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Blood clots and urticarial vasculitis syndrome
Hello everyone. I hope you are all feeling as well as can be. I wondered if anyone could tell me whether they have suffered blood clotting as part of urticarial vasculitis syndrome ( or any other forms of vasculitis actually, as I'm not convinced that I only have the one type affecting small blood vessels
Hello everyone. I hope you are all feeling as well as can be. I wondered if anyone could tell me whether they have suffered blood clotting as part of urticarial vasculitis syndrome ( or any other forms of vasculitis actually, as I'm not convinced that I only have the one type affecting small blood vessels
Hoofprints
in
Vasculitis UK
4 years ago
Every symptom imaginable, but the ulcers are the worst
I'm new here, and already finding it so helpful. Just the fact that there are other people who experience what I am, makes me feel so much less alone. I have had migraines my entire life, mouth lesions, that I just thought were normal until now.... I was just diagnosed 3 months ago, when my genital
I'm new here, and already finding it so helpful. Just the fact that there are other people who experience what I am, makes me feel so much less alone. I have had migraines my entire life, mouth lesions, that I just thought were normal until now.... I was just diagnosed 3 months ago, when my genital
Linus1983
in
Partners for Behcet's
4 years ago
Ulcers question please?
Hello, I was wondering if anyone suffers badly with ulcers (genital and mouth) :( mine keep getting me down at the moment, there seems to be no rhyme or reason to how often I am getting them but lucky if I have a week or so in-between getting a minimum of two, up to five both down there and mouth (they
Hello, I was wondering if anyone suffers badly with ulcers (genital and mouth) :( mine keep getting me down at the moment, there seems to be no rhyme or reason to how often I am getting them but lucky if I have a week or so in-between getting a minimum of two, up to five both down there and mouth (they
missrosiex
in
Behçet's UK
4 years ago
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Hadassah researchers pinpoint source of corona blood clots
Dr. Abd Al-Roof Higazi, right, and lab manager Suhair Abdeen at Hadassah University Medical Center. Photo: courtesy Hadassah researchers pinpoint source of corona blood clots Blood samples from Covid-19 patients showed sicker patients had a high concentration of Alpha-defensin, a peptide involved in
Dr. Abd Al-Roof Higazi, right, and lab manager Suhair Abdeen at Hadassah University Medical Center. Photo: courtesy Hadassah researchers pinpoint source of corona blood clots Blood samples from Covid-19 patients showed sicker patients had a high concentration of Alpha-defensin, a peptide involved in
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
4 years ago
Hadassah researchers pinpoint source of corona blood clots
Dr. Abd Al-Roof Higazi, right, and lab manager Suhair Abdeen at Hadassah University Medical Center. Photo: courtesy Blood samples from Covid-19 patients showed sicker patients had a high concentration of Alpha-defensin, a peptide involved in blood clots formation. By Abigail Klein Leichman JUNE 17,
Dr. Abd Al-Roof Higazi, right, and lab manager Suhair Abdeen at Hadassah University Medical Center. Photo: courtesy Blood samples from Covid-19 patients showed sicker patients had a high concentration of Alpha-defensin, a peptide involved in blood clots formation. By Abigail Klein Leichman JUNE 17,
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Having pericarditis symptoms- anyone else been down this road?
Already on Colchicine for a week. Had pleural effusion drain last week Short course of doxycycline Thurs - Sunday Neck/shoulder left chest pain since Tuesday Temp now spiking to 38 Very tired Pulse 110 .... Thought I had trapped nerve, think I sent the GP off on the wrong road saying I had trapped
Already on Colchicine for a week. Had pleural effusion drain last week Short course of doxycycline Thurs - Sunday Neck/shoulder left chest pain since Tuesday Temp now spiking to 38 Very tired Pulse 110 .... Thought I had trapped nerve, think I sent the GP off on the wrong road saying I had trapped
Wildmeadow
in
British Heart Foundation
4 years ago
Pericarditis
Hi, I’ve been suffering with pericarditis for nearly 7 weeks now and symptoms seem vary with each day- some days I feel fine and the next I’m back in pain again. I’ve been prescribed 2mg of colchicine a day and naproxen when necessary but I am running towards the end of the course. Does anyone else suffering
Hi, I’ve been suffering with pericarditis for nearly 7 weeks now and symptoms seem vary with each day- some days I feel fine and the next I’m back in pain again. I’ve been prescribed 2mg of colchicine a day and naproxen when necessary but I am running towards the end of the course. Does anyone else suffering
gray1997
in
British Heart Foundation
4 years ago
Is my high dose of colchicine safe?
I’m currently taking 2mg of colchicine a day for my pericarditis but from what I’ve read online is that it can really toxic and dangerous to consume a high dosage of. Would anyone help me?
I’m currently taking 2mg of colchicine a day for my pericarditis but from what I’ve read online is that it can really toxic and dangerous to consume a high dosage of. Would anyone help me?
gray1997
in
Men's Health Forum
4 years ago
Myocarditis questions
Previously very fit and healthy, I got diagnosed with idiopathic myopericarditis 7 weeks ago. Had some chest and back pain and with colchicine, and ibuprofen it resolved totally within 2-3 weeks. Colchicine has to be taken til September to help lower chance of a pericarditis relapse. Myocarditis - My
Previously very fit and healthy, I got diagnosed with idiopathic myopericarditis 7 weeks ago. Had some chest and back pain and with colchicine, and ibuprofen it resolved totally within 2-3 weeks. Colchicine has to be taken til September to help lower chance of a pericarditis relapse. Myocarditis - My
Reggiepred
in
British Heart Foundation
4 years ago
GOUT & CLL
Can anyone reassure me that colchicine tablets (for gout attacks) are not dangerous to CLL patients?
Can anyone reassure me that colchicine tablets (for gout attacks) are not dangerous to CLL patients?
sybilthegoose
in
Men's Health Forum
4 years ago
Reoccurring Pericarditis and Exercise
Hi does anyone have experience with reoccurring pericarditis that seems to be related to endurance training, intense training or sport in general? Any advise on methods of reducing reoccurrence based on medication, lifestyle changes or nutrition would be greatly appreciated. My story is: I'm 41 now
Hi does anyone have experience with reoccurring pericarditis that seems to be related to endurance training, intense training or sport in general? Any advise on methods of reducing reoccurrence based on medication, lifestyle changes or nutrition would be greatly appreciated. My story is: I'm 41 now
pduckie
in
British Heart Foundation
4 years ago
Odd post myocarditis symptom - unable to fall asleep without gasping for air
I wonder can anyone help with an odd side effect of myocarditis. My partner suddenly complained of chest pains in may 2019. He'd be taken to A&E, find his heart and his Troponin showing no sign of heart damage. Given morpine (sometime) sent home. After many visits he finally hospitalised with Myocarditis
I wonder can anyone help with an odd side effect of myocarditis. My partner suddenly complained of chest pains in may 2019. He'd be taken to A&E, find his heart and his Troponin showing no sign of heart damage. Given morpine (sometime) sent home. After many visits he finally hospitalised with Myocarditis
clearbrian
in
British Heart Foundation
4 years ago
Hadassah doctors crack the cause of fatal corona blood clots
Hadassah researchers discovered that patients who form fatal blood clots have an increased level of alpha defensin protein in their blood. By MAAYAN JAFFE-HOFFMAN JUNE 16, 2020 A research team at Hadassah Medical Center has discovered what they believe causes coronavirus patients to become seriously
Hadassah researchers discovered that patients who form fatal blood clots have an increased level of alpha defensin protein in their blood. By MAAYAN JAFFE-HOFFMAN JUNE 16, 2020 A research team at Hadassah Medical Center has discovered what they believe causes coronavirus patients to become seriously
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
4 years ago
Hadassah doctors crack the cause of fatal corona blood clots
Hadassah researchers discovered that patients who form fatal blood clots have an increased level of alpha defensin protein in their blood. By MAAYAN JAFFE-HOFFMAN JUNE 16, 2020 A research team at Hadassah Medical Center has discovered what they believe causes coronavirus patients to become seriously
Hadassah researchers discovered that patients who form fatal blood clots have an increased level of alpha defensin protein in their blood. By MAAYAN JAFFE-HOFFMAN JUNE 16, 2020 A research team at Hadassah Medical Center has discovered what they believe causes coronavirus patients to become seriously
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Peri flare
Good morning all. How are we today? Does anyone on here suffer from chronic recurrent pericarditis and prescribed something other than the standard medication? I am currently flaring again and have been now for 10 days. I am taking 1x0.5 colchicine a day along with 40mg Rabeprazole twice daily. I
Good morning all. How are we today? Does anyone on here suffer from chronic recurrent pericarditis and prescribed something other than the standard medication? I am currently flaring again and have been now for 10 days. I am taking 1x0.5 colchicine a day along with 40mg Rabeprazole twice daily. I
Scho1
in
British Heart Foundation
4 years ago
Link between AFib and Gout
Hello fellow AFibbers. I hope that you are all doing well and staying safe. Please bear with me and I have an interesting find lower down. Early 2018 I had a noticeable episode of AF whilst undergoing a stress ECG. Heart rate around 170 that took some time to go down. At the time I was highly constipated
Hello fellow AFibbers. I hope that you are all doing well and staying safe. Please bear with me and I have an interesting find lower down. Early 2018 I had a noticeable episode of AF whilst undergoing a stress ECG. Heart rate around 170 that took some time to go down. At the time I was highly constipated
saulger
in
AF Association
4 years ago
Effects of stress on Bechets
My Bechets was diagnosed in Dec 18 and was under control with colchicine and I was such a high flyer at work but in early 2019 stress levels at work increased for me with increased workloads and no support and my Bechets became more extreme and I experienced symptoms I had never encountered with longer
My Bechets was diagnosed in Dec 18 and was under control with colchicine and I was such a high flyer at work but in early 2019 stress levels at work increased for me with increased workloads and no support and my Bechets became more extreme and I experienced symptoms I had never encountered with longer
RRBG
in
Behçet's UK
4 years ago
Colchicine and immunosuppression
Does anyone know what the likelihood of being immunosuppressed due to long term Colchicine use is // should I be extra careful in relation to COVID-19 or is it unlikely it will make me any more susceptible?
Does anyone know what the likelihood of being immunosuppressed due to long term Colchicine use is // should I be extra careful in relation to COVID-19 or is it unlikely it will make me any more susceptible?
Coralie5141
in
British Heart Foundation
4 years ago
Previous myocarditis and af
Diagnosed with myocarditis in January. Took colchicine for three months. Diagnosed with arterial fibrillation last month so now take blood thinners. Was feeling fine. Did a little gardening Saturday and now have chest discomfort. I don't know if it's arterial fibrillation,repeat of myocarditis or muscle
Diagnosed with myocarditis in January. Took colchicine for three months. Diagnosed with arterial fibrillation last month so now take blood thinners. Was feeling fine. Did a little gardening Saturday and now have chest discomfort. I don't know if it's arterial fibrillation,repeat of myocarditis or muscle
Lovetheoutdoors
in
British Heart Foundation
4 years ago
Colchicine
Does anyone who takes colchicine have nerve issues ? I’ve been taking it fir 7 years once a day.
Does anyone who takes colchicine have nerve issues ? I’ve been taking it fir 7 years once a day.
Munich1961
in
British Heart Foundation
4 years ago
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