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Cyclophosphamide
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I'm short of a wee bit of sympathy, just a little.
Greetings all, 2014 September finished six rounds of FCR good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours 2016 January chest infection 4 weeks multiple antibiotics February/March sciatica five weeks multiple variety of pills April just had
Greetings all, 2014 September finished six rounds of FCR good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours 2016 January chest infection 4 weeks multiple antibiotics February/March sciatica five weeks multiple variety of pills April just had
Bribin
in
CLL Support
8 years ago
Want to Hear From a Man Who Has Lived With CLL for 38 Years? Read Doyle's Story Here!
Thought, since I was once told I had 3-5 years, 37 years ago, I would share some of my background with you. First treated by local hematology/oncologist in Denver with Leukeran and prednisone. Likely before it was needed. Later seen by Dr Freireich at MDA. His people round tabled my case and chose
Thought, since I was once told I had 3-5 years, 37 years ago, I would share some of my background with you. First treated by local hematology/oncologist in Denver with Leukeran and prednisone. Likely before it was needed. Later seen by Dr Freireich at MDA. His people round tabled my case and chose
aking90
in
CLL America Support
8 years ago
Ritixumab does it work on pan?
Cyclophosphamide
vs ritixumab? Both have sides effects. Infitility vs dementia (rare ?) My mum has dementia so prob gonna get that ! don't want anyone in control of my fertility but me! So want an end to all this suffering as this is no life!
Cyclophosphamide
vs ritixumab? Both have sides effects. Infitility vs dementia (rare ?) My mum has dementia so prob gonna get that ! don't want anyone in control of my fertility but me! So want an end to all this suffering as this is no life!
asilanna
in
Vasculitis UK
8 years ago
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Is ibrutinib enough?
Hi all, new to posting, so hope to be concise as possible. Currently on ibrutinib now for 14 months with a wonderful response other than the multitude of irritating side effects. My question is do I continue to be satisfied with where I am in treatment or should I be more aggressive in seeking a complete
Hi all, new to posting, so hope to be concise as possible. Currently on ibrutinib now for 14 months with a wonderful response other than the multitude of irritating side effects. My question is do I continue to be satisfied with where I am in treatment or should I be more aggressive in seeking a complete
kelcorn92
in
CLL Support
8 years ago
Microscopic Polyangiitis
My mum was diagnosed with Microscopic Polyangiitis in May 2014 and initially was treated with high dose prednisolone and several cycles of
cyclophosphamide
infusion and then went on to Azathioprine and low dose prednisolone and she has been on the latter for over a year now.
My mum was diagnosed with Microscopic Polyangiitis in May 2014 and initially was treated with high dose prednisolone and several cycles of
cyclophosphamide
infusion and then went on to Azathioprine and low dose prednisolone and she has been on the latter for over a year now.
SandraMic
in
Vasculitis UK
8 years ago
Transferring treatment to another country
I've been told today that I need to start FCR treatment soon for my CLL. This will be my first treatment having been diagnosed in Nov 2011. Trouble is, my wife and I are planning to move back to her home country of Denmark in April. My haematologist says that they would provide the necessary papers
I've been told today that I need to start FCR treatment soon for my CLL. This will be my first treatment having been diagnosed in Nov 2011. Trouble is, my wife and I are planning to move back to her home country of Denmark in April. My haematologist says that they would provide the necessary papers
bendintheroad1
in
CLL Support
8 years ago
Any way to shrink lymph nodes without full treatment?
Hi, I was diagnosed in late November of 2014. On w&w with appointments every 3 months until my last checkup in October 2015 where they 'signed me off' for 6 months after a FISH prognostic showed no 'bad' markers. So far so good, apart from the lymph nodes in my neck and jaw. They have been swollen pretty
Hi, I was diagnosed in late November of 2014. On w&w with appointments every 3 months until my last checkup in October 2015 where they 'signed me off' for 6 months after a FISH prognostic showed no 'bad' markers. So far so good, apart from the lymph nodes in my neck and jaw. They have been swollen pretty
jasonfox
in
CLL Support
8 years ago
Update before starting 2nd FCR treatment v
Hi. My 1st treatment FCR has been challenging to say the least. The actual treatment was what I expected after reading all your messages. The normal tiredness and just feeling unwell. I noticed a rash starting and it seen my consultant who said it was an allergy to the antibiotics I was given. So not
Hi. My 1st treatment FCR has been challenging to say the least. The actual treatment was what I expected after reading all your messages. The normal tiredness and just feeling unwell. I noticed a rash starting and it seen my consultant who said it was an allergy to the antibiotics I was given. So not
Louiej
in
CLL Support
8 years ago
Month 6 on iFCR and Going Strong
I last posted four months ago when my wife "NoMoreCLL" began the Ibrutinib plus FCR Study. We're here at the Farber today, on Day 1 of 3, Month 6 of 6 for the final set of infusions. As of mid-Study (end of Cycle 3) she had MRD Positive for both blood and marrow...then on the cusp of MRD Negativity
I last posted four months ago when my wife "NoMoreCLL" began the Ibrutinib plus FCR Study. We're here at the Farber today, on Day 1 of 3, Month 6 of 6 for the final set of infusions. As of mid-Study (end of Cycle 3) she had MRD Positive for both blood and marrow...then on the cusp of MRD Negativity
ltcbbaker
in
CLL Support
8 years ago
Out of remission?
My very first post but I have been following for awhile. Exactly when is a person considered out of remission? I was Dx with CLL in 2012. 4 rounds of FCR in 2013. In remission for almost three years. But for the last year my blood numbers have been trending up. White count now 8.2, ACL 3. If they rise
My very first post but I have been following for awhile. Exactly when is a person considered out of remission? I was Dx with CLL in 2012. 4 rounds of FCR in 2013. In remission for almost three years. But for the last year my blood numbers have been trending up. White count now 8.2, ACL 3. If they rise
Bama-Girl
in
CLL Support
8 years ago
FCR follow up is CT necessary?
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
dwolden
in
CLL Support
8 years ago
Cyclophosphamide & Behcets
Is there anyone out there with experience or knowledge of
cyclophosphamide
- I HAVE researched the drug on the internet and my doctor has informed me of side effects etc. Thanks Emma
Is there anyone out there with experience or knowledge of
cyclophosphamide
- I HAVE researched the drug on the internet and my doctor has informed me of side effects etc. Thanks Emma
Jamaicaemma
in
ABDA
8 years ago
Treatment starting 4th February
Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months starting on the 4th Febuary. My consultant has talked me through the treatment and explained why this is suitable for me. I have an appointment on the
Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months starting on the 4th Febuary. My consultant has talked me through the treatment and explained why this is suitable for me. I have an appointment on the
Louiej
in
CLL Support
8 years ago
Some clarification needed
Chemo Cycle 1st: Tab Aprepitant 125 mg for 1st 3 days Inj Painox 0.25mg Inj Dexa 12mg Inj 5FU 750 mg IV push Inj Epirubucin 150mg in 100 ml NS over 10 min Inj
Cyclophosphamide
750mg in 200 ml NS over 30 mins Tab Dexa 8mg for day 2,3,4 Tab Perinorm 10 mg TDS X 3 days Tab Pan 40 mg OD X 5 days Now
Chemo Cycle 1st: Tab Aprepitant 125 mg for 1st 3 days Inj Painox 0.25mg Inj Dexa 12mg Inj 5FU 750 mg IV push Inj Epirubucin 150mg in 100 ml NS over 10 min Inj
Cyclophosphamide
750mg in 200 ml NS over 30 mins Tab Dexa 8mg for day 2,3,4 Tab Perinorm 10 mg TDS X 3 days Tab Pan 40 mg OD X 5 days Now
PrayForMyMom
in
Breast Cancer India
8 years ago
recently diagnosed with CLL
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
ohiojim
in
CLL Support
8 years ago
FCR remission period
Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am feeling nodes in in neck. What is average remission period in FCR ? What is other treatment option ?
Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am feeling nodes in in neck. What is average remission period in FCR ? What is other treatment option ?
mag1309
in
CLL Support
8 years ago
Husband with p53 deletion
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
MichRae
in
CLL Support
8 years ago
Spouse Diagnoised with CLL
He starts FCR treatment Friday, will he be able to work the week after?
He starts FCR treatment Friday, will he be able to work the week after?
AngK
in
CLL Support
8 years ago
How bad is cyclophosphamide??
Has anyone had
cyclophosphamide
for Vasculitis with relapsing Polychondritis????
Has anyone had
cyclophosphamide
for Vasculitis with relapsing Polychondritis????
AmyS1
in
Vasculitis UK
8 years ago
Offer of enrolling on CALiBRe trial
This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced and spleen increased by 1cm. Had biopsy on left side under jaw. Went ok but then in Sept became enlarged again and spleen more enlarged too. I saw
This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced and spleen increased by 1cm. Had biopsy on left side under jaw. Went ok but then in Sept became enlarged again and spleen more enlarged too. I saw
kendo1
in
CLL Support
8 years ago
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