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Experiences with
Deep brain stimulation (DBS)
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Botox for salivary glands
We are also planning on seeing a movement disorder clinic about the possibility of
DBS
, and had heard that that can also help with swallowing and excessive salivation as well.
We are also planning on seeing a movement disorder clinic about the possibility of
DBS
, and had heard that that can also help with swallowing and excessive salivation as well.
cflloyd
in
Cure Parkinson's
9 years ago
Have you considered DBS? It is recommended for people with midstage PD who for whom meds are no longer working well!
There are surgeons around that can do
DBS
on you when you are asleep (I found one) so don't be misled. Ask a Movement Disorder Specialist today! !
DBS
reliably reduces or eliminates tremor and dyskenesia.
There are surgeons around that can do
DBS
on you when you are asleep (I found one) so don't be misled. Ask a Movement Disorder Specialist today! !
DBS
reliably reduces or eliminates tremor and dyskenesia.
sdekozan
in
Cure Parkinson's
9 years ago
Brain implants or standard DBS
Brain implants because brains move slightly during physical activity and as we breathe and our heart beats, rigid implants rub and damage tissue overcome these problems using a fine, flexible mesh. In 2012 the team showed that cells could be grown around such a mesh, but that left the problem of how
Brain implants because brains move slightly during physical activity and as we breathe and our heart beats, rigid implants rub and damage tissue overcome these problems using a fine, flexible mesh. In 2012 the team showed that cells could be grown around such a mesh, but that left the problem of how
Hidden
in
Cure Parkinson's
9 years ago
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Dbs trouble shooting clinics
I had
DBS
surgery last May and am still not programmed correctly I do not believe.
I had
DBS
surgery last May and am still not programmed correctly I do not believe.
ddpd
in
Cure Parkinson's
9 years ago
DBS
I had
DBS
this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half.
I had
DBS
this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half.
adkseaman
in
Cure Parkinson's
9 years ago
DBS?
I am hoping to get the OK for
DBS
surgery soon. Would love to hear from anyone who has had this done. Good or bad, I need to know.
I am hoping to get the OK for
DBS
surgery soon. Would love to hear from anyone who has had this done. Good or bad, I need to know.
Kachimom
in
Cure Parkinson's
9 years ago
DBS adjustment/migraine
I had my
DBS
adjusted today. Now I'm battling a migraine. Unlike typical migraine onset, this one started within an hour of the adjustment. Nausea with vomiting came on fast too. Does anyone else experience this? This is the 3rd time it's happened to me.
I had my
DBS
adjusted today. Now I'm battling a migraine. Unlike typical migraine onset, this one started within an hour of the adjustment. Nausea with vomiting came on fast too. Does anyone else experience this? This is the 3rd time it's happened to me.
christymw
in
Cure Parkinson's
9 years ago
Reducing madopar
I did chat to a PD nurse but she would only talk about
DBS
which I don't want. A couple of days ago I decided to try to lower my intake of madopar as the constant swooping on and off is exhausting and I was also worried that the mood swings were becoming so severe I wasn't able to function .
I did chat to a PD nurse but she would only talk about
DBS
which I don't want. A couple of days ago I decided to try to lower my intake of madopar as the constant swooping on and off is exhausting and I was also worried that the mood swings were becoming so severe I wasn't able to function .
pen1
in
Cure Parkinson's
9 years ago
DBS for PwP who have low tremor. Request for others to share experience. Impact of lower frequencies.
I had my
DBS
a year ago. I was diagnosed with PD in 2007, coming up to 9 years ago, I am now 67. Recently, just a few weeks ago, following my participation in an experiment on
DBS
frequencies, I asked for the
DBS
pulse rate to be dropped from the normal 130 to 80 pulses per minute.
I had my
DBS
a year ago. I was diagnosed with PD in 2007, coming up to 9 years ago, I am now 67. Recently, just a few weeks ago, following my participation in an experiment on
DBS
frequencies, I asked for the
DBS
pulse rate to be dropped from the normal 130 to 80 pulses per minute.
Stve
in
Cure Parkinson's
9 years ago
DBS
What does
dbs
improve if you don't have a tremor?
What does
dbs
improve if you don't have a tremor?
michaela13
in
Cure Parkinson's
9 years ago
Does Anyone Else feel Like they Sleep Under A Lead Blanket???
Since I've had my
DBS
1 1/2 years ago I feel that WHEN I actually sleep and when I need to roll over I find it very very hard to turn over, its like I'm underneath a lead Blanket and that my body can't turn as though it weighs s ton!
Since I've had my
DBS
1 1/2 years ago I feel that WHEN I actually sleep and when I need to roll over I find it very very hard to turn over, its like I'm underneath a lead Blanket and that my body can't turn as though it weighs s ton!
Chris0846
in
Cure Parkinson's
9 years ago
Is it just me?
He had me on the Sinemet for over a year before he approached me with
DBS
. Therefore I am not knowledgeable on the drugs out there or the drugs for PD that everyone else seems so knowledgeable about.
He had me on the Sinemet for over a year before he approached me with
DBS
. Therefore I am not knowledgeable on the drugs out there or the drugs for PD that everyone else seems so knowledgeable about.
Chris0846
in
Cure Parkinson's
9 years ago
New girl in town
On Oct 8. 2014 l had
DBS
surgery to both sides of my so called brain😇 However I now am experiencing problems on my right side, hand tremours, stiffness in my hand, balance poor, pain everywhere, toes curling under, poor to nonexistence sleep, hesitation walking which lasts longer and longer.
On Oct 8. 2014 l had
DBS
surgery to both sides of my so called brain😇 However I now am experiencing problems on my right side, hand tremours, stiffness in my hand, balance poor, pain everywhere, toes curling under, poor to nonexistence sleep, hesitation walking which lasts longer and longer.
Chris0846
in
Cure Parkinson's
9 years ago
Worried
I suffered with ibs about 15 or more years ago but only have the occasional flare up , more bloating and wind like pains for maybe a day then ok , but for the last 10 days have had pain , really bad pain every day & bloating , stomach looks swollen , I've been taking Colofac every day since this started
I suffered with ibs about 15 or more years ago but only have the occasional flare up , more bloating and wind like pains for maybe a day then ok , but for the last 10 days have had pain , really bad pain every day & bloating , stomach looks swollen , I've been taking Colofac every day since this started
Lindylou2016
in
IBS Network
9 years ago
New member
So I went in for a
DBS
, it is not an easy operation , put it has completly changed my life. I went from taking pills every two hours to maintain to only 4 times a day. I hope that this will help those of you that are on the fence about
DBS
.
So I went in for a
DBS
, it is not an easy operation , put it has completly changed my life. I went from taking pills every two hours to maintain to only 4 times a day. I hope that this will help those of you that are on the fence about
DBS
.
currydan
in
Cure Parkinson's
9 years ago
Unhealthy food and weight loss
I'm eating under 1500 calories but not necessarily healthy . For exzample today I have had bran flakes and sausage roll and chocolate muffin then bran flakes for tea again . Will I still loose weight or does it have to be healthy food ?
I'm eating under 1500 calories but not necessarily healthy . For exzample today I have had bran flakes and sausage roll and chocolate muffin then bran flakes for tea again . Will I still loose weight or does it have to be healthy food ?
frankishandy
in
Weight Loss Support
9 years ago
Imipramine and restless leg syndrome
I have been taking imipramine for quite a few years now. It doesn't seem as effective as it did when I first started taking it. Does anyone else take imipramine for Rls? My mum suffers also but she has been prescribed gabapentin.
I have been taking imipramine for quite a few years now. It doesn't seem as effective as it did when I first started taking it. Does anyone else take imipramine for Rls? My mum suffers also but she has been prescribed gabapentin.
Carcol92
in
Restless Legs Syndrome
9 years ago
constipation and b12
Hi. looking for some advice as I am quite new to B12 issues. I have stopped taking B12 supplements as GP wants me to stay off for a few months so he can test for PA. Before, I started the B12, I was very constipated and bloated. I started having a high bran for breakfast about the same time as taking
Hi. looking for some advice as I am quite new to B12 issues. I have stopped taking B12 supplements as GP wants me to stay off for a few months so he can test for PA. Before, I started the B12, I was very constipated and bloated. I started having a high bran for breakfast about the same time as taking
Hidden
in
Pernicious Anaemia Society
9 years ago
Latest Lab test results after being off Armour for a year or so.
Hello All. Newbie here! TSH a year ago was 1.98 Free T4 of 10.2 (range 9-28) TSH 3 months later 2.28 Fr ee T4 of 11.7 (range 9-28) My new doctor will only do TSH so 2 months ago 4.45 and a few weeks ago 3.36 My TSH is going up and down and my Free T4 is low in the range. I was lucky and able to see
Hello All. Newbie here! TSH a year ago was 1.98 Free T4 of 10.2 (range 9-28) TSH 3 months later 2.28 Fr ee T4 of 11.7 (range 9-28) My new doctor will only do TSH so 2 months ago 4.45 and a few weeks ago 3.36 My TSH is going up and down and my Free T4 is low in the range. I was lucky and able to see
Crunchieeagle
in
Thyroid UK
9 years ago
DBS stage
What is the right time for
DBS
. At an early stage or later stage.I am on 4 sinemet+entacom per day with 3-4 hours rigidity.No tremor. Uneasiness prevails.But my neuro suggests to post pone.I am 60 now. any one can advise me.
What is the right time for
DBS
. At an early stage or later stage.I am on 4 sinemet+entacom per day with 3-4 hours rigidity.No tremor. Uneasiness prevails.But my neuro suggests to post pone.I am 60 now. any one can advise me.
muragod
in
Cure Parkinson's
9 years ago
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