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Dead Slow Nearly Stop Taper
Hi Everyone I have been reading a lot on here about everyone's PMR journeys and find all the advice and help invaluable for my journey. You are all so supportive, it is really wonderful. I am currently down to 3 1/2 mg of pred and have recently been tapering 1/2 mg every 6 weeks (ding donging between
Hi Everyone I have been reading a lot on here about everyone's PMR journeys and find all the advice and help invaluable for my journey. You are all so supportive, it is really wonderful. I am currently down to 3 1/2 mg of pred and have recently been tapering 1/2 mg every 6 weeks (ding donging between
SufferingPMR
in
PMRGCAuk
5 months ago
Decrease in levothyroxine again!!
Any ideas why for 8 weeks I’ll be on 100mg and then I’ll have blood test and I’ll have to be decreased to 75mg then 8 weeks later I’ll have a blood test and it will be put back to 100mg and now again it’s being decreased it’s so frustrating. I feel awful when on 75mg but they don’t listen to how I feel
Any ideas why for 8 weeks I’ll be on 100mg and then I’ll have blood test and I’ll have to be decreased to 75mg then 8 weeks later I’ll have a blood test and it will be put back to 100mg and now again it’s being decreased it’s so frustrating. I feel awful when on 75mg but they don’t listen to how I feel
Readbecgar
in
Thyroid UK
5 months ago
High LFT results
Hi I have been having blood tests every 6 months for 3 years because my LFT s are coming back abnormal. I used to be a heavy drinker but for the past few years I have cut down and never have more than 14 units a week. I have been in hospital for a hip replacement and then was readmitted as I had an
Hi I have been having blood tests every 6 months for 3 years because my LFT s are coming back abnormal. I used to be a heavy drinker but for the past few years I have cut down and never have more than 14 units a week. I have been in hospital for a hip replacement and then was readmitted as I had an
Bobbie2
in
British Liver Trust
5 months ago
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PRED AGAIN
not posted for a while i came off pred at the doctors advise 1 mg a month eh ho back on 7mg a day to function again was like starting over .again doctor wanted me on 15 a day but i refused been on them 3 years now soon as I get a good blood test i will be tapering at 1/2 mg per month
not posted for a while i came off pred at the doctors advise 1 mg a month eh ho back on 7mg a day to function again was like starting over .again doctor wanted me on 15 a day but i refused been on them 3 years now soon as I get a good blood test i will be tapering at 1/2 mg per month
deeperpurple
in
PMRGCAuk
5 months ago
GFR Drop From 85 to 60
Hi Team,My wife started sudden dizziness and we are visited in casualty to show her and then few blood test. In creatine it shows GFR drop to 85 to 59%. Creatine 1.09 She is iga Nephropathy patient but she is in remission. Even 20 days back her GFR is 85%. I m confused why this happens. No sugar,
Hi Team,My wife started sudden dizziness and we are visited in casualty to show her and then few blood test. In creatine it shows GFR drop to 85 to 59%. Creatine 1.09 She is iga Nephropathy patient but she is in remission. Even 20 days back her GFR is 85%. I m confused why this happens. No sugar,
Ankitjayaswal
in
Kidney Disease
5 months ago
Appropriate Treatment
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
154Eleventh
in
Advanced Prostate Cancer
5 months ago
Have I cardiac haemolytic anaemia or haven't I?
I have been borderline anaemic for some years and it seems that my TAVI a year ago and the consequent medication may have pushed me over the threshold. On May 31 a haematologist wrote to my GP following tests on
March 5
to say that "it is likely [that I have] cardiac haemolytic anaemia". But
I have been borderline anaemic for some years and it seems that my TAVI a year ago and the consequent medication may have pushed me over the threshold. On May 31 a haematologist wrote to my GP following tests on
March 5
to say that "it is likely [that I have] cardiac haemolytic anaemia". But
Taviterry
in
British Heart Foundation
2 months ago
Blood test positive lupus
Recently had bloods done due to a few skin rashes and I looked at the results and some say lupus positive I need more bloods done tomorrow but haven't spoke to the doctor yet but looked online about lupus and a lot of what I'm having seems to all add up to lupus my head is all over the place
Recently had bloods done due to a few skin rashes and I looked at the results and some say lupus positive I need more bloods done tomorrow but haven't spoke to the doctor yet but looked online about lupus and a lot of what I'm having seems to all add up to lupus my head is all over the place
Debz1974
in
LUPUS UK
5 months ago
Total cholesterol and Triglyceride both at 3 mmol/mL
I was on station 5 mg Rosuvastatin. The numbers did not come down therefore was increased to 10mg. My last blood test total cholesterol 3 mmol/L. Triglyceride is also 3 mmol/L LDL and HDL is not within limit. Hba1c 62 !!! At 77 i want to eat and drink what I want? "Cholesterol levels in the UK
I was on station 5 mg Rosuvastatin. The numbers did not come down therefore was increased to 10mg. My last blood test total cholesterol 3 mmol/L. Triglyceride is also 3 mmol/L LDL and HDL is not within limit. Hba1c 62 !!! At 77 i want to eat and drink what I want? "Cholesterol levels in the UK
sandybrown
in
Cholesterol Support
2 months ago
Trying too many supplements at the same time. Maybe crying wolf. It’s really too early to tell.
I have made the mistake of trying too many supplements at the same time and I now have the dilemma of which one (or combination of) is working. I feel if a cure is found, it may be a combination of different things. 1) PEA (Palmitoylethanolamide) with Luteolin — I recently (9 days ago) upped to the
I have made the mistake of trying too many supplements at the same time and I now have the dilemma of which one (or combination of) is working. I feel if a cure is found, it may be a combination of different things. 1) PEA (Palmitoylethanolamide) with Luteolin — I recently (9 days ago) upped to the
Gcf51
in
Cure Parkinson's
5 months ago
Looking for advice, yet again, please.
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
Mulberry100
in
Restless Legs Syndrome
1 year ago
New RA diagnosis
Hi, diagnosed 4 wks ago with RA ...prescribed 15mg Methotrexate 2wks ago & had my 1st blood test 4 days ago. The same day as my blood test I increased my dose to 20mg. I am anxiously awaiting my blood test results, still nothing after 4 days ...is this usual ?? A reassuring blood test might help to
Hi, diagnosed 4 wks ago with RA ...prescribed 15mg Methotrexate 2wks ago & had my 1st blood test 4 days ago. The same day as my blood test I increased my dose to 20mg. I am anxiously awaiting my blood test results, still nothing after 4 days ...is this usual ?? A reassuring blood test might help to
StanandDot
in
FieryBones - RA Community
5 months ago
New diagnosis of RA
I was diagnosed with RA approx 4 wks ago & started taking Methotrexate 15mg for past 2 wks followed by a blood test 4 days ago, my question is, am I supposed to receive the results of my blood test the same day as I have increased my dose (now on wk 3) without knowing whether my bloods are abnormal.
I was diagnosed with RA approx 4 wks ago & started taking Methotrexate 15mg for past 2 wks followed by a blood test 4 days ago, my question is, am I supposed to receive the results of my blood test the same day as I have increased my dose (now on wk 3) without knowing whether my bloods are abnormal.
StanandDot
in
PMRGCAuk
5 months ago
Levithyroxine
I have been as high as 175mg. When I asked about this at hospital. The Dr checked my levels via computer and sent a letter to my Dr. I was immediately reduced to 125. Then put up to 150 now had blood test so it will change.One important thing is take 30/1 hr before breakfast and other tablets for the
I have been as high as 175mg. When I asked about this at hospital. The Dr checked my levels via computer and sent a letter to my Dr. I was immediately reduced to 125. Then put up to 150 now had blood test so it will change.One important thing is take 30/1 hr before breakfast and other tablets for the
Mira265
in
Thyroid UK
5 months ago
Low Platelet count
My husband had s heart bypass in December 2023 and had a low platelet count prior to surgery of 284. After his surgery he received approx 12 pints of blood dye to complications. He has had no after care from the recovery point of view so no one he can ask.He has recently had a check blood test and
My husband had s heart bypass in December 2023 and had a low platelet count prior to surgery of 284. After his surgery he received approx 12 pints of blood dye to complications. He has had no after care from the recovery point of view so no one he can ask.He has recently had a check blood test and
Sooz34
in
British Heart Foundation
5 months ago
Went for my private blood test today
Hi all. So after all the advice went for my private blood test this morning. The nurse tried 3 times to take blood and nothing. I drank lots of water before hand. Any advice for next time, I am booked in for next Tuesday.
Hi all. So after all the advice went for my private blood test this morning. The nurse tried 3 times to take blood and nothing. I drank lots of water before hand. Any advice for next time, I am booked in for next Tuesday.
Tinkerbell_84
in
Thyroid UK
5 months ago
US Senator Joe Lieberman died from MF
Just read this in Wall St Journal. Reproduced below from: https://www.yale64.org/remembrances/lieberman.htm since the WSJ version is in a paywall. -- His son calls the prior condition old fashioned MPD. I assume it was PV, suggests his Dr may have been likewise old fashioned and maybe he didn't
Just read this in Wall St Journal. Reproduced below from: https://www.yale64.org/remembrances/lieberman.htm since the WSJ version is in a paywall. -- His son calls the prior condition old fashioned MPD. I assume it was PV, suggests his Dr may have been likewise old fashioned and maybe he didn't
EPguy
in
MPN Voice
5 months ago
RLS Unbearable
My RLS is the worst ever tonight It is 2:00 am in the UK and my body is burning all over especially my right side I have tried compressed socks but when my RLS is bad they have no effect I telephoned 111 several weeks ago and they asked me "How did I know I had RLS" The person I talked to sent a report
My RLS is the worst ever tonight It is 2:00 am in the UK and my body is burning all over especially my right side I have tried compressed socks but when my RLS is bad they have no effect I telephoned 111 several weeks ago and they asked me "How did I know I had RLS" The person I talked to sent a report
williamghenry
in
Restless Legs Syndrome
5 months ago
Allele Burden -- Polycythemia Vera
Can someone please explain what is the Allele Burden ? Should I be having a regular measurement, by means of a blood test ,to monitor the progress of the disease? What would be the normal range? I was diagnosed with PV in May 2024 had two venesections then a platelet crash ( down to 7) after 10 days
Can someone please explain what is the Allele Burden ? Should I be having a regular measurement, by means of a blood test ,to monitor the progress of the disease? What would be the normal range? I was diagnosed with PV in May 2024 had two venesections then a platelet crash ( down to 7) after 10 days
Hilary777
in
MPN Voice
2 months ago
types of T3
Hi all I currently take Roma T3 capsules my prescription is due for renewal and I’m interested to know what other types of T3 are available and what people’s experience is with them. I’m not 100% sure the Roma capsules agree with me, it is also hard to split doses before blood tests. As always, very
Hi all I currently take Roma T3 capsules my prescription is due for renewal and I’m interested to know what other types of T3 are available and what people’s experience is with them. I’m not 100% sure the Roma capsules agree with me, it is also hard to split doses before blood tests. As always, very
Topes009
in
Thyroid UK
2 months ago
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