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Deep brain stimulation (DBS)
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DBS for Parkinsons
Need a little info on the
DBS
surgery for Parkinson’s. Doc says our daughter has reached the limit for the Sinemet dosage and is beginning g to show signs of needing more help. The only thing left is
DBS
.
Need a little info on the
DBS
surgery for Parkinson’s. Doc says our daughter has reached the limit for the Sinemet dosage and is beginning g to show signs of needing more help. The only thing left is
DBS
.
Williemom
in
Positive Wellbeing During Self-Isolation
4 years ago
DBS lottery
Guy 3 was a really nice person but following
DBS
has become violent, bad tempered and his family are thinking about placing him in a care home.
Guy 3 was a really nice person but following
DBS
has become violent, bad tempered and his family are thinking about placing him in a care home.
jeeves19
in
Cure Parkinson's
4 years ago
DBS - yes or no?
How to decide on a
DBS
placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?
How to decide on a
DBS
placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?
Hidden
in
Anxiety and Depression Support
4 years ago
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Lactulose... Ugh! Please help
So I started taking Lactulose yesterday again. Took it a long time ago with no problems I can remember. 1Tbs 2x a day. Now... 2Tbs 3x a day. I took the first 2Tbs and thought I would die from cramps and gas and then the runs. Drank water like a fish and still awoke dehydrated. Today I am doing 1Tbs 3x
So I started taking Lactulose yesterday again. Took it a long time ago with no problems I can remember. 1Tbs 2x a day. Now... 2Tbs 3x a day. I took the first 2Tbs and thought I would die from cramps and gas and then the runs. Drank water like a fish and still awoke dehydrated. Today I am doing 1Tbs 3x
FLgirl0722
in
British Liver Trust
3 years ago
DBS, good or bad thing?
I've decided to take the plunge on
dbs
, the meds don't work much anymore and side effects are kicking my butt. it's been 7 yrs since diagnoses, unbelievable suffering everyday. Your thought's, pros and cons, warnings, tips , suggestions, secrets ect. .thank you greatly
I've decided to take the plunge on
dbs
, the meds don't work much anymore and side effects are kicking my butt. it's been 7 yrs since diagnoses, unbelievable suffering everyday. Your thought's, pros and cons, warnings, tips , suggestions, secrets ect. .thank you greatly
Hidden
in
Anxiety and Depression Support
4 years ago
Chi machine?
Has anyone used a Chi Machine? A man at my church who has Parkinson's said he used to use the machine to help him sleep. (He had Deep Brain Stimulation and is now doing really well. No more tremors and his sleep is much better so it sounds like he doesn't use the Chi Machine any more.)
Has anyone used a Chi Machine? A man at my church who has Parkinson's said he used to use the machine to help him sleep. (He had Deep Brain Stimulation and is now doing really well. No more tremors and his sleep is much better so it sounds like he doesn't use the Chi Machine any more.)
kicker2
in
Restless Legs Syndrome
3 years ago
Links to some articles comparing FUS to DBS for Essential Tremors
articleId=1470923#articleId1470923 https://essentialtremortreatment.com/focused-ultrasound-
dbs
-which-better-for-you/ https://jnnp.bmj.com/content/early/2021/01/17/jnnp-2020-323656 https://www.michaeljfox.org/news/focused-ultrasound https://www.neurologylive.com/view/stem-cell-therapy-tbi-other-conditions
articleId=1470923#articleId1470923 https://essentialtremortreatment.com/focused-ultrasound-
dbs
-which-better-for-you/ https://jnnp.bmj.com/content/early/2021/01/17/jnnp-2020-323656 https://www.michaeljfox.org/news/focused-ultrasound https://www.neurologylive.com/view/stem-cell-therapy-tbi-other-conditions
pdpatient
in
Cure Parkinson's
4 years ago
Deep Brain Stimulation
Can those who have had
DBS
please share their experiences
Can those who have had
DBS
please share their experiences
thfc1961
in
Cure Parkinson's
4 years ago
New to the forum
Medication or
DBS
Medication or
DBS
thfc1961
in
Cure Parkinson's
4 years ago
More Encouraging Focused Ultrasound News
I readily admit that I don't understand much of this article, but I do understand that it's another encouraging bit of information regarding focused ultrasound with specific potential for treatment of Parkinson's Disease and may other ailments. "Parkinson’s Disease, epilepsy and insomnia are just a few
I readily admit that I don't understand much of this article, but I do understand that it's another encouraging bit of information regarding focused ultrasound with specific potential for treatment of Parkinson's Disease and may other ailments. "Parkinson’s Disease, epilepsy and insomnia are just a few
jimcaster
in
Cure Parkinson's
3 years ago
Parkinsons, DBS and Thyroid
I found one medical paper whereby a 61 year old lady had similar issues (thyroid, Parkinson’s,
DBS
) whereby her thyroid generated tremor was “ topping up” and constantly disrupting her
dbs
.
I found one medical paper whereby a 61 year old lady had similar issues (thyroid, Parkinson’s,
DBS
) whereby her thyroid generated tremor was “ topping up” and constantly disrupting her
dbs
.
Lr_defender
in
Thyroid UK
4 years ago
Pros and Cons of Four Different Brain Surgeries For Parkinson’s Diseases
He discusses the following 4 procedures available currently: Deep Brain Stimulation (
DBS
) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https://tmrwedition.com/2021/01/30/pros-and-cons-of-four-different-brain-surgeries-for-parkinsons-disease/amp/?
He discusses the following 4 procedures available currently: Deep Brain Stimulation (
DBS
) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https://tmrwedition.com/2021/01/30/pros-and-cons-of-four-different-brain-surgeries-for-parkinsons-disease/amp/?
Farooqji
in
Cure Parkinson's
4 years ago
Present and future of subthalamotomy in the management of Parkinson´s disease: a systematic review
Article highlights The subthalamic nucleus (STN) plays a key role in the pathophysiology of Parkinson´s disease (PD). Neurosurgical targeting of the STN with Deep Brain Stimulation is a worldwide procedure for PD. Ablation of the STN with Radio Frequency has also been undertaken in several hundred
Article highlights The subthalamic nucleus (STN) plays a key role in the pathophysiology of Parkinson´s disease (PD). Neurosurgical targeting of the STN with Deep Brain Stimulation is a worldwide procedure for PD. Ablation of the STN with Radio Frequency has also been undertaken in several hundred
Farooqji
in
Cure Parkinson's
3 years ago
Any DBS prep advice?
Mischely's PD School on
DBS
, and have come up with a handful of questions to ask at the meeting (see below!)
Mischely's PD School on
DBS
, and have come up with a handful of questions to ask at the meeting (see below!)
pdkid
in
Cure Parkinson's
4 years ago
Back again with another question about spouse's DBS results
I cannot say it is entirely due to the
DBS
, because he has so many other issues, 1.
I cannot say it is entirely due to the
DBS
, because he has so many other issues, 1.
dhill
in
Cure Parkinson's
4 years ago
Started on depixol 40mg depot inj fortnightly and now have severe RLS
Hi everyone I'm new here, hope everyone is doing OK. I have just been started on Depixol depot inj 40mg fortnightly. Previously I was on clopixol and previous to that was on depixol bylut don't remember the dose. While I was on clopixol I didn't have and RLS symptoms but the first time and now again
Hi everyone I'm new here, hope everyone is doing OK. I have just been started on Depixol depot inj 40mg fortnightly. Previously I was on clopixol and previous to that was on depixol bylut don't remember the dose. While I was on clopixol I didn't have and RLS symptoms but the first time and now again
Magpie2016
in
Restless Legs Syndrome
3 years ago
Medtronic DBS battery change: opportunity for improved therapy?
Coming in 2021 for me is a Medtronic
DBS
battery change: what are the opportunities for improved hardware and software? How about comments on rechargeable vs non-rechargeable battery? If possible please share links to any source material.
Coming in 2021 for me is a Medtronic
DBS
battery change: what are the opportunities for improved hardware and software? How about comments on rechargeable vs non-rechargeable battery? If possible please share links to any source material.
Gobbsofjoy
in
Cure Parkinson's
4 years ago
ARE YOU NON TREMOR DOMINANT PD PATIENT? DID YOUGET DBS? IF YES, PLEASE SHARE YOUR EXPERIENCE.
please tell me if it is worth it getting
DBS
,if you are PIDG. Are you still using C/L or mucuna? What other pd medications are you on?
please tell me if it is worth it getting
DBS
,if you are PIDG. Are you still using C/L or mucuna? What other pd medications are you on?
OREOLU
in
Cure Parkinson's
4 years ago
Horizant Advice Please
I had my first dose last night and had a horrendous night, twitching and little sleep. How many days should I take it, before I give it up completely? I wouldn't say it was an allergic reaction, but just not the one I was hoping to get. The doctor told me to stop the Gabepentin cold turkey, which I did
I had my first dose last night and had a horrendous night, twitching and little sleep. How many days should I take it, before I give it up completely? I wouldn't say it was an allergic reaction, but just not the one I was hoping to get. The doctor told me to stop the Gabepentin cold turkey, which I did
Rwall
in
Restless Legs Syndrome
4 years ago
Tremor
I must demonstrate the effectiveness of C/L against tremors when and if I apply for
DBS
. This evening I took one tablet, 25/i100, it became available to my brain in 1/2 an hour. I had no tremor for one hour and still counting. I was dx eight years ago.
I must demonstrate the effectiveness of C/L against tremors when and if I apply for
DBS
. This evening I took one tablet, 25/i100, it became available to my brain in 1/2 an hour. I had no tremor for one hour and still counting. I was dx eight years ago.
Hidden
in
Cure Parkinson's
4 years ago
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