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Experiences with
Dyskinesia
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What could be the cause of restless leg syndrome
Recently added the following to my husband’s routine and he seemed to be more alert but this morning saw his left leg shaking intermittently 1. Coffee cherry 200 mg increased to 2x a day Suppose to increase BDNF by 141% 2. Ubiquinol 200 mg increased to 3x a day 3. Tryptophan 1000 mg at bed time
Recently added the following to my husband’s routine and he seemed to be more alert but this morning saw his left leg shaking intermittently 1. Coffee cherry 200 mg increased to 2x a day Suppose to increase BDNF by 141% 2. Ubiquinol 200 mg increased to 3x a day 3. Tryptophan 1000 mg at bed time
Millbrook
in
Cure Parkinson's
3 years ago
Primary ciliary dyskinesia
Hey, Anyone has Primary ciliary
dyskinesia
! any advice with style life.
Hey, Anyone has Primary ciliary
dyskinesia
! any advice with style life.
Moekhalid
in
Lung Conditions Community Forum
3 years ago
FUS PTT Surgery. 6 months update
I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my
dyskinesia
.
I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my
dyskinesia
.
Markbit
in
Cure Parkinson's
3 years ago
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PTT FUS 4 months later
I had today my 3 months phone consultation with Prof. J. (one month later). He saw my videos, with and without levodopa e said that i was "very close to normal". Indeed, sometimes i feel close to normal, not everyday, not every hour, but especially in the morning i feel like that. I am able to run again
I had today my 3 months phone consultation with Prof. J. (one month later). He saw my videos, with and without levodopa e said that i was "very close to normal". Indeed, sometimes i feel close to normal, not everyday, not every hour, but especially in the morning i feel like that. I am able to run again
Markbit
in
Cure Parkinson's
3 years ago
Dyskinesia
After which your body is free of levodopa resulting low risk of
dyskinesia
. One takes 100mg per dose. 8 doses per day. Or One takes 400mg per dose 2 doses per day. Each provide 800mg total per day. Your risk of
dyskinesia
is lower at 100mg per dose while maintaining the same high dose day.
After which your body is free of levodopa resulting low risk of
dyskinesia
. One takes 100mg per dose. 8 doses per day. Or One takes 400mg per dose 2 doses per day. Each provide 800mg total per day. Your risk of
dyskinesia
is lower at 100mg per dose while maintaining the same high dose day.
Hidden
in
Cure Parkinson's
3 years ago
My husbands face to face visit with his Neuro!
My husband had a face to face visit to his Neuro yesterday, not seen him since before the lockdown, October 2019 although he has had one telephone appointment. The Neuro asked him how he was what dosage of meds he was on, watched him walking, tested his hands said he was fine for driving, as that is
My husband had a face to face visit to his Neuro yesterday, not seen him since before the lockdown, October 2019 although he has had one telephone appointment. The Neuro asked him how he was what dosage of meds he was on, watched him walking, tested his hands said he was fine for driving, as that is
Zella23
in
Cure Parkinson's
3 years ago
B1 Testimony
COPY from today, May7, 2021: “Diagnosed Nov2014. I admit I was dubious, but after some time on B1 I have to concur with Roy; it did improve many symptoms. I can speak more loudly and clearly; swallowing is easier; I simply can do more than before I started taking this supplement. Buttons, turning over
COPY from today, May7, 2021: “Diagnosed Nov2014. I admit I was dubious, but after some time on B1 I have to concur with Roy; it did improve many symptoms. I can speak more loudly and clearly; swallowing is easier; I simply can do more than before I started taking this supplement. Buttons, turning over
Hidden
in
Cure Parkinson's
3 years ago
Anxiety & Dyskinesia
As a consequence she prescribed Sinemet PR (slow release) before bed time to complement her exiting medication regime and this seems to have reduced, though not eradicated the frequency of when my wife experiences occurrences of
dyskinesia
Her nurse is now of the opinion that the
dyskinesia
is being
As a consequence she prescribed Sinemet PR (slow release) before bed time to complement her exiting medication regime and this seems to have reduced, though not eradicated the frequency of when my wife experiences occurrences of
dyskinesia
Her nurse is now of the opinion that the
dyskinesia
is being
thfc1961
in
Cure Parkinson's
4 years ago
Gocovri
Has anyone tried Gocovri for dyskenesia? I have been taking generic syrup for Amantadine and want to try continuous release Gocovri.
Has anyone tried Gocovri for dyskenesia? I have been taking generic syrup for Amantadine and want to try continuous release Gocovri.
ladya2020
in
Cure Parkinson's
3 years ago
Help me understand dyskinesia and how best to prevent
I gave read a lot on
dyskinesia
but still some confusion and fear it’s coming. Can you tell me what experience you have with
dyskinesia
, symptoms, when started and mostly how to prevent.
I gave read a lot on
dyskinesia
but still some confusion and fear it’s coming. Can you tell me what experience you have with
dyskinesia
, symptoms, when started and mostly how to prevent.
PD_Partner
in
Cure Parkinson's
4 years ago
New Video: Reflections on Parkinson’s Disease Podcast – EP2: Motor Fluctuations and the levodopa long-duration response
Another excellent podcast! https://www.oruen.com/podcasts/reflections-on-parkinsons-disease-podcast-ep-2-motor-fluctuations-and-the-levodopa-long-duration-response
Another excellent podcast! https://www.oruen.com/podcasts/reflections-on-parkinsons-disease-podcast-ep-2-motor-fluctuations-and-the-levodopa-long-duration-response
Hidden
in
Cure Parkinson's
3 years ago
What I learned only now after ten years.
Further more,
dyskinesia
is a result of the last single dose and not the total daily count of mg.
Further more,
dyskinesia
is a result of the last single dose and not the total daily count of mg.
Hidden
in
Cure Parkinson's
3 years ago
Randomized, Double-Blind, Active Placebo-Controlled Study of Ketamine to Treat Levodopa-Induced Dyskinesia
Recruitment Status : Not yet recruiting First Posted : June 3, 2021 Last Update Posted : June 3, 2021 https://clinicaltrials.gov/ct2/show/NCT04912115
Recruitment Status : Not yet recruiting First Posted : June 3, 2021 Last Update Posted : June 3, 2021 https://clinicaltrials.gov/ct2/show/NCT04912115
Farooqji
in
Cure Parkinson's
3 years ago
Ongentys this medication WORKS!
I've been using this med for 6 months, with very positive results. I posted on this before and was surprised on the apparent low interest. Back in October 2020 I complained to my Neuro, my Sinemet was wearing off suddenly. I went from being totally functional to frozen in seconds. Also my dosage regimen
I've been using this med for 6 months, with very positive results. I posted on this before and was surprised on the apparent low interest. Back in October 2020 I complained to my Neuro, my Sinemet was wearing off suddenly. I went from being totally functional to frozen in seconds. Also my dosage regimen
Isthistheone
in
Cure Parkinson's
3 years ago
Back to my leg pain issue
Now I'm at a dose that's starting to give me
dyskinesia
. I would be super grateful for any suggestions. Rebecca
Now I'm at a dose that's starting to give me
dyskinesia
. I would be super grateful for any suggestions. Rebecca
rebtar
in
Cure Parkinson's
3 years ago
Back to Melatonin - Dosing?
Melatonin equivalent dose for a 75 kg adult patient: 2012 - 120 mg - Improved motor performance without causing
dyskinesia
. Improved DA neurons survival. Melatonin equivalent dose for a 75 kg adult patient: 2013 - 120 mg - Improved DA neurons survival.
Melatonin equivalent dose for a 75 kg adult patient: 2012 - 120 mg - Improved motor performance without causing
dyskinesia
. Improved DA neurons survival. Melatonin equivalent dose for a 75 kg adult patient: 2013 - 120 mg - Improved DA neurons survival.
Bolt_Upright
in
Cure Parkinson's
3 years ago
Swollowing
I'm 60 yo diagnosed with PD 10 years ago I can honestly say my symptoms have not changed much recently diagnosed with generalized anxiety disorder and have infrequent moments where I forget how to swollow is it PD GAD or just age related usually only last a few seconds and if I think about it it
I'm 60 yo diagnosed with PD 10 years ago I can honestly say my symptoms have not changed much recently diagnosed with generalized anxiety disorder and have infrequent moments where I forget how to swollow is it PD GAD or just age related usually only last a few seconds and if I think about it it
Boomercd
in
Cure Parkinson's
3 years ago
Dyskinesia
I'm curios to know if everyone gets
dyskinesia
after awhile? Or only people who take an increased dose of c/l? Or people who are in an advanced stage? Or is just pure hazard? Thank you.
I'm curios to know if everyone gets
dyskinesia
after awhile? Or only people who take an increased dose of c/l? Or people who are in an advanced stage? Or is just pure hazard? Thank you.
ion_ion
in
Cure Parkinson's
4 years ago
Sinemet Slow-release Hard Candy
Has anyone tried making a home-made slow-release levodopa lozenge or hard candy that you can suck on and have constant levels of dopamine in your system?
Has anyone tried making a home-made slow-release levodopa lozenge or hard candy that you can suck on and have constant levels of dopamine in your system?
DeanGreen
in
Cure Parkinson's
3 years ago
Women with Parkinson's - can meeting their needs unlock new treatments to better manage, slow, halt or even cure Parkinson's?
Symptoms of PD differ between the genders with women suffering more from anxiety, depression and
dyskinesia
to mention a few. Women also suffer symptom fluctuations for many reasons such as hormonal fluctuations and body weight.
Symptoms of PD differ between the genders with women suffering more from anxiety, depression and
dyskinesia
to mention a few. Women also suffer symptom fluctuations for many reasons such as hormonal fluctuations and body weight.
SuzeCP
Administrator
in
Cure Parkinson's
3 years ago
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