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Experiences with
Deep brain stimulation (DBS)
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does anyone who has had dbs ever hear very soft music that is not there
salon
in
Cure Parkinson's
11 years ago
I'm asking on behalf of my mother - is it neccesary for her to first drink Carbilev for PD before going for the DBS operations? Meds no good
Dr said she must drink Carbilev for a month first before she can go for surgery??? But the meds is no good to her...??? Hate to sea her like this -
Dr said she must drink Carbilev for a month first before she can go for surgery??? But the meds is no good to her...??? Hate to sea her like this -
wilmiesmith
in
Cure Parkinson's
11 years ago
Has anyone who has had the DBS Operation found that their PD seems to have gone. I had the Operation 2 weeks ago and I am still waiting
for an off period so that it can turned on.
for an off period so that it can turned on.
fitzy777
in
Cure Parkinson's
11 years ago
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Director of DBS Clinical Research Development.. Department of Neurosurgery, Anatomy and Neurobiolology, University of Kentucky.
Just tell me...what are the chances that someone on this blog site would be in my clinic....sitting in front of me...having had consultations with me....going through
DBS
, with me sitting by their side every step of the way..there when it's all over? I would answer...In your dreams!
Just tell me...what are the chances that someone on this blog site would be in my clinic....sitting in front of me...having had consultations with me....going through
DBS
, with me sitting by their side every step of the way..there when it's all over? I would answer...In your dreams!
annh
in
Cure Parkinson's
11 years ago
dbs
i got home from the hospital had
dbs
all went very well
i got home from the hospital had
dbs
all went very well
salon
in
Cure Parkinson's
11 years ago
Colestid Orange
Colestid Orange ( Colestipol Hydrochloride) 5.0g any one taking or tried this for the itching have been on Questran Light did little help for the itching phoned my consultant yesterday and he said to now try these one's same type of horrid powdered drink but just wanted to know if they might be a better
Colestid Orange ( Colestipol Hydrochloride) 5.0g any one taking or tried this for the itching have been on Questran Light did little help for the itching phoned my consultant yesterday and he said to now try these one's same type of horrid powdered drink but just wanted to know if they might be a better
cavi
in
PBC Foundation
11 years ago
After being diagnosed for 5 years, I'm facing DBS. Is there anyone who has regretted having it? I will be getting it at Barrow Neurological.
parkinsonspistol
in
Cure Parkinson's
11 years ago
Does having DBS reduce or eliminate the number of falls compared with before the operation?
A friend of mine has had
DBS
, but still falls, sometimes daily. Has anyone had the same experience, but eliminated falling by having the
DBS
'adjusted' or by having had a change in their medication?
A friend of mine has had
DBS
, but still falls, sometimes daily. Has anyone had the same experience, but eliminated falling by having the
DBS
'adjusted' or by having had a change in their medication?
Norton1
in
Cure Parkinson's
11 years ago
DBS for gait freezing
I don't have a tremor but suffer with gait freezing.I'm 70 and have been told I'm too old for
DBS
. Has anyone on this site had
DBS
for gait freezing and at what age did you have it?
I don't have a tremor but suffer with gait freezing.I'm 70 and have been told I'm too old for
DBS
. Has anyone on this site had
DBS
for gait freezing and at what age did you have it?
camper
in
Cure Parkinson's
11 years ago
Deep-brain stimulation (DBS) - some information
Hello everyone There was a very informative programme about
DBS
yesterday on BBC TV radio 4 - see http://www.bbc.co.uk/learningzone/clips/deep-brain-stimulation-a-treatment-for-depression/5364.html Partner
Hello everyone There was a very informative programme about
DBS
yesterday on BBC TV radio 4 - see http://www.bbc.co.uk/learningzone/clips/deep-brain-stimulation-a-treatment-for-depression/5364.html Partner
Partner
in
Cure Parkinson's
11 years ago
i am scheduled for dbs on sept 13 and 16 any words of wisdom please advise
salon
in
Cure Parkinson's
11 years ago
Has anyone had slow but some response to dbs? My Dr.is working it up slowly as my meds.are reduced. It is difficult to be patient!
nonnie
in
Cure Parkinson's
11 years ago
DBS they will not change the battery . Feel like I am in some sick study. For over a year I have been told the battery is good for 3 months.
I don't believe them. my question is has any had a
DBS
switch off and on again, how was it . Also has anyone been told they battery has 3 month left time and time again .
I don't believe them. my question is has any had a
DBS
switch off and on again, how was it . Also has anyone been told they battery has 3 month left time and time again .
export
in
Cure Parkinson's
11 years ago
tomorrow is my appt for psychology workup prior to dbs any thoughts or tips for me?thanks please reply with your experience.
salon
in
Cure Parkinson's
11 years ago
WOULD LIKE TO HAVE INFORMATION FROM THOSE WHO HAVE HAD DBS
I am considering
DBS
and would like to hear from those who have experienced it themselves or with a spouse. I have a great fear of it for myself and my husband. I was dx 17 years ago, slow moving until recently. No tremors mostly bradykinisia. When I'm on dyskinisia. Is
DBS
hype?
I am considering
DBS
and would like to hear from those who have experienced it themselves or with a spouse. I have a great fear of it for myself and my husband. I was dx 17 years ago, slow moving until recently. No tremors mostly bradykinisia. When I'm on dyskinisia. Is
DBS
hype?
susieque
in
Cure Parkinson's
11 years ago
RLS and stomach/bowel problems
I have been looking up stuff about RLS for a while, and nothing points towards bowel problems as a leading cause of RLS. I have suffered from RLS for many years, but only recently have I made the link between bowel problems and the incidence of RLS. Notably, constipation is present when RLS decides
I have been looking up stuff about RLS for a while, and nothing points towards bowel problems as a leading cause of RLS. I have suffered from RLS for many years, but only recently have I made the link between bowel problems and the incidence of RLS. Notably, constipation is present when RLS decides
Herlie
in
Restless Legs Syndrome
11 years ago
I went to see the locum dr on Wednesday as I felt in need of reassurance and ended up with two new medicines
He told me I had a heart murmur and said I should try another water tablet and also another go at another heart medicine. The water tablet is Natrilix and the other one is Doxazosin. The Natrilix is slow release and works all day, I've to wait three days before starting the Doxazosin. Luckily I'm
He told me I had a heart murmur and said I should try another water tablet and also another go at another heart medicine. The water tablet is Natrilix and the other one is Doxazosin. The Natrilix is slow release and works all day, I've to wait three days before starting the Doxazosin. Luckily I'm
Terjo
in
AF Association
11 years ago
Weight gain. Why. After DBS or not
FifteenyearsPD
in
Cure Parkinson's
11 years ago
i got through appt for ekg next is mri soon dbs any advice for staying strong? please advice me . thanks
salon
in
Cure Parkinson's
11 years ago
Has anyone else had DBS and want to talk?
Keen to talk to anyone who has been through this and can offer advice around living with
DBS
and what that means. Thanks (Not so) ShakingAJ
Keen to talk to anyone who has been through this and can offer advice around living with
DBS
and what that means. Thanks (Not so) ShakingAJ
shakingaj
in
Parkinson's New Zealand
11 years ago
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