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Wait list from referral
Hey :)I just want some empathy I think! I got my referral to speak to a gynae (so I'm not even sure if they're an endo specialist yet!) About 6 weeks ago. I chased up with my doctors as I hadn't even heard if the referral had been received. I've been told the wait list for the initial consultation is
Hey :)I just want some empathy I think! I got my referral to speak to a gynae (so I'm not even sure if they're an endo specialist yet!) About 6 weeks ago. I chased up with my doctors as I hadn't even heard if the referral had been received. I've been told the wait list for the initial consultation is
Bumblebee11
in
Endometriosis UK
2 months ago
homozygous, so I have the 2 copies for H63D. I’ve had a thought 💭
I’m homozygous/have the 2 copies for H63D. I’ve have higher ferritin levels over past 7/8 years ranges from circa 180 upto 380 at times. I found out as hubby bought me a Family history genetic test as a present and it included health DNA results. For years & prior to the genetic test & since, I have
I’m homozygous/have the 2 copies for H63D. I’ve have higher ferritin levels over past 7/8 years ranges from circa 180 upto 380 at times. I found out as hubby bought me a Family history genetic test as a present and it included health DNA results. For years & prior to the genetic test & since, I have
Onedaymore1
in
Haemochromatosis Society UK
2 months ago
maybe not PMR!
hello - i saw my consultant rhematologist last week and he doesnt think i have PMR - or at least it’s atypical. If atypical then thats a management problem. So he says steroids are masking symptoms and also causes and im using them as painkiller so he's taking me off them over 6 weeks to see whats really
hello - i saw my consultant rhematologist last week and he doesnt think i have PMR - or at least it’s atypical. If atypical then thats a management problem. So he says steroids are masking symptoms and also causes and im using them as painkiller so he's taking me off them over 6 weeks to see whats really
JessJess21
in
PMRGCAuk
2 months ago
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lower back pain
Had car accident in 2012 I had a prolapse disc, Always had pain but not bad 3 years ago this started more, went doctors give me pain killers and Pregbalin. 2023 July sent me to physio, I ended up telling them it just aggravates the problem,they were going to escalate the case, my wife says It’s like
Had car accident in 2012 I had a prolapse disc, Always had pain but not bad 3 years ago this started more, went doctors give me pain killers and Pregbalin. 2023 July sent me to physio, I ended up telling them it just aggravates the problem,they were going to escalate the case, my wife says It’s like
Abergele
in
Pain Concern
2 months ago
Prednisone masking various pain issues?
I have read prednisone does not treat certain pain issues ie “arthritis” yet I am also seeing many commemts about prednisone “masking” certain issues, seems like a contradiction, and resulting in a view that prednisone is a pain killer/anti iflammatory, for other conditions other than pmr, ?
I have read prednisone does not treat certain pain issues ie “arthritis” yet I am also seeing many commemts about prednisone “masking” certain issues, seems like a contradiction, and resulting in a view that prednisone is a pain killer/anti iflammatory, for other conditions other than pmr, ?
arvine
in
PMRGCAuk
2 months ago
I know Nitrous Oxide can cause b12 deficiency, but could Nitrogen Dioxide do it too?
I had low b12, took ppi and h2 before Mt body crashed. But I also realised that we did an experiment in the labs I was working in, when my body began to feel awful, around the time I started PPIs (before my body totally crashed months later) I know Nitrous Oxide messes with b12... Does anyone know
I had low b12, took ppi and h2 before Mt body crashed. But I also realised that we did an experiment in the labs I was working in, when my body began to feel awful, around the time I started PPIs (before my body totally crashed months later) I know Nitrous Oxide messes with b12... Does anyone know
Suffering_sunny
in
Pernicious Anaemia Society
7 months ago
Final lap?
Four years on and grateful for that. Enzalutamide stopped working earlier in the year. PSA doubling. Lesion in spine led to pathological fracture and some pressure on the spinal cord. Radiation to spine and pain relieved. Docetaxel started but discontinued due to severe allergic reaction. Nothing for
Four years on and grateful for that. Enzalutamide stopped working earlier in the year. PSA doubling. Lesion in spine led to pathological fracture and some pressure on the spinal cord. Radiation to spine and pain relieved. Docetaxel started but discontinued due to severe allergic reaction. Nothing for
FortyWinks
in
Advanced Prostate Cancer
2 months ago
Describing my Headache
Since my TBI 5 months ago I have just figured out what my headache feels like. I have struggled to describe it to my loved ones and consultants but Eating Fizzy sherbert is how it feels (but a painful version). This is everyday even with my pain medication. Has anyone had this and does it end?
Since my TBI 5 months ago I have just figured out what my headache feels like. I have struggled to describe it to my loved ones and consultants but Eating Fizzy sherbert is how it feels (but a painful version). This is everyday even with my pain medication. Has anyone had this and does it end?
ShareeRose
in
Headway
2 months ago
Migraine with brainstem aura
I am new here and would like to share my story with you all,it may be helpful to others with similar symptoms,you can ask questions if you wish to .February 2023 I experienced a strange sensation. I was at work and standing,when a loud ringing started in my ears,right side of my face felt numb,double
I am new here and would like to share my story with you all,it may be helpful to others with similar symptoms,you can ask questions if you wish to .February 2023 I experienced a strange sensation. I was at work and standing,when a loud ringing started in my ears,right side of my face felt numb,double
Hans23
in
Migraine Support
2 months ago
Cladribine
I have recently been diagnosed as having RRMS. I have only had 2 relapses in the past year, both of which involved temporary loss of eyesight. On both occasions, my vision returned to normal by itself, without any need or medication to be prescribed. However, my most recent MRI contrast scan shows that
I have recently been diagnosed as having RRMS. I have only had 2 relapses in the past year, both of which involved temporary loss of eyesight. On both occasions, my vision returned to normal by itself, without any need or medication to be prescribed. However, my most recent MRI contrast scan shows that
max011
in
My MSAA Community
7 months ago
osteoarthritis & codeine
I was first diagnosed with spinal stenosis back in the mists of time when I was just 19. I now have diagnosed OA in my knees, lower spine, shoulders, hands and fingers. I was prescribed Codeine Phosphate. Not long after I was first prescribed, having read the enclosed leaflet, I discovered Codeine can
I was first diagnosed with spinal stenosis back in the mists of time when I was just 19. I now have diagnosed OA in my knees, lower spine, shoulders, hands and fingers. I was prescribed Codeine Phosphate. Not long after I was first prescribed, having read the enclosed leaflet, I discovered Codeine can
phoebesmum
in
PMRGCAuk
2 months ago
Help please
I was diagnosed in late May year. Since taking Steroids and other meds been getting on OK. Tapered down to 10 mg due to taper to 9 later in August. I continued with some discomfort in left hand but the last few days I have developed pain, with pain in both hands, shooting pains, wrists now knees and
I was diagnosed in late May year. Since taking Steroids and other meds been getting on OK. Tapered down to 10 mg due to taper to 9 later in August. I continued with some discomfort in left hand but the last few days I have developed pain, with pain in both hands, shooting pains, wrists now knees and
Jakey67
in
PMRGCAuk
2 months ago
side effects of tapering
I reduced successfully from 7 to 6mg a year ago and have been trying to reduce a bit further recently. My 6mg was split into 5mg in the morning and 1mg at night. I decided to split the 1mg tablet every few days and got down to alternate days. Going lower wasn’t a success however; I tried once a week
I reduced successfully from 7 to 6mg a year ago and have been trying to reduce a bit further recently. My 6mg was split into 5mg in the morning and 1mg at night. I decided to split the 1mg tablet every few days and got down to alternate days. Going lower wasn’t a success however; I tried once a week
Jackie_boy
in
PMRGCAuk
2 months ago
root canal work while on zoledronic acid infusions
I have 6 monthly dental checkups, and for years all has been well. I had my first zoledronic acid infusion 28th December 2023. My last dental checkup was in March. A week ago I started getting intermittent pains in the right side of my jaw, both bottom and top. GP ruled out PMR and recommended I visit
I have 6 monthly dental checkups, and for years all has been well. I had my first zoledronic acid infusion 28th December 2023. My last dental checkup was in March. A week ago I started getting intermittent pains in the right side of my jaw, both bottom and top. GP ruled out PMR and recommended I visit
Angel_doll
in
PMRGCAuk
2 months ago
can someone explain please
During a conversation with my husband concerning my PMR, l told him that l was in pain that day. He asked why l didn’t request some stronger/more effective pain meds from the GP. So l made the statement that PMR does not respond particularly to painkillers. My hubby seemed to think that what l had
During a conversation with my husband concerning my PMR, l told him that l was in pain that day. He asked why l didn’t request some stronger/more effective pain meds from the GP. So l made the statement that PMR does not respond particularly to painkillers. My hubby seemed to think that what l had
Legsandmore
in
PMRGCAuk
2 months ago
Nerve pain in foot
Does anyone else get what is more than likely nerve pain in the feet? It comes and goes like a shooting pain but has been a lot more frequent recently and it's not nice. At the moment it's like above my little toe. But it moves around both feet - and usually it was in the middle towards the upper part
Does anyone else get what is more than likely nerve pain in the feet? It comes and goes like a shooting pain but has been a lot more frequent recently and it's not nice. At the moment it's like above my little toe. But it moves around both feet - and usually it was in the middle towards the upper part
On_porter
in
LSN
2 months ago
Leg cramps
I drink a lot of Matcha tea with honey, also squash. One coffee breakfast but I still get cramp. My feet feel as they try to curl under, legs then feel heavy and cramp up to my hips. Last night both went very quickly and getting out of bed was very painful. Standing and trying to walk was laughable.
I drink a lot of Matcha tea with honey, also squash. One coffee breakfast but I still get cramp. My feet feel as they try to curl under, legs then feel heavy and cramp up to my hips. Last night both went very quickly and getting out of bed was very painful. Standing and trying to walk was laughable.
mag123ben
in
MPN Voice
2 months ago
Should I try the 5 mg of prednisone increase for few days
well I have told my story few times over last months, most recently over 3 weeks ago have severe groin pain and moves around, hip joint front thigh and same side achy leg, had MRI on back about 6 weeks ago, ortho dr also ordered MRI for left hip( this was to check if tears tjat happened in Jan in gluteus
well I have told my story few times over last months, most recently over 3 weeks ago have severe groin pain and moves around, hip joint front thigh and same side achy leg, had MRI on back about 6 weeks ago, ortho dr also ordered MRI for left hip( this was to check if tears tjat happened in Jan in gluteus
arvine
in
PMRGCAuk
2 months ago
advice for adenomyosis
Hi all. I have endometriosis, diagnosed in 1999 and adenomyosis, diagnosed in 2018. I’m 44 years old now. I am under the care of a gynaecologist but maybe I should get another opinion..? I suffer with severe pain during my period but then right after bleeding stops, I suffer with a burning pain for
Hi all. I have endometriosis, diagnosed in 1999 and adenomyosis, diagnosed in 2018. I’m 44 years old now. I am under the care of a gynaecologist but maybe I should get another opinion..? I suffer with severe pain during my period but then right after bleeding stops, I suffer with a burning pain for
cantdeal
in
Endometriosis UK
2 months ago
The hidden dangers ... the many routes to the IC ... beware of the cheese ... 🧀
It's the early hours of day 11 of my trip to Switzerland with my father. Ironically I can't sleep, so got up for a hot drink and a banana (after reading IP's chat post this week). I know screen time is not the answer, but I suspect I'm done for the night anyway. It's been an eventful week leading to
It's the early hours of day 11 of my trip to Switzerland with my father. Ironically I can't sleep, so got up for a hot drink and a banana (after reading IP's chat post this week). I know screen time is not the answer, but I suspect I'm done for the night anyway. It's been an eventful week leading to
linda9389
Administrator
in
Fun Beyond 10K & Race Support
2 months ago
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