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Experiences with
Cyclophosphamide
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Which vaccine is better for CLL patients, Pfizer or Astra Zeneca ?
After 5 years of slow raising , at 134000 WBC I had FCR chemo, only two cycles, as I reacted with high fever to Rituximab and blood count droped down to 8000 immediately, so twice the second day of Cyclofosfamid was cancelled and unfortunately I did suffer from Clostridium Difficile after each treatment
After 5 years of slow raising , at 134000 WBC I had FCR chemo, only two cycles, as I reacted with high fever to Rituximab and blood count droped down to 8000 immediately, so twice the second day of Cyclofosfamid was cancelled and unfortunately I did suffer from Clostridium Difficile after each treatment
Ankakoza
in
CLL Support
3 years ago
Opinions about chemotherapy. Running out of options
(A good oncologist): "We can also consider changing Carboplatin to
Cyclophosphamide
or Mitoxantrone.
(A good oncologist): "We can also consider changing Carboplatin to
Cyclophosphamide
or Mitoxantrone.
abmicro
in
Advanced Prostate Cancer
3 years ago
Common Cold with Low Immune System
I have had
Cyclophosphamide
and currently on Azathioprine and for the first time in 11 months caught a cold. What happens? is it different? More severe? Just interested.
I have had
Cyclophosphamide
and currently on Azathioprine and for the first time in 11 months caught a cold. What happens? is it different? More severe? Just interested.
Investigator1
in
Vasculitis UK
4 years ago
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Chest pain in CLL
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Daisy1993
in
CLL Support
3 years ago
not sure
I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
kel555
in
CLL Support
3 years ago
Astra Zeneca - any reactions?
Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired and headachy today. Hopefully it just means it’s just doing it’s job. I am so much more sensitive to all kinds of things since FCR two and a
Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired and headachy today. Hopefully it just means it’s just doing it’s job. I am so much more sensitive to all kinds of things since FCR two and a
Mandy56
in
CLL Support
3 years ago
Strange case of CLL remission
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
mkawass
in
CLL Support
3 years ago
Rituximab
Hi has anyone been having Rituximab alongside
Cyclophosphamide
pulse infusions? This maybe my next course of action as I have just had my 5th
cyclophosphamide
infusion & there’s some improvement in my skin but not with my ILD. Many thanks.
Hi has anyone been having Rituximab alongside
Cyclophosphamide
pulse infusions? This maybe my next course of action as I have just had my 5th
cyclophosphamide
infusion & there’s some improvement in my skin but not with my ILD. Many thanks.
cheryldn
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
How things have changed
Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated at the King Edward VII Hospital in London under Sir Ronald Bodley-Scott with cortisone and blood transfusions (Cortisone and Soda as he described
Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated at the King Edward VII Hospital in London under Sir Ronald Bodley-Scott with cortisone and blood transfusions (Cortisone and Soda as he described
SERVrider
in
CLL Support
3 years ago
Side effects of RCD Chemotherapy
I have undergone 2 cycles of rituximab,
cyclophosphamide
and dexamethasone (RCD) chemotherapy. This alternative therapy was decided by treating Hematologist after discontinuing Ibrutinib due to intolerance.
I have undergone 2 cycles of rituximab,
cyclophosphamide
and dexamethasone (RCD) chemotherapy. This alternative therapy was decided by treating Hematologist after discontinuing Ibrutinib due to intolerance.
CLL4
in
CLL Support
4 years ago
WBC over 200.000
He told me he meant Chlorambucil, not
Cyclophosphamide
. He wants to start Chlorambucil + Rituximab. Sorry for mistake. I confused :(
He told me he meant Chlorambucil, not
Cyclophosphamide
. He wants to start Chlorambucil + Rituximab. Sorry for mistake. I confused :(
cllmeonmycellphone
in
CLL Support
4 years ago
Does Azathioprine ever fail?
I had got myself into a good position with my ANCA marker after
Cyclophosphamide
and Prednisolone and after monthly blood tests it’s started to creep up from 40 to 51 to 62. Not a massive increase and no returning symptoms.
I had got myself into a good position with my ANCA marker after
Cyclophosphamide
and Prednisolone and after monthly blood tests it’s started to creep up from 40 to 51 to 62. Not a massive increase and no returning symptoms.
Investigator1
in
Vasculitis UK
4 years ago
unmutated
hi all is there any members who has had fcr who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5 yrs plus and also which treatment would be best after fcr ,,thank you ,,kel
hi all is there any members who has had fcr who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5 yrs plus and also which treatment would be best after fcr ,,thank you ,,kel
kel555
in
CLL Support
3 years ago
covid vaccine
hi all its been a while since last post iam on my 5 fcr this Tuesday and i can tell you this as been the hardest task i have ever done the constant worry of covid 19 as my blood counts drop after every cycle, round 3 put me in hospital with sepsis which i recovered i had a bad cough for 2 weeks before
hi all its been a while since last post iam on my 5 fcr this Tuesday and i can tell you this as been the hardest task i have ever done the constant worry of covid 19 as my blood counts drop after every cycle, round 3 put me in hospital with sepsis which i recovered i had a bad cough for 2 weeks before
kel555
in
CLL Support
3 years ago
Introduction
Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced chemotheraphy with FCR on 16th November. She will be undergoing 6 cycles of chemo over 6 months. I joined this community as it seems to have excellent resources and a very supportive community. I am still on the journey to
Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced chemotheraphy with FCR on 16th November. She will be undergoing 6 cycles of chemo over 6 months. I joined this community as it seems to have excellent resources and a very supportive community. I am still on the journey to
Tehtarek
in
CLL Support
3 years ago
what to do when treatments don't work and I keep developing new autoimmune conditions
After two years with the symptoms not getting better I asked if she could just go to a very aggressive route with chemotherapy like
cyclophosphamide
because I was tired of living in pain and in bed. After she refused I looked for a new rheumatologist and neurologist.
After two years with the symptoms not getting better I asked if she could just go to a very aggressive route with chemotherapy like
cyclophosphamide
because I was tired of living in pain and in bed. After she refused I looked for a new rheumatologist and neurologist.
TiredNerd
in
NRAS
3 years ago
NHS and CLL coverage: seeking advice
For those of you living in the UK we are moving to Scotland and I am seeking advice on NHS. Is this generally sufficient coverage for good care of CLL patients? Does one have access to quality services or is private insurance something we should really stretch to consider? My husband had FCR for CLL
For those of you living in the UK we are moving to Scotland and I am seeking advice on NHS. Is this generally sufficient coverage for good care of CLL patients? Does one have access to quality services or is private insurance something we should really stretch to consider? My husband had FCR for CLL
gingerlovesal
in
CLL Support
3 years ago
Treatment of Reynauds
I have had Reynauds for about 8 years. Despite wearing insulated gloves, having hand warmers etc I still get cold painful fingers. I've been offered medication but they don't work or the side effects are worse. The only relief I had 18 months ago was when I was receiving FCR for my CLL and miraculously
I have had Reynauds for about 8 years. Despite wearing insulated gloves, having hand warmers etc I still get cold painful fingers. I've been offered medication but they don't work or the side effects are worse. The only relief I had 18 months ago was when I was receiving FCR for my CLL and miraculously
Floxxy
in
CLL Support
3 years ago
Four Years!
I’ve been on
Cyclophosphamide
for three months - it hasn’t done anything and my tumours have all grown a bit. I’ve been having quite a few bowel issues - there seems to be an ever present threat of a blockage.
I’ve been on
Cyclophosphamide
for three months - it hasn’t done anything and my tumours have all grown a bit. I’ve been having quite a few bowel issues - there seems to be an ever present threat of a blockage.
Alifit
in
My Ovacome
4 years ago
FCR oral versus iv
Hi I have read that
cyclophosphamide
and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks
Hi I have read that
cyclophosphamide
and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks
CarpeDiem03
in
CLL Support
4 years ago
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