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Professor Graham Hughes' Monthly Blog November 2016
Treated by Dr Hoda El-Mahrouki with
heparin
and then warfarin (INR 3.5-4) and now completely well. The Romanian patient is this month’s patient of the month.
Treated by Dr Hoda El-Mahrouki with
heparin
and then warfarin (INR 3.5-4) and now completely well. The Romanian patient is this month’s patient of the month.
MaryF
Administrator
in
Hughes Syndrome APS Forum
8 years ago
Crackle and pop
Does anyone else suffer with ears that continually crackle (when moving jaw or trying to pop them through yawning etc)?!? Any idea what it is ( different from tinnitus) During my hearing test I asked if there was a blockage that could be causing the hearing loss I'm experiencing and they most enfatically
Does anyone else suffer with ears that continually crackle (when moving jaw or trying to pop them through yawning etc)?!? Any idea what it is ( different from tinnitus) During my hearing test I asked if there was a blockage that could be causing the hearing loss I'm experiencing and they most enfatically
Abu78
in
Hearing Link
8 years ago
Misled and Upset
There have been people on this forum who claim they have been treated with
heparin
/Coumadin/plaquenil DESPITE never having a clot, and that Dr Hughes even treated patients with no thrombolic events AND were sero negative for APS or cardiolipin.
There have been people on this forum who claim they have been treated with
heparin
/Coumadin/plaquenil DESPITE never having a clot, and that Dr Hughes even treated patients with no thrombolic events AND were sero negative for APS or cardiolipin.
ehc918
in
Hughes Syndrome APS Forum
8 years ago
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Advice please ? I just want to be prepared for when I am pregnant!
I just scared without gas and air because of my asthma and if I have the epidural could cause the
heparin
to stop working or cause my blood clots to happen.
I just scared without gas and air because of my asthma and if I have the epidural could cause the
heparin
to stop working or cause my blood clots to happen.
kristina281192
in
PCOS UK (Verity)
8 years ago
APS Evolving?
I just wondered if anyone else had experienced similar blood results over a period of time but their APS seemed to be evolving and different medication was prescribed such as
heparin
etc. I am currently on daily aspirin. Thanks Deb
I just wondered if anyone else had experienced similar blood results over a period of time but their APS seemed to be evolving and different medication was prescribed such as
heparin
etc. I am currently on daily aspirin. Thanks Deb
DebsT
in
Hughes Syndrome APS Forum
8 years ago
Feeling anxious
Hi... first post on here. I'm 38 and went for a hearing test 8 weeks ago at specsavers and told I've got mild hearing loss but they were v vague about what to do, it all felt v airy fairy!!!. So I Made an apt with gp and she's referred me to the hospital audiology dept and my apt in next week. I'm currently
Hi... first post on here. I'm 38 and went for a hearing test 8 weeks ago at specsavers and told I've got mild hearing loss but they were v vague about what to do, it all felt v airy fairy!!!. So I Made an apt with gp and she's referred me to the hospital audiology dept and my apt in next week. I'm currently
Abu78
in
Hearing Link
8 years ago
Home com hosp
sore and had a few issues because of my other conditions,but otherwise went well ,had GA so did not see anything of it only the cath lab ,one amazing place it too 5hrs ,had 3sheaths in the groin one 10 mm (big) and two smaller ones the big one they stitched in place, they gave me a massive dose of
heparin
sore and had a few issues because of my other conditions,but otherwise went well ,had GA so did not see anything of it only the cath lab ,one amazing place it too 5hrs ,had 3sheaths in the groin one 10 mm (big) and two smaller ones the big one they stitched in place, they gave me a massive dose of
heparin
Mazza23
in
Atrial Fibrillation Support
8 years ago
Update, sadly not what I'd hoped.
I've been re-referred to the specialist haematologist (who is listed on the HSF website) to discuss
heparin
injections whist trying to conceive. This is what he says he advises his Hughes patients who have infertility and/or early losses.
I've been re-referred to the specialist haematologist (who is listed on the HSF website) to discuss
heparin
injections whist trying to conceive. This is what he says he advises his Hughes patients who have infertility and/or early losses.
Hopingforababy
in
Hughes Syndrome APS Forum
8 years ago
So anxious
I've convinced myself my period hasn't come due to the steroids, pessaries, patches and
heparin
injections I'm on as I don't feel pregnant despite my hcg last week coming back good (stupidly I didn't ask the result although that would have been something else to google and agonise over!)
I've convinced myself my period hasn't come due to the steroids, pessaries, patches and
heparin
injections I'm on as I don't feel pregnant despite my hcg last week coming back good (stupidly I didn't ask the result although that would have been something else to google and agonise over!)
randall55
in
Fertility, Miscarriage & IVF Support
8 years ago
My brain (or lack)
My Rheumy looked at last bloods and said if I ever have to have surgery again I'd need to be in hospital, bridged by IV
heparin
that would be stopped 4 hours before and would I please make sure I don't miss any doses of Rivaroxaban and aspirin! (it's the one med I do not forget!)
My Rheumy looked at last bloods and said if I ever have to have surgery again I'd need to be in hospital, bridged by IV
heparin
that would be stopped 4 hours before and would I please make sure I don't miss any doses of Rivaroxaban and aspirin! (it's the one med I do not forget!)
Ozchick
in
Hughes Syndrome APS Forum
8 years ago
Help with specialist consult - doctors confounded in U.S
Seems we have a strong family history (Genetic) that may manifest in younger members of the family with symptoms but no positive APL tests and manifest in older members of the family with strokes and even death despite a warfarin and/or
heparin
regimen.
Seems we have a strong family history (Genetic) that may manifest in younger members of the family with symptoms but no positive APL tests and manifest in older members of the family with strokes and even death despite a warfarin and/or
heparin
regimen.
Kjinnett
in
Hughes Syndrome APS Forum
8 years ago
Here we go again.
I was then prescribed
heparin
injections after my positive pregnancy test at 4 weeks. I've decided against an early scan this time and will wait to see if I get to 12 weeks. I figured there's nothing more that can be done so either the baby will be ok at 12 weeks or not. I'm on the right regime.
I was then prescribed
heparin
injections after my positive pregnancy test at 4 weeks. I've decided against an early scan this time and will wait to see if I get to 12 weeks. I figured there's nothing more that can be done so either the baby will be ok at 12 weeks or not. I'm on the right regime.
Hopingforababy
in
Hughes Syndrome APS Forum
8 years ago
Itchy skin
Hi first post to this site though I've read others and it doesn't appear that any post is seen as trivial. I was diagnose with nhl about 13 years ago which was later classified as cll. After initial chlorambucil treatment I was on w and w until last year when my white cell and neutrophils count were
Hi first post to this site though I've read others and it doesn't appear that any post is seen as trivial. I was diagnose with nhl about 13 years ago which was later classified as cll. After initial chlorambucil treatment I was on w and w until last year when my white cell and neutrophils count were
Lolleper
in
CLL Support
8 years ago
Hearing and MS?
Is there any coalition between the 2 do you think? I went for my hearing test yesterday and they found significant loss in both ears but major loss in my right ear. But before l can get hearing aids (ugh..lm only 51 for crying out loud) l have to see the ear dr to find out what this noise in my ear is
Is there any coalition between the 2 do you think? I went for my hearing test yesterday and they found significant loss in both ears but major loss in my right ear. But before l can get hearing aids (ugh..lm only 51 for crying out loud) l have to see the ear dr to find out what this noise in my ear is
Jesmcd2
CommunityAmbassador
in
My MSAA Community
8 years ago
Please help me
Hello. I'm hoping someone can assist me or offer some kind of advice as i'm at a complete loss. I'm 22 years old and i've not had any proper kind of life since I was 19/20.. I feel 80 & some days feel like I don't even want to be alive anymore. And before anyone says no not because I suffer with depression
Hello. I'm hoping someone can assist me or offer some kind of advice as i'm at a complete loss. I'm 22 years old and i've not had any proper kind of life since I was 19/20.. I feel 80 & some days feel like I don't even want to be alive anymore. And before anyone says no not because I suffer with depression
KWater
in
Anxiety Support
8 years ago
Life Gets Tough
I want him out of there it bothers me when they have to stop feeding or halt the
heparin
for his echo to do procedures or surgeries. He wants to leave but I don't know what to do because he can't.
I want him out of there it bothers me when they have to stop feeding or halt the
heparin
for his echo to do procedures or surgeries. He wants to leave but I don't know what to do because he can't.
Troubledwife
in
ICUsteps
8 years ago
Brittle APS?
My target is 3-4 and I usually take between 8mg and 12-mg, as well as
heparin
a lot of the time. My professor replied to the specialist stating that it would be a very bad idea to switch me due to my "brittle APS" My question is, has anybody else been told they have brittle APS?
My target is 3-4 and I usually take between 8mg and 12-mg, as well as
heparin
a lot of the time. My professor replied to the specialist stating that it would be a very bad idea to switch me due to my "brittle APS" My question is, has anybody else been told they have brittle APS?
Amylou86
in
Hughes Syndrome APS Forum
8 years ago
Heparin and IVF
I have seen quite a few posts recently about
heparin
and its use in pregnancy.
Heparin
has been used for some time for pregnancies so this isn't really new but I saw this article about
heparin
and IVF pregnancies, which may be of interest.
I have seen quite a few posts recently about
heparin
and its use in pregnancy.
Heparin
has been used for some time for pregnancies so this isn't really new but I saw this article about
heparin
and IVF pregnancies, which may be of interest.
Tlove
in
Fertility Network UK
8 years ago
APS, Menopause & getting relief
Thanks :) ( I am not on warfarin but
Heparin
)
Thanks :) ( I am not on warfarin but
Heparin
)
AnnieAxVale
in
Hughes Syndrome APS Forum
8 years ago
Finally ablated
Vaso vagal...shed some light please, also, I had to have large doses of
heparin
during the transeptal puncture due to " ACT not to large doses of
heparin
" anyone shed some light on that one? I also went into at durin the PvI, is this common?
Vaso vagal...shed some light please, also, I had to have large doses of
heparin
during the transeptal puncture due to " ACT not to large doses of
heparin
" anyone shed some light on that one? I also went into at durin the PvI, is this common?
jimmysouthgates
in
AF Association
8 years ago
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