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Month 21 of 24 Rituximab and Venetoclax
I'm doing well with this treatment CLL wise with all bloods within normal range. Antibody levels are however below being of much use.Past 10 weeks I've had chronic diarrhoea with stool tests coming up negative. Blood tests all negative including C diff. I've been advised to stop Venetoclax for 2 weeks
I'm doing well with this treatment CLL wise with all bloods within normal range. Antibody levels are however below being of much use.Past 10 weeks I've had chronic diarrhoea with stool tests coming up negative. Blood tests all negative including C diff. I've been advised to stop Venetoclax for 2 weeks
Fastbike14
in
CLL Support
3 months ago
No Endo appointment for 18 months and struggling for information
A couple of blood tests in April showed hyperthyroidism. I’ve no real symptoms. GP examined me and referred me to an NHS endo, who asked for bloods and neck scan. But no appointment for 18mths. I therefore saw a private endo 3 weeks ago who after examining me said 99.9999% Graves and neck scan is a worthless
A couple of blood tests in April showed hyperthyroidism. I’ve no real symptoms. GP examined me and referred me to an NHS endo, who asked for bloods and neck scan. But no appointment for 18mths. I therefore saw a private endo 3 weeks ago who after examining me said 99.9999% Graves and neck scan is a worthless
Asatess
in
Thyroid UK
3 months ago
Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME
There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro' testing, to successful in vivo human studies, clinical trials and eventual approval. Not only does the therapy need to kill the cancer cells with
There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro' testing, to successful in vivo human studies, clinical trials and eventual approval. Not only does the therapy need to kill the cancer cells with
AussieNeil
Partner
in
CLL Support
3 months ago
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at my wits end
My story is a long story.Everything was fine with my GP and had a good gp/patient relationship-had full trust in him -until 2011 when he referred me to rheumatology because he thought my symptoms were something else besides my Fibromyalgia.The rheumatologist did nothing except tell me" you need to lose
My story is a long story.Everything was fine with my GP and had a good gp/patient relationship-had full trust in him -until 2011 when he referred me to rheumatology because he thought my symptoms were something else besides my Fibromyalgia.The rheumatologist did nothing except tell me" you need to lose
Purple1968
in
Pain Concern
3 months ago
Another update to Advice Please.
PMRpro, SnazzyD and DorsetLady. I had a Blood test done Tuesday, and an appointment to see the Rheumatologist Wednesday afternoon. She said blood test showed no raised inflammation. I pointed out that I had been on Pred for 6 years, and only down to 5.5mg. She arranged an urgent appointment to see the
PMRpro, SnazzyD and DorsetLady. I had a Blood test done Tuesday, and an appointment to see the Rheumatologist Wednesday afternoon. She said blood test showed no raised inflammation. I pointed out that I had been on Pred for 6 years, and only down to 5.5mg. She arranged an urgent appointment to see the
pmrgcavictim
in
PMRGCAuk
3 months ago
Carbocisteine - possible side effect for CBD
My husband is in hospital recovering from silent aspiration pneumonia. He is now nil by mouth and PEG fed. His blood tests show he has no infection, his oxygen level is acceptable and his chest is much improved. However he is still being treated with Carbocisteine ( which helps to loosen and bring up
My husband is in hospital recovering from silent aspiration pneumonia. He is now nil by mouth and PEG fed. His blood tests show he has no infection, his oxygen level is acceptable and his chest is much improved. However he is still being treated with Carbocisteine ( which helps to loosen and bring up
SunriseLegend
in
PSP Association
3 months ago
ET PLATLETS
Hi i was diagnosed with ET cal r mutation a year ago I am 47 went to my gp for normal blood tests and that's hw this all started I was suffering from headaches vertigo and other things so my gp refer me to hematologist who carried out loads of other bloods and came back with this to me I was so
Hi i was diagnosed with ET cal r mutation a year ago I am 47 went to my gp for normal blood tests and that's hw this all started I was suffering from headaches vertigo and other things so my gp refer me to hematologist who carried out loads of other bloods and came back with this to me I was so
VTAR24
in
MPN Voice
3 months ago
PMR relapse?
I would be grateful for some advice! I was diagnosed with PMR end of 2022. I was put on 15 mg Prednisolone and started tapering around 2 months in. I stopped Pred December 23! Around 10 weeks ago started waking in early hours in bad pain chiefly in shoulders and hips but also shooting pains in limbs
I would be grateful for some advice! I was diagnosed with PMR end of 2022. I was put on 15 mg Prednisolone and started tapering around 2 months in. I stopped Pred December 23! Around 10 weeks ago started waking in early hours in bad pain chiefly in shoulders and hips but also shooting pains in limbs
Salukimama
in
PMRGCAuk
3 months ago
Johns Hopkins adjusted clinical groups system score mean under nhs?
I see this on record Johns Hopkins adjusted clinical groups system score of ACG 5. What does it mean how does it impact me in any way.? I have started asking for blood tests and my GP has not been happy about it. Surgery has never been keen to blood tests though this seems to have popped up on record
I see this on record Johns Hopkins adjusted clinical groups system score of ACG 5. What does it mean how does it impact me in any way.? I have started asking for blood tests and my GP has not been happy about it. Surgery has never been keen to blood tests though this seems to have popped up on record
thyroidsymtoms
in
Thyroid UK
4 months ago
Discharged by rheumy!
I went to my appointment yesterday, full of tales of woe about all my various health problems this year which caused a delay in my tapering. I'm on half a mg pred. He said my blood tests were all fine. I've had no recurrence of any GCA symptoms. My hip and shoulder stiffness (which is constant and not
I went to my appointment yesterday, full of tales of woe about all my various health problems this year which caused a delay in my tapering. I'm on half a mg pred. He said my blood tests were all fine. I've had no recurrence of any GCA symptoms. My hip and shoulder stiffness (which is constant and not
Broseley
in
PMRGCAuk
4 months ago
Time between Afib trigger & episode
Hi all, I've very recently been diagnosed with Afib (thanks, Apple Watch for highlighting the problem I'd never heard of) and have been to the GP/hospital since February to get a proper diagnosis. So far all my results are showing normal (blood pressure, Echo, blood tests, that sort of thing). ECG did
Hi all, I've very recently been diagnosed with Afib (thanks, Apple Watch for highlighting the problem I'd never heard of) and have been to the GP/hospital since February to get a proper diagnosis. So far all my results are showing normal (blood pressure, Echo, blood tests, that sort of thing). ECG did
MrBinks
in
Atrial Fibrillation Support
4 months ago
New diagnose - GMG
Was diagnosed with FM January 2020, never got a follow-up because of COVID-19, just increasing the medication from GP. Previous winter 22-23 was BAD!!! Didn't leave the house, almost all the winter in bed. Horrible pain, itching that hurts, shaking, and on and on...Till began to slur words, chock on
Was diagnosed with FM January 2020, never got a follow-up because of COVID-19, just increasing the medication from GP. Previous winter 22-23 was BAD!!! Didn't leave the house, almost all the winter in bed. Horrible pain, itching that hurts, shaking, and on and on...Till began to slur words, chock on
Polly-S
in
Fibromyalgia Action UK
4 months ago
My question is about the best way of getting a diagnosis of scleroderma or of discounting it?
I was diagnosed recently with Raynaud's disease which can get quite painful, but is manageable. I have GORD and a small hiatus hernia. However I do get abdominal pain and have asthma exacerbated by allergies. I have just had a CT scan and was told the pain is probably musco-skeletal, plus I have an atrophied
I was diagnosed recently with Raynaud's disease which can get quite painful, but is manageable. I have GORD and a small hiatus hernia. However I do get abdominal pain and have asthma exacerbated by allergies. I have just had a CT scan and was told the pain is probably musco-skeletal, plus I have an atrophied
strongmouse
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Active B12 29 (37.5-150)
These are my student daughter's results. She is at uni in Edinburgh and struggling to find g.p. practice to take her on. She has an iron panel coming too but sample haemolised so have to redo it. These are first blood tests and she is not taking any supplements. Please advise on thoughts and next
These are my student daughter's results. She is at uni in Edinburgh and struggling to find g.p. practice to take her on. She has an iron panel coming too but sample haemolised so have to redo it. These are first blood tests and she is not taking any supplements. Please advise on thoughts and next
AKatieD
in
Pernicious Anaemia Society
4 months ago
On ending
Just over 2 months ago I had 2value.replacements mechanical op went very well unfortunately my after care didn't go all that well .Iam having to go to doctors 2 times a week.for blood tests to get warfine dose right and this week alone 2 hospital appointments.which is far way don't have car and patent
Just over 2 months ago I had 2value.replacements mechanical op went very well unfortunately my after care didn't go all that well .Iam having to go to doctors 2 times a week.for blood tests to get warfine dose right and this week alone 2 hospital appointments.which is far way don't have car and patent
Craig53
in
British Heart Foundation
4 months ago
PMR since July 2018 and down to 1mg. Enter GCA
My Bio is pretty well up to date, until a week ago. Quick summary of things is: I'm ok, vision ok, diagnosed with GCA, and I've gone from 1mg (nearly done...or so I thought) to 60mg. Now on my third day of 60mg and waiting on new bloods I did today and a call from the consultant tomorrow to discuss
My Bio is pretty well up to date, until a week ago. Quick summary of things is: I'm ok, vision ok, diagnosed with GCA, and I've gone from 1mg (nearly done...or so I thought) to 60mg. Now on my third day of 60mg and waiting on new bloods I did today and a call from the consultant tomorrow to discuss
pata63
in
PMRGCAuk
4 months ago
Confusing Lab Test Results
I had a recent PMR flare that necessitated my temporarily going up from the 5mg I had tapered down to to a much higher dose. 20mg for 2 weeks, followed by 15mg for one week and then a drop to 10mg, where I have stayed for almost a month before I resume DL’s slow 5 week taper. Fortunately, my increased
I had a recent PMR flare that necessitated my temporarily going up from the 5mg I had tapered down to to a much higher dose. 20mg for 2 weeks, followed by 15mg for one week and then a drop to 10mg, where I have stayed for almost a month before I resume DL’s slow 5 week taper. Fortunately, my increased
Donna5658
in
PMRGCAuk
4 months ago
Interpreting blood tests
I've been on ADT for 4 months in preparation for RT and then HDR BT. I have localised G8 with an initial PSA of 8.1 Prior to commencing ADT, my PSA inexplicably dropped to 4.94 but then rose to 5.37 within 2 months. Anyway, here are my test results before starting ADT; These are Aussie measurements
I've been on ADT for 4 months in preparation for RT and then HDR BT. I have localised G8 with an initial PSA of 8.1 Prior to commencing ADT, my PSA inexplicably dropped to 4.94 but then rose to 5.37 within 2 months. Anyway, here are my test results before starting ADT; These are Aussie measurements
Mike58
in
Advanced Prostate Cancer
4 months ago
Silent Reflux? Is yours scary?
Initially I could just be having a drink of water from a bottle and suddenly spray the water straight back out of my mouth. No warning. No previous symptoms either. After a scan and blood tests that were fine, in a week it stopped. 3 months down the track, the left hand side of tongue and under tongue
Initially I could just be having a drink of water from a bottle and suddenly spray the water straight back out of my mouth. No warning. No previous symptoms either. After a scan and blood tests that were fine, in a week it stopped. 3 months down the track, the left hand side of tongue and under tongue
MeeMawMea
in
Acid Reflux Support
4 months ago
B vits
I think I need to start taking b vits again as feeling very foggy brained, apathetic etc. I stopped as ineggus b complex seemed to be exacerbating a pain under my right rib. I stopped taking them and the pain ceased. I tried one tablet again last week and the pain returned. I’ve had a chest x ray and
I think I need to start taking b vits again as feeling very foggy brained, apathetic etc. I stopped as ineggus b complex seemed to be exacerbating a pain under my right rib. I stopped taking them and the pain ceased. I tried one tablet again last week and the pain returned. I’ve had a chest x ray and
Fizzwhizz
in
Thyroid UK
4 months ago
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