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Possible New Treatment for Dyskinesia
The drug – HU-308 – lessens devastating involuntary movements called dyskinesias, a side effect from years of treatment for Parkinson’s disease. https://neurosciencenews.com/parkinsons-cannabis-substitute-15341/
The drug – HU-308 – lessens devastating involuntary movements called dyskinesias, a side effect from years of treatment for Parkinson’s disease. https://neurosciencenews.com/parkinsons-cannabis-substitute-15341/
jimcaster
in
Cure Parkinson's
5 years ago
Has anyone tried Nicotine to reduce Dyskinesia?
One thing she does is vape nicotine whenever she gets
dyskinesia
. I watched her video and the
dyskinesia
subsided within seconds. https://youtu.be/XTZYUH1k2iA Here is her talk on how she "hacked" her PD https://youtu.be/06mNUmSEn70
One thing she does is vape nicotine whenever she gets
dyskinesia
. I watched her video and the
dyskinesia
subsided within seconds. https://youtu.be/XTZYUH1k2iA Here is her talk on how she "hacked" her PD https://youtu.be/06mNUmSEn70
Leylaleyla
in
Cure Parkinson's
5 years ago
Long lost SS member !!
Also diagnosed with Tardish
Dyskinesia
from so many years of psych meds. Taking Austedo for it. Waiting for the movement to stop. That's about it for now. Hope all have very Happy Holidays 💕
Also diagnosed with Tardish
Dyskinesia
from so many years of psych meds. Taking Austedo for it. Waiting for the movement to stop. That's about it for now. Hope all have very Happy Holidays 💕
Bettyboop71345
in
The Australian Sjögren's Syndrome Association
5 years ago
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How much Sinemet can you take? Or do you take?
Currently my meds have been switched from stalevo, rasgaline to sinemet 150/32.5 x 6 daily every 3 hrs and 100mg of safinamide.... Am getting ON pretty quickly but dropping off about 1hr ish before next dose... Also take 200 mg cr sinemet at night up 2 3 50mg dispersable madopar and 100mg adamantine.
Currently my meds have been switched from stalevo, rasgaline to sinemet 150/32.5 x 6 daily every 3 hrs and 100mg of safinamide.... Am getting ON pretty quickly but dropping off about 1hr ish before next dose... Also take 200 mg cr sinemet at night up 2 3 50mg dispersable madopar and 100mg adamantine.
stanny7
in
Cure Parkinson's
5 years ago
More from Gods notebook...
Dyskinesia
was then assessed by the study of spontaneous activity in the substantia nigra. Larger
dyskinesia
appeared in the Sinemet group. In those treated with the combination of Mucuna and carbidopa,
dyskinesia
seemed more moderate.
Dyskinesia
was then assessed by the study of spontaneous activity in the substantia nigra. Larger
dyskinesia
appeared in the Sinemet group. In those treated with the combination of Mucuna and carbidopa,
dyskinesia
seemed more moderate.
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Prolopa dosing
I live in the US and use carbidopa/levodopa and am familiar with it's dosing protocols. My mother in law lives in El Salvador and takes Prolopa which is levodopa and benserazide (instead of carbidopa). I understand that Prolopa and Madopar are essentially the same. We just visited my mother in law and
I live in the US and use carbidopa/levodopa and am familiar with it's dosing protocols. My mother in law lives in El Salvador and takes Prolopa which is levodopa and benserazide (instead of carbidopa). I understand that Prolopa and Madopar are essentially the same. We just visited my mother in law and
rebtar
in
Cure Parkinson's
5 years ago
Anyone heard of Gallbladder Dyskinesia?
Has anyone experienced gallbladder
Dyskinesia
? My second question. Has the biliary sphincters "acted up" after the removal if your gallbladder? What do I need for testing and diagnoses?
Has anyone experienced gallbladder
Dyskinesia
? My second question. Has the biliary sphincters "acted up" after the removal if your gallbladder? What do I need for testing and diagnoses?
AllHis
in
Living with Fatty Liver and NASH
5 years ago
Any guidance on how to switch from IR C/L to CR C/L during the day?
She gets pretty bad off times and pretty bad
dyskinesia
. I am wondering if CR C/L will make her day more consistent and smooth. Any recommendations or suggestions on how to switch her over to CR?
She gets pretty bad off times and pretty bad
dyskinesia
. I am wondering if CR C/L will make her day more consistent and smooth. Any recommendations or suggestions on how to switch her over to CR?
TSonmez
in
Cure Parkinson's
5 years ago
Yesterday 1 of 5 worked
Yesterday only 1 out of 5 doses gave me 90 minutes of relief and the other 4 doses just gave me severe
dyskinesia
for 2 hours per dose! I am slowly trying to replace all c/l with Mucuna, any successful strategy? or plans? and will doing this drastically cut down on the
Dyskinesia
symptoms?
Yesterday only 1 out of 5 doses gave me 90 minutes of relief and the other 4 doses just gave me severe
dyskinesia
for 2 hours per dose! I am slowly trying to replace all c/l with Mucuna, any successful strategy? or plans? and will doing this drastically cut down on the
Dyskinesia
symptoms?
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Am i taking a lot of CL?
Hi everyone, So i was DX with PD in 2017. But i think i have had it since 2013,i am on C/L both CR and IR(25/100). I take 1/2 IR at 530a then 1 pill of the CR at 7a 1/2 at 1030a IR then 1 pill CR at 12p then last does at 330p of IR and 1 pill of CR at 5p. I know it is a wonky way of taking my meds but
Hi everyone, So i was DX with PD in 2017. But i think i have had it since 2013,i am on C/L both CR and IR(25/100). I take 1/2 IR at 530a then 1 pill of the CR at 7a 1/2 at 1030a IR then 1 pill CR at 12p then last does at 330p of IR and 1 pill of CR at 5p. I know it is a wonky way of taking my meds but
RS313
in
Cure Parkinson's
5 years ago
Would you call this a step towards "recovery" from PD?
That helped with the energy but I began experiencing mild
dyskinesia
and dystonia. My neurologist wanted to put me on one of the drugs I'd tried so long ago and had given me bad side-effects. I was only taking Rytary (no other prescription meds of any kind) so I said "no thanks".
That helped with the energy but I began experiencing mild
dyskinesia
and dystonia. My neurologist wanted to put me on one of the drugs I'd tried so long ago and had given me bad side-effects. I was only taking Rytary (no other prescription meds of any kind) so I said "no thanks".
JerMan22
in
Cure Parkinson's
5 years ago
Live Daily Med Report
DAILY MED RPT Patient: Mark Report for Dec 1st 2019 Patient Diagnoses' 1)Parkinsons Disease 2)
Dyskinesia
3)Hypertension 4)Anxiety Neurosis(GAD) 5)Chronic Insomnia ________________________________________________ Meds Schedule for Sunday 12/01 (Live Updates) 0500am Lisinopril
DAILY MED RPT Patient: Mark Report for Dec 1st 2019 Patient Diagnoses' 1)Parkinsons Disease 2)
Dyskinesia
3)Hypertension 4)Anxiety Neurosis(GAD) 5)Chronic Insomnia ________________________________________________ Meds Schedule for Sunday 12/01 (Live Updates) 0500am Lisinopril
TheLordsWeapon
in
Cure Parkinson's
5 years ago
How much simemet are you taking once you have been diagonsed 5-6years and the honeymoon period is over
I have a question for patients who have had pd for about 5-6 years and are on Sinemet only. How much are you on and do you have a lot of offs and if so how long do they last and what do you do till you take your next dose and it kicks in.. I’m taking every two hours and even with that I am having of
I have a question for patients who have had pd for about 5-6 years and are on Sinemet only. How much are you on and do you have a lot of offs and if so how long do they last and what do you do till you take your next dose and it kicks in.. I’m taking every two hours and even with that I am having of
Connie18
in
Cure Parkinson's
5 years ago
Change to Carbidopa Levodopa CR, dykinesia, neck dystonia
Dyskinesia
wears me out and my neck hurts. It is still better than being off with symptoms of bradykinesia. My neurologist told me today to try reducing the one 25/100 C-L to half a pill. I'll still need coping mechanisms to slow the to and fro.
Dyskinesia
wears me out and my neck hurts. It is still better than being off with symptoms of bradykinesia. My neurologist told me today to try reducing the one 25/100 C-L to half a pill. I'll still need coping mechanisms to slow the to and fro.
KemptonD
in
Cure Parkinson's
5 years ago
Thiamine therapy for yopd
He was on sinemet plus 125 4 times a day but suffering through
dyskinesia
which is sometimes more and sometimes manageable.. Recently we have replaced 3 doses of sinement with mucuna pruriens powder.
He was on sinemet plus 125 4 times a day but suffering through
dyskinesia
which is sometimes more and sometimes manageable.. Recently we have replaced 3 doses of sinement with mucuna pruriens powder.
Sanay
in
Cure Parkinson's
5 years ago
Has anyone been able to reduce their C/L dose once they started on High Dose Therapy B-1? If so, how and why did you decide to reduce C/L?
However, I am noticing a big increase in
dyskinesia
, but less off times. I am wondering if C/L needs to be reduced as she is getting close to the right B1 dose. Has anyone been able to reduce their C/L dose once they started on High Dose Therapy B-1?
However, I am noticing a big increase in
dyskinesia
, but less off times. I am wondering if C/L needs to be reduced as she is getting close to the right B1 dose. Has anyone been able to reduce their C/L dose once they started on High Dose Therapy B-1?
TSonmez
in
Cure Parkinson's
5 years ago
IS DYSKINESIA PART OF PD?
My MD seem unhappy with me and told me that
dyskinesia
is part of PD,that once you have PD,you cannot avoid having
dyskinesia
. So has any pwp on this forum who has PD for 2 & 1/2 years been able to avoid any form of dykinesia? I have also read online that some pwp,using C/L does not get
dyskinesia
.
My MD seem unhappy with me and told me that
dyskinesia
is part of PD,that once you have PD,you cannot avoid having
dyskinesia
. So has any pwp on this forum who has PD for 2 & 1/2 years been able to avoid any form of dykinesia? I have also read online that some pwp,using C/L does not get
dyskinesia
.
OREOLU
in
Cure Parkinson's
5 years ago
I have a bad habit of over dosing when I'm in an off time.
I take a total of 8 stalevo 200mgs and 7 Sinemet EQ 100mgs during the day. My off periods are extremely terrible and at times I'll crush 1 or 2 EQ's and take with ginger ale. One time I had taken a Stalevo at 6pm , 2 EQ's at 6:45, 1 EQ at 7:00 and one at 7:15. I took my Stalevo again at 8:30 then of
I take a total of 8 stalevo 200mgs and 7 Sinemet EQ 100mgs during the day. My off periods are extremely terrible and at times I'll crush 1 or 2 EQ's and take with ginger ale. One time I had taken a Stalevo at 6pm , 2 EQ's at 6:45, 1 EQ at 7:00 and one at 7:15. I took my Stalevo again at 8:30 then of
dfasci
in
Cure Parkinson's
5 years ago
Male Fertility in PCD
Thanks http://pcdsupport.org.uk/new-ucl-study-into-primary-ciliary-
dyskinesia
-sperm-analysis-and-fertility-assessment-participants-required/
Thanks http://pcdsupport.org.uk/new-ucl-study-into-primary-ciliary-
dyskinesia
-sperm-analysis-and-fertility-assessment-participants-required/
fionac66
in
PCD Family Support Group (UK)
5 years ago
On/Off period caused by Sinemet. Anyone taking dopamine agonist and/or MAO inhibitors experience on/offs?
I found in the web an interesting info about a disclaimer contained in the package insert of Sinemet distributed in Australia. It warns as a “side effect the on/off periods may occur to some people after one year use where people may lose their ability to move from minutes to hours then can move again
I found in the web an interesting info about a disclaimer contained in the package insert of Sinemet distributed in Australia. It warns as a “side effect the on/off periods may occur to some people after one year use where people may lose their ability to move from minutes to hours then can move again
marnegro
in
Cure Parkinson's
5 years ago
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