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Cyclophosphamide
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Viral infection to Covid and Flu booster gap.
Diag 2015. FCR 2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours. What followed was
Diag 2015. FCR 2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours. What followed was
JigFettler
Volunteer
in
CLL Support
1 year ago
cyclophosphamide
She is trying me on
Cyclophosphamide
, please let me know of any successes with this drug. Thank you. Xxx
She is trying me on
Cyclophosphamide
, please let me know of any successes with this drug. Thank you. Xxx
Clipper15
in
My Ovacome
2 years ago
moving on to next treatment-considering Nurex
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
Osprey69
in
CLL Support
1 year ago
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mild struggles
hi. It’s been seven years since I was on this site. Diagnosed 2007. FCR. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54.
hi. It’s been seven years since I was on this site. Diagnosed 2007. FCR. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54.
Corin850
in
CLL Support
1 year ago
Venetoclax for dummies
An example of an immunotherapy drug is rituximab, the "R" drug in FCR (the F drug in the combo is fludarabine, the C drug is
cyclophosphamide
). Rituximab binds to a protein on the surface of cancerous lymphocytes.
An example of an immunotherapy drug is rituximab, the "R" drug in FCR (the F drug in the combo is fludarabine, the C drug is
cyclophosphamide
). Rituximab binds to a protein on the surface of cancerous lymphocytes.
cajunjeff
in
CLL Support
1 year ago
Systemic sclerosis and mycofit
I was on pulse therapy with
cyclophosphamide
infusion but the cycle of
cyclophosphamide
has been already finished so I have been prescribed mycofit by my doctor but this medicine cause some intestinal bowl problem and also some potential side effects like vomiting, nausea also increase the risk of skin
I was on pulse therapy with
cyclophosphamide
infusion but the cycle of
cyclophosphamide
has been already finished so I have been prescribed mycofit by my doctor but this medicine cause some intestinal bowl problem and also some potential side effects like vomiting, nausea also increase the risk of skin
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
SUDDEN Rise in ESR - Pt. 3
As methotrexate, now discontinued, caused frequent vomiting and diarrhea, extreme fatigue, and almost total hair loss,
cyclophosphamide
is not being considered due its higher occurrence of side effects. Long term high dose steroids, being continued, have produced Cushing's Syndrome.
As methotrexate, now discontinued, caused frequent vomiting and diarrhea, extreme fatigue, and almost total hair loss,
cyclophosphamide
is not being considered due its higher occurrence of side effects. Long term high dose steroids, being continued, have produced Cushing's Syndrome.
irishponies
in
PMRGCAuk
2 years ago
SUDDEN Rise in ESR Pt. 3
As methotrexate, now discontinued, caused frequent vomiting and diarrhea, extreme fatigue, and almost total hair loss,
cyclophosphamide
is not being considered due its higher occurrence of side effects. Long term high dose steroids, being continued, have produced Cushing's Syndrome.
As methotrexate, now discontinued, caused frequent vomiting and diarrhea, extreme fatigue, and almost total hair loss,
cyclophosphamide
is not being considered due its higher occurrence of side effects. Long term high dose steroids, being continued, have produced Cushing's Syndrome.
irishponies
in
Vasculitis UK
2 years ago
Living with Cll
But because I heard that the treatment was sometimes worse than watch and wait I procrastinated, when I started treatment I had WBC 270 , hemaglobin 10 and platelets 84 , I started to look weak and gray and had to drag my left leg because of pain of swollen lymph nodes , at first I had two cycles of
cyclophosphamide
But because I heard that the treatment was sometimes worse than watch and wait I procrastinated, when I started treatment I had WBC 270 , hemaglobin 10 and platelets 84 , I started to look weak and gray and had to drag my left leg because of pain of swollen lymph nodes , at first I had two cycles of
cyclophosphamide
starlifter
in
CLL Support
2 years ago
What’s next?
I was diagnosed, in December of 2018, with CLL and placed on W&W. Less than a year later I started FCR. After completing FCR my blood counts rose steadily until I reached stage 4 which led to two years of Venclexta (400mg daily) treatments. Throughout all treatments I’ve had monthly bloodwork, yearly
I was diagnosed, in December of 2018, with CLL and placed on W&W. Less than a year later I started FCR. After completing FCR my blood counts rose steadily until I reached stage 4 which led to two years of Venclexta (400mg daily) treatments. Throughout all treatments I’ve had monthly bloodwork, yearly
Pokerguy
in
CLL Support
1 year ago
acalabrutinib and tegretol
Hi everyone My 70-year-old father had FCR five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen Acalabrutinib. He has been advised he had to go off his medication for epilepsy, which is Tegretol. We’re obviously not thrilled about it but
Hi everyone My 70-year-old father had FCR five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen Acalabrutinib. He has been advised he had to go off his medication for epilepsy, which is Tegretol. We’re obviously not thrilled about it but
MelaniePet
in
CLL Support
1 year ago
Update treatment
it’s been about, half a year sinc[i]e i thought i had some options for the treatment i needed[/i] [i]I posted this dilemma here, and got a lot of responce to it. My thanks for this.[/i] [i]But unfortunately, there were no options for me, and the FCR was scheduled.[/i] [i]The first time, about two
it’s been about, half a year sinc[i]e i thought i had some options for the treatment i needed[/i] [i]I posted this dilemma here, and got a lot of responce to it. My thanks for this.[/i] [i]But unfortunately, there were no options for me, and the FCR was scheduled.[/i] [i]The first time, about two
Renefaassen
in
CLL Support
1 year ago
Windermere
I had FCR in 2012 was in remission until 2018. Then started ibrutinib and still on it, how long is it likely to keep me in remission.
I had FCR in 2012 was in remission until 2018. Then started ibrutinib and still on it, how long is it likely to keep me in remission.
Windemere
in
CLL Support
1 year ago
This one is a bit "left field" but here goes...
"Can any one hear me", says the Robin? OK! Infatuation with Robins aside... After my spectacular successful knee replacement I decide to buy myself a new mountain bike. BUT... bear with me... I have been 5yrs remission since FCR, Lymphocyte count 0.7 so on prophylactic Aciclovir (against Herpes infection
"Can any one hear me", says the Robin? OK! Infatuation with Robins aside... After my spectacular successful knee replacement I decide to buy myself a new mountain bike. BUT... bear with me... I have been 5yrs remission since FCR, Lymphocyte count 0.7 so on prophylactic Aciclovir (against Herpes infection
JigFettler
Volunteer
in
CLL Support
1 year ago
Being Positive and Supportive
As I read all the kind responses to my post about finally feeling better I realize the best way to support this group and the best medicine for me and my family is to be positive, hopeful and upbeat. During the FCR treatment in 2018 I was just that! Then after 11 skin cancer surgeries, Covid, and many
As I read all the kind responses to my post about finally feeling better I realize the best way to support this group and the best medicine for me and my family is to be positive, hopeful and upbeat. During the FCR treatment in 2018 I was just that! Then after 11 skin cancer surgeries, Covid, and many
skipro
in
CLL Support
1 year ago
MRD blood test after Venetoclax treatment
I finished Venetoclax treatment last year in the uk. My haematologist is awaiting the result of a MRD blood test and if negative then he tells me I will be discharged. Bit of a surprise to me as I was diagnosed in 2004 and have been routinely monitored since then. I had FCR treatment in 2014. My blood
I finished Venetoclax treatment last year in the uk. My haematologist is awaiting the result of a MRD blood test and if negative then he tells me I will be discharged. Bit of a surprise to me as I was diagnosed in 2004 and have been routinely monitored since then. I had FCR treatment in 2014. My blood
yorkie19
in
CLL Support
1 year ago
STEP ONE OF MY THIRD CLINICAL TRIAL huCAR-T19 IL-18
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
steve5441
in
CLL Support
1 year ago
PICC line or not
hello every one I read every ones post everyday so hoping you can give me some advice . I had FCR in 2016/2017 which I struggled with the last 3 months of treatment, I started on acalabrutanib but after 1 week had to stop due to severe bone pain , so severe I couldn’t get out of bed or a chair , was
hello every one I read every ones post everyday so hoping you can give me some advice . I had FCR in 2016/2017 which I struggled with the last 3 months of treatment, I started on acalabrutanib but after 1 week had to stop due to severe bone pain , so severe I couldn’t get out of bed or a chair , was
mush56
in
CLL Support
1 year ago
Life after Rituximab? What is the next chapter?
Diagnose with GPA in December 2019 and after the usual cocktail of Steroids
Cyclophosphamide
and an unsuccessful spell with Azathioprine I now approach my next infusion of Rituximab in a couple of weeks. My Consultant is saying because my ANCA marker is so low this should be my last one.
Diagnose with GPA in December 2019 and after the usual cocktail of Steroids
Cyclophosphamide
and an unsuccessful spell with Azathioprine I now approach my next infusion of Rituximab in a couple of weeks. My Consultant is saying because my ANCA marker is so low this should be my last one.
Investigator1
in
Vasculitis UK
2 years ago
alternative therapies
Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with FCR which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months. In September 22 I started
Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with FCR which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months. In September 22 I started
MareeM
in
CLL Support
1 year ago
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