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Genomics
HI all, After a progression 2 years on Arimadex, Ibrance my dear partner has had a liver biopsy and we are doing genomics testing, around $3.3k. 500 gene plate? Awaiting results but after a second opinion , (lady Onc, more caring, smart) Fulvescant has been prescribed. The other prescribed Tamoxifen
HI all, After a progression 2 years on Arimadex, Ibrance my dear partner has had a liver biopsy and we are doing genomics testing, around $3.3k. 500 gene plate? Awaiting results but after a second opinion , (lady Onc, more caring, smart) Fulvescant has been prescribed. The other prescribed Tamoxifen
muzzatron
in
SHARE Metastatic Breast Cancer
1 year ago
Nebivolol problems
I'm struggling with trying to balance blood pressure and heart rate.I take 1.25 Nebivolol once a day but am finding it lowers my BP too much which is making me feel dizzy and light headed.Have tried stopping it for a day but then get tachycardia and AF. Anyone else had this problem?
I'm struggling with trying to balance blood pressure and heart rate.I take 1.25 Nebivolol once a day but am finding it lowers my BP too much which is making me feel dizzy and light headed.Have tried stopping it for a day but then get tachycardia and AF. Anyone else had this problem?
stormcloud
in
Atrial Fibrillation Support
1 year ago
AF for 4 days
I had my first episode of AF several years ago. I had another cope of episodes over a three or four year period. In January this year 2023 I was started on Apixaban but changed to Edoxaban a week ago because my blood pressure was low and I thought it was the reason for feeling tired. 4 days ago
I had my first episode of AF several years ago. I had another cope of episodes over a three or four year period. In January this year 2023 I was started on Apixaban but changed to Edoxaban a week ago because my blood pressure was low and I thought it was the reason for feeling tired. 4 days ago
GardenLover2
in
AF Association
1 year ago
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surgery or no?
hi all. I have been treated for stage 4 breast cancer with mets to the t2 and axillary node since 2016. Been on ibrance and faslidex since and doing well. I recently took a bad fall and fractured my upper arm in several places. From X-rays and Ct. scan so far it does not appear cancer related. Had two
hi all. I have been treated for stage 4 breast cancer with mets to the t2 and axillary node since 2016. Been on ibrance and faslidex since and doing well. I recently took a bad fall and fractured my upper arm in several places. From X-rays and Ct. scan so far it does not appear cancer related. Had two
Epinto
in
SHARE Metastatic Breast Cancer
1 year ago
Capecitabine (Xeloda)
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
LorryLou
in
SHARE Metastatic Breast Cancer
1 year ago
AF but erratic pulse rate is below 100
Hi all, I am currently on a long distance walk in Sweden and had just finished 7 days of walking when I felt the jitters and realized I had started another AF episode. I am on Xarelto, bisoprolol and Irbesartan for BP. This episode is a little different in that my only real symptom is an irregular
Hi all, I am currently on a long distance walk in Sweden and had just finished 7 days of walking when I felt the jitters and realized I had started another AF episode. I am on Xarelto, bisoprolol and Irbesartan for BP. This episode is a little different in that my only real symptom is an irregular
Longdistancewalker
in
AF Association
1 year ago
MRI Cardiac Myocardial Viability
My angiogram was clear, my stress test was ok other than me being in
bundle
branch
block
for most of it (I felt ok). However the echocardiogram and 24 hour ECG have clearly shown various issues, some structural, some electrical.
My angiogram was clear, my stress test was ok other than me being in
bundle
branch
block
for most of it (I felt ok). However the echocardiogram and 24 hour ECG have clearly shown various issues, some structural, some electrical.
Wolfgirl71
in
British Heart Foundation
2 years ago
A cautionary Flecainide tale
Brief history, I had two ablations in 2019, the second one being in Sept. I'm currently 56 and like exercise. Since 2019 I stopped competing and training for triathlon and knocked everything back loads. Around Oct 21 I noticed arrhythmias, looking back on my notes it mostly seemed to start with atrial
Brief history, I had two ablations in 2019, the second one being in Sept. I'm currently 56 and like exercise. Since 2019 I stopped competing and training for triathlon and knocked everything back loads. Around Oct 21 I noticed arrhythmias, looking back on my notes it mostly seemed to start with atrial
kitenski
in
AF Association
1 year ago
I need some information and help
I am reaching out again to you wonderful people. Can you tell me if irregular heartbeat usually below 100, sometimes a bit over for five minutes is also atrial fibrillation. Are they the same thing I would like to understand - how this works. I have now had irregular heart beat that I can feel
I am reaching out again to you wonderful people. Can you tell me if irregular heartbeat usually below 100, sometimes a bit over for five minutes is also atrial fibrillation. Are they the same thing I would like to understand - how this works. I have now had irregular heart beat that I can feel
kitttycat
in
AF Association
1 year ago
fulvestrant lung!!
Hi lovely ladies. I was wondering if anyone can tell me how they have done with Fulvestrant with a lung met? Or just in general? I got 5 years out of ibrance (first line) treatment. found a tiny 3mm lung met now switching to fulvestrant. many knowledge greatly appreciated💕
Hi lovely ladies. I was wondering if anyone can tell me how they have done with Fulvestrant with a lung met? Or just in general? I got 5 years out of ibrance (first line) treatment. found a tiny 3mm lung met now switching to fulvestrant. many knowledge greatly appreciated💕
Ppppopp
in
SHARE Metastatic Breast Cancer
1 year ago
Pills Can Cause More Problems
Here's my story: I've had AF for 18 years and have certainly suffered over that time. After 3 ablations and still having arrhythmia which included the following info copied from ECG July 2022 :
Atrial flutter with variable AV block with premature ventricular or aberrantly conducted complexes[
Here's my story: I've had AF for 18 years and have certainly suffered over that time. After 3 ablations and still having arrhythmia which included the following info copied from ECG July 2022 :
Atrial flutter with variable AV block with premature ventricular or aberrantly conducted complexes[
jeanjeannie50
in
Atrial Fibrillation Support
1 year ago
Pace and ablate for atrial tachycardia?
Just wondering..... The evidence here and elsewhere suggests that pace and ablate comprises a good option for many of those folks in later life who have very symptomatic persistent/permanent AF and for whom cardioversion no longer works. We also know that one or more ablations, whilst on the face of
Just wondering..... The evidence here and elsewhere suggests that pace and ablate comprises a good option for many of those folks in later life who have very symptomatic persistent/permanent AF and for whom cardioversion no longer works. We also know that one or more ablations, whilst on the face of
mike1961
in
AF Association
1 year ago
Hope at last
Hi well after five years of suffering with the most intense burning, agitation, painful genitalia, lack of sleep I finally have a diagnosis of neuropathy. I was referred to a Gynaecologist and after a month received a letter saying there would be a two year wait just to be seen. We decided that I should
Hi well after five years of suffering with the most intense burning, agitation, painful genitalia, lack of sleep I finally have a diagnosis of neuropathy. I was referred to a Gynaecologist and after a month received a letter saying there would be a two year wait just to be seen. We decided that I should
CecilyParsley
in
Pelvic Pain Support Network
1 year ago
Ibrance and Mouth Sores
I get mouth and/or tongue sores every month on Ibrance - i've tried everything - the prescription steroid, all the holistic and natural things, and it usually doesn't help at all. Some are wore than others, right now I have one so back on the back side of my tongue and I feel kind of sick all over an
I get mouth and/or tongue sores every month on Ibrance - i've tried everything - the prescription steroid, all the holistic and natural things, and it usually doesn't help at all. Some are wore than others, right now I have one so back on the back side of my tongue and I feel kind of sick all over an
Unicornuniverse
in
SHARE Metastatic Breast Cancer
1 year ago
Follow up on new bone met
Follow up; starting 2 weeks of radiation therapy on the new bone met, It is one centimeter and not causing any pain yet so treating it and a small area around it on femur in case of micro mets. Radiation Oncologist said that SBRT is an option but harder to get approved and best used to direct only
Follow up; starting 2 weeks of radiation therapy on the new bone met, It is one centimeter and not causing any pain yet so treating it and a small area around it on femur in case of micro mets. Radiation Oncologist said that SBRT is an option but harder to get approved and best used to direct only
Trissh
in
SHARE Metastatic Breast Cancer
1 year ago
LBBB and mild impaired LV function.
I'm 43 and last year was diagnosed with mild Left
bundle
branch
block
with no underlying conditions. This year after echocardiogram, I now have LBBB plus mild impaired LV function.
I'm 43 and last year was diagnosed with mild Left
bundle
branch
block
with no underlying conditions. This year after echocardiogram, I now have LBBB plus mild impaired LV function.
Foxflyer10
in
British Heart Foundation
2 years ago
Free ibrance
Hello, I live in the Uk and have a month supply of ibrance. if anyone would like it for free I’m happy to post anywhere! X
Hello, I live in the Uk and have a month supply of ibrance. if anyone would like it for free I’m happy to post anywhere! X
Ppppopp
in
SHARE Metastatic Breast Cancer
1 year ago
Questions to ask GP re heart failure, ECG and echo results
Hi, I have a phone appt on Friday with my GP to discuss test results,meds and how I'm doing.Background NT pro BNP of 529 in November and referred for ECG December ECG showed Left
bundle
branch
block
. I only found this out by asking the receptionist to read out the referral letter to cardiology.
Hi, I have a phone appt on Friday with my GP to discuss test results,meds and how I'm doing.Background NT pro BNP of 529 in November and referred for ECG December ECG showed Left
bundle
branch
block
. I only found this out by asking the receptionist to read out the referral letter to cardiology.
hermum
in
British Heart Foundation
2 years ago
Elacestrant
Hello Ladies, About a month ago I wrote my oncologist started me on Xeloda. Ibrance quit working. Well she is now starting me on Elacestrant. It was approved by the FDA January 2023. All my caris DNA shows I’m still HER-. Does anyone have experience using this pill? I realize it is fairly new! Hope
Hello Ladies, About a month ago I wrote my oncologist started me on Xeloda. Ibrance quit working. Well she is now starting me on Elacestrant. It was approved by the FDA January 2023. All my caris DNA shows I’m still HER-. Does anyone have experience using this pill? I realize it is fairly new! Hope
1glajon
in
SHARE Metastatic Breast Cancer
1 year ago
Burned Nerves for Spinal Stenosis..
Morning everyone, I had a temporary nerve block the other day in 6 points around my spine. It seemed to work, the surgeon mentioned the next step would be to burn the nerves but this would only give 6 months - 1 year of relief. I just wondered if anybody here has had this done?
Morning everyone, I had a temporary nerve block the other day in 6 points around my spine. It seemed to work, the surgeon mentioned the next step would be to burn the nerves but this would only give 6 months - 1 year of relief. I just wondered if anybody here has had this done?
BertoBishop
in
Pain Concern
1 year ago
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