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Syringe
A recently change of my biologic arrived requiring syringe application where previous biologic was via pen applicator which was easy and fine to self administer.Administering the first dose of new biologic was awkward and unpleasant to do with its longer needle and pushing the plunger with a swollen
A recently change of my biologic arrived requiring syringe application where previous biologic was via pen applicator which was easy and fine to self administer.Administering the first dose of new biologic was awkward and unpleasant to do with its longer needle and pushing the plunger with a swollen
Wantplaytennis
in
NRAS
1 year ago
Acalabrutinib and covid vaccines
I have been on acalabrutinib for 2 months and doing very well. It has been about 6 months since I have had my last covid vaccine , and I am due for another. My question is will the covid vaccines work while taking acalabrutinib?
I have been on acalabrutinib for 2 months and doing very well. It has been about 6 months since I have had my last covid vaccine , and I am due for another. My question is will the covid vaccines work while taking acalabrutinib?
Rrriver
in
CLL Support
1 year ago
Paxlovid
After keeping the dreaded Covid at bay for almost three years I finally tested positive last week. I had assumed this would happen at some point but being immunocompromised it goes without saying that it’s a worrying time. Fortunately I was able to access antivirals very easily and started taking them
After keeping the dreaded Covid at bay for almost three years I finally tested positive last week. I had assumed this would happen at some point but being immunocompromised it goes without saying that it’s a worrying time. Fortunately I was able to access antivirals very easily and started taking them
Hightower62
in
NRAS
1 year ago
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Severe Cold, to Bronchitis; PMR has not returned
Had gotten a cold that became tenacious, as after 1 week of a head cold it progressed to my chest. A week later I had Bronchitis for the first time in my life and starting with week 3 my GP put me on a Prednisone routine of 40 mg, 30, 20, 10 over a course of 10 days. As if that wasn’t enough, she
Had gotten a cold that became tenacious, as after 1 week of a head cold it progressed to my chest. A week later I had Bronchitis for the first time in my life and starting with week 3 my GP put me on a Prednisone routine of 40 mg, 30, 20, 10 over a course of 10 days. As if that wasn’t enough, she
Boss302Fan
in
PMRGCAuk
1 year ago
Have just tested positive for Covid. Currently on 7.5mg prednisolone. Is it OK to take Snip twice a day or should I increase my dosage?
What I thought were standard cold symptoms - sore throat, runny nose and congestion - have turned out to be Covid. This is Day 2 and I don't feel too bad. I took a Snip last night and again this afternoon. It certainly helps but I seem to remember reading that you had to be careful taking this type
What I thought were standard cold symptoms - sore throat, runny nose and congestion - have turned out to be Covid. This is Day 2 and I don't feel too bad. I took a Snip last night and again this afternoon. It certainly helps but I seem to remember reading that you had to be careful taking this type
Pr0jection
in
PMRGCAuk
1 year ago
Research project update: COVID-19 vaccine responses in lupus patients
We have an update from one of the research projects LUPUS UK funded, which was looking at the response of people with lupus to COVID-19 vaccines. You can read about what they found on our website here: https://www.lupusuk.org.uk/understanding-covid-19-vaccine-responses-in-lupus-patients/ Feel free
We have an update from one of the research projects LUPUS UK funded, which was looking at the response of people with lupus to COVID-19 vaccines. You can read about what they found on our website here: https://www.lupusuk.org.uk/understanding-covid-19-vaccine-responses-in-lupus-patients/ Feel free
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Making a Comeback from Covid ??? We Will but it may take a While ...
Despite some reports to the contrary, a lot of people are still getting the
coronavirus
.
Despite some reports to the contrary, a lot of people are still getting the
coronavirus
.
Oldfloss
Administrator
in
Bridge to 10K
1 year ago
CLL and Covid experiences
Hi, I am 65, have relapsed CLL after FCR treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them? Or anyone that can
Hi, I am 65, have relapsed CLL after FCR treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them? Or anyone that can
skipro
in
CLL Support
1 year ago
6 months post Covid and running shoes back on!
Well, it’s 6 months since I had Covid and then long Covid and at last I managed a 5 minute ‘jog’. It was slow but felt good. I mustn’t push it as until a month ago, I couldn’t even walk round the block without getting out of breath. So, I will soon be back doing C25K but may do each week twice!
Well, it’s 6 months since I had Covid and then long Covid and at last I managed a 5 minute ‘jog’. It was slow but felt good. I mustn’t push it as until a month ago, I couldn’t even walk round the block without getting out of breath. So, I will soon be back doing C25K but may do each week twice!
Phdgranny
Graduate
in
Couch to 5K
1 year ago
Reaction between thyroid meds and antibiotics and increased sensitivity to prescription drugs
I have really been suffering with a sinus infection following Covid in December last year. My gp prescribed Doxycycline 100 mg capsules. This was at my request. I had suffered with a sinus infection for almost eighteen months following a previous bout of Covid. The side affects were not pleasant but
I have really been suffering with a sinus infection following Covid in December last year. My gp prescribed Doxycycline 100 mg capsules. This was at my request. I had suffered with a sinus infection for almost eighteen months following a previous bout of Covid. The side affects were not pleasant but
dizzy864
in
Thyroid UK
1 year ago
ectopic beats
hi I’m 18 years old and I have always been in perfect health until around 2 years ago when I got covid for the first time, around 7-8 months after having covid i started experiencing rapid heart rate upon standing and suspect I have POTS but my beta blockers help massively in keeping my heart rate down
hi I’m 18 years old and I have always been in perfect health until around 2 years ago when I got covid for the first time, around 7-8 months after having covid i started experiencing rapid heart rate upon standing and suspect I have POTS but my beta blockers help massively in keeping my heart rate down
Maix
in
British Heart Foundation
1 year ago
post covid ibs/ digestive problems
Post covid (1mth). Weakness headaches tension light coloured poo acid reflux feel terrible. Anyone else s digestive probs worse after covid. Hoping will settle soon depressed and struggling daily.
Post covid (1mth). Weakness headaches tension light coloured poo acid reflux feel terrible. Anyone else s digestive probs worse after covid. Hoping will settle soon depressed and struggling daily.
Music2
in
IBS Network
1 year ago
NICE share draft final recommendations for COVID-19 treatments
Hi everyone, NICE has published their draft final recommendations for COVID-19 treatments. We are pleased that they have included sotrovimab for people who are at high risk of severe COVID-19 but cannot have Paxlovid. This hopefully means most people with lupus will have a viable treatment option.
Hi everyone, NICE has published their draft final recommendations for COVID-19 treatments. We are pleased that they have included sotrovimab for people who are at high risk of severe COVID-19 but cannot have Paxlovid. This hopefully means most people with lupus will have a viable treatment option.
Paul_Howard
LUPUS UK
in
LUPUS UK
1 year ago
covid
hi, has anyone been given antiviral drugs for Covid? I am so ill, terrible throat and cough nurse said it will help prevent complications
hi, has anyone been given antiviral drugs for Covid? I am so ill, terrible throat and cough nurse said it will help prevent complications
jarujuda
in
NRAS
1 year ago
Good covid, bad downside.
I have refractory RLS and have been taking 20 mg of hydrocodone right before bed. The symptoms actually cycle during the year with the colder months coincide with reduced symptoms. A month ago I came down with covid. I was really sick for about a week and it took me another week to test negative. I took
I have refractory RLS and have been taking 20 mg of hydrocodone right before bed. The symptoms actually cycle during the year with the colder months coincide with reduced symptoms. A month ago I came down with covid. I was really sick for about a week and it took me another week to test negative. I took
JakeRLS
in
Restless Legs Syndrome
1 year ago
Two antibodies identified in Israel can fight all known COVID strains, study finds
say they have identified antibodies that are so powerful in neutralizing the
coronavirus
that they could eliminate the need for more vaccine boosters.
say they have identified antibodies that are so powerful in neutralizing the
coronavirus
that they could eliminate the need for more vaccine boosters.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
PMR pain and siatica post covid
I had a minor dose of covid in September last year. Following it I developed agonising siatica. I thought I’d broken my hip at least. This was all mixed in with a PMR flare. I’ve tapered back from a higher dose of 5 mg to 2mg of prednisolone only to have to give in again and try 6mg which is only just
I had a minor dose of covid in September last year. Following it I developed agonising siatica. I thought I’d broken my hip at least. This was all mixed in with a PMR flare. I’ve tapered back from a higher dose of 5 mg to 2mg of prednisolone only to have to give in again and try 6mg which is only just
Headwood
in
PMRGCAuk
1 year ago
Has anyone else had 10-13 hour seizures from covid?
Hello all, I am used to having 2-4 hours seizures regularly, but after I tested positive for Covid they now last 10-13 hours every single day for the last week. Has this happened to anyone else? Please tell me this won't last forever! No doctors are helping. Thank you!
Hello all, I am used to having 2-4 hours seizures regularly, but after I tested positive for Covid they now last 10-13 hours every single day for the last week. Has this happened to anyone else? Please tell me this won't last forever! No doctors are helping. Thank you!
Pattydancer2023
in
Functional Neurological Disorder - FND Hope
1 year ago
Autumn Booster - Am I 'at High Risk'?
This page suggests not: https://www.nhs.uk/conditions/
coronavirus
-covid-19/people-at-higher-risk/who-is-at-high-risk-from-
coronavirus
/ I'd be grateful to know what others think. Many thanks.
This page suggests not: https://www.nhs.uk/conditions/
coronavirus
-covid-19/people-at-higher-risk/who-is-at-high-risk-from-
coronavirus
/ I'd be grateful to know what others think. Many thanks.
Bayreuther78
in
British Heart Foundation
2 years ago
COVID-19 treatment options for those taking Warfarin
Hello. I have not contracted COVID-19, but most others I know have had it, and many treat successfully with Paxlovid. I learned recently that Paxlovid interacts with Warfarin in that it suppresses the body's ability to metabolize the Warfarin, thereby possibly causing increased INR while taking COVID
Hello. I have not contracted COVID-19, but most others I know have had it, and many treat successfully with Paxlovid. I learned recently that Paxlovid interacts with Warfarin in that it suppresses the body's ability to metabolize the Warfarin, thereby possibly causing increased INR while taking COVID
olleberj
in
Hughes Syndrome APS Forum
1 year ago
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