughes syndrome is very much a ‘neurological’ disease. We have only scratched at the surface of this aspect of the disease.
MaryF
Administrator
in
Hughes Syndrome APS Forum
9 years ago
CLUMPING PLATELETS
So when I subsequently had yet another blood test on February 24th I had 3 samples taken, one to be tested with EDTA, the second to be tested in CITRATE (an alternative chemical) and thirdly another to be tested using Lithium
Heparin
(yet another chemical).
So when I subsequently had yet another blood test on February 24th I had 3 samples taken, one to be tested with EDTA, the second to be tested in CITRATE (an alternative chemical) and thirdly another to be tested using Lithium
Heparin
(yet another chemical).
AnthonyHeard
ITP Support Association
in
ITP Support Association
9 years ago
New and confused?!
Then followed a series of p.e's on warfarin,
heparin
and even on both! Then the dvts started. To date I have had 8 p.e's and 4 dvts. I now have an umbrella filter in my aorta which catches the clots. This was put in Feb 2014 after p.e number 8. Am on rivaroxaban 15mg twice a day.
Then followed a series of p.e's on warfarin,
heparin
and even on both! Then the dvts started. To date I have had 8 p.e's and 4 dvts. I now have an umbrella filter in my aorta which catches the clots. This was put in Feb 2014 after p.e number 8. Am on rivaroxaban 15mg twice a day.
Hidden
in
Hughes Syndrome APS Forum
9 years ago
Lilly's story..
On 15 Dec I went to our local Dr surgery for the 2nd time with my 11 month old daughter as she was poorly again and was told she had a viral infection and sore throat and ears.. They advised me she wound not get any antibiotics as she didnt need them.. so I took her home and spent the next few days praying
On 15 Dec I went to our local Dr surgery for the 2nd time with my 11 month old daughter as she was poorly again and was told she had a viral infection and sore throat and ears.. They advised me she wound not get any antibiotics as she didnt need them.. so I took her home and spent the next few days praying
ingridm
in
Meningitis Now
9 years ago
Ramsey Hunt Syndrome
Hello fellow sufferers of Bells Palsy and Ramsey Hunt Syndrome. Any sharing of experiences when one is unfortunate enough to suffer a debilitating medical condition must be helpful and I would like to relate what has happened to me over the past few weeks for all members of this community. I am a 69
Hello fellow sufferers of Bells Palsy and Ramsey Hunt Syndrome. Any sharing of experiences when one is unfortunate enough to suffer a debilitating medical condition must be helpful and I would like to relate what has happened to me over the past few weeks for all members of this community. I am a 69
Martinpitcher
in
Facial Palsy UK
9 years ago
Normal blood results
Hi I have decompensated liver disease was in HDU 2014 due to another episode of spontenous bacterial pertinitis which I take septrin daily for also septic shock liver failure but survived. It's 13 months on and my liver blood test was normal my gp was pleased also excellent kidney function I did suffer
Hi I have decompensated liver disease was in HDU 2014 due to another episode of spontenous bacterial pertinitis which I take septrin daily for also septic shock liver failure but survived. It's 13 months on and my liver blood test was normal my gp was pleased also excellent kidney function I did suffer
vicky44
in
British Liver Trust
9 years ago
Tinnitus from Thyroxine
Hello all. I am hoping that someone on here has some experience that is similar to my own, but successfully got to the bottom of it. I have been on MercuryPharma Thyroxine alternate 25mcg/50mcg for a couple of years and developed strange hearing problems. I work in a normal office, with sound levels
Hello all. I am hoping that someone on here has some experience that is similar to my own, but successfully got to the bottom of it. I have been on MercuryPharma Thyroxine alternate 25mcg/50mcg for a couple of years and developed strange hearing problems. I work in a normal office, with sound levels
Owen1
in
Thyroid UK
9 years ago
Gastroparesis (slow stomach emptying with pain)
I realize that
heparin
isn't something to be tested/tried unless there is a true chance it will help (as opposed to down side risks). But I've gone way past that point. Now I am down 15 pounds and I can only eat low fat soup for last two weeks.
I realize that
heparin
isn't something to be tested/tried unless there is a true chance it will help (as opposed to down side risks). But I've gone way past that point. Now I am down 15 pounds and I can only eat low fat soup for last two weeks.
Tranquility1
in
Hughes Syndrome APS Forum
9 years ago
Help Cant get rid of bruising
Way back last April i was on
Heparin
injections for APS - i also have SLEthis caused brusing that sI still have. However, what is driving me mad is that my body is like a dalmation dog. I cant get rid of the bruising. It covers my legs arms, trunk, neck etc.
Way back last April i was on
Heparin
injections for APS - i also have SLEthis caused brusing that sI still have. However, what is driving me mad is that my body is like a dalmation dog. I cant get rid of the bruising. It covers my legs arms, trunk, neck etc.
diane1428
in
Hughes Syndrome APS Forum
9 years ago
Professor Graham Hughes April 2015 Blog
One further pregnancy came along, and this time Mrs M.J. was treated with
heparin
and aspirin. There was discussion at the time as to whether both drugs were required – but caution won. Happiness with Gillian now aged 20. No further pregnancies.
One further pregnancy came along, and this time Mrs M.J. was treated with
heparin
and aspirin. There was discussion at the time as to whether both drugs were required – but caution won. Happiness with Gillian now aged 20. No further pregnancies.
MaryF
Administrator
in
Hughes Syndrome APS Forum
9 years ago
Home iv's
The drug is Meropenem which takes at least 40 minutes to go through the canula and about an hour and a half altogether to do all the rest of the procedure - laying out the sodium chloride to flush the line, ceftazidim (which I think is part of the drug), the meropenem, and
heparin
to keep the line open
The drug is Meropenem which takes at least 40 minutes to go through the canula and about an hour and a half altogether to do all the rest of the procedure - laying out the sodium chloride to flush the line, ceftazidim (which I think is part of the drug), the meropenem, and
heparin
to keep the line open
skinnylizzy59
in
Lung Conditions Community Forum
9 years ago
Pradaxa
Prof Hughes agreed that she should move onto a more effective medication but was reluctant to keep her on the
Heparin
because of the injecting, so she has been on Pradaxa for 2 weeks now.
Prof Hughes agreed that she should move onto a more effective medication but was reluctant to keep her on the
Heparin
because of the injecting, so she has been on Pradaxa for 2 weeks now.
floss112
in
Hughes Syndrome APS Forum
9 years ago
INR shot to bits
So now I back stabbing the ol
heparin
for a week and in on Tuesday for next INR.... Yes I should have known better than put up with low INR for 2 weeks I am still target 2.5 as docs have deemed me not needing higher. Well not yet anyways.
So now I back stabbing the ol
heparin
for a week and in on Tuesday for next INR.... Yes I should have known better than put up with low INR for 2 weeks I am still target 2.5 as docs have deemed me not needing higher. Well not yet anyways.
CheddarAddict
in
Hughes Syndrome APS Forum
9 years ago
Keeping A Diary Or Common-Place Book...
When we were looking after our people I had a huge day by day desk diary on the hall table along with the 'phone and answering machine and the visitors book... The diary was essential...without it I'd have been lost...there were appointments with social workers and psychologists and teachers from the
When we were looking after our people I had a huge day by day desk diary on the hall table along with the 'phone and answering machine and the visitors book... The diary was essential...without it I'd have been lost...there were appointments with social workers and psychologists and teachers from the
Hidden
in
Lung Conditions Community Forum
9 years ago
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