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Q&A from this week's visit with our MO
In case it's helpful, I've written up the questions we asked our medical oncologist this week and posted them in my bio. The upshot of it - my husband will get a PET PSMA scan in August, after which we'll chart a course for what comes next. We're eager to see what if any results occurred from the Ra223
In case it's helpful, I've written up the questions we asked our medical oncologist this week and posted them in my bio. The upshot of it - my husband will get a PET PSMA scan in August, after which we'll chart a course for what comes next. We're eager to see what if any results occurred from the Ra223
Tinuriel
in
Advanced Prostate Cancer
1 year ago
perspective
in 1980 when my dad was diagnosed with pc, I imagined he was dying and carried that in my head for the next nine years. When I was diagnosed with pc stage IVa in 2017 it took me a year to realize I was not dying… and since then I’ve continued to live a very good life. Now I’m facing my psa on the rise
in 1980 when my dad was diagnosed with pc, I imagined he was dying and carried that in my head for the next nine years. When I was diagnosed with pc stage IVa in 2017 it took me a year to realize I was not dying… and since then I’ve continued to live a very good life. Now I’m facing my psa on the rise
Johnkelsey
in
Prostate Cancer Network
1 year ago
Slight PSA increase
What would you suggest? You see my history in my bio. This June I added a second disease and was diagnosed with testicle lymphoma. Testicle has been removed, all tests (bone biopsy, lumbar puncture, Pet/CT) are clear. So well do four cycles of R-CHOP chemo and doctors are confident, that this will cure
What would you suggest? You see my history in my bio. This June I added a second disease and was diagnosed with testicle lymphoma. Testicle has been removed, all tests (bone biopsy, lumbar puncture, Pet/CT) are clear. So well do four cycles of R-CHOP chemo and doctors are confident, that this will cure
Nusch
in
Advanced Prostate Cancer
1 year ago
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Starting again after cancer....
So, graduation day was Feb 24, 2020. After which I ran and ran, got up to 3 half marathons. This January - diagnosis of cancer. Now it's almost August, and I have completed my treatments of Chemo and Radiotherapy. I am down to 12 stone from 14+. I am also still weak as a kitten, suffering
So, graduation day was Feb 24, 2020. After which I ran and ran, got up to 3 half marathons. This January - diagnosis of cancer. Now it's almost August, and I have completed my treatments of Chemo and Radiotherapy. I am down to 12 stone from 14+. I am also still weak as a kitten, suffering
layzellm
Graduate
in
Couch to 5K
1 year ago
Intraductal Carcinoma & Cribiform pattern 4 treatment options?
Newly dx. PCa. with Intraductal carcinoma, IDC-P. This is the most aggressive prostate cancer type. In my case 4+3 with 70% pattern 4 with cribriform which make it even more worse. There are four types of pattern 4 (poorly formed glands, glomeruloid structures, cribriform glands, and fused glands) and
Newly dx. PCa. with Intraductal carcinoma, IDC-P. This is the most aggressive prostate cancer type. In my case 4+3 with 70% pattern 4 with cribriform which make it even more worse. There are four types of pattern 4 (poorly formed glands, glomeruloid structures, cribriform glands, and fused glands) and
FMOH_N
in
Advanced Prostate Cancer
1 year ago
Thank you
Thank you for all your comments...ive got so many things wrong with me apart from CLL. Ive got spinal stenosis, chiari malformation, heart failure, its just one thing after another. I'm 63. Just really hoping I won't need chemo if this iron infusion works. Thank you all x
Thank you for all your comments...ive got so many things wrong with me apart from CLL. Ive got spinal stenosis, chiari malformation, heart failure, its just one thing after another. I'm 63. Just really hoping I won't need chemo if this iron infusion works. Thank you all x
welshlady52
in
CLL Support
1 year ago
Compression fracture on T 10
My recent Whole body scan and CT scan for PCa ( diagnosed in 2016 with T3N0M1, after which I had radiation,chemotherapy and have been on hormone therapy since), showed a compression fracture on my T10 where I had SBRT radiation 2 years ago. My scans earlier in the year also showed a small fracture
My recent Whole body scan and CT scan for PCa ( diagnosed in 2016 with T3N0M1, after which I had radiation,chemotherapy and have been on hormone therapy since), showed a compression fracture on my T10 where I had SBRT radiation 2 years ago. My scans earlier in the year also showed a small fracture
Brightman
in
Advanced Prostate Cancer
1 year ago
Lezpopz
Hi thanks for letting me join lm living with my father and caring for him he was diagnosed 18months ago and given a prognosis of 14 months, his tumour was inoperable and he's had radiotherapy and chemotherapy 2 rounds and now sadly his mobility isn't great due to numbness on the left side of his bodyvdue
Hi thanks for letting me join lm living with my father and caring for him he was diagnosed 18months ago and given a prognosis of 14 months, his tumour was inoperable and he's had radiotherapy and chemotherapy 2 rounds and now sadly his mobility isn't great due to numbness on the left side of his bodyvdue
Lezpopz
in
Glioblastoma Support
1 year ago
Rachy
Hi my father's been diagnosed with a terminal stage 4 brain tumour he's had chemo and radiotherapy but sadly his treatments had to stop due to the effects of the steroids etc he's no longer mobile,he was told he had 14 months 19 months ago lm his full time carer and due to a fall due to having a seizure
Hi my father's been diagnosed with a terminal stage 4 brain tumour he's had chemo and radiotherapy but sadly his treatments had to stop due to the effects of the steroids etc he's no longer mobile,he was told he had 14 months 19 months ago lm his full time carer and due to a fall due to having a seizure
Lezpopz
in
Glioblastoma Support
1 year ago
Boron and Fasting for the Prostate
I read taking boron as a suppl was good for the prostate and could lower psa . Has anyone tried Boron ? I went on a 10 day water fast and my psa went from 23 down to 15 in 1 month. but went back up to 24. Who knows when it comes to psa other than doubling time or if it drops to normal. Their is a person
I read taking boron as a suppl was good for the prostate and could lower psa . Has anyone tried Boron ? I went on a 10 day water fast and my psa went from 23 down to 15 in 1 month. but went back up to 24. Who knows when it comes to psa other than doubling time or if it drops to normal. Their is a person
85745
in
Advanced Prostate Cancer
1 year ago
Swollen Legs After Chemo
Hi all, I recently completed 10 rounds of Docetaxel for my stage 4 PC. I noticed that after cycle 8 my ankles and legs were starting to get swollen . After completing the chemo, the legs/ankles are still swollen and feel heavy and tight. My theighs also ballooned in size and are very hard. I had an
Hi all, I recently completed 10 rounds of Docetaxel for my stage 4 PC. I noticed that after cycle 8 my ankles and legs were starting to get swollen . After completing the chemo, the legs/ankles are still swollen and feel heavy and tight. My theighs also ballooned in size and are very hard. I had an
carguy
in
Advanced Prostate Cancer
1 year ago
Chemotherapy
Hi guys, not been here for a while. My heamotologist rang this morning saying my red cells are low,and I'm anaemic even though I take an iron tab every day. Been on watch and wait with cll for over 14 years. A few years ago a different heamotologist gave me an iron infusion as he said levels were low
Hi guys, not been here for a while. My heamotologist rang this morning saying my red cells are low,and I'm anaemic even though I take an iron tab every day. Been on watch and wait with cll for over 14 years. A few years ago a different heamotologist gave me an iron infusion as he said levels were low
welshlady52
in
CLL Support
1 year ago
Update after consultation w/Royal Marsden
I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The trigger was a marginally raised PSA (now 4.4) and some evidence on more bone mets, failing Enzalutamide and being offered a course of chemo (which
I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The trigger was a marginally raised PSA (now 4.4) and some evidence on more bone mets, failing Enzalutamide and being offered a course of chemo (which
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
Swollen Legs after Chemo
I just finished ten rounds of Docetaxel for stage 4 PC. At around the 8th cycle, I noticed my legs and ankles were swollen. Now that I’ve completed the chemo, the legs/ankles are still swollen and feel very tight and heavy. My thighs have also ballooned in size. I had an ultrasound to rule out blood
I just finished ten rounds of Docetaxel for stage 4 PC. At around the 8th cycle, I noticed my legs and ankles were swollen. Now that I’ve completed the chemo, the legs/ankles are still swollen and feel very tight and heavy. My thighs have also ballooned in size. I had an ultrasound to rule out blood
carguy
in
Advanced Prostate Cancer
1 year ago
live with prostate cancer
Since 2021 I was diagnosed with type 4 metastatic prostate cancer ,started my chemo with texatere my PSA is below 0 , taking lupron injection every 6 months my PSA is normal since then Now in july 2023 my PSA start increasing to 2.96 and no sign of cancer in my last Pet scan Now my Oncologist
Since 2021 I was diagnosed with type 4 metastatic prostate cancer ,started my chemo with texatere my PSA is below 0 , taking lupron injection every 6 months my PSA is normal since then Now in july 2023 my PSA start increasing to 2.96 and no sign of cancer in my last Pet scan Now my Oncologist
Mkhaz
in
Advanced Prostate Cancer
1 year ago
Future after Erleada/Lupron
I met with a new MO today for a second opinion. I've been taking Erleada/Lupron for almost four years with few side effects (for which I'm grateful). I'm aware that my results have been very good and I wasn't looking for advice regarding a change in my care....I just wanted to have a second doctor
I met with a new MO today for a second opinion. I've been taking Erleada/Lupron for almost four years with few side effects (for which I'm grateful). I'm aware that my results have been very good and I wasn't looking for advice regarding a change in my care....I just wanted to have a second doctor
NorYug
in
Advanced Prostate Cancer
1 year ago
Cabazitaxel, can you return for a second round.
I was only on this chemo, Cabazitaxel, for three infusions, then was approved for Pluvicto . PSA was creeping up slowly during that time, from 63-141. Has anyone gone back to it and had success with 8-10 infusions? I am now being treated with docetaxel(50%) and carboplatin, both at a reduced percentage
I was only on this chemo, Cabazitaxel, for three infusions, then was approved for Pluvicto . PSA was creeping up slowly during that time, from 63-141. Has anyone gone back to it and had success with 8-10 infusions? I am now being treated with docetaxel(50%) and carboplatin, both at a reduced percentage
docbulldog
in
Advanced Prostate Cancer
1 year ago
Inoperable Glioblastoma
My dad has glioblastoma in his left frontal lobe. His right arm/hand is now completely paralysed and his speech is getting poorer every week. It’s taken 5 months to finally start treatment due to stroke misdiagnosis. Due to location they cannot de bulk the tumour. As he is 68 he opted for 3 weeks of
My dad has glioblastoma in his left frontal lobe. His right arm/hand is now completely paralysed and his speech is getting poorer every week. It’s taken 5 months to finally start treatment due to stroke misdiagnosis. Due to location they cannot de bulk the tumour. As he is 68 he opted for 3 weeks of
Casper438
in
The Brain Tumour Charity
1 year ago
New to board
Recently told that I mostly likely have recurrent prostate cancer. This is based solely on PSA and other risk factors (age, etc.). I have had a PET PSMA, NM Bone scan, CT Chest and Pelvis scan, and all have come out clean and clear. Local oncologist (while admitting he doesn't really know where the
Recently told that I mostly likely have recurrent prostate cancer. This is based solely on PSA and other risk factors (age, etc.). I have had a PET PSMA, NM Bone scan, CT Chest and Pelvis scan, and all have come out clean and clear. Local oncologist (while admitting he doesn't really know where the
Raflo
in
Prostate Cancer Network
1 year ago
Nymox Reports Successful New NYMOZARFEX (TM) Long-Term Prostate Cancer Treatment Clinical Trial Results
NYMOZARFEX 15 mg Minimal Treatment of Low Grade Prostate Cancer Leads to Significant Long-Term Reduction in Incidence of Associated Prostate Cancer Surgery and Radiotherapy IRVINE, CA (July 25, 2023) Nymox Pharmaceutical Corporation [OTC: NYMXF] (the “Company”) is pleased to announce today important
NYMOZARFEX 15 mg Minimal Treatment of Low Grade Prostate Cancer Leads to Significant Long-Term Reduction in Incidence of Associated Prostate Cancer Surgery and Radiotherapy IRVINE, CA (July 25, 2023) Nymox Pharmaceutical Corporation [OTC: NYMXF] (the “Company”) is pleased to announce today important
vforvendetta
in
Prostate Cancer Network
1 year ago
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