Search
Search
About
Log in
Join
Experiences with
Hearing tests
Posts
Communities
121,288 public posts
Filter results
High dose Prednisolone and effects
Hi, I was diagnosed with PMR, 8 years ago and was down to 2mg of prednisolone, however 3 weeks ago I ended up in A&E being told I’d developed GCA, after CT head scans and blood tests. Also had a temporal artery biopsy. I was prescribed 60mg of prednisolone, tapering gently so still on 50. My problem
Hi, I was diagnosed with PMR, 8 years ago and was down to 2mg of prednisolone, however 3 weeks ago I ended up in A&E being told I’d developed GCA, after CT head scans and blood tests. Also had a temporal artery biopsy. I was prescribed 60mg of prednisolone, tapering gently so still on 50. My problem
Karil
in
PMRGCAuk
7 months ago
Adrenals
My PMR journey is probably in reality nearer 3 years long. From actual diagnosis from the rheumatologist it is just over 2 years. I am currently taking 1MG of Pred a day. On Christmas Day I was admitted to hospital with a serious infection. This resulted from a UTI infection which the oral antibiotics
My PMR journey is probably in reality nearer 3 years long. From actual diagnosis from the rheumatologist it is just over 2 years. I am currently taking 1MG of Pred a day. On Christmas Day I was admitted to hospital with a serious infection. This resulted from a UTI infection which the oral antibiotics
Ruins67
in
PMRGCAuk
7 months ago
Blood Results- advice please
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Robinface
in
Thyroid UK
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anyone else with Jak2 PV have difficulty walking and leg pain?
I'm new here and really happy I found this forum. I've been diagonsed with Jak2 positive PV a year ago, after feeling unwell for a couple of years, and after my blood tests have been abnormal for quite a while. For the past year, I've been on aspirin and Phlebotomies, which have kept my Hematocrit under
I'm new here and really happy I found this forum. I've been diagonsed with Jak2 positive PV a year ago, after feeling unwell for a couple of years, and after my blood tests have been abnormal for quite a while. For the past year, I've been on aspirin and Phlebotomies, which have kept my Hematocrit under
Panda2014
in
MPN Voice
4 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
7 months ago
New results confused
Hi all, I was chatting on here a few days ago worried about blood results and my GP saying I had CKD and had had this for quite a while. I had no idea. Now, this is what I don’t get, two weeks ago I had my kidney bloods done and the results were worrying apparently? The blood test was repeated yesterday
Hi all, I was chatting on here a few days ago worried about blood results and my GP saying I had CKD and had had this for quite a while. I had no idea. Now, this is what I don’t get, two weeks ago I had my kidney bloods done and the results were worrying apparently? The blood test was repeated yesterday
Calm2
in
Kidney Disease
7 months ago
How to get an accurate T3 reading with bloods?
Ive asked a similar question before, regarding blood testing for T4/T3 and realised for years I was having a blood sample done a few hours after I had taken my Levo upon waking up. People on here then said to have the bloods done that morning before taking T4, to get a more accurate reading. Since then
Ive asked a similar question before, regarding blood testing for T4/T3 and realised for years I was having a blood sample done a few hours after I had taken my Levo upon waking up. People on here then said to have the bloods done that morning before taking T4, to get a more accurate reading. Since then
Ooohmatron
in
Thyroid UK
3 months ago
Thyroid Ultrasound
Hi I posted last year regarding thyroid nodules and someone was asking about thyroid blood tests which I didn’t really have. Well…..things have progressed and I wondered if anyone in the community has any advice on my latest ultrasound results. I had it done privately as NHS was completely dismissive
Hi I posted last year regarding thyroid nodules and someone was asking about thyroid blood tests which I didn’t really have. Well…..things have progressed and I wondered if anyone in the community has any advice on my latest ultrasound results. I had it done privately as NHS was completely dismissive
RoseFlowerDew
in
Thyroid UK
7 months ago
Hypothyroidism and other health issues
Hi, Can someone please tell me if people suffering from hypothyroidism can get anxiety and high blood pressure? All my heart related blood tests are normal but I still don't know why my blood pressure is high all of a sudden? I have also started getting panic attacks and feel anxious 24/7 for no reason
Hi, Can someone please tell me if people suffering from hypothyroidism can get anxiety and high blood pressure? All my heart related blood tests are normal but I still don't know why my blood pressure is high all of a sudden? I have also started getting panic attacks and feel anxious 24/7 for no reason
Samia21
in
Thyroid UK
7 months ago
Low ferritin
Opinions please on low ferritin. Had a blood test last week to rule out CA and my ferritin level is 11. Range is 10 - 150. I have several symptoms of iron deficiency and just wondering if it is actually too low. GP states that is still in range. Any thoughts please?
Opinions please on low ferritin. Had a blood test last week to rule out CA and my ferritin level is 11. Range is 10 - 150. I have several symptoms of iron deficiency and just wondering if it is actually too low. GP states that is still in range. Any thoughts please?
boo16
in
Thyroid UK
7 months ago
Does it sound like PMR?
I have been to several specialists, but no one understands what is happening to me, their eyes always ends up swimming in their faces. After countless hours googling, I found this forum a could finally recognise things you have described here. I woke up with excruciating pain after a parathyroidectomy
I have been to several specialists, but no one understands what is happening to me, their eyes always ends up swimming in their faces. After countless hours googling, I found this forum a could finally recognise things you have described here. I woke up with excruciating pain after a parathyroidectomy
Liljeblad
in
PMRGCAuk
7 months ago
Taper Advice after too fast a taper
Sorry in advance that this is such a long post. Thank you for your consideration of my dilemma. I really value this wonderful forum and the expertise and experience of you all. The journey so far. Diagnosed GCA in July 2023. Had previously months of headaches, malaise, back to back frozen shoulders
Sorry in advance that this is such a long post. Thank you for your consideration of my dilemma. I really value this wonderful forum and the expertise and experience of you all. The journey so far. Diagnosed GCA in July 2023. Had previously months of headaches, malaise, back to back frozen shoulders
Leafsong66
in
PMRGCAuk
7 months ago
Iron Study - Iron improves RLS
Another study shows that iron improves RLS. We cannot access the full article, but the evidence is mounting. There are now many trials proving that iron treatment helps RLS. If your doctor is still refusing to take full iron panel blood tests, please refer them to the Mayo Clinic Algorithm and the latest
Another study shows that iron improves RLS. We cannot access the full article, but the evidence is mounting. There are now many trials proving that iron treatment helps RLS. If your doctor is still refusing to take full iron panel blood tests, please refer them to the Mayo Clinic Algorithm and the latest
Joolsg
in
Restless Legs Syndrome
7 months ago
B12 Injection dose
Hi All, I have been on B12 3 monthly injections for years recently they don't seem to lasting and getting side effects Spoke to the practice pharmacy nurse who said she would ask the Doctor for me to have a blood test before my next injection? Two months ago heard nothing. My question/help is
Hi All, I have been on B12 3 monthly injections for years recently they don't seem to lasting and getting side effects Spoke to the practice pharmacy nurse who said she would ask the Doctor for me to have a blood test before my next injection? Two months ago heard nothing. My question/help is
Spick
in
Pernicious Anaemia Society
7 months ago
adrenal insufficiency and reduced renal function
hi, I am now on 3.5mg of prednisolone and suffering with some symptoms of adrenals struggling. I am experiencing fatigue and some tummy symptoms, occasional diarrhoea and quite often nausea. I have regular blood tests (eGFR) for kidney function and my last one showed my kidney function to have dropped
hi, I am now on 3.5mg of prednisolone and suffering with some symptoms of adrenals struggling. I am experiencing fatigue and some tummy symptoms, occasional diarrhoea and quite often nausea. I have regular blood tests (eGFR) for kidney function and my last one showed my kidney function to have dropped
Koalajane
in
PMRGCAuk
2 months ago
Iron infusion
I had an iron infusion. Finished it last week. My ferritin was 44 prior to infusion. I have to have a blood test to see if it went up. Just curious how long before you feel better. I still feel the same, very tired. Came off mirapex a month ago and waiting for my dr. to give me a new medication.
I had an iron infusion. Finished it last week. My ferritin was 44 prior to infusion. I have to have a blood test to see if it went up. Just curious how long before you feel better. I still feel the same, very tired. Came off mirapex a month ago and waiting for my dr. to give me a new medication.
lorri214
in
Restless Legs Syndrome
4 months ago
Levothyroxine in spain
Hi all getting desperate now with trying to self source levo as ive had to decrease my levo from 150mcg to 125mcg due to high ft4 on my blood test. I only get 100mcg from my doctor. Asked a few times for a private msg but nobody replied. Anyone know if you can buy it in spain as i am starting to feel
Hi all getting desperate now with trying to self source levo as ive had to decrease my levo from 150mcg to 125mcg due to high ft4 on my blood test. I only get 100mcg from my doctor. Asked a few times for a private msg but nobody replied. Anyone know if you can buy it in spain as i am starting to feel
giggy63
in
Thyroid UK
4 months ago
Excessive Bleeding Experiences
Hello,I was wondering if anyone out there had a similar experience to me recently. I have been bleeding for 4 months non stop. It's not painful, the blood used to be a mix of old and fresh, recently it has been very bright and fresh. I first saw a nurse who was amazing- she did a general blood test
Hello,I was wondering if anyone out there had a similar experience to me recently. I have been bleeding for 4 months non stop. It's not painful, the blood used to be a mix of old and fresh, recently it has been very bright and fresh. I first saw a nurse who was amazing- she did a general blood test
Cwatk14
in
PCOS UK (Verity)
7 months ago
Parathyroid levels
I have not been feeling too great and have had my thyroid checked, t4 and t3 are now all normal and back to my 175 a day. Still not been well really bad tummy aches, back ache, really struggling with aches in my muscles etc. Had more blood tests lately, they said to check bones. Doctor rang yesterday
I have not been feeling too great and have had my thyroid checked, t4 and t3 are now all normal and back to my 175 a day. Still not been well really bad tummy aches, back ache, really struggling with aches in my muscles etc. Had more blood tests lately, they said to check bones. Doctor rang yesterday
lynpalmer
in
Thyroid UK
3 months ago
High liver GGT
I have been getting high ggt levels for maybe 3 years now. Currently 132 at the highest was 160. I am guilty of having a bottle of wine spaced from friday through sunday so about a glass an evening over a weekend but am a non drinker the rest of the time. I have had positive gastro parietal cells come
I have been getting high ggt levels for maybe 3 years now. Currently 132 at the highest was 160. I am guilty of having a bottle of wine spaced from friday through sunday so about a glass an evening over a weekend but am a non drinker the rest of the time. I have had positive gastro parietal cells come
Confused1806
in
British Liver Trust
7 months ago
1
...
77
78
79
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
68194 results
Fertility Network UK
5881 results
Pernicious Anaemia Society
4885 results
View top 10 communities
Sort by
Most Relevant
Newest