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Experiences with
Cyclophosphamide
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Looking for hope
She is also on
cyclophosphamide
once a month for 6 months, she has 5 to go !.. Curious to know if her foot drop will improve and will her strength come back. We have never heard of CSS untill she goes diagnosed with it, so ive been desperately searching for answers.
She is also on
cyclophosphamide
once a month for 6 months, she has 5 to go !.. Curious to know if her foot drop will improve and will her strength come back. We have never heard of CSS untill she goes diagnosed with it, so ive been desperately searching for answers.
Miriii
in
Vasculitis UK
6 years ago
Chemo cycles
I would just like to let everyone know my experience regarding completion of chemo cycles. I am on the Flair trial having FCR and have now had three cycles fourth one today and my bloods are back to normal white cell count and platelets are a perfect score , so I asked the question why then do I need
I would just like to let everyone know my experience regarding completion of chemo cycles. I am on the Flair trial having FCR and have now had three cycles fourth one today and my bloods are back to normal white cell count and platelets are a perfect score , so I asked the question why then do I need
dandelup
in
CLL Support
5 years ago
Stay positive and you can get though it
Can’t remember the level of the medications that I originally was on but it was a high dose of Prednisolone and
Cyclophosphamide
and Valproate.
Can’t remember the level of the medications that I originally was on but it was a high dose of Prednisolone and
Cyclophosphamide
and Valproate.
phil3
in
Vasculitis UK
6 years ago
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Transition from Cyclophosphamide to Mycophenolate
Hello, I am due to complete my 10th and final cycle of
cyclophosphamide
in a few weeks. My rheumatologist proposes to then start me on mycophenolate. I am wondering how this transition may affect me. Assuming it takes several weeks to build up in my system am I at risk of my GPA flaring?
Hello, I am due to complete my 10th and final cycle of
cyclophosphamide
in a few weeks. My rheumatologist proposes to then start me on mycophenolate. I am wondering how this transition may affect me. Assuming it takes several weeks to build up in my system am I at risk of my GPA flaring?
Hidden
in
Vasculitis UK
6 years ago
Late breaking CLL abstract at ASH 2018 (FCR vs IR for untreated younger patients)
https://ash.confex.com/ash/2018/webprogram/Paper120779.html CONCLUSIONS: The combination of ibrutinib and rituximab provides superior PFS and OS relative to FCR for patients with previously untreated CLL age ≤70. These findings have immediate practice changing implications and establish ibrutinib-based
https://ash.confex.com/ash/2018/webprogram/Paper120779.html CONCLUSIONS: The combination of ibrutinib and rituximab provides superior PFS and OS relative to FCR for patients with previously untreated CLL age ≤70. These findings have immediate practice changing implications and establish ibrutinib-based
avzuclav
in
CLL Support
5 years ago
First Cycle of FCR (IV)
I am writing this to document what I am going through and maybe compare with others experiences with FCR treatment for CLL. Intro: USA Male Diagnosed 2 years ago (age 50) with routine CBC labs and small swollen lymph nodes. CLL recently went from slow to rapid growth (Last 6 months). Hemo Dr. decided
I am writing this to document what I am going through and maybe compare with others experiences with FCR treatment for CLL. Intro: USA Male Diagnosed 2 years ago (age 50) with routine CBC labs and small swollen lymph nodes. CLL recently went from slow to rapid growth (Last 6 months). Hemo Dr. decided
Hidden
in
CLL Support
5 years ago
Inbrutnib side effects
Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit of history about my condition, I had FCR 5 years ago and after the 3 treatment I got very sick and this lead me to throwing out my back. To this today, I had fractures
Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit of history about my condition, I had FCR 5 years ago and after the 3 treatment I got very sick and this lead me to throwing out my back. To this today, I had fractures
Turntwo
in
CLL Support
5 years ago
Cough post FCR
Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty
Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty
Eebie1234
in
CLL Support
5 years ago
Front Line Treatment in Canada?
My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib are not approved in Canada unless you are 17p deleted. What are members in Canada using a front line treatment? Is it all just FCR even if you unmutated? Is Ibrutnib
My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib are not approved in Canada unless you are 17p deleted. What are members in Canada using a front line treatment? Is it all just FCR even if you unmutated? Is Ibrutnib
alpek
in
CLL Support
5 years ago
Confused about treatment option
Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolytic anemia now ok after prednisone,but treatment on horizon.I am unmuteted no 17p only good one 13qI live I Ontario and this qualifies me for treatment with Imbruvica I am 67 years in good health otherwise.My onc feels that
Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolytic anemia now ok after prednisone,but treatment on horizon.I am unmuteted no 17p only good one 13qI live I Ontario and this qualifies me for treatment with Imbruvica I am 67 years in good health otherwise.My onc feels that
Kotek
in
CLL Support
5 years ago
U-MRD6 is the new MRD-
U-MRD6 = Undetectable-Minimal Residual Disease (U-MRD6) (10-6 sensitivity) Discussion The majority of pts with BM U-MRD4 after first-line FCR were MRD6+ and these patients had shorter PFS; MRD analysis with a more sensitive assay may therefore more accurately assign prognosis. Not accounting for
U-MRD6 = Undetectable-Minimal Residual Disease (U-MRD6) (10-6 sensitivity) Discussion The majority of pts with BM U-MRD4 after first-line FCR were MRD6+ and these patients had shorter PFS; MRD analysis with a more sensitive assay may therefore more accurately assign prognosis. Not accounting for
avzuclav
in
CLL Support
5 years ago
Fcr update
I thought I would let you all know how my fcr is going hopefully to give those that are soon to be starting treatment some encouragement . I am currently at my treatment centre just about to be plugged in to start my 3 rd course, I will be honest the first course wasn’t great but I think that was due
I thought I would let you all know how my fcr is going hopefully to give those that are soon to be starting treatment some encouragement . I am currently at my treatment centre just about to be plugged in to start my 3 rd course, I will be honest the first course wasn’t great but I think that was due
dandelup
in
CLL Support
5 years ago
FLAIR Trial 2018 update
This trial is comparing ibrutinib alongside rituximab with fludarabine,
cyclophosphamide
, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who haven’t yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research.
This trial is comparing ibrutinib alongside rituximab with fludarabine,
cyclophosphamide
, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who haven’t yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research.
Myrddin
in
CLL Support
6 years ago
Newly diagnosed with systemic scleroderma
I have poor lung function tests and will be starting a round of
cyclophosphamide
soon to slow down lung disease. I am nervous as I don’t have children yet and I’m scared about the future regarding fertility. Has anyone got any experience with this?
I have poor lung function tests and will be starting a round of
cyclophosphamide
soon to slow down lung disease. I am nervous as I don’t have children yet and I’m scared about the future regarding fertility. Has anyone got any experience with this?
Maryam_a
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Neulasta side effects
I am going through FCR and I had a rough time after the 4th round. I am thinking that it was the Neulasta shot that did the most damage. Earlier in my treatment, my oncologist mentioned a possibility of reducing the dosage of pegfilgrastim. I was wondering if anybody else has had similar issues or
I am going through FCR and I had a rough time after the 4th round. I am thinking that it was the Neulasta shot that did the most damage. Earlier in my treatment, my oncologist mentioned a possibility of reducing the dosage of pegfilgrastim. I was wondering if anybody else has had similar issues or
gfreiman
in
CLL Support
5 years ago
Update: No FCR, we will start Ibrutinib
Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and enlarged spleen, 68 years old. The doctor suggested FCR will be most efficient but due to the age we will try Ibrutinib (which is a relief since I
Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and enlarged spleen, 68 years old. The doctor suggested FCR will be most efficient but due to the age we will try Ibrutinib (which is a relief since I
paula_dae
in
CLL Support
6 years ago
FCR, WHAT IS THE AGE LIMIT FOR FCR OR IS IT MORE ABOUT FITNESS
I am 71 years of age and was diagnosed with MGUS 22 years ago, this progressed to CLL in July this year. I have had a FISH test and have been recommended for the FLAIR trail. FCR is one Arm of the trial so am I right to assume that my age is not an issue? I am pretty fit and do not have any co-morbidity
I am 71 years of age and was diagnosed with MGUS 22 years ago, this progressed to CLL in July this year. I have had a FISH test and have been recommended for the FLAIR trail. FCR is one Arm of the trial so am I right to assume that my age is not an issue? I am pretty fit and do not have any co-morbidity
BasTel
in
CLL Support
6 years ago
Interstitial lung disease and polymyositis
then in January this year after collapsing in the shower I was told I had sepsis influenza b and pneumonia and after having multiple organ failure spent 4 weeks in hospital 2 of those in intensive care I have only just been able to restart chemo after finding out
cyclophosphamide
has been unsuccessful
then in January this year after collapsing in the shower I was told I had sepsis influenza b and pneumonia and after having multiple organ failure spent 4 weeks in hospital 2 of those in intensive care I have only just been able to restart chemo after finding out
cyclophosphamide
has been unsuccessful
Twinsmum10
in
Lung Conditions Community Forum
6 years ago
50 yr old son had 6 cycles of FCR in 2017. In complete remission over a year. Recent wbc and platelets way down. What is happening?
Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?
Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?
jumper23
in
CLL Support
6 years ago
Aortitis, now might have to start cyclophosphamide
Has anyone here had
cyclophosphamide
and seen good results? Also, i would like to ask if anyone has had side effects and what happens as regards further treatment, if the
cyclophosphamide
works.
Has anyone here had
cyclophosphamide
and seen good results? Also, i would like to ask if anyone has had side effects and what happens as regards further treatment, if the
cyclophosphamide
works.
Suzycat
in
Vasculitis UK
6 years ago
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