Search
Search
About
Log in
Join
Experiences with
Deep brain stimulation (DBS)
Posts
Communities
1,059 public posts
Filter results
Recording now available for NoSilverBullet presentation by Dr A Fasano on "DBS, Focused Ultrasound and Infusion Pumps"
Dr. Fasano is Professor of Neurology at the University of Toronto and one of the world leaders in deep brain stimulation. Watch his presentation on YouTube here https://www.youtube.com/watch?v=g5z7tYJrxsU Or listen to it as a podcast on Spotify here https://open.spotify.com/show/6WIgOhwJemjqE2bnDPu44P
Dr. Fasano is Professor of Neurology at the University of Toronto and one of the world leaders in deep brain stimulation. Watch his presentation on YouTube here https://www.youtube.com/watch?v=g5z7tYJrxsU Or listen to it as a podcast on Spotify here https://open.spotify.com/show/6WIgOhwJemjqE2bnDPu44P
Michel0220
in
Cure Parkinson's
2 years ago
Zoom session at 4 pm GMT on Thursday 15th of December: "DBS, Focused Ultrasound and Infusion Pumps: how these technologies can help PwPs"
Please use the Eventbrite link below to register for this event: https://www.eventbrite.co.uk/e/
dbs
-focused-ultrasound-infusion-pumps-how-they-can-help-people-with-pd-tickets-462524331727 —-------------------------------------- Dr.
Please use the Eventbrite link below to register for this event: https://www.eventbrite.co.uk/e/
dbs
-focused-ultrasound-infusion-pumps-how-they-can-help-people-with-pd-tickets-462524331727 —-------------------------------------- Dr.
Michel0220
in
Cure Parkinson's
2 years ago
Constipation
Hi I was recently prescribed lactulose for my constipation/bulking problem having had ibs for years but only officially diagnosed 6 months ago. I have symptoms very day which gives me anxiety as to how my day will go. First 5 days taking lactulose wasn't bad, symptoms much less toilet better. Last few
Hi I was recently prescribed lactulose for my constipation/bulking problem having had ibs for years but only officially diagnosed 6 months ago. I have symptoms very day which gives me anxiety as to how my day will go. First 5 days taking lactulose wasn't bad, symptoms much less toilet better. Last few
ruskin10
in
IBS Network
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
DBS for OCD?
I'm looking to interview patients who have gotten
DBS
for OCD to better understand what the experience is like, and to be able to better describe it to the medical community. If you've gotten
DBS
for OCD and are willing to talk anonymously about it, please message me!
I'm looking to interview patients who have gotten
DBS
for OCD to better understand what the experience is like, and to be able to better describe it to the medical community. If you've gotten
DBS
for OCD and are willing to talk anonymously about it, please message me!
RHCPfan
in
My OCD Community
2 years ago
Methane Overgrowth
I have IBS M and have done for a while (used to be D but now changed to M). I came back from Brazil and had horrendous diarrhea for almost 3 weeks. All tests with the GP came back clear. I started the fodmap elimination as well as going on sertraline and taking 1 tbsp of a linseed mix wiith my breakfast
I have IBS M and have done for a while (used to be D but now changed to M). I came back from Brazil and had horrendous diarrhea for almost 3 weeks. All tests with the GP came back clear. I started the fodmap elimination as well as going on sertraline and taking 1 tbsp of a linseed mix wiith my breakfast
JT1992
in
IBS Network
1 year ago
DBS surgery
If you have had
DBS
surgery, share how long it took til you got the settings right to help with the PD symptoms. Thank you!
If you have had
DBS
surgery, share how long it took til you got the settings right to help with the PD symptoms. Thank you!
Sherry1960
in
Cure Parkinson's
2 years ago
Can Adaptive Deep Brain Stimulation Cure Parkinson’s Disease?
Good essay from Benjamin Stecher: https://tmrwedition.com/2022/10/20/can-adaptive-deep-brain-stimulation-cure-parkinsons-disease/ Benjamin has PD. This is his blog: https://tmrwedition.com/my-pd-journey/
Good essay from Benjamin Stecher: https://tmrwedition.com/2022/10/20/can-adaptive-deep-brain-stimulation-cure-parkinsons-disease/ Benjamin has PD. This is his blog: https://tmrwedition.com/my-pd-journey/
Bolt_Upright
in
Cure Parkinson's
2 years ago
OCD and Deep Brain stimulation in New York
Hello! I am new here. Could anyone help me please? I need to find out how much is the approximate cost of the surgery called deep brain stimulation in the state of New York. I would like to opt for that surgery if I qualify as suitable. I hope it's not too expensive. Thank you very much in advance. I
Hello! I am new here. Could anyone help me please? I need to find out how much is the approximate cost of the surgery called deep brain stimulation in the state of New York. I would like to opt for that surgery if I qualify as suitable. I hope it's not too expensive. Thank you very much in advance. I
KurtNash
in
My OCD Community
2 years ago
DBS Surgery #2, a personal essay
DBS
, or deep brain stimulation, is kind of a mystery to modern medicine. They aren’t 100% sure how or why it works; they just know it does work.
DBS
, or deep brain stimulation, is kind of a mystery to modern medicine. They aren’t 100% sure how or why it works; they just know it does work.
GaryTorch
in
Cure Parkinson's
2 years ago
Panic (in the streets of Birmingham)
I’ve got
DBS
lined up but I have real panics during the night, mostly when I wake up and - for the millionth time - fine myself virtually immobile. I know that deep breathing is meant to be the thing but it rarely seems to give me the peace that I hope for.
I’ve got
DBS
lined up but I have real panics during the night, mostly when I wake up and - for the millionth time - fine myself virtually immobile. I know that deep breathing is meant to be the thing but it rarely seems to give me the peace that I hope for.
jeeves19
in
Cure Parkinson's
2 years ago
“How Does Deep Brain Stimulation Change the Course of Parkinson's Disease?”
picture seen in patients with very long-term
DBS
.”
picture seen in patients with very long-term
DBS
.”
Kevin51
in
Cure Parkinson's
2 years ago
A LOW BUDGET DIY VIBROTACTILE STIMULATOR FOR EXPERIMENTAL CRS
Modern techniques of Coordinated Reset Stimulation (CRS), which is usually administered with invasive deep brain stimulation, can have a miraculous effect on those suffering from Parkinson’s disease. However, the CRS technique can also apparently be administered via so-called vibrotactile CRS (vCRS)
Modern techniques of Coordinated Reset Stimulation (CRS), which is usually administered with invasive deep brain stimulation, can have a miraculous effect on those suffering from Parkinson’s disease. However, the CRS technique can also apparently be administered via so-called vibrotactile CRS (vCRS)
Farooqji
in
Cure Parkinson's
2 years ago
Normal Meds: is this it?!
But I promised my neuro that I’d leave it out: it’s difficult to measure and rationalise when he’s trying to present a case to a hospital on why a patient needs
DBS
. I get it. But I’m astonished how slowly the world of ‘normal meds’ work?!
But I promised my neuro that I’d leave it out: it’s difficult to measure and rationalise when he’s trying to present a case to a hospital on why a patient needs
DBS
. I get it. But I’m astonished how slowly the world of ‘normal meds’ work?!
jeeves19
in
Cure Parkinson's
2 years ago
Using Lactulose long term
Does anyone know if it is safe to use Lactulose long term? I have IBS-C and have tried all the other remedies such as kiwis, psyllium, prunes ,linseeds, chia seeds and I drink plenty of water but find they either don’t work or give me terrible griping pains. Although I’d prefer to take a natural product
Does anyone know if it is safe to use Lactulose long term? I have IBS-C and have tried all the other remedies such as kiwis, psyllium, prunes ,linseeds, chia seeds and I drink plenty of water but find they either don’t work or give me terrible griping pains. Although I’d prefer to take a natural product
Ella59
in
IBS Network
1 year ago
A Bit Off Topic, FMT In A Single Case Report, Stopped ALS Progression And Improved Symptoms
world has seemed to follow through on those impressive initial results that I wrote about here : https://healthunlocked.com/cure-parkinsons/posts/146298271/fecal-microbiota-transplantation-fmt-is-it-a-nearer-term-future-treatment-for-people-living-with-parkinsons-disease Compare the cost of FUS or
DBS
world has seemed to follow through on those impressive initial results that I wrote about here : https://healthunlocked.com/cure-parkinsons/posts/146298271/fecal-microbiota-transplantation-fmt-is-it-a-nearer-term-future-treatment-for-people-living-with-parkinsons-disease Compare the cost of FUS or
DBS
chartist
in
Cure Parkinson's
2 years ago
I despise to the stigma of mental illness
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
jnelson66
in
Major Depressive Disorder (MDD) Support
2 years ago
Glycine
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
RCHD
in
Restless Legs Syndrome
2 years ago
I saw my first neuro after over five years
But he insisted on
DBS
which gives 99% positive results without side effects.
But he insisted on
DBS
which gives 99% positive results without side effects.
ion_ion
in
Cure Parkinson's
2 years ago
Mything the point: Some Thoughts on Living Well with PD
The LWWP faction will tout the wonders of cutting edge pharmacology and invasive procedures such as
DBS
. They won’t tell you about the risk of long term cognitive deterioration or the chance that your ability to speak or clearly articulate will go to hell in a hand basket.
The LWWP faction will tout the wonders of cutting edge pharmacology and invasive procedures such as
DBS
. They won’t tell you about the risk of long term cognitive deterioration or the chance that your ability to speak or clearly articulate will go to hell in a hand basket.
slapdasch4
in
Cure Parkinson's
2 years ago
Collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
hunkyd0ry
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
1
...
7
8
9
...
53
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
808 results
IBS Network
40 results
Restless Legs Syndrome
31 results
View top 10 communities
Sort by
Most Relevant
Newest