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Cyclophosphamide
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FCR versus BR in frontline CLL - Dr Sharman's comments on the upcoming German CLL10 ASH paper
Dr Sharman says in his latest blog "The abstract I have been most eager to review in this years ASH meeting details the results of the German CLL10 study in which FCR (fludarabine,
cyclophosphamide
, rituximab) is compared to BR (bendamustine, rituximab) in the front line management of patients with symptomatic
Dr Sharman says in his latest blog "The abstract I have been most eager to review in this years ASH meeting details the results of the German CLL10 study in which FCR (fludarabine,
cyclophosphamide
, rituximab) is compared to BR (bendamustine, rituximab) in the front line management of patients with symptomatic
AussieNeil
Administrator
in
CLL Support
10 years ago
Pneumonia vaccines -- Is there any qualified report to show GPs CLL suffers need it every 5 years?
I was diagnosed with CLL in June 2007. I had 5 doses of FCR in 2010/11 with success. Despite being told all my bloods are within the 'normal' range, 3 out of the last 4 years I have been admitted to hospital and treated with IV antibiotics for pneumonia and temps of 40.5 I originally received the pneumococcal
I was diagnosed with CLL in June 2007. I had 5 doses of FCR in 2010/11 with success. Despite being told all my bloods are within the 'normal' range, 3 out of the last 4 years I have been admitted to hospital and treated with IV antibiotics for pneumonia and temps of 40.5 I originally received the pneumococcal
Mick491
in
CLL Support
10 years ago
Holiday Insurance - my recent finding
Folks, I know this comes up frequently so thought I'd share my experience. Background: CLL and Hypertension for me, treated with FCR second half 2012. Plus second person (my wife) with no declared problems. Travelling to USA for 2.5 weeks in November. Of the companies I checked no-one would do multi-trip
Folks, I know this comes up frequently so thought I'd share my experience. Background: CLL and Hypertension for me, treated with FCR second half 2012. Plus second person (my wife) with no declared problems. Travelling to USA for 2.5 weeks in November. Of the companies I checked no-one would do multi-trip
Oleboyredw-uk
in
CLL Support
10 years ago
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I would be interested to hear if anyone else in the community has heard of any link between CLL and Osteopetrosis - "Marble Bone".
'Marble Bone' is usually a congenital problem as far as I am aware. Mine developed soon after CLL was diagnosed and midway through FCR treatment. It would be interesting to know if it is simply coincidence, or related to CLL, or even stimulated into action by the treatment. I had assumed that my increasing
'Marble Bone' is usually a congenital problem as far as I am aware. Mine developed soon after CLL was diagnosed and midway through FCR treatment. It would be interesting to know if it is simply coincidence, or related to CLL, or even stimulated into action by the treatment. I had assumed that my increasing
jiajia
in
CLL Support
10 years ago
Has anyone had experience with cyclosporin A? My husband has pure red cell aplasia along w/cll & fcr is being suspended for cyclosporin.
LAinNYC
in
CLL Support
10 years ago
FCR Round One Down - 5 to go....
Hello, A few people have kindly messaged or posted to ask how things are going with the FCR, so I thought I'd do a general post in response. Well - I'm on day 7 now, and feeling a bit beaten up due to a debilitating nausea starting on day 3, and only just beginning to wear off. I'm going to see my
Hello, A few people have kindly messaged or posted to ask how things are going with the FCR, so I thought I'd do a general post in response. Well - I'm on day 7 now, and feeling a bit beaten up due to a debilitating nausea starting on day 3, and only just beginning to wear off. I'm going to see my
jibs60
in
CLL Support
10 years ago
I thought I had primary antisphospholipid syndrome but now Lupus joined the team
The SLE affected my lungs and my kidneys, I'm know with treatment that includes
Cyclophosphamide
and Prednisilone. I thought I had primary antisphospholipid syndrome but now Lupus joined the team. I'm tired and a bit scared.
The SLE affected my lungs and my kidneys, I'm know with treatment that includes
Cyclophosphamide
and Prednisilone. I thought I had primary antisphospholipid syndrome but now Lupus joined the team. I'm tired and a bit scared.
Danimgw
in
Hughes Syndrome APS Forum
11 years ago
Returning to school
My daughter is being treated for wegeners & has so far had 2 treatments of
cyclophosphamide
. Her rheumatology nurse is talking of returning to school before October half term break all be it for a couple of short days but I am already worried about risk of infection. Is this to soon ?
My daughter is being treated for wegeners & has so far had 2 treatments of
cyclophosphamide
. Her rheumatology nurse is talking of returning to school before October half term break all be it for a couple of short days but I am already worried about risk of infection. Is this to soon ?
Bailey24
in
Vasculitis UK
11 years ago
Vitamin C
I'm currently on Prednisone and
Cyclophosphamide
.
I'm currently on Prednisone and
Cyclophosphamide
.
Hidden
in
Vasculitis UK
11 years ago
Sickness following cyclophosphamide
My daughter has just finished her 2nd dose of cyclophos & now 3 days later has been sick & feeling nauseous - is this common ? Anybody else experience this ?
My daughter has just finished her 2nd dose of cyclophos & now 3 days later has been sick & feeling nauseous - is this common ? Anybody else experience this ?
Bailey24
in
Vasculitis UK
11 years ago
Who is Getting the IGHV (formerly known as IgVH) Mutational Status Tests in UK?
Hello all, I recently got my FISH results back and had for some reason assumed that I would also get IGHV mutationial status tested along with that as part of pre-treatment diagnostics. However, my consultant pointed that was not done as routine at my (non CLL specialist centre) hospital. My CD38
Hello all, I recently got my FISH results back and had for some reason assumed that I would also get IGHV mutationial status tested along with that as part of pre-treatment diagnostics. However, my consultant pointed that was not done as routine at my (non CLL specialist centre) hospital. My CD38
jibs60
in
CLL Support
10 years ago
Autoimmune haemolytic anaemia - AIHA
Hello, i am a new member and have found the discussions very helpful. I need some help please. I was diagnosed with CLL a year ago. I was put on steroid therapy as found to have haemolysis. In July I began FCR - the plan was for a cycle of six treatments. Following my second treatment, my haemoglobin
Hello, i am a new member and have found the discussions very helpful. I need some help please. I was diagnosed with CLL a year ago. I was put on steroid therapy as found to have haemolysis. In July I began FCR - the plan was for a cycle of six treatments. Following my second treatment, my haemoglobin
School3
in
CLL Support
10 years ago
Is Long-Term CLL Remission with FCR a Cure?
autoplay=1 "MD Anderson Cancer Center in Houston pioneered the use of fludarabine +
cyclophosphamide
+ rituximab (FCR) for the treatment of chronic lymphocytic leukemia (CLL). Now researchers have been analyzing the data of patients treated as far back as 1999, and the news--for many--is good.
autoplay=1 "MD Anderson Cancer Center in Houston pioneered the use of fludarabine +
cyclophosphamide
+ rituximab (FCR) for the treatment of chronic lymphocytic leukemia (CLL). Now researchers have been analyzing the data of patients treated as far back as 1999, and the news--for many--is good.
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
I am nearly 6 months after FCR. My WBC and ALC are just below specification.
Would a FISH test (it's on my blood form) be accurate considering the low number of leukemic cells or lymphocytes?
Would a FISH test (it's on my blood form) be accurate considering the low number of leukemic cells or lymphocytes?
keepfit123
in
CLL Support
11 years ago
Another day another dollar
Then down to rheumatology for big dose of methyl pred and
cyclophosphamide
. So now it's 1:30 am and I'm still wide awake as a result, so guaranteed next two days will be real poop as the pred lets go. On the plus side I am starting to feel better.
Then down to rheumatology for big dose of methyl pred and
cyclophosphamide
. So now it's 1:30 am and I'm still wide awake as a result, so guaranteed next two days will be real poop as the pred lets go. On the plus side I am starting to feel better.
Wellsie
in
Vasculitis UK
11 years ago
Making Peace with FCR in the Squeezed Middle: Response to another very hopeful video from Steven Rosen
I've just been watching this, as posted across several CLL sites today, and by Kwenda on this site earlier today http://www.patientpower.info/video/an-expert-s-view-why-i-am-optimistic-about-the-future-of-cll-treatment/?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=CLL-2013
I've just been watching this, as posted across several CLL sites today, and by Kwenda on this site earlier today http://www.patientpower.info/video/an-expert-s-view-why-i-am-optimistic-about-the-future-of-cll-treatment/?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=CLL-2013
jibs60
in
CLL Support
11 years ago
Azathioprine, and nausea
Hi have had ten pulses of
cyclophosphamide
and have now started on azathioprine building up to 150mgs daily. Alls good except really bad feeling of nausea and a distinct lack of appetite. Trying to battle through it, but do you.
Hi have had ten pulses of
cyclophosphamide
and have now started on azathioprine building up to 150mgs daily. Alls good except really bad feeling of nausea and a distinct lack of appetite. Trying to battle through it, but do you.
cambs13
in
Vasculitis UK
11 years ago
Goodbye Steroids!!
I have managed to get off my steroids, it has taken 18 months and I still have a year of
cyclophosphamide
to go, but I haven't taken a steroid for a week! Apart from painful legs I feel good! I'd jump for joy if I could! Ha ha! Thanks for listening, just had to get that off my chest! X x x
I have managed to get off my steroids, it has taken 18 months and I still have a year of
cyclophosphamide
to go, but I haven't taken a steroid for a week! Apart from painful legs I feel good! I'd jump for joy if I could! Ha ha! Thanks for listening, just had to get that off my chest! X x x
Willow4
in
Vasculitis UK
11 years ago
Getting on my bloody nerves (literally)
Next Tuesday is my third chemo of the current
cyclophosphamide
season, so I was hoping to have seen some improvement by now. But I feel worse and I am now getting very worried about losing my mobililty...
Next Tuesday is my third chemo of the current
cyclophosphamide
season, so I was hoping to have seen some improvement by now. But I feel worse and I am now getting very worried about losing my mobililty...
Wellsie
in
Vasculitis UK
11 years ago
Any alternative Pneumonia vaccines?
Hi I was diagnosed with CLL in 2007 and had FCR in 2010/11, having only 5 of the six treatments. Prior to this I had been diagnosed with Psoriatic Arthritis in the hands which has spread to the knees and feet. The treatment for this is currently subcutaneous methotrexate (20mls) per week. Because of
Hi I was diagnosed with CLL in 2007 and had FCR in 2010/11, having only 5 of the six treatments. Prior to this I had been diagnosed with Psoriatic Arthritis in the hands which has spread to the knees and feet. The treatment for this is currently subcutaneous methotrexate (20mls) per week. Because of
Mick491
in
CLL Support
11 years ago
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