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1st recurrence
I had my first recurrence after 4.5 years. It was a shock as I thought I was going to be ok. Two tumours appeared in the pelvic area. The surgeon did her best and managed to remove both tumours. But I had to have a bowel resection as well. For that I had to have an ilestoma for six weeks. That was very
I had my first recurrence after 4.5 years. It was a shock as I thought I was going to be ok. Two tumours appeared in the pelvic area. The surgeon did her best and managed to remove both tumours. But I had to have a bowel resection as well. For that I had to have an ilestoma for six weeks. That was very
Bluesparrow
in
My Ovacome
9 months ago
How to cancel social events
Hi ladies. Hope your flare free.I'm looking for advice on social events. I know this is so minor in comparison to other issues, but I'm really struggling. I'm currently waiting on my 3rd surgery for hysterectomy and bowel resection. My life is tough at the moment holding down a stressful full time job
Hi ladies. Hope your flare free.I'm looking for advice on social events. I know this is so minor in comparison to other issues, but I'm really struggling. I'm currently waiting on my 3rd surgery for hysterectomy and bowel resection. My life is tough at the moment holding down a stressful full time job
KM1986
in
Endometriosis UK
9 months ago
MMF with Adoport
Hello, long story short: 2yrs 7 mths post transplant, awful 2 yrs of repeated bile duct infections, stenting, leading to bile duct reconstruction & bowel resection. Kidneys now struggling with Adoport. Level reduced & yesterday told I’m going through bout of rejection but can’t increase Adoport due
Hello, long story short: 2yrs 7 mths post transplant, awful 2 yrs of repeated bile duct infections, stenting, leading to bile duct reconstruction & bowel resection. Kidneys now struggling with Adoport. Level reduced & yesterday told I’m going through bout of rejection but can’t increase Adoport due
Braveheart65
in
British Liver Trust
9 months ago
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adhesions
I have had a bowel resection due to diverticulitis causing abscess. It was 5 years ago , bag for 3 months , successful reversal, then about a year later adhesions from surgeries causing me to have appendectomy . My question is, had anyone had adhesions? I think I have more. Pain Around belly button
I have had a bowel resection due to diverticulitis causing abscess. It was 5 years ago , bag for 3 months , successful reversal, then about a year later adhesions from surgeries causing me to have appendectomy . My question is, had anyone had adhesions? I think I have more. Pain Around belly button
Gardeningbuff
in
Bowel Disease Support
10 months ago
Hysterectomy & bowel re-section advice
Hi I have recently been diagnosed after suffering bleeding problems and cysts on & off for about 20 years. The recent MRI showed that I have a significant nodule on my bowel so if I opt for a hysterectomy then they will haev to do a bowel re-section. I am currently on zoladex which is helping with the
Hi I have recently been diagnosed after suffering bleeding problems and cysts on & off for about 20 years. The recent MRI showed that I have a significant nodule on my bowel so if I opt for a hysterectomy then they will haev to do a bowel re-section. I am currently on zoladex which is helping with the
Bookish_Girl
in
Endometriosis UK
10 months ago
Hormone therapy for Endometriosis
Hello, I hope you're all doing ok. I was wondering if anyone has any advice, tips or experience in hormone therapy for endometriosis. Long story short I was diagnosed with stage 4 endometriosis 5 years ago, I had a lap in Dec 2018 to remove endometrioma and check my tubes. In Nov 2019 I had a bowel
Hello, I hope you're all doing ok. I was wondering if anyone has any advice, tips or experience in hormone therapy for endometriosis. Long story short I was diagnosed with stage 4 endometriosis 5 years ago, I had a lap in Dec 2018 to remove endometrioma and check my tubes. In Nov 2019 I had a bowel
Violet89
in
Endometriosis UK
11 months ago
Preparing myself for a full hysterectomy, bowel resection and stents in bladder......
Has anyone been through this or similar? I'm desperate for support and I'm terrified about this operation. I have been given a 50% chance of a better quality of life. It's a lot to go through for those stats.....
Has anyone been through this or similar? I'm desperate for support and I'm terrified about this operation. I have been given a 50% chance of a better quality of life. It's a lot to go through for those stats.....
NMPW
in
Endometriosis UK
11 months ago
Bowel resection
Due to radiation 40 yrs ago, I was just recently diagnosed with radiation colitis. I 'm having surgery next month to remove 8 inch section of bowel because it may become cancerous.Any info would be helpful. How long was recovery etc.
Due to radiation 40 yrs ago, I was just recently diagnosed with radiation colitis. I 'm having surgery next month to remove 8 inch section of bowel because it may become cancerous.Any info would be helpful. How long was recovery etc.
Red1959
in
Pelvic Radiation Disease Association
1 year ago
Shoulder pain during period
Hi all, I was wondering if anyone else experiences pain in their right shoulder when they are on or due their period? I have been diagnosed with stage 4 Endo In my bowel and I’m waiting for a bowel resection with specialists this year (terrified!)I had my diagnostic lap with a specialist also and
Hi all, I was wondering if anyone else experiences pain in their right shoulder when they are on or due their period? I have been diagnosed with stage 4 Endo In my bowel and I’m waiting for a bowel resection with specialists this year (terrified!)I had my diagnostic lap with a specialist also and
IB15
in
Endometriosis UK
1 year ago
chemo
I had a bowel resection in February (sigmoid) and found out that the part they removed for analysis was stage 3T N1 that means stage 3 and into 1 lymph node. I have been told to strongly consider Chemotherapy both Intravenous and oral: oxaliplatin and cepecitabine. I am looking for anyone who has
I had a bowel resection in February (sigmoid) and found out that the part they removed for analysis was stage 3T N1 that means stage 3 and into 1 lymph node. I have been told to strongly consider Chemotherapy both Intravenous and oral: oxaliplatin and cepecitabine. I am looking for anyone who has
Abellee
in
Colon Cancer Connected
1 year ago
Possible CRPS?
I was diagnosed with Small Bowel Crohn’s Disease in the early 1970’s and had 18” of small intestine removed. I was on steroids for a while, then codeine for diarrhoea. Later diagnosed with Bile Salt Malabsorption. When I was around fifty the joint pain which I’d always suffered from since childhood began
I was diagnosed with Small Bowel Crohn’s Disease in the early 1970’s and had 18” of small intestine removed. I was on steroids for a while, then codeine for diarrhoea. Later diagnosed with Bile Salt Malabsorption. When I was around fifty the joint pain which I’d always suffered from since childhood began
Morganalefaye
in
Pain Concern
1 year ago
recurrence of diverticulitis after surgery?
Has anyone had a recurrence of diverticulitis after bowel resection. I feel like I’m having a diverticulitis attack but I can’t get into see my GP because it’s so difficult to get into see them at the moment. I’m very dismay because my operation was quite complex. Any answers very gratefully received
Has anyone had a recurrence of diverticulitis after bowel resection. I feel like I’m having a diverticulitis attack but I can’t get into see my GP because it’s so difficult to get into see them at the moment. I’m very dismay because my operation was quite complex. Any answers very gratefully received
Gardeningbuff
in
Bowel Disease Support
1 year ago
low sodium After bowel resection.
I had a bowel resection in 2017,Due to diverticulitis and a ruptured bowel causing an abscess, An iliostomy for three months After resection and then A successful reversal and bowel rejoined minus part of My sigmoid. My problem is that ever since this I have had low sodium in my blood tests. The
I had a bowel resection in 2017,Due to diverticulitis and a ruptured bowel causing an abscess, An iliostomy for three months After resection and then A successful reversal and bowel rejoined minus part of My sigmoid. My problem is that ever since this I have had low sodium in my blood tests. The
Gardeningbuff
in
Bowel Disease Support
1 year ago
Seeking advice from Lynparza, Rubraca or Zejula patients.
Hello all, I'm here in search of some guidance as this is my 1-year mark since I began maintenance treatment with Lynparza. About 2 years ago I was diagnosed with ovarian high grade mullerian carcinoma - stage 3b. After a left oophorectomy, I began a regimen of 6 rounds of the combo Taxol/Carboplatin
Hello all, I'm here in search of some guidance as this is my 1-year mark since I began maintenance treatment with Lynparza. About 2 years ago I was diagnosed with ovarian high grade mullerian carcinoma - stage 3b. After a left oophorectomy, I began a regimen of 6 rounds of the combo Taxol/Carboplatin
TinaTina2020
in
SHARE Ovarian Cancer Support
1 year ago
Finally got a surgery date!
Been waiting 18 months, finally getting my surgery 24th march. I will be having excision, bowel resection, uretal stents, hopefully keeping ovaries and uterus but who knows what they will find 🤷 Been rereading all the info they sent me ages ago, looks like I'll be staying in for up to 5 days. I am a
Been waiting 18 months, finally getting my surgery 24th march. I will be having excision, bowel resection, uretal stents, hopefully keeping ovaries and uterus but who knows what they will find 🤷 Been rereading all the info they sent me ages ago, looks like I'll be staying in for up to 5 days. I am a
Petalgirl
in
Endometriosis UK
1 year ago
Hip Replacement Revision
I have both osteo and psoriatic arthritis, degenerative disc disease, osteoporosis, (-3.2) and a Grade 1 Spndylolistheseis, Sjorgren's Syndrome, (plus Crohn’s Disease). In 2012 I had an extremely severe flare of the Crohn’s and around the same time my hips began to seize up, (literally). In 2015 I had
I have both osteo and psoriatic arthritis, degenerative disc disease, osteoporosis, (-3.2) and a Grade 1 Spndylolistheseis, Sjorgren's Syndrome, (plus Crohn’s Disease). In 2012 I had an extremely severe flare of the Crohn’s and around the same time my hips began to seize up, (literally). In 2015 I had
Morganalefaye
in
Arthritis Action
1 year ago
Updates- 😱😤🤯🧐
Hi Feel like the only ones that will understand are people who are the same as me. I previously posted that I had been listed for surgery as a priority 2. So I saw two consultants this week and was told that I havent been listed at all. 🤯😵😤 However both the consultants I have seen were brilliant
Hi Feel like the only ones that will understand are people who are the same as me. I previously posted that I had been listed for surgery as a priority 2. So I saw two consultants this week and was told that I havent been listed at all. 🤯😵😤 However both the consultants I have seen were brilliant
Awwy
in
Endometriosis UK
1 year ago
Hiccups daily...endo related ?
Hello Girls, Recently found out my Endometriosis is back after 8months after excision surgery! I felt on top of the world and best of ever felt in May 2021! Around August/Sept things started to change. I had an MRI scan in November and got my results before Xmas and was told I had Endometriosis on my
Hello Girls, Recently found out my Endometriosis is back after 8months after excision surgery! I felt on top of the world and best of ever felt in May 2021! Around August/Sept things started to change. I had an MRI scan in November and got my results before Xmas and was told I had Endometriosis on my
Endo8701
in
Endometriosis UK
1 year ago
Top tips for RECOVERY
Hello all, I’m due to have a partial hysterectomy and bowel resection in mid Feb. I know that so many factors can affect how long it takes to recover, but what I’d love to know from people that have been through it, what we’re the things that helped? Looking back on it, what were the things you
Hello all, I’m due to have a partial hysterectomy and bowel resection in mid Feb. I know that so many factors can affect how long it takes to recover, but what I’d love to know from people that have been through it, what we’re the things that helped? Looking back on it, what were the things you
PaintToughTed
in
Endometriosis UK
1 year ago
Pain, exercise and weight gain
Hi I have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Hi I have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Awwy
in
LUPUS UK
1 year ago
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