Search
Search
About
Log in
Join
Experiences with
Deep brain stimulation (DBS)
Posts
Communities
1,059 public posts
Filter results
Finally meet my MDS after my FUS surgery
He opposed initially and tried to convence me to go through
DBS
, but he was very pleased with my evolution. He advised me i should up l-dopa a bit, what i'm trying adding mucuna, and i feel a bit more stable.
He opposed initially and tried to convence me to go through
DBS
, but he was very pleased with my evolution. He advised me i should up l-dopa a bit, what i'm trying adding mucuna, and i feel a bit more stable.
Markbit
in
Cure Parkinson's
3 years ago
Hyperreflexia
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
Bellmore2089
in
Pernicious Anaemia Society
3 years ago
FUS PTT Surgery. 6 months update
Tomorrow i pretend to go back and try 10 kms… As i said before, it´s not a cure, but to me is working very well, my life quality has suffer a huge improvement, i do not feel like a
DBS
cyborg, the felling of freedom is huge also. Dr.
Tomorrow i pretend to go back and try 10 kms… As i said before, it´s not a cure, but to me is working very well, my life quality has suffer a huge improvement, i do not feel like a
DBS
cyborg, the felling of freedom is huge also. Dr.
Markbit
in
Cure Parkinson's
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Problems immediately after DBS surgery , pls help
Me omg , i am having a horrible reaction to
dbs
surgery, what in the world is going on??? symptom's i never had before are present, what in the hell is going on here?
Me omg , i am having a horrible reaction to
dbs
surgery, what in the world is going on??? symptom's i never had before are present, what in the hell is going on here?
fossygma
in
Cure Parkinson's
3 years ago
What improvements can we anticipate within 10-15 years?
Improvements in
DBS
are being trialed at UCSF. I hope for gene therapy but I think that is likely more like 20 + years out. Meds to reduce dyskinesia are being trialed according to MJFF. If dyskinesia can be mitigated that would be a big improvement.
Improvements in
DBS
are being trialed at UCSF. I hope for gene therapy but I think that is likely more like 20 + years out. Meds to reduce dyskinesia are being trialed according to MJFF. If dyskinesia can be mitigated that would be a big improvement.
Hidden
in
Cure Parkinson's
3 years ago
Pioneering neural recordings lay the groundwork for personalized Parkinson's treatments
In a study published May 3rd in Nature Biotechnology, UCSF Weill Institute for Neurosciences researchers implanted novel neurostimulation devices that monitor brain activity for many months, with and without deep brain stimulation (
DBS
) therapy.
In a study published May 3rd in Nature Biotechnology, UCSF Weill Institute for Neurosciences researchers implanted novel neurostimulation devices that monitor brain activity for many months, with and without deep brain stimulation (
DBS
) therapy.
Farooqji
in
Cure Parkinson's
3 years ago
Advances in deep brain stimulation
A friend who is an electronics engineer sent me this article about an experiment to monitor brain activity remotely using WiFi and Bluetooth, and to use the results to improve the tuning of
DBS
in 5 patients with parkinson's disease https://gizmodo.com/in-a-first-people-had-their-brain-activity-tracked-rem
A friend who is an electronics engineer sent me this article about an experiment to monitor brain activity remotely using WiFi and Bluetooth, and to use the results to improve the tuning of
DBS
in 5 patients with parkinson's disease https://gizmodo.com/in-a-first-people-had-their-brain-activity-tracked-rem
WinnieThePoo
in
Cure Parkinson's
3 years ago
Do brain implants (like DBS) change your personality?
From the New Yorker Magazine For the great majority of patients, deep-brain stimulation was beneficial and life-changing, but there were occasional reports of strange behavioral reactions, such as hypomania and hypersexuality. Then, in 2006, a French team published a study about the unexpected consequences
From the New Yorker Magazine For the great majority of patients, deep-brain stimulation was beneficial and life-changing, but there were occasional reports of strange behavioral reactions, such as hypomania and hypersexuality. Then, in 2006, a French team published a study about the unexpected consequences
jackedmonston
in
Cure Parkinson's
3 years ago
Dancing no more
Dose anyone who has Parkinson’s out there go dancing and if so what do you take to loosen up your body so you can dance , this is one thing I miss since getting Parkinson’s 7 years ago any help would be appreciated I have both sides completed with
dbs
if that matters thanks for any help
Dose anyone who has Parkinson’s out there go dancing and if so what do you take to loosen up your body so you can dance , this is one thing I miss since getting Parkinson’s 7 years ago any help would be appreciated I have both sides completed with
dbs
if that matters thanks for any help
hindle1245
in
Cure Parkinson's
3 years ago
Parkinsons, DBS, Covid19 Pfizer Vaccine
OR could it be something else with her
DBS
system?
OR could it be something else with her
DBS
system?
royal57
in
Cure Parkinson's
3 years ago
DBS
I want to know your experience with
DBS
I want to know your experience with
DBS
gigi9
in
Cure Parkinson's
3 years ago
To studied benefits of DBS
The study below says that the benefits last at least 10 years. https://www.michaeljfox.org/news/news-context-deep-brain-stimulation-offers-long-term-benefits-parkinsons
The study below says that the benefits last at least 10 years. https://www.michaeljfox.org/news/news-context-deep-brain-stimulation-offers-long-term-benefits-parkinsons
pdpatient
in
Cure Parkinson's
3 years ago
Sinemet intake blocked by Proteins
I was diagnosed in 1992 and have had
DBS
surgery. At 73, I am actually quite healthy. My question deals with protein intake due to Sinemet being blocked by animal and even quite a few plant proteins, namely amino acid foods. Are the other Parkinson drugs also sensitive to proteins?
I was diagnosed in 1992 and have had
DBS
surgery. At 73, I am actually quite healthy. My question deals with protein intake due to Sinemet being blocked by animal and even quite a few plant proteins, namely amino acid foods. Are the other Parkinson drugs also sensitive to proteins?
annmariebaird
in
Cure Parkinson's
3 years ago
PTT - Pallidothalamic Tractotomy
His
DBS
has essentially stopped all tremors and GREATLY improved rigidity. Freezing has basically made it difficult to move without fear of falling and losing balance.
His
DBS
has essentially stopped all tremors and GREATLY improved rigidity. Freezing has basically made it difficult to move without fear of falling and losing balance.
simonasays
in
Cure Parkinson's
3 years ago
PTT FUS 4 months later
house and did the move by myself (almost everything) and i'm transforming an house to make an air b&b (did the drywall all by myself), so considering everything i can say i'm pretty well for a 13 years Parkinson's guy, very glad for the choice i made, even against my neurologist, who wanted me to do
DBS
house and did the move by myself (almost everything) and i'm transforming an house to make an air b&b (did the drywall all by myself), so considering everything i can say i'm pretty well for a 13 years Parkinson's guy, very glad for the choice i made, even against my neurologist, who wanted me to do
DBS
Markbit
in
Cure Parkinson's
3 years ago
Miralax
Question I was asked this week Some people suffer from consolation from there medications . And of course all laxatives says no more than 7 days etc. I have a problem storing water in my bowel trued everything. Dr Glen advised I take Miralax which I bought in the USA . Ran out back in Australia
Question I was asked this week Some people suffer from consolation from there medications . And of course all laxatives says no more than 7 days etc. I have a problem storing water in my bowel trued everything. Dr Glen advised I take Miralax which I bought in the USA . Ran out back in Australia
Shumbah
in
Restless Legs Syndrome
3 years ago
In a panic! Has anyone heard of these?
After a few years of heavy bleeds, now under control with the pill,this past few weeks I had symptoms of stabbing pain (nearly fainted twice) in my pelvis and a very achy back I went for a private scan. NHS so busy atm and I was torturing myself. So the sonographer report states 2 possible causes. Degenerating
After a few years of heavy bleeds, now under control with the pill,this past few weeks I had symptoms of stabbing pain (nearly fainted twice) in my pelvis and a very achy back I went for a private scan. NHS so busy atm and I was torturing myself. So the sonographer report states 2 possible causes. Degenerating
Shammy716
in
Endometriosis UK
3 years ago
Lot of questions re DBS lately. Everything you could want to know.
Chapter 1 Introduction to Surgical Therapies for Parkinson’s Disease ............4 Chapter 2 An Overview of Deep Brain Stimulation (
DBS
) Therapy...............8 Chapter 3 Risks and Complications of
DBS
..................................................19 Chapter 4 Is
DBS
Right for You?
Chapter 1 Introduction to Surgical Therapies for Parkinson’s Disease ............4 Chapter 2 An Overview of Deep Brain Stimulation (
DBS
) Therapy...............8 Chapter 3 Risks and Complications of
DBS
..................................................19 Chapter 4 Is
DBS
Right for You?
MBAnderson
in
Cure Parkinson's
4 years ago
FUS vs. DBS An interesting debate on twitter
Expert's favour
DBS
over FUS
Expert's favour
DBS
over FUS
Farooqji
in
Cure Parkinson's
4 years ago
Dbs lottery?
Dbs
lottery
Dbs
lottery
Abepark2013
in
Cure Parkinson's
4 years ago
1
...
12
13
14
...
53
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
808 results
IBS Network
40 results
Restless Legs Syndrome
31 results
View top 10 communities
Sort by
Most Relevant
Newest