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Dyskinesia
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Levadopa not working so well :(
BUT, this last week he has been getting severe dystonia/
dyskinesia
and he tried increasing the dose which helped, but then the twisting would become unbearable and last for several hours. Writhing on the floor etc.
BUT, this last week he has been getting severe dystonia/
dyskinesia
and he tried increasing the dose which helped, but then the twisting would become unbearable and last for several hours. Writhing on the floor etc.
PDsux_10
in
Cure Parkinson's
3 years ago
MY DOCTOR SAYS I AM DUE FOR DBS. THIS REALLY SCARED THE SH.......... OUT OF ME. PLEASE HELP! I NEED YOUR ADVICE.
I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or
dyskinesia
, unless I increase my medication dosage.
I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or
dyskinesia
, unless I increase my medication dosage.
OREOLU
in
Cure Parkinson's
3 years ago
Primary Ciliary Dyskinesia PCD
I was born with PCD, causes bronchiectasis, sinusitis, and all my organs are transposed! Everyone has cilia, little hair like linings of lungs etc. As poems are the current fashion, here’s mine about PCD Cilia, little hairs, you’re so important Cilia, why don’t you wave There’s lot of lives you could
I was born with PCD, causes bronchiectasis, sinusitis, and all my organs are transposed! Everyone has cilia, little hair like linings of lungs etc. As poems are the current fashion, here’s mine about PCD Cilia, little hairs, you’re so important Cilia, why don’t you wave There’s lot of lives you could
Morrison10
in
Lung Conditions Community Forum
3 years ago
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16+ years since dx and what we’ve learned
What I’ve noticed is, though he’s pretty low-key during the day, he’s sharper, speech is clearer, no
dyskinesia
, and no ‘off’ times- until he starts taking mucuna in the evening.
What I’ve noticed is, though he’s pretty low-key during the day, he’s sharper, speech is clearer, no
dyskinesia
, and no ‘off’ times- until he starts taking mucuna in the evening.
Bfp69
in
Cure Parkinson's
3 years ago
Clinical Trial Highlights – an update on previously reviewed trials (Phase 3 in focus)
The results were statistically significant and showed a clinically significant improvement in ON time without troublesome
dyskinesia
and a concomitant reduction in time with troublesome
dyskinesia
.
The results were statistically significant and showed a clinically significant improvement in ON time without troublesome
dyskinesia
and a concomitant reduction in time with troublesome
dyskinesia
.
Hidden
in
Cure Parkinson's
3 years ago
AMANTADINE FOR DYSKINESIA. HAVE YOU AN EXPERIENCE WITH THIS DRUG? PLEASE HELP.
Hi, I might consider this drug for
Dyskinesia
, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your
dyskinesia
? How long before it started working for you?
Hi, I might consider this drug for
Dyskinesia
, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your
dyskinesia
? How long before it started working for you?
OREOLU
in
Cure Parkinson's
3 years ago
Help to support PSP sufferer
I'm new here, first post. Really want to help counsel someone with PSP. Any tips from anyone would be so useful. Has anyone had counselling and what helped most in terms of helping with the emotional trauma of living with the condition and the way to deal with the prognosis. So far I think I have
I'm new here, first post. Really want to help counsel someone with PSP. Any tips from anyone would be so useful. Has anyone had counselling and what helped most in terms of helping with the emotional trauma of living with the condition and the way to deal with the prognosis. So far I think I have
JazzyOne2One
in
PSP Association
3 years ago
Mucuna dosage question
I am into my sixth year of PD. Up until now, I have avoided taking any PD drugs, relying entirely on supplements, in particular high dose B1. About 10 days ago, I started taking mucuna. I have been taking capsules from piping rock, one in the morning and one in the evening. Not feeling any particular
I am into my sixth year of PD. Up until now, I have avoided taking any PD drugs, relying entirely on supplements, in particular high dose B1. About 10 days ago, I started taking mucuna. I have been taking capsules from piping rock, one in the morning and one in the evening. Not feeling any particular
Vt11
in
Cure Parkinson's
3 years ago
MRigFUS in Switzerland - 9 months update
So more in detail, my left side keeps going very well, almost no tremor, no
dyskinesia
on both sides, urinary urgency came back a bit, softer voice and a bit messy speech, choke more frequently, doing small manual work is still hard, but i drill holes in the ceiling in the top of a stair, brakidnesia
So more in detail, my left side keeps going very well, almost no tremor, no
dyskinesia
on both sides, urinary urgency came back a bit, softer voice and a bit messy speech, choke more frequently, doing small manual work is still hard, but i drill holes in the ceiling in the top of a stair, brakidnesia
Markbit
in
Cure Parkinson's
3 years ago
Levodopa incidence
It is reassuring that early levodopa initiation and appropriately maximal tolerated dose do not appear to predispose to major, disabling
dyskinesia
.” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6329327/?fbclid=IwAR3cBU8HRtHndGoqLJ_X9x2nhr7o1_tKnx8w0L1saK_oSy0C7i1kh1bCxdI#!po=0.862069
It is reassuring that early levodopa initiation and appropriately maximal tolerated dose do not appear to predispose to major, disabling
dyskinesia
.” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6329327/?fbclid=IwAR3cBU8HRtHndGoqLJ_X9x2nhr7o1_tKnx8w0L1saK_oSy0C7i1kh1bCxdI#!po=0.862069
Hidden
in
Cure Parkinson's
3 years ago
BioVie announces treatment of 1st patient in Phase 2 clinical trial of NE3107,ERK inhibitor that selectively inhibits neuroinflammation
Furthermore, NE3107 in combination with L-dopa reduced the severity of L-dopa induced
(LID) without decreasing the beneficial effect of the drug on motor symptoms.
Furthermore, NE3107 in combination with L-dopa reduced the severity of L-dopa induced
(LID) without decreasing the beneficial effect of the drug on motor symptoms.
Hidden
in
Cure Parkinson's
3 years ago
Sonic hedgehog can suppress L-dopa induced dyskinesia
https://parkinsonsnewstoday.com/2021/09/28/imbalances-brain-dopamine-sonic-hedgehog-lid-l-dopa-induced-
dyskinesia
-parkinsons/
https://parkinsonsnewstoday.com/2021/09/28/imbalances-brain-dopamine-sonic-hedgehog-lid-l-dopa-induced-
dyskinesia
-parkinsons/
Hidden
in
Cure Parkinson's
3 years ago
Switching bipolar meds after decade
I'd gotten so good at managing my moods with meds and meditation, but after tardive
dyskinesia
set in I've have to start from scratch. Now I'm depressed most of the day and locked in my private world. Unwilling to let friends know even though I'm communicating with them about other things.
I'd gotten so good at managing my moods with meds and meditation, but after tardive
dyskinesia
set in I've have to start from scratch. Now I'm depressed most of the day and locked in my private world. Unwilling to let friends know even though I'm communicating with them about other things.
c-mac
in
Anxiety and Depression Support
3 years ago
AbbVie Announces ABBV-951 - Showed Improvement in Controlling Motor Fluctuations Compared to Oral Levodopa/Carbidopa in Phase 3 trial.
The primary endpoint of "good" time (defined as "On" time without
dyskinesia
plus "On" time with non-troublesome
dyskinesia
), in contrast to "bad" time ("Off" time plus "On" time with troublesome
dyskinesia
) is collected and averaged over three consecutive days and normalized to a typical 16-hour waking
The primary endpoint of "good" time (defined as "On" time without
dyskinesia
plus "On" time with non-troublesome
dyskinesia
), in contrast to "bad" time ("Off" time plus "On" time with troublesome
dyskinesia
) is collected and averaged over three consecutive days and normalized to a typical 16-hour waking
John_morris71
in
Cure Parkinson's
3 years ago
ARE YOU A NON TREMOR DOMINANT PD PATIENT WITH DYSKINESIA? IF SO, PLEASE HELP.
What have you tried to alleviate your
dyskinesia
? I am YOPD patient. Your replies would be appreciated.
What have you tried to alleviate your
dyskinesia
? I am YOPD patient. Your replies would be appreciated.
OREOLU
in
Cure Parkinson's
3 years ago
False Labeling of Supplements
I suggested to my neurologist that instead of taking Gabapentin and Quetiapine for anxiety, that I try various supplements (such as Ashwagandha, Chamomile Extract, Hops, Lavender, Rhodiola, etc.) instead, since there may be short- and long-term side effects from taking the two drugs. She said
I suggested to my neurologist that instead of taking Gabapentin and Quetiapine for anxiety, that I try various supplements (such as Ashwagandha, Chamomile Extract, Hops, Lavender, Rhodiola, etc.) instead, since there may be short- and long-term side effects from taking the two drugs. She said
Alock2020
in
Cure Parkinson's
3 years ago
Swaying but not moving
I am hoping someone can help explain this to me. I’m only two years in for my diagnosis and currently take ropinirole and rasagline and occasionally a very small dose of CL. My body internally feels like it is continually swaying back-and-forth. However my husband stated that my body is not moving at
I am hoping someone can help explain this to me. I’m only two years in for my diagnosis and currently take ropinirole and rasagline and occasionally a very small dose of CL. My body internally feels like it is continually swaying back-and-forth. However my husband stated that my body is not moving at
Ley0
in
Cure Parkinson's
3 years ago
DBS
I don’t really have words to say how I’m feeling right now after seeing my husband walking more stable, no more shuffling, no more rigidity, no more
dyskinesia
, and no more “off” times. Is the surgery worth it? Absolutely! This was a Godsend to us, I’m very thankful and grateful.
I don’t really have words to say how I’m feeling right now after seeing my husband walking more stable, no more shuffling, no more rigidity, no more
dyskinesia
, and no more “off” times. Is the surgery worth it? Absolutely! This was a Godsend to us, I’m very thankful and grateful.
pdwife41yrs
in
Cure Parkinson's
3 years ago
Update on hubby
Just an update on how hubby is doing. He is feeling better than he has been for years! Something seems to have had a positive effect and he is positively energetic and laughing and talking and back to helping with housework, and joining in with the family. He has even got into our spa pool with me that
Just an update on how hubby is doing. He is feeling better than he has been for years! Something seems to have had a positive effect and he is positively energetic and laughing and talking and back to helping with housework, and joining in with the family. He has even got into our spa pool with me that
LAJ12345
in
Cure Parkinson's
3 years ago
Hands up all those who have heard of belly dancer's dyskinesia (BDD)
Levodopa-induced belly dancer's
dyskinesia
: Case report https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8298813/
Levodopa-induced belly dancer's
dyskinesia
: Case report https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8298813/
jeffreyn
in
Cure Parkinson's
3 years ago
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