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Deep brain stimulation (DBS)
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DBS PLUS MUKUNA P, OR DBS PLUS C/L, OR DBS PLUS HDT PLUS MUKUNA P, OR DBS PLUS MUKUNA PLUS C/L PLUS HDT, DBS PLUS HDT PLUS C/L.
Hi friends with PD and caregivers, if you are non tremor dominant, gait/balance/posture abnormality PD patient, and has had any of the above combination of interventions. please chose any combination that works for you. And how long has this been working for you? Thanks
Hi friends with PD and caregivers, if you are non tremor dominant, gait/balance/posture abnormality PD patient, and has had any of the above combination of interventions. please chose any combination that works for you. And how long has this been working for you? Thanks
OREOLU
in
Cure Parkinson's
4 years ago
Dr. Jeff Elias of U of Virginia Responds to Email Regarding Pallidothalamic Tractotomy
It has never undergone rigorous clinical trial review like STN
DBS
or FUS for tremor/PD. If the Europeans continue to have success with it, then investigators in the US will likely study it. Dr. Jeanmonod is an excellent neurosurgeon who I personally know.
It has never undergone rigorous clinical trial review like STN
DBS
or FUS for tremor/PD. If the Europeans continue to have success with it, then investigators in the US will likely study it. Dr. Jeanmonod is an excellent neurosurgeon who I personally know.
jimcaster
in
Cure Parkinson's
4 years ago
DBS Albuquerque
Looking into getting DBS'd by a surgeon in New Mexico
Looking into getting DBS'd by a surgeon in New Mexico
Hidden
in
Cure Parkinson's
4 years ago
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Concerned
Husband had
DBS
, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
Husband had
DBS
, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
dhill
in
Cure Parkinson's
4 years ago
Job with MSA Patients
I have a full driving license with no convictions and a
DBS
check available.I am currently working as bank staff (temp) and in February 2021 I will be looking to follow my career, I would love to be able to help another person/ family who sufferers from this terrible illness as there carer.
I have a full driving license with no convictions and a
DBS
check available.I am currently working as bank staff (temp) and in February 2021 I will be looking to follow my career, I would love to be able to help another person/ family who sufferers from this terrible illness as there carer.
RhiMallorca
in
Multiple System Atrophy Trust
4 years ago
PTT trials for 50 participants at 8 locations* in the US. Out of nowhere. Bilateral will be offered if you qualify. (*Thank you Rebtar.)
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
MBAnderson
in
Cure Parkinson's
4 years ago
Lactulose ibs
Has anyone else suffered awful side effects with lactulose?My consultant has prescribed it for ibs c but it has made me so ill today.Took just 10ml last two days and this morning I had severe cramps and diarrhoea.This evening my stomach is so painful and windy I don’t know what to do with myself!I won
Has anyone else suffered awful side effects with lactulose?My consultant has prescribed it for ibs c but it has made me so ill today.Took just 10ml last two days and this morning I had severe cramps and diarrhoea.This evening my stomach is so painful and windy I don’t know what to do with myself!I won
JulieB5200
in
IBS Network
4 years ago
IBS OR NOT?
Hi, I’ve been suffering from constipation since December but a month later having been experiencing acute aching in my bowel on lower left side. Dr was going to refer me for a scan but blood & stool samples came back normal so cancelled. At night I don’t know what to do with myself, aching spasms keeping
Hi, I’ve been suffering from constipation since December but a month later having been experiencing acute aching in my bowel on lower left side. Dr was going to refer me for a scan but blood & stool samples came back normal so cancelled. At night I don’t know what to do with myself, aching spasms keeping
Hidden
in
IBS Network
4 years ago
Deep Brain Stimulation for PSP ??
https://www.discovermagazine.com/health/what-is-deep-brain-stimulation-and-why-does-it-work-for-parkinsons?utm_source=dscfb&utm_medium=social&utm_campaign=dscfb&fbclid=IwAR3HO-VgxD3S97LynKzGoSifeGa6pck-V4ZHjn-ejLdGZCrStMrLeAyfOoM
https://www.discovermagazine.com/health/what-is-deep-brain-stimulation-and-why-does-it-work-for-parkinsons?utm_source=dscfb&utm_medium=social&utm_campaign=dscfb&fbclid=IwAR3HO-VgxD3S97LynKzGoSifeGa6pck-V4ZHjn-ejLdGZCrStMrLeAyfOoM
Adamxd
in
PSP Association
4 years ago
DBS surgery complete, but no benefits found yet
Friends, my last post I told you my husband was having his device turned on, & he did, however, that evening he experienced high blood pressure & heart palpatations & started making strange & totally movements, lieing in bed could not be still, anyone else experience this? We have emailed Neurologist
Friends, my last post I told you my husband was having his device turned on, & he did, however, that evening he experienced high blood pressure & heart palpatations & started making strange & totally movements, lieing in bed could not be still, anyone else experience this? We have emailed Neurologist
dhill
in
Cure Parkinson's
4 years ago
December 11, 2020, MRg FUS PTT & me, 9 month(s) (ago today) report.
If this were not available to me, I would explore
DBS
. Marc
If this were not available to me, I would explore
DBS
. Marc
MBAnderson
in
Cure Parkinson's
4 years ago
DBS — What questions to ask the DBS neurosurgeon?
I have an appointment with the
DBS
neurosurgeon next week for evaluation before the surgery, should I decide. I’ve already had the brain MRI and the Neuropsych evaluation. I’m 70 yrs old, female, 86 lbs, and diagnosed 6 1/2 yrs ago. I’m on C/L only, one tablet, 3 times daily.
I have an appointment with the
DBS
neurosurgeon next week for evaluation before the surgery, should I decide. I’ve already had the brain MRI and the Neuropsych evaluation. I’m 70 yrs old, female, 86 lbs, and diagnosed 6 1/2 yrs ago. I’m on C/L only, one tablet, 3 times daily.
Kingdomcome
in
Cure Parkinson's
4 years ago
45 mins conversation with dr. Jeanmonod regarding FUS
It is estimated for long time by analogy with
DBS
. The first FUS was done in 2011 but they traced the people who had FUS starting 5-6 years ago and they are ok. 5. If he considers I do not need a surgery now but I want it , no matter, is that possible? No!
It is estimated for long time by analogy with
DBS
. The first FUS was done in 2011 but they traced the people who had FUS starting 5-6 years ago and they are ok. 5. If he considers I do not need a surgery now but I want it , no matter, is that possible? No!
ion_ion
in
Cure Parkinson's
4 years ago
Dried blood spot sampling offers an inexpensive way to widen access to antibody testing for COVID-19.
://www.birmingham.ac.uk/news/latest/2020/09/
dbs
-sampling-offers-inexpensive-way-to%20widen-antibody-testing-access.aspx
://www.birmingham.ac.uk/news/latest/2020/09/
dbs
-sampling-offers-inexpensive-way-to%20widen-antibody-testing-access.aspx
2greys
in
Lung Conditions Community Forum
4 years ago
Levodopa or Dopamine Agonist after DBS in Parkinson's Disease? We finally have some evidence.
Levodopa Versus Dopamine Agonist After Subthalamic Stimulation in Parkinson's Disease https://onlinelibrary.wiley.com/doi/full/10.1002/mds.28382#.X6lTvADhDPE.twitter
Levodopa Versus Dopamine Agonist After Subthalamic Stimulation in Parkinson's Disease https://onlinelibrary.wiley.com/doi/full/10.1002/mds.28382#.X6lTvADhDPE.twitter
Farooqji
in
Cure Parkinson's
4 years ago
Study examines the potential of spinal cord stimulation
Based on the visual analog scale of pain intensity — the seven patients who had never received
DBS
experienced a 57% reduction, on average. For those who had received
DBS
in the past, the average reduction in pain intensity was 61%. " Study Excerpt .
Based on the visual analog scale of pain intensity — the seven patients who had never received
DBS
experienced a 57% reduction, on average. For those who had received
DBS
in the past, the average reduction in pain intensity was 61%. " Study Excerpt .
Abdiqani
in
Cure Parkinson's
4 years ago
DBS doesn't seem to work?
I had
DBS
surgery 2 month ago and had 2 programming sessions, but still far from feeling any better. I can say, My tremors and distonia on presurgery status, taking much more medication than before and still having bad days (mostly of them). Does it mean failure of
DBS
? I don't know what to do.
I had
DBS
surgery 2 month ago and had 2 programming sessions, but still far from feeling any better. I can say, My tremors and distonia on presurgery status, taking much more medication than before and still having bad days (mostly of them). Does it mean failure of
DBS
? I don't know what to do.
koshca
in
Cure Parkinson's
4 years ago
Medication and DBS
He asked me how long usually takes to be on medication before going for
DBS
. (He is 44years old) Do you guys know how many years normally people live on medication before needing a surgery? Thanks guys , I hope they find the cure soon.
He asked me how long usually takes to be on medication before going for
DBS
. (He is 44years old) Do you guys know how many years normally people live on medication before needing a surgery? Thanks guys , I hope they find the cure soon.
Parsa
in
Cure Parkinson's
4 years ago
COLOFAC
I wonder whether anyone else has experienced problems with Colofac. Although it was helpful with the pain and distension it always culminated in faecal impaction. Merbentyl was found to be more satisfactory but it was removed from my list of medications because of its inhibitive cost. I have managed
I wonder whether anyone else has experienced problems with Colofac. Although it was helpful with the pain and distension it always culminated in faecal impaction. Merbentyl was found to be more satisfactory but it was removed from my list of medications because of its inhibitive cost. I have managed
theomus
in
IBS Network
4 years ago
Our virtual pub took place today. I believe everybody enjoyed it. Next Sunday, 9/27, 2nd HU virtual gathering @ 5 PM London time.
Jeanmonod. 5 of the videos are conducted by the
DBS
neurosurgeon Dr. Michele Tagliati - Director of the Movement Disorders Program at Cedars Sinai. These videos are part of Dr.
Jeanmonod. 5 of the videos are conducted by the
DBS
neurosurgeon Dr. Michele Tagliati - Director of the Movement Disorders Program at Cedars Sinai. These videos are part of Dr.
MBAnderson
in
Cure Parkinson's
4 years ago
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