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Cogan's syndrome
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Almost 18 years walking alone with no diagnosis to my vocal tic disorder.
Good Afternoon to you all. I am knew here. This morning I was given hope for my Vocal tic disorder. It was given a name FND. I had given up hope that there would be something that could be done to help my disability in this life, beside the many options of medication. Then finding you guys, people who
Good Afternoon to you all. I am knew here. This morning I was given hope for my Vocal tic disorder. It was given a name FND. I had given up hope that there would be something that could be done to help my disability in this life, beside the many options of medication. Then finding you guys, people who
DarkBlackberry
in
Functional Neurological Disorder - FND Hope
2 years ago
Bupropion and RLS
Hi! Can I just ask if anyone has been on zyban (bupropion) and it’s helped with their RLS symptoms? And also can you take ropinirol while taking zyban?
Hi! Can I just ask if anyone has been on zyban (bupropion) and it’s helped with their RLS symptoms? And also can you take ropinirol while taking zyban?
jaime77
in
Restless Legs Syndrome
2 years ago
Flash backs covid pneumonitis
Hi I’m nearly 6 months post ventilation from covid pneumonitis and the flash backs are now giving me bad panic attacks this is the worst I’ve ever been, I’m waiting for councilling due to start in 3 weeks had anyone get any coping tips that I could possibly try to stop or not be so bad with the flashbacks
Hi I’m nearly 6 months post ventilation from covid pneumonitis and the flash backs are now giving me bad panic attacks this is the worst I’ve ever been, I’m waiting for councilling due to start in 3 weeks had anyone get any coping tips that I could possibly try to stop or not be so bad with the flashbacks
Nala8573
in
ICUsteps
2 years ago
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Slowly withdrawing from Pramipexole
For cutting down my use of pramipexole,, I'm not sure what route to follow - cannabis, gabapentin & tramadol, methadone etc., etc. but I now know that I have to do something to get off it, yet there are so many things to consider. I first got to EARLS by searching for info. on Iron, since my GP
For cutting down my use of pramipexole,, I'm not sure what route to follow - cannabis, gabapentin & tramadol, methadone etc., etc. but I now know that I have to do something to get off it, yet there are so many things to consider. I first got to EARLS by searching for info. on Iron, since my GP
RestlessC
in
Restless Legs Syndrome
2 years ago
Tested low oxalate diet - No effect on my RLS - Tired of hearing about dietary "cause" of RLS
After hearing a lot of good comments for low oxalate diet, I decided to give it a try. I figured it was worth trying since I'm normally a vegetarian and I eat some of the worst offenders of the low oxalate diet in great quantities (a lot of almonds & peanuts as well as cocoa in my morning smoothie).
After hearing a lot of good comments for low oxalate diet, I decided to give it a try. I figured it was worth trying since I'm normally a vegetarian and I eat some of the worst offenders of the low oxalate diet in great quantities (a lot of almonds & peanuts as well as cocoa in my morning smoothie).
GuillaumeL
in
Restless Legs Syndrome
2 years ago
Still tired?
I take 150 mg of Pregabalin for PLMD and with carefully watching food/drink triggers my PLMD is pretty much taken care of (going on 3 years). I thought the reason I still suffered from daytime sedation was the side effect of the Pregabalin (even though the 1/2 life isn't that long and I take it at 7pm
I take 150 mg of Pregabalin for PLMD and with carefully watching food/drink triggers my PLMD is pretty much taken care of (going on 3 years). I thought the reason I still suffered from daytime sedation was the side effect of the Pregabalin (even though the 1/2 life isn't that long and I take it at 7pm
wantokporo
in
Restless Legs Syndrome
2 years ago
Hi there (newbie)
Well, here I am led in the bath…..at 00:09am! And I’m utterly shattered for these regular (nightly) twilight baths to help my legs from constantly moving in the bed, no matter what my ‘sleeping’ position (sleep, what was that again?). My restless legs joined my body a couple of years ago but would annoy
Well, here I am led in the bath…..at 00:09am! And I’m utterly shattered for these regular (nightly) twilight baths to help my legs from constantly moving in the bed, no matter what my ‘sleeping’ position (sleep, what was that again?). My restless legs joined my body a couple of years ago but would annoy
simplysal
in
Restless Legs Syndrome
2 years ago
Ropinirole Reduction
Hello, some advise needed please. I have been trying to reduce my Ropinirole dose from 2mg to 1.5 mg for the past 3 weeks. For the first few nights all was well but this didn’t last long as the RLS kicked in again. I used to use Ropinirole before I augmented, then went to Pramipexole and I seem to
Hello, some advise needed please. I have been trying to reduce my Ropinirole dose from 2mg to 1.5 mg for the past 3 weeks. For the first few nights all was well but this didn’t last long as the RLS kicked in again. I used to use Ropinirole before I augmented, then went to Pramipexole and I seem to
21years
in
Restless Legs Syndrome
2 years ago
Missed Ropinirole Doses
Yep, I'm still on it, don't ask! BUT, I've had food poisoning and missed three doses - Friday, Saturday and Sunday. I've woken up this morning feeling like I've been hit over the head with a sledgehammer. I thought it would be fine to resume taking it at my normal time tonight (Monday) but a quick search
Yep, I'm still on it, don't ask! BUT, I've had food poisoning and missed three doses - Friday, Saturday and Sunday. I've woken up this morning feeling like I've been hit over the head with a sledgehammer. I thought it would be fine to resume taking it at my normal time tonight (Monday) but a quick search
RVC_Hants
in
Restless Legs Syndrome
2 years ago
Lexapro withdrawal symptoms
Anyone have experience with weaning off lexapro as it is antagonst for RLS. I have cut dose in half to 5 mg and have been doing that for 3 weeks. I will continue the cut back to 5 mg every other day and keeping fingers crossed I can move on without an antidepresssant anymore. I have experienced a myriad
Anyone have experience with weaning off lexapro as it is antagonst for RLS. I have cut dose in half to 5 mg and have been doing that for 3 weeks. I will continue the cut back to 5 mg every other day and keeping fingers crossed I can move on without an antidepresssant anymore. I have experienced a myriad
Hidden
in
Restless Legs Syndrome
2 years ago
Beta HCG elevation
Morning ladies. I tried to explain to the GP that my clinic requested a Beta blood test to confirm pregnancy. They couldn’t get me in until late this month. I did a little research and there is a company on line - Medichecks. I sent off a blood sample and voilà 783 on day 13 after 5dt 🥰🥰🥰🥰🥰🥰🤞🏻
Morning ladies. I tried to explain to the GP that my clinic requested a Beta blood test to confirm pregnancy. They couldn’t get me in until late this month. I did a little research and there is a company on line - Medichecks. I sent off a blood sample and voilà 783 on day 13 after 5dt 🥰🥰🥰🥰🥰🥰🤞🏻
Doglover7866
in
Fertility Network UK
2 years ago
knee surgery
After nearly a three year wait i,m due to have a total knee replacement in the next 12 weeks,i was wondering would i still walk with a limp after surgery.
After nearly a three year wait i,m due to have a total knee replacement in the next 12 weeks,i was wondering would i still walk with a limp after surgery.
gradyjackjacob
in
NRAS
2 years ago
MMT not good for me
I quit methadone after two years on it. I will be abstinent 2 years on July19th. I was on 80mgs when I quit cold turkey because I was done living in a drug induced haze all the time. All that weight you gain that they tell you is because you are now healthy, that’s a lie. I had a week of feeling like
I quit methadone after two years on it. I will be abstinent 2 years on July19th. I was on 80mgs when I quit cold turkey because I was done living in a drug induced haze all the time. All that weight you gain that they tell you is because you are now healthy, that’s a lie. I had a week of feeling like
Sweetsuccess88
in
Restless Legs Syndrome
2 years ago
Leg or body part most affected by RLS?
I've wondered for a while if RLS tends to affects people in specific body parts. In my case, before medication, I could have RLS in my arms, back and right leg, but the left leg was without a doubt the crazy one. Since I've been under Pregabalin and Methadone, it's almost exclusively the left leg (let's
I've wondered for a while if RLS tends to affects people in specific body parts. In my case, before medication, I could have RLS in my arms, back and right leg, but the left leg was without a doubt the crazy one. Since I've been under Pregabalin and Methadone, it's almost exclusively the left leg (let's
GuillaumeL
in
Restless Legs Syndrome
2 years ago
Cannabis works
Hi everyone it's been a long time since I last posted but I feel I have to share this. After 36 yrs living with RLS and trying almost every medication that we're all told to use I've finally found the one thing that stops my symptoms. It's cannabis, and although so many of you may judge me for it I can
Hi everyone it's been a long time since I last posted but I feel I have to share this. After 36 yrs living with RLS and trying almost every medication that we're all told to use I've finally found the one thing that stops my symptoms. It's cannabis, and although so many of you may judge me for it I can
Paul007
in
Restless Legs Syndrome
2 years ago
Sensitive post - Absolutely greatful
So I haven't posted on here for a while since going through the IVF process ....... I guess I'm kind of anxious about jinxing anything 🙃 Anyway I would just like to let you guys know that I am now 21 weeks and Allah has blessed us with a baby boy who is growing daily 💙 and causing me bad ligament
So I haven't posted on here for a while since going through the IVF process ....... I guess I'm kind of anxious about jinxing anything 🙃 Anyway I would just like to let you guys know that I am now 21 weeks and Allah has blessed us with a baby boy who is growing daily 💙 and causing me bad ligament
Shishi19
in
Fertility Network UK
2 years ago
Ropinirole
Morning i am about to start my journey coming off Ropinirole after 18 years. thank you to many of you for your advice and what to expect! Has anyone else after being on this started to put weight on after so many years. I did initially. I'm embarassed to say but i also seem to have developed i suppose
Morning i am about to start my journey coming off Ropinirole after 18 years. thank you to many of you for your advice and what to expect! Has anyone else after being on this started to put weight on after so many years. I did initially. I'm embarassed to say but i also seem to have developed i suppose
SilverEvie
in
Restless Legs Syndrome
2 years ago
Clomid, clomiphine
hi all! has anyone got any experience on clomid? I'm on day 9 of my cycle, took clomid days 2-5. my period was very light, stopped after 2 days on clomid. yday I started spotting and some today. not a lot at the moment. Having all the fun aches and pains in my ovaries. Definitely not ovulated yet. Has
hi all! has anyone got any experience on clomid? I'm on day 9 of my cycle, took clomid days 2-5. my period was very light, stopped after 2 days on clomid. yday I started spotting and some today. not a lot at the moment. Having all the fun aches and pains in my ovaries. Definitely not ovulated yet. Has
katymcg
in
Fertility Network UK
2 years ago
Does anyone have speech problems after taking horizant?
I’ve been taking Horizant since 2017. I had tried straight gabby and lyrica before switching to Horizant. The reason my doctor tried me on horizant is because the straight gabby would make me feel like I was going crazy. My mind would be thinking one thing but I would say something completely different
I’ve been taking Horizant since 2017. I had tried straight gabby and lyrica before switching to Horizant. The reason my doctor tried me on horizant is because the straight gabby would make me feel like I was going crazy. My mind would be thinking one thing but I would say something completely different
EYESWIDEOPEN17
in
Restless Legs Syndrome
2 years ago
From Gabapentin to Buprenorphine.
I have PLMD. I'm currently on 1800 mg of Gabapentin, but it's breaking down and both PLM and shortscale sleep sequence increases are making the nights intolerable. I'm able to move on to a Buprenorphine patch. Do I need to withdraw completely from the Gabapentin first or can I withdraw from it whilst
I have PLMD. I'm currently on 1800 mg of Gabapentin, but it's breaking down and both PLM and shortscale sleep sequence increases are making the nights intolerable. I'm able to move on to a Buprenorphine patch. Do I need to withdraw completely from the Gabapentin first or can I withdraw from it whilst
dickJones
in
Restless Legs Syndrome
2 years ago
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