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Cutaneous T cell lymphoma (CTCL)
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MCL
My father is being treated with ibrutinib for mantle cell lymphoma. His platelets are very low and don’t pick up after transfusion. They have stopped his 4 tablets/day of ibrutinib as he now has an infection. Has anyone else experienced this?
My father is being treated with ibrutinib for mantle cell lymphoma. His platelets are very low and don’t pick up after transfusion. They have stopped his 4 tablets/day of ibrutinib as he now has an infection. Has anyone else experienced this?
Ibrut
in
Lymphoma Canada
6 years ago
Lukiemia and High white blood count
Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count really high but abs neutripils are very low. Red blood a bit low. He has 40 Percent blast and they have been treating him. So far he's not showing
Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count really high but abs neutripils are very low. Red blood a bit low. He has 40 Percent blast and they have been treating him. So far he's not showing
ConcernedSpouse2012
in
CLL Support
6 years ago
Any help in Florida?
Hey y'all, seems like being here feels like I'm doomed😢 I really want A stem cell transplant. How would I get it? How do I sign up? I Really wish I lived in the U.K . I've read alot of stories here. Seens like they help you more. Someone plz help me.
Hey y'all, seems like being here feels like I'm doomed😢 I really want A stem cell transplant. How would I get it? How do I sign up? I Really wish I lived in the U.K . I've read alot of stories here. Seens like they help you more. Someone plz help me.
Susanissufferingtoo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
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Multivitamins
I have spent a lot of time searching for the best iron free multivitamin. I know someone here posted that the vit A should be as beta carotene. Suggestions?
I have spent a lot of time searching for the best iron free multivitamin. I know someone here posted that the vit A should be as beta carotene. Suggestions?
gwillistexas
in
PBC Foundation
6 years ago
GCA and black outs?
Hi I'm new to this forum. Dx with pmr April this year. CRP 106. 20mg prednisolone. Worked well so slowly down to 7mg by beginning of November when all symptoms came back within days. then fell over but thought nothing of it. Following week started to feel really unwell. Husband found me unconscious
Hi I'm new to this forum. Dx with pmr April this year. CRP 106. 20mg prednisolone. Worked well so slowly down to 7mg by beginning of November when all symptoms came back within days. then fell over but thought nothing of it. Following week started to feel really unwell. Husband found me unconscious
Devonspinner
in
PMRGCAuk
6 years ago
What a year - and some good news to end it
Hi all, Thought I would share some positive news from me after a pretty crazy year - if nothing else to get my head around it. Back in January I was diagnosed with ET, then MF (despite having no fibrosis but I didn’t realise this made no sense at the time) and then imminent AML (despite having no
Hi all, Thought I would share some positive news from me after a pretty crazy year - if nothing else to get my head around it. Back in January I was diagnosed with ET, then MF (despite having no fibrosis but I didn’t realise this made no sense at the time) and then imminent AML (despite having no
Timjonze
in
MPN Voice
6 years ago
Is hair loss a given?
Hi all - I know that hair loss/thinning is listed as a possible side effect of taking hydroxyurea. I immediately latched on to the word “possible”, in the hope that it also means loads of us on the drug will not lose hair. My haemo has many young patients who have to take hydroxy forever for sickle cell
Hi all - I know that hair loss/thinning is listed as a possible side effect of taking hydroxyurea. I immediately latched on to the word “possible”, in the hope that it also means loads of us on the drug will not lose hair. My haemo has many young patients who have to take hydroxy forever for sickle cell
WileyFrench
in
MPN Voice
6 years ago
SickleCellNewsWeek
I would gladly marry a man with sickle cell anaemia! – former Most Beautiful Girl in Nigeria (MBGN) http://bit.ly/2OColcx Swedish biotech company, Modus Therapeutics announces FDA Acceptance of Sevuparin for treatment of SCD http://bit.ly/2RLm8xl I long diagnosed myself with sickle cell anaemia,
I would gladly marry a man with sickle cell anaemia! – former Most Beautiful Girl in Nigeria (MBGN) http://bit.ly/2OColcx Swedish biotech company, Modus Therapeutics announces FDA Acceptance of Sevuparin for treatment of SCD http://bit.ly/2RLm8xl I long diagnosed myself with sickle cell anaemia,
sicklecellnews
in
Sickle Cell Society
6 years ago
It's back.
First, the good news: The results of my 1 year post surgery colonoscopy show no colon cancer. Unfortunately, the results of my 1 year post surgery contrasting CT scan show that the ovarian cancer has recurred. I’m somewhere between relieved and sad because now the waiting is over, but I can't find
First, the good news: The results of my 1 year post surgery colonoscopy show no colon cancer. Unfortunately, the results of my 1 year post surgery contrasting CT scan show that the ovarian cancer has recurred. I’m somewhere between relieved and sad because now the waiting is over, but I can't find
CynD
in
My Ovacome
6 years ago
Sickle Cell NewsWeek
SickleCellNewsWeek He did not pay a cent for the bone marrow transplant that cured him of SCD. Anyone can access the opportunity! http://bit.ly/2R1wmda Lawyer, actress, song-writer, singer, broadcaster Tosin Abisona Bucknor (1981-2018) on passion for SCD awareness – ‘I believed I wouldn’t live to 21
SickleCellNewsWeek He did not pay a cent for the bone marrow transplant that cured him of SCD. Anyone can access the opportunity! http://bit.ly/2R1wmda Lawyer, actress, song-writer, singer, broadcaster Tosin Abisona Bucknor (1981-2018) on passion for SCD awareness – ‘I believed I wouldn’t live to 21
sicklecellnews
in
Sickle Cell Society
6 years ago
Great article about Nobel winner Jim Allison also gives some theory
https://www.wired.com/story/meet-jim-allison-the-texan-who-just-won-a-nobel-cancer-breakthrough/ The article has some surprisingly good explanations of parts of the immune system. [i]" (Lymph nodes are like Rick’s in Casablanca. Good guys, bad guys, reporters and soldiers, macrophages, dendrites, T and
https://www.wired.com/story/meet-jim-allison-the-texan-who-just-won-a-nobel-cancer-breakthrough/ The article has some surprisingly good explanations of parts of the immune system. [i]" (Lymph nodes are like Rick’s in Casablanca. Good guys, bad guys, reporters and soldiers, macrophages, dendrites, T and
SeymourB
in
CLL Support
6 years ago
What is Lymphoma ?
This is a good explanation both for newly diagnosed patients and those of us who need a refresher to help our understanding of the illness . The more we understand, the better equipped we are to deal with treatment decisions and the less fearful we will be of the medical terminology when talking with
This is a good explanation both for newly diagnosed patients and those of us who need a refresher to help our understanding of the illness . The more we understand, the better equipped we are to deal with treatment decisions and the less fearful we will be of the medical terminology when talking with
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
6 years ago
Sickle Cell News Week
SickleCellNewsWeek Cecilia Tiwaah Abrefa recalls waking up one day to find she could not lift her limbs or sit unaided – it took six years to get back to (a semblance of) normal http://bit.ly/2KasXpR High altitudes are proven crises-triggers. Yet Kevin is adamant he wants to be a FIGHTER PILOT. He
SickleCellNewsWeek Cecilia Tiwaah Abrefa recalls waking up one day to find she could not lift her limbs or sit unaided – it took six years to get back to (a semblance of) normal http://bit.ly/2KasXpR High altitudes are proven crises-triggers. Yet Kevin is adamant he wants to be a FIGHTER PILOT. He
sicklecellnews
in
Sickle Cell Society
6 years ago
LOW GRADE HAS TRANSFORMED TO HIGH GRADE, RChop next.what to expect ?
Hi all, I've been dealing with low grade B cell lymphoma since 2016, treatment was Gazyva. It came back in about 6 months and I've been on w&w since my blood numbers have been okay. Symptoms started ramping up over the summer and I was going to do treatments but my blood numbers were pretty much in the
Hi all, I've been dealing with low grade B cell lymphoma since 2016, treatment was Gazyva. It came back in about 6 months and I've been on w&w since my blood numbers have been okay. Symptoms started ramping up over the summer and I was going to do treatments but my blood numbers were pretty much in the
skinkade
in
Non Hodgkin's Lymphoma Friends
6 years ago
SICKLE CELL NEWSWEEK
SICKLECELLNEWSWEEK MAYDAY: Nigerian teacher/author seeks support to undertake last ditch bone marrow transplant in India http://bit.ly/2RxxyEN Renowned Bone Marrow Transplant Rahul Bhargava launches series to answer all questions on BMT http://bit.ly/2DkMhQn Mother of twins, Mariam Kay recalls
SICKLECELLNEWSWEEK MAYDAY: Nigerian teacher/author seeks support to undertake last ditch bone marrow transplant in India http://bit.ly/2RxxyEN Renowned Bone Marrow Transplant Rahul Bhargava launches series to answer all questions on BMT http://bit.ly/2DkMhQn Mother of twins, Mariam Kay recalls
sicklecellnews
in
Sickle Cell Society
6 years ago
Grateful for any advice on taking a Vit B Complex plus a good mumtivitamin
I’m currently taking Thorne Basic B Complex but also after advice on here looking for a decent A-Z multivitamin. If anyone versed in this has a moment to take a look at the multivitamin and advise if ok to take with the B Comolex. Thank you lovely people in advance 😊 Ok it won’t let me load the pics
I’m currently taking Thorne Basic B Complex but also after advice on here looking for a decent A-Z multivitamin. If anyone versed in this has a moment to take a look at the multivitamin and advise if ok to take with the B Comolex. Thank you lovely people in advance 😊 Ok it won’t let me load the pics
Mandymoos8
in
Pernicious Anaemia Society
6 years ago
After NHL and BMT
Hi, I’m a caregiver of my husband with NHL ALCL Alk+ and Leptomenges. Took 9 weeks, multiple hospitals and doctors to diagnose summer 2017. He had 5 rounds of CHOEP and then experienced horrible headaches and a seizure which resulted in leptomeneges diagnosis and new course of chemo. After scans with
Hi, I’m a caregiver of my husband with NHL ALCL Alk+ and Leptomenges. Took 9 weeks, multiple hospitals and doctors to diagnose summer 2017. He had 5 rounds of CHOEP and then experienced horrible headaches and a seizure which resulted in leptomeneges diagnosis and new course of chemo. After scans with
Onedayatatime2
in
Non Hodgkin's Lymphoma Friends
6 years ago
Need info on raising red cell count
Hello I have been here on and off for about a year. I know you are all going through your individual health issues and I hope and pray you find the answers you are looking for. I joined because my brother was diagnosed with CLl q11 a little over three years ago. He is 55 years old and had been in great
Hello I have been here on and off for about a year. I know you are all going through your individual health issues and I hope and pray you find the answers you are looking for. I joined because my brother was diagnosed with CLl q11 a little over three years ago. He is 55 years old and had been in great
Lorray
in
CLL Support
6 years ago
SICKLE CELL NEWS WEEK
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
sicklecellnews
in
Sickle Cell Society
6 years ago
13 Q DELETION, JUST GOT THE FISH REPORT DONT KNOW WHAT IT MEANS, CLL
hello, i just got my mothers reports of FISh it says 13 q deletion, i dont understand what that means, it would be very helpful if i can understand in layman's language and what it means, i am just very scared of the report, i am not going to the doctor as the report of karyotyping is still pending.
hello, i just got my mothers reports of FISh it says 13 q deletion, i dont understand what that means, it would be very helpful if i can understand in layman's language and what it means, i am just very scared of the report, i am not going to the doctor as the report of karyotyping is still pending.
ABHINAVGARG
in
CLL Support
6 years ago
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