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Deep brain stimulation (DBS)
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HAS ANYONE WITH PD HAD SPINAL CORD STIMULATOR IMPLANTED FOR POSTURE CORRECTION,PAIN MODULATION AND MOTOR FUNCTION?
I have read that it is similarly to
DBS
,but it targets the spinal cord instead of the brain.I was wondering,if anyone had this procedure done,please share your experience. How effective is it?Is it safer ,compared to
DBS
? Thanks in advance.
I have read that it is similarly to
DBS
,but it targets the spinal cord instead of the brain.I was wondering,if anyone had this procedure done,please share your experience. How effective is it?Is it safer ,compared to
DBS
? Thanks in advance.
OREOLU
in
Cure Parkinson's
4 years ago
DBS - deep brain stimulation for Dystonia
Has anyone on here experienced or has
DBS
plz - I know mainly it’s for Parkinson’s but they do it for Dystonia too & wondered if anyone had the procedure or had any advice plz - I’m yet to have Botox so any advice on that would be most helpful too - or herbal remedies ? Maybe cannabis oil !
Has anyone on here experienced or has
DBS
plz - I know mainly it’s for Parkinson’s but they do it for Dystonia too & wondered if anyone had the procedure or had any advice plz - I’m yet to have Botox so any advice on that would be most helpful too - or herbal remedies ? Maybe cannabis oil !
Toto88
in
Dystonia Society
4 years ago
Poor response to medication
He is considering me as a candidate for Deep Brain stimulation and this scares me, anyone had
DBS
and would like to share how they find it?
He is considering me as a candidate for Deep Brain stimulation and this scares me, anyone had
DBS
and would like to share how they find it?
nanster
in
Cure Parkinson's
4 years ago
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DBS procedure
Does anyone know why anyone know why a doctor how the doctor knows which area of the brain to target (GPI or STN) during
DBS
procedure?
Does anyone know why anyone know why a doctor how the doctor knows which area of the brain to target (GPI or STN) during
DBS
procedure?
moonsake10
in
Cure Parkinson's
5 years ago
Mirena IUD levonorgestrel levels after 6 years?
Hi there, I decided to have the Mirena IUD fitted 6 years ago for the treatment of Endio and will now need this replaced. Does anyone know how the hormonal side of the Mirena works in terms of longevity. ie Should I expect any side effects when this is replaced as the level of levonorgestrel has lessened
Hi there, I decided to have the Mirena IUD fitted 6 years ago for the treatment of Endio and will now need this replaced. Does anyone know how the hormonal side of the Mirena works in terms of longevity. ie Should I expect any side effects when this is replaced as the level of levonorgestrel has lessened
Posh5000
in
Endometriosis UK
4 years ago
Coronavirus
And I have
DBS
fitted
And I have
DBS
fitted
Gareth78
in
Dystonia Society
5 years ago
Deep brain stimulation surgery
Hello is anyone out there or knows of someone who has had (
dbs
)? I had the surgery on March 5th for my severe ocd. I have scrupulosity and symmetery/ orderliness ocd. I have seen some improvement after my surgery but am having still some anxiety and sticky thoughts. With time will that go away?
Hello is anyone out there or knows of someone who has had (
dbs
)? I had the surgery on March 5th for my severe ocd. I have scrupulosity and symmetery/ orderliness ocd. I have seen some improvement after my surgery but am having still some anxiety and sticky thoughts. With time will that go away?
MrsMapdog
in
My OCD Community
4 years ago
DBS truly reversible?
Hi all, In all the
DBS
vs FUS posts the argument is that
DBS
is reversible. The two people I know who had
DBS
pulled are in horrible shape - one had a stroke from it. I also know of a number of people where
DBS
made them worse or did nothing.
Hi all, In all the
DBS
vs FUS posts the argument is that
DBS
is reversible. The two people I know who had
DBS
pulled are in horrible shape - one had a stroke from it. I also know of a number of people where
DBS
made them worse or did nothing.
lenamm
in
Cure Parkinson's
5 years ago
DBS and meds
DBS
and meds. I can’t get my meds correct after my first
DBS
programming. I used to take stalevo 200 every 2 1/2 hours. The doctor got me on rytary now two 245 mg capsules then following my old schedule. Now I’m overdosing. Who’s got
DBS
and how much meds they take.
DBS
and meds. I can’t get my meds correct after my first
DBS
programming. I used to take stalevo 200 every 2 1/2 hours. The doctor got me on rytary now two 245 mg capsules then following my old schedule. Now I’m overdosing. Who’s got
DBS
and how much meds they take.
dfasci
in
Cure Parkinson's
5 years ago
Light Interview
I have taken all my qualifications, my CV and my Enhanced
DBS
. She says there is a course that I can enrol on, about mental health awareness. It normally costs £300.00 but I will get it free. I will keep you posted.
I have taken all my qualifications, my CV and my Enhanced
DBS
. She says there is a course that I can enrol on, about mental health awareness. It normally costs £300.00 but I will get it free. I will keep you posted.
Poulson
in
Action on Postpartum Psychosis
5 years ago
Saying hello from isolation W2 Day1
Keep up the good work everybody, enjoy your runs, but most of all stay safe 😷😁 Edit: Forgot to say that I volunteered to be a NHS responder as there is a role you can do from home if you’ve had a recent
DBS
check.
Keep up the good work everybody, enjoy your runs, but most of all stay safe 😷😁 Edit: Forgot to say that I volunteered to be a NHS responder as there is a role you can do from home if you’ve had a recent
DBS
check.
Wenderwoo
Graduate
in
Couch to 5K
4 years ago
DBS for non tremor
An acquaintance of mine who has the wonderful disease was told by their PD nurse that
DBS
wasn’t really an option as he had no tremor. I’m a little surprised at this remark and wondered what the community thinks about this. Thanks and best wishes 😊
An acquaintance of mine who has the wonderful disease was told by their PD nurse that
DBS
wasn’t really an option as he had no tremor. I’m a little surprised at this remark and wondered what the community thinks about this. Thanks and best wishes 😊
jeeves19
in
Cure Parkinson's
5 years ago
Have you had DBS please share experience
What has been good, what hard? Has your speech been affected? R u still on medication? How long do the benefits last? Please share your experience.
What has been good, what hard? Has your speech been affected? R u still on medication? How long do the benefits last? Please share your experience.
powerfemale
in
Cure Parkinson's
5 years ago
When can you not get DBS?
When I went for my last neurology visit right before Christmas, it was suggested that I consider
DBS
...
When I went for my last neurology visit right before Christmas, it was suggested that I consider
DBS
...
Hidden
in
Cure Parkinson's
5 years ago
DBS revision
I’m curious if anyone has experience or knowledge of the new generation of
DBS
units that have “steerable “ current. More specifically, I am interested in the St. Jude Infinity units ability to be used after the Medtronic units have seemed to lose therapeutic efficacy.
I’m curious if anyone has experience or knowledge of the new generation of
DBS
units that have “steerable “ current. More specifically, I am interested in the St. Jude Infinity units ability to be used after the Medtronic units have seemed to lose therapeutic efficacy.
etterus
in
Cure Parkinson's
5 years ago
Ok, I'm bad. I just turned 63 and my home general DR. insists on a colonoscopy. I have never.... I mean you know "exit only" had one.
My question is: Should I be concerned about my
DBS
considering they are giving me a "party girl" drip? I tolerated Cateract procedure 5 years ago w/o any concerns but the dr. says this will take a little longer and I am a few years further into noticeable progressions than I was at that time.
My question is: Should I be concerned about my
DBS
considering they are giving me a "party girl" drip? I tolerated Cateract procedure 5 years ago w/o any concerns but the dr. says this will take a little longer and I am a few years further into noticeable progressions than I was at that time.
Pelley
in
Cure Parkinson's
5 years ago
01/11/2020 neurologist appointment
Recommends again
DBS
for tremor. Says to qualify you must first show good response with medications. In my case that is carbidopa levodopa. Increased, for effort to control tremor, my CL dose interval to two hours.
Recommends again
DBS
for tremor. Says to qualify you must first show good response with medications. In my case that is carbidopa levodopa. Increased, for effort to control tremor, my CL dose interval to two hours.
Hidden
in
Cure Parkinson's
5 years ago
Fox's PDIQ + YOU Conference in Phoenix . . .
Where were the
DBS
Manufacturers and what about Duopa (Levodopa pump) at this conference.? Is there therapy after oral medications flame out ? I heard from one person Fox didn't invite them.. Anyone know more? Otherwise, every vendor in the universe seemed to be there.
Where were the
DBS
Manufacturers and what about Duopa (Levodopa pump) at this conference.? Is there therapy after oral medications flame out ? I heard from one person Fox didn't invite them.. Anyone know more? Otherwise, every vendor in the universe seemed to be there.
FMundo
in
Cure Parkinson's
5 years ago
DBS for Mom who is 85
My Mom was initially not ready for
DBS
. Now she would like to go that direction. I contacted her Neuro and they said she is not a candidate for
DBS
and mentioned her age of 85. Now what? Do I push for another opinion from another Neuro?
My Mom was initially not ready for
DBS
. Now she would like to go that direction. I contacted her Neuro and they said she is not a candidate for
DBS
and mentioned her age of 85. Now what? Do I push for another opinion from another Neuro?
Hidden
in
Cure Parkinson's
5 years ago
Kent - Baby Observation
I’m happy to travel & work around the family, and I of course, have a
DBS
and an NHS covering letter. Any help or advice on how I might go about finding a family open to this would be so super helpful. Thank you in advance! :)
I’m happy to travel & work around the family, and I of course, have a
DBS
and an NHS covering letter. Any help or advice on how I might go about finding a family open to this would be so super helpful. Thank you in advance! :)
galliek
in
Pregnancy and Parenting Support
5 years ago
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