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What Factors Impact CLL Treatment Options? -- Patient Empowerment Network --Dr. Lyndsey Roeker is a hematologic oncologist at Memorial Sloan
What Factors Impact CLL Treatment Options? May 14, 2021 click to view video https://powerfulpatients.org/2021/05/14/what-factors-impact-cll-treatment-options/ What are the factors that impact chronic lymphocytic leukemia (CLL) treatment options? Dr. Lindsey Roeker notes important considerations that
What Factors Impact CLL Treatment Options? May 14, 2021 click to view video https://powerfulpatients.org/2021/05/14/what-factors-impact-cll-treatment-options/ What are the factors that impact chronic lymphocytic leukemia (CLL) treatment options? Dr. Lindsey Roeker notes important considerations that
lankisterguy
Volunteer
in
CLL Support
3 years ago
BETA HCG results. Can I have some advice please
I had a beta blood test for some peace of mind after some brown spotting (that happened on one occasion), but had no more blood since. My beta is 20801iu/l. Is this a good number ? My Dr said it's high and I don't need to repeat the beta and to wait for my viability scan on the 3rd or August. What were
I had a beta blood test for some peace of mind after some brown spotting (that happened on one occasion), but had no more blood since. My beta is 20801iu/l. Is this a good number ? My Dr said it's high and I don't need to repeat the beta and to wait for my viability scan on the 3rd or August. What were
Hope_1234
in
Fertility Network UK
3 years ago
I think l have shingles & l have GPA & can’t get to a doctor..
Anyone know what’s needed?
Anyone know what’s needed?
Chamad
in
Vasculitis UK
3 years ago
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Nubie
Hello, I am new to this site. Although I was diagnosed with CLL 20 years ago. Currently receiving immunoglobulin infusions monthly
Hello, I am new to this site. Although I was diagnosed with CLL 20 years ago. Currently receiving immunoglobulin infusions monthly
Mother1943
in
CLL Support
3 years ago
Beta HCG 4824 day 15 5DT
Hi all just an update my beta came as 4824. I hope this is a good number on day15 5DT.
Hi all just an update my beta came as 4824. I hope this is a good number on day15 5DT.
Anam11
in
Fertility Network UK
3 years ago
Frontline Ibrutinib/Venetoclax Elicits Durable Responses in CLL With Undetectable MRD
[i]
Fixed-duration ibrutinib plus venetoclax produced superior progression-free survival when compared with chlorambucil plus obinutuzumab in the frontline treatment of patients with chronic lymphocytic leukemia, with durable responses observed in those who achieved undetectable minimal residual
[i]
Fixed-duration ibrutinib plus venetoclax produced superior progression-free survival when compared with chlorambucil plus obinutuzumab in the frontline treatment of patients with chronic lymphocytic leukemia, with durable responses observed in those who achieved undetectable minimal residual
lankisterguy
Volunteer
in
CLL Support
3 years ago
Long-Term Data Showcase the Clinical Utility of Fixed-Duration Venetoclax/Obinutuzumab in Treatment-Naïve CLL
[i]
Fixed-duration venetoclax plus obinutuzumab demonstrated prolonged remissions compared with chemoimmunotherapy in elderly patients with previously untreated chronic lymphocytic leukemia and comorbidities.
presented by Othman Al-Sawaf, MD reported July 6, 2021 by Jessica Hergert https
[i]
Fixed-duration venetoclax plus obinutuzumab demonstrated prolonged remissions compared with chemoimmunotherapy in elderly patients with previously untreated chronic lymphocytic leukemia and comorbidities.
presented by Othman Al-Sawaf, MD reported July 6, 2021 by Jessica Hergert https
lankisterguy
Volunteer
in
CLL Support
3 years ago
8dp5dt—when should I do blood test?
So my doctor basically hates me (it feels like) and has no hope for us. For previous transfers he made us wait TWO WEEKS before getting a blood test. This time he did not even really give us an OTD, I just have a prescription to go get an HCG blood test whenever. So, when is a good safe day to go get
So my doctor basically hates me (it feels like) and has no hope for us. For previous transfers he made us wait TWO WEEKS before getting a blood test. This time he did not even really give us an OTD, I just have a prescription to go get an HCG blood test whenever. So, when is a good safe day to go get
LuxFleur
in
Fertility Network UK
3 years ago
Kidney issues post liver transplant
Hi I'm 1 year post liver transplant, but my kidneys seem to be taking a hit. My GFR is reducing at each blood test. It is now 39 and drops by about 5 every time. They've not said if it's now CKD but I'm worried as the internet says 39 is stage 3B. They have reduced my tacrolimus to 1mg twice daily,
Hi I'm 1 year post liver transplant, but my kidneys seem to be taking a hit. My GFR is reducing at each blood test. It is now 39 and drops by about 5 every time. They've not said if it's now CKD but I'm worried as the internet says 39 is stage 3B. They have reduced my tacrolimus to 1mg twice daily,
TBSW
in
British Liver Trust
3 years ago
Trigger shot - when does it come out of your system?
Hi, I’m 5dp5dt from a fresh transfer, and curious about when the trigger shot HCG comes out of your system? My OTD isn’t until 25th, but I’m really tempted to test on Friday 23rd… Xx🍍🙏🌈
Hi, I’m 5dp5dt from a fresh transfer, and curious about when the trigger shot HCG comes out of your system? My OTD isn’t until 25th, but I’m really tempted to test on Friday 23rd… Xx🍍🙏🌈
Becatoms
in
Fertility Network UK
3 years ago
Cirrhosis and hepatitis
Hi Everyone, My brother in law is in the hospital with alcohol cirrhosis and hepatitis C. Without a transplant he will not survive. Does anyone know if the hepatitis is a significant factor for receiving a transplant? Or is it mostly the precursor to cirrhosis? My husband had a liver transplant in September
Hi Everyone, My brother in law is in the hospital with alcohol cirrhosis and hepatitis C. Without a transplant he will not survive. Does anyone know if the hepatitis is a significant factor for receiving a transplant? Or is it mostly the precursor to cirrhosis? My husband had a liver transplant in September
123AF
in
British Liver Trust
3 years ago
Doubling of absolute Lymphoctes
It has been 11 months now since I was diagnosed with CLL. Thereafter I have been tracking my WBC and Lymphocytes . The trend curve over a year is in the attached picture. I was also taking green tea extract , curcumin , vitamin C and D since being diagnosed. Until now did not experience any B symptoms
It has been 11 months now since I was diagnosed with CLL. Thereafter I have been tracking my WBC and Lymphocytes . The trend curve over a year is in the attached picture. I was also taking green tea extract , curcumin , vitamin C and D since being diagnosed. Until now did not experience any B symptoms
WilliamTan
in
CLL Support
3 years ago
Shingles vaccineM
Many thanks to all who answered my queries about having the shingles vaccine. I had the jab last week with absolutely. NO side effects not even a sore arm !! I know we all different and react differently but hope that my experience helps . Many thanks for all your help and support
Many thanks to all who answered my queries about having the shingles vaccine. I had the jab last week with absolutely. NO side effects not even a sore arm !! I know we all different and react differently but hope that my experience helps . Many thanks for all your help and support
CAROL-R
in
Hughes Syndrome APS Forum
3 years ago
Advice on hcg testing please !
Hi lovely ladies ! I’m reaching out today because I’m driving myself a bit crazy in the wait for the 7 week scan. I had my test day almost two weeks ago so only a week before the scan… I’ve been feeling exhausted and have been experiencing nausea for about a week. I did another urine pregnancy test exactly
Hi lovely ladies ! I’m reaching out today because I’m driving myself a bit crazy in the wait for the 7 week scan. I had my test day almost two weeks ago so only a week before the scan… I’ve been feeling exhausted and have been experiencing nausea for about a week. I did another urine pregnancy test exactly
Gatarra
in
Fertility Network UK
3 years ago
Cold sore
I had a sore bump yesterday on my lip and my lips just looked dry. I thought nothing of it. This morning my lips are really sore because it’s turned out to be a cold sore 😫😫😫😫. It’s a throbbing pain. The top layer has peeled off. Anyone know what best cream/treatment? Also I’ve started to get a really
I had a sore bump yesterday on my lip and my lips just looked dry. I thought nothing of it. This morning my lips are really sore because it’s turned out to be a cold sore 😫😫😫😫. It’s a throbbing pain. The top layer has peeled off. Anyone know what best cream/treatment? Also I’ve started to get a really
Junny1
in
Pain Concern
3 years ago
Leukaemia Care Interview
Hello all, I have just finished recording an interview with Leukaemia Care for use in their Spot Leukaemia Early publicity in September. I think it went well and covered my story from pre diagnosis through to where I am now. I spoke about first finding a raised lymph node and the progression of ultra
Hello all, I have just finished recording an interview with Leukaemia Care for use in their Spot Leukaemia Early publicity in September. I think it went well and covered my story from pre diagnosis through to where I am now. I spoke about first finding a raised lymph node and the progression of ultra
kitchengardener2
in
CLL Support
3 years ago
The Leukemia & Lymphoma Society’s (LLS) Co-Pay Assistance Program assists with out-of-pocket expenses up to $11,000
Co-Pay Assistance Program https://www.lls.org/support-resources/financial-support/co-pay-assistance-program - The Leukemia & Lymphoma Society’s (LLS) Patient Financial Assistance team is dedicated to removing barriers to care by providing financial support to blood cancer patients. Our Co-Pay Assistance
Co-Pay Assistance Program https://www.lls.org/support-resources/financial-support/co-pay-assistance-program - The Leukemia & Lymphoma Society’s (LLS) Patient Financial Assistance team is dedicated to removing barriers to care by providing financial support to blood cancer patients. Our Co-Pay Assistance
lankisterguy
Volunteer
in
CLL Support
3 years ago
Experience with Tacrolimus with or without Azathioprine
Hi all! My drs are suggesting to put me on tacrolimus alongside AZA to help with my joint pain. Has anyone been on tacrolimus? With or without AZA or another immunosuppressant? How is your experience? Anyone have any knowledge/experience of long-term tacrolimus? Also, I got told by the nurse
Hi all! My drs are suggesting to put me on tacrolimus alongside AZA to help with my joint pain. Has anyone been on tacrolimus? With or without AZA or another immunosuppressant? How is your experience? Anyone have any knowledge/experience of long-term tacrolimus? Also, I got told by the nurse
Sandy1212
in
LUPUS UK
3 years ago
Shingles
After contacting my doctor and her asking for pictures of the rash on my shoulder she came up with shingles,she gave me acyclovir to take 5 times a day but the side effects are terrible especially stomach pain I'm not sure I can take anymore as I already have IBS c,has anyone had shingles and what were
After contacting my doctor and her asking for pictures of the rash on my shoulder she came up with shingles,she gave me acyclovir to take 5 times a day but the side effects are terrible especially stomach pain I'm not sure I can take anymore as I already have IBS c,has anyone had shingles and what were
prue1956
in
IBS Network
3 years ago
Has anyone used cordyceps as an adjunctive treatment for kidney disease?
Cordyceps worm mold is widely used in China to treat kidney disease, and some scientific studies indicate that it may reduce creatinine values in patients with chronic kidney disease. I have never found found much personal benefit from it. Conclusions of recent Chinese study: "Current evidence shows
Cordyceps worm mold is widely used in China to treat kidney disease, and some scientific studies indicate that it may reduce creatinine values in patients with chronic kidney disease. I have never found found much personal benefit from it. Conclusions of recent Chinese study: "Current evidence shows
Falkenhayn
in
Kidney Transplant Patient Support
3 years ago
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