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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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The end is in sight but I'm a blubbering wreck!
I am now a week away from round 6
FCR
. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I keep breaking down and crying for no reason ... I think it's the relief that it's nearly done... That I've done it.. I've weathered the storm .
I am now a week away from round 6
FCR
. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I keep breaking down and crying for no reason ... I think it's the relief that it's nearly done... That I've done it.. I've weathered the storm .
Bethan49
in
CLL Support
7 years ago
Question about needing bone marrow biopsy after treatment
I've just completed 5 chemo rounds of
FCR
. My hematologist, when I asked him about needing a biopsy to check the effectiveness of treatment, said basically that a) my counts all looked right where they'd hoped they would be, and b) how would having more specific information from a biopsy help?
I've just completed 5 chemo rounds of
FCR
. My hematologist, when I asked him about needing a biopsy to check the effectiveness of treatment, said basically that a) my counts all looked right where they'd hoped they would be, and b) how would having more specific information from a biopsy help?
brian_in_Seattle
in
CLL Support
7 years ago
FCR round 1
I don't want to frighten anyone waiting to start
FCR
so just want to let you know how well I'm doing now. I have an appointment with my haematologist to sort out medication before round 2.
I don't want to frighten anyone waiting to start
FCR
so just want to let you know how well I'm doing now. I have an appointment with my haematologist to sort out medication before round 2.
Kenn123
in
CLL Support
8 years ago
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FCR 6th Cycle and side effects ?
I know the
FCR
treatment is toxic but do not understand what the effects and dangers of it are. Any advice out there please?
I know the
FCR
treatment is toxic but do not understand what the effects and dangers of it are. Any advice out there please?
Penkman
in
CLL Support
8 years ago
Need help please
Hi I'm a new member. I joined because I don't know where to turn..My husband diagnosed with PD for about 10 years, we will be married 33 years in Feb. I'm not sure if we will make it. He takes 8-10 sinemet a day plus 4 xanax and 1/2 requip at night.. oh and 10mg ambien..he was taken off miripex due to
Hi I'm a new member. I joined because I don't know where to turn..My husband diagnosed with PD for about 10 years, we will be married 33 years in Feb. I'm not sure if we will make it. He takes 8-10 sinemet a day plus 4 xanax and 1/2 requip at night.. oh and 10mg ambien..he was taken off miripex due to
emv2016
in
Cure Parkinson's
7 years ago
Length of FCR treatment
Well I've started my first course of
FCR
and it's going ok. Only thing I've had to contend with was a bit of nausea. I read an article a few weeks ago on this site about length of treatment but I can't seem to find it now.
Well I've started my first course of
FCR
and it's going ok. Only thing I've had to contend with was a bit of nausea. I read an article a few weeks ago on this site about length of treatment but I can't seem to find it now.
Kenn123
in
CLL Support
8 years ago
Anti sickness medication
I've just started first round of
FCR
. It went well for first two days but now I'm literally as sick as a dog. Have phoned nhs 24 and my husband is now going to pick up a prescription. Don't even know what it is for. Did any medication prove effective for anyone else? Any recommendations.
I've just started first round of
FCR
. It went well for first two days but now I'm literally as sick as a dog. Have phoned nhs 24 and my husband is now going to pick up a prescription. Don't even know what it is for. Did any medication prove effective for anyone else? Any recommendations.
Kenn123
in
CLL Support
8 years ago
About to start FCR
Anyone got any advice or reassuring comments about the whole
FCR
thing? My haematologist about frightened me to death yesterday about all the things that could go wrong. HELP!
Anyone got any advice or reassuring comments about the whole
FCR
thing? My haematologist about frightened me to death yesterday about all the things that could go wrong. HELP!
Kenn123
in
CLL Support
8 years ago
Pains in neck while having chemo
I have SLL & just about to have chemo (
FCR
) session 3. I had huge lymph nodes in my neck (one was around 7 cms) which have all but gone now, but I still have pains from time to time, where they used to be. Has anyone else experienced this ?
I have SLL & just about to have chemo (
FCR
) session 3. I had huge lymph nodes in my neck (one was around 7 cms) which have all but gone now, but I still have pains from time to time, where they used to be. Has anyone else experienced this ?
Grannajan
in
CLL Support
8 years ago
Life after fcr...what can we expect?
What side effects of
FCR
may we have long term? Nic asked me to do this as she is busy writing a post about wind. .. She's had me crying with laughter.... This little character is called Windy Miller.. From a children's BBC programme from the 60s... just for Nic !!!! Hey!
What side effects of
FCR
may we have long term? Nic asked me to do this as she is busy writing a post about wind. .. She's had me crying with laughter.... This little character is called Windy Miller.. From a children's BBC programme from the 60s... just for Nic !!!! Hey!
Bethan49
in
CLL Support
8 years ago
FLAIR Trial – Experiences post FCR – Recovery from Red Cell Cytopenia and Neutropenia
-3-
fcr
https://healthunlocked.com/cllsupport/posts/131702028/flair-trial-ernieuk-dehydration-in-round-4-
fcr
-and-home-made-soup https://healthunlocked.com/cllsupport/posts/131792445/flair-trial-ernieuk-more-dehydration-round-5-
fcr
https://healthunlocked.com/cllsupport/posts/131948274/flair-trial-ernieuk-final-round
-3-
fcr
https://healthunlocked.com/cllsupport/posts/131702028/flair-trial-ernieuk-dehydration-in-round-4-
fcr
-and-home-made-soup https://healthunlocked.com/cllsupport/posts/131792445/flair-trial-ernieuk-more-dehydration-round-5-
fcr
https://healthunlocked.com/cllsupport/posts/131948274/flair-trial-ernieuk-final-round
Ernest2
in
CLL Support
8 years ago
Happy day / complete remission
I received my results after finishing my
FCR
/Duvelisib trial treatment August 20th. And I wanted to share my good news with you all. I had a bone marrow biopsy done 2 weeks ago and the result is a have achieved a complete remission. I am so happy.
I received my results after finishing my
FCR
/Duvelisib trial treatment August 20th. And I wanted to share my good news with you all. I had a bone marrow biopsy done 2 weeks ago and the result is a have achieved a complete remission. I am so happy.
Dinasantos
in
CLL Support
7 years ago
Second treatment looming
The Oncologist decided to commence treatment right away which consisted initially of Rchop for the initial infusions and then
FCR
which were completed in October of that year. Bone marrow biopsys revealed a complete remission and I continued to lead an active life .
The Oncologist decided to commence treatment right away which consisted initially of Rchop for the initial infusions and then
FCR
which were completed in October of that year. Bone marrow biopsys revealed a complete remission and I continued to lead an active life .
plett1234
in
CLL Support
8 years ago
ACP 196
If I am I'm less willing to undertake
FCR
. Does anybody know anything about the btk inhibitor ACP 196. How is it different to Ibrutinib?
If I am I'm less willing to undertake
FCR
. Does anybody know anything about the btk inhibitor ACP 196. How is it different to Ibrutinib?
Kenn123
in
CLL Support
8 years ago
FCR for IGHV unmutated
Hi, I've pulled the
FCR
arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue and large nodes forcing me into treatment.
Hi, I've pulled the
FCR
arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue and large nodes forcing me into treatment.
Kenn123
in
CLL Support
8 years ago
About to start FCR
I'm about to start
FCR
after almost 5 years of watch and wait. Anyone been through it? Any advice?
I'm about to start
FCR
after almost 5 years of watch and wait. Anyone been through it? Any advice?
Kenn123
in
CLL Support
8 years ago
Shingles with CLL
Hi all Has anyone had shingles post
FCR
. Ive had it for a week now and just finished a course of Aciclivor 800mgs 5 x a day. Spread of the rash is continuing although slower. Anyone have any idea how long this painful virus lasts and any advice for dos and donts thanks.
Hi all Has anyone had shingles post
FCR
. Ive had it for a week now and just finished a course of Aciclivor 800mgs 5 x a day. Spread of the rash is continuing although slower. Anyone have any idea how long this painful virus lasts and any advice for dos and donts thanks.
Mick491
in
CLL Support
8 years ago
FCR vs imbruvica first line
I was wondering what people's opinion was for
FCR
vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with
FCR
which is the recommended standard treatment per current guidelines.
I was wondering what people's opinion was for
FCR
vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with
FCR
which is the recommended standard treatment per current guidelines.
nkferg
in
CLL Support
8 years ago
6-month post FCR
A year ago, before
FCR
-Lite I wouldn't be able to watch TV at night much at all without falling asleep while watching (and while fast forwarding LOL) and that would be a show that started at 8pm! I would fall asleep during teaching etc.
A year ago, before
FCR
-Lite I wouldn't be able to watch TV at night much at all without falling asleep while watching (and while fast forwarding LOL) and that would be a show that started at 8pm! I would fall asleep during teaching etc.
rlyndecker
in
CLL Support
8 years ago
Pneumonian prevention
I was treated with
FCR
in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics to take as a preventative measure as i come to the period i normally get unwell.
I was treated with
FCR
in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics to take as a preventative measure as i come to the period i normally get unwell.
Mick491
in
CLL Support
8 years ago
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