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Newbie
Please forgive me if I am totally wrong as I have had zero sleep for two nights now. I was put on Pramipexole (i think that is what it is called) but when I needed to increase the dose to four a night I was unable to sleep due to insomnia, so two days ago I started taking Ropinirole which feels like
Please forgive me if I am totally wrong as I have had zero sleep for two nights now. I was put on Pramipexole (i think that is what it is called) but when I needed to increase the dose to four a night I was unable to sleep due to insomnia, so two days ago I started taking Ropinirole which feels like
Gardeninglover8
in
Restless Legs Syndrome
11 months ago
Mirena coil
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
Hidden
in
Endometriosis UK
10 months ago
Pramipexole RLS symptoms worse
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Fra3021
in
Restless Legs Syndrome
11 months ago
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Buprenorphine / Gloucestershire or nearish
Does anyone living in Gloucestershire Uk know of a Dr / Neurologist that is happy to prescribe Buprenorphine for Ropinirole withdrawal ? My Gp wont . Neurologist in Bath will but has ignored last 5 emails and found a neurologist in Wales who also wont . Grateful for any suggestions . Thanks in advance
Does anyone living in Gloucestershire Uk know of a Dr / Neurologist that is happy to prescribe Buprenorphine for Ropinirole withdrawal ? My Gp wont . Neurologist in Bath will but has ignored last 5 emails and found a neurologist in Wales who also wont . Grateful for any suggestions . Thanks in advance
Huntingleroy
in
Restless Legs Syndrome
11 months ago
RLS returned after taking Duloxetine
Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control. Recently started taking Duloxetine to help my Fibro and my RLS has returned with a vengeance. I get very little sleep, as soon as my head hits pillow
Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control. Recently started taking Duloxetine to help my Fibro and my RLS has returned with a vengeance. I get very little sleep, as soon as my head hits pillow
Fra3021
in
Restless Legs Syndrome
11 months ago
Haemolysis
Hi all. Sent for Monitor my Health blood test for TSH, T4+T3. Sent 1st thing Tues am. Only got a response Thurs pm to say test received. Could the delay by Royal Mail have resulted in Haemolysis? My first test in May went thru no probs, other than getting enough blood. This time, after all the tips I
Hi all. Sent for Monitor my Health blood test for TSH, T4+T3. Sent 1st thing Tues am. Only got a response Thurs pm to say test received. Could the delay by Royal Mail have resulted in Haemolysis? My first test in May went thru no probs, other than getting enough blood. This time, after all the tips I
Lottyplum
in
Thyroid UK
1 year ago
switching meds
I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin when I was on the DAs and felt super doped up in the morning. I ended up stopping taking it. After I got of the DAs I tried without meds hoping
I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin when I was on the DAs and felt super doped up in the morning. I ended up stopping taking it. After I got of the DAs I tried without meds hoping
senders
in
Restless Legs Syndrome
1 year ago
40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
1 year ago
New research: Aripiprazole, a Novel Option in the Management of Restless Legs Syndrome (2023)
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
Avart
in
Restless Legs Syndrome
1 year ago
coming off Pramipexole
my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with Gabapentin 300 mg. He wants me to cut out a 1/3 of my Pramipexole weekly over 3 weeks and said he may would increase the Gabapentin as needed which will
my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with Gabapentin 300 mg. He wants me to cut out a 1/3 of my Pramipexole weekly over 3 weeks and said he may would increase the Gabapentin as needed which will
Moretravel1
in
Restless Legs Syndrome
1 year ago
help left with the word autism
my grandson before he finished school is 8 and my son has been told he may be autistic. And then well nothing . Hes now developing tics and unusual facial movements . My son and my grandsons mother went to see the gp for advice on how to support my grandson. He told them to just keep an eye on him ??
my grandson before he finished school is 8 and my son has been told he may be autistic. And then well nothing . Hes now developing tics and unusual facial movements . My son and my grandsons mother went to see the gp for advice on how to support my grandson. He told them to just keep an eye on him ??
Noidea1812
in
Autism Support
1 year ago
HCG level blip?
Hello I’m wondering if anyone can ease my anxiety at all. My HCG levels have been as follows: 12dp3dt- 580 13dp3dt - 847 15dp3dt- 1761 18dp3dt - 5463 20dp3t - 9075 My clinic have said they’re generally looking good but I didn’t double between 18dpt and 20dpt and so they’ve put me back on a steroid
Hello I’m wondering if anyone can ease my anxiety at all. My HCG levels have been as follows: 12dp3dt- 580 13dp3dt - 847 15dp3dt- 1761 18dp3dt - 5463 20dp3t - 9075 My clinic have said they’re generally looking good but I didn’t double between 18dpt and 20dpt and so they’ve put me back on a steroid
Siothew12
in
Fertility Network UK
1 year ago
Supplements to reduce glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
wantokporo
in
Restless Legs Syndrome
1 year ago
Restless legs medication
I have had restless legs for many years and was taking mirtazapine but it is no longer working. I have tried pramipexole but have had awful headaches. I’m now having awful insomnia which combined with RL means I am getting 2-3 hours sleep each night. What medications have you used that have helped
I have had restless legs for many years and was taking mirtazapine but it is no longer working. I have tried pramipexole but have had awful headaches. I’m now having awful insomnia which combined with RL means I am getting 2-3 hours sleep each night. What medications have you used that have helped
Lin58
in
Restless Legs Syndrome
1 year ago
Ropinirole to Pregabalin
Good Morning RLS team! :) I'm new to this group - very thankful to have found it and the fantastic information that's here. Hurrah for you! Last October I started taking Ropinirole for RLS but have decided I don't want to stay on it any further - I've augmented on that and I have edema in my arms
Good Morning RLS team! :) I'm new to this group - very thankful to have found it and the fantastic information that's here. Hurrah for you! Last October I started taking Ropinirole for RLS but have decided I don't want to stay on it any further - I've augmented on that and I have edema in my arms
missrees
in
Restless Legs Syndrome
1 year ago
removal of rheumatoid nodule
I am due to have a nodule removed from my thumb next month under local anaesthetic. Does anyone know if I have to stop my idacio jab and if so for how long before and after? I am having trouble contacting my advise team!
I am due to have a nodule removed from my thumb next month under local anaesthetic. Does anyone know if I have to stop my idacio jab and if so for how long before and after? I am having trouble contacting my advise team!
Zip1
in
NRAS
1 year ago
Update on rls
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Loopylegs
in
Restless Legs Syndrome
1 year ago
gabapentin side effects
I’ve been on gabaoentin approximately 16 weeks, I’m on 2 tablets 3 times a day, my restless legs are much better and am able to get some sleep. Unfortunately I cannot cope with the bad side effects, I have rung the doctor and am still waiting for a reply, I want to reduce the amount of tablets to see
I’ve been on gabaoentin approximately 16 weeks, I’m on 2 tablets 3 times a day, my restless legs are much better and am able to get some sleep. Unfortunately I cannot cope with the bad side effects, I have rung the doctor and am still waiting for a reply, I want to reduce the amount of tablets to see
Hublot
in
Restless Legs Syndrome
1 year ago
ibuprofen & Pramipexole
Nearly 3am and wondering why the Pramipexole is not working. Have just discovered that Ibuprofen renders Pramipexole ineffective and I took a couple of Ibuprofen as a pain killer. Will I ever get to sleep? Does the Ibuprofen wear off.? If/when it does, will the the pramipexole kick in or do I have to
Nearly 3am and wondering why the Pramipexole is not working. Have just discovered that Ibuprofen renders Pramipexole ineffective and I took a couple of Ibuprofen as a pain killer. Will I ever get to sleep? Does the Ibuprofen wear off.? If/when it does, will the the pramipexole kick in or do I have to
Millersman
in
Restless Legs Syndrome
1 year ago
Torturous world of RLS
I have no words, I have been to see 2 pain specialists, 2 neurologists for ongoing nerve damage pain, back pain and restless leg pain and symptoms..e.g continual torturing tugging, electric prod like pain and jerking of whole limb. I discovered when I had my last spinal operation that the Buprenorphine
I have no words, I have been to see 2 pain specialists, 2 neurologists for ongoing nerve damage pain, back pain and restless leg pain and symptoms..e.g continual torturing tugging, electric prod like pain and jerking of whole limb. I discovered when I had my last spinal operation that the Buprenorphine
Hidden
in
Restless Legs Syndrome
1 year ago
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