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Aimovig! Get my first dose tomorrow!
I'm at the end of a round of
botox
but i guess the neurologists at my dr's office are "weaning" patients off
botox
migraine therapy as they transition to the amovig. i don't see why that's necessary but will ask my neuro on my August 10
botox
appointment. Has anyone tried the Amovig yet?
I'm at the end of a round of
botox
but i guess the neurologists at my dr's office are "weaning" patients off
botox
migraine therapy as they transition to the amovig. i don't see why that's necessary but will ask my neuro on my August 10
botox
appointment. Has anyone tried the Amovig yet?
Peaches_7
in
National Migraine Centre
6 years ago
CBD and Neck issues
Can't get his chin off his neck -- severe torticallis-- following a
Botox
injection that "backfired." So sad. Hard to interact with people who want to offer support because he has to look down at his shoes and can't see their faces.
Botox
adverse effects not wearing off and this looks permanent.
Can't get his chin off his neck -- severe torticallis-- following a
Botox
injection that "backfired." So sad. Hard to interact with people who want to offer support because he has to look down at his shoes and can't see their faces.
Botox
adverse effects not wearing off and this looks permanent.
Marilyn_cbd12
in
PSP Association
6 years ago
May I join you here ?
He is drooling a lot (
Botox
didn't help much) and his head is down to the right. Neuro opthamologist said he doesn't have PSP although his eye sight is getting worse. All of You have been so nice supporting each other.
He is drooling a lot (
Botox
didn't help much) and his head is down to the right. Neuro opthamologist said he doesn't have PSP although his eye sight is getting worse. All of You have been so nice supporting each other.
stephanotis
in
PSP Association
6 years ago
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Thank you all for sharing!
mostly on left side, subtle chronic pain on lower right abdomen, abnormal bowels (along with urgency and pain and bleeding, chronic internal anal fissure that
Botox
injection helped for only 6 mos., pruritis ani on/off).
mostly on left side, subtle chronic pain on lower right abdomen, abnormal bowels (along with urgency and pain and bleeding, chronic internal anal fissure that
Botox
injection helped for only 6 mos., pruritis ani on/off).
JulietteSF
in
Endometriosis UK
6 years ago
Cervical dystonia
Following that I started the
Botox
treatments , which got my head almost uprightish , hopefully it’ll get even more so with time . I was paranoid about how I looked to others , but have realised most people don’t see that much 🤣
Following that I started the
Botox
treatments , which got my head almost uprightish , hopefully it’ll get even more so with time . I was paranoid about how I looked to others , but have realised most people don’t see that much 🤣
Upsman
in
Dystonia Society
6 years ago
Spinal neuromodulation
Have tried all injections, Pt, meds,
Botox
, impar blocks, etc. would be interested in hearing of others’ experiences w drg implant - pros & cons etc. my condition is completely confined to cozxyx and rectal pain - 5 years now post fall on tailbone Thank you in advance
Have tried all injections, Pt, meds,
Botox
, impar blocks, etc. would be interested in hearing of others’ experiences w drg implant - pros & cons etc. my condition is completely confined to cozxyx and rectal pain - 5 years now post fall on tailbone Thank you in advance
Rxmom
in
Pelvic Pain Support Network
6 years ago
Experience of Iloprost infusion?
Given poor tolerance of drugs I enquired with my rheumatologist re the
Botox
injections I have heard of (he point blank refused?) said I need to try Iloprost infusion. Cue two weeks ago, off I trot.
Given poor tolerance of drugs I enquired with my rheumatologist re the
Botox
injections I have heard of (he point blank refused?) said I need to try Iloprost infusion. Cue two weeks ago, off I trot.
celvo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Generalized dystonia
My head was everywhere but then started
Botox
and helped to lift head up but the tremor was bad. Anyway now I have hand dystonia so am unable to write properly tremor in my hand has made me feel awful as unable to fill out forms my fingers ache too and had carpel tunnel done in same hand.
My head was everywhere but then started
Botox
and helped to lift head up but the tremor was bad. Anyway now I have hand dystonia so am unable to write properly tremor in my hand has made me feel awful as unable to fill out forms my fingers ache too and had carpel tunnel done in same hand.
keepmoving57
in
Dystonia Society
6 years ago
Thanks, everyone, for your welcome and insights
Neck began to stiffen around Feb 1 and
botox
shot (which he had with good results, same place, 2 years ago) was intended to help, but it relaxed all of the muscles and that is when his head dropped and now it just won't go back up.
Neck began to stiffen around Feb 1 and
botox
shot (which he had with good results, same place, 2 years ago) was intended to help, but it relaxed all of the muscles and that is when his head dropped and now it just won't go back up.
Marilyn_cbd12
in
PSP Association
6 years ago
Hormonal migraines anyone beaten these?
I take feverfew, b2 and magnesium and am currently on my 2nd round of
Botox
which has helped with the rebound migraines so has reduced them a bit. Has anyone tried hormonal methods or anything else to get rid of them? I am 39 so have a long time till menopause, fingers crossed they will stop then.
I take feverfew, b2 and magnesium and am currently on my 2nd round of
Botox
which has helped with the rebound migraines so has reduced them a bit. Has anyone tried hormonal methods or anything else to get rid of them? I am 39 so have a long time till menopause, fingers crossed they will stop then.
Jeffner
in
National Migraine Centre
6 years ago
Botox injections for pudendal nerve pain
Has anyone ever had
botox
injections for pudendal nerve pain and gotten relief. This is something that I haven't tried.
Has anyone ever had
botox
injections for pudendal nerve pain and gotten relief. This is something that I haven't tried.
Liz_2018
in
Pelvic Pain Support Network
6 years ago
Pain Sucks!!
I am currently doing
Botox
every 3 months & taking at least 3 other meds for the migraines. I have been through a lot of surgeries which dealt me pain & chronic pain meds. In 2004 - right shoulder surgery. In 2005 - right elbow surgery. On April 13th 2006 - appendix taken out surgery.
I am currently doing
Botox
every 3 months & taking at least 3 other meds for the migraines. I have been through a lot of surgeries which dealt me pain & chronic pain meds. In 2004 - right shoulder surgery. In 2005 - right elbow surgery. On April 13th 2006 - appendix taken out surgery.
ntaber89
in
Pain Concern
6 years ago
Botox treatment
Hello I have been signed off all medication as non responsive and waiting on my neurology appointment for August inwhich I have asked for
Botox
treatment. Has anyone tried this yet and found it works? Tia
Hello I have been signed off all medication as non responsive and waiting on my neurology appointment for August inwhich I have asked for
Botox
treatment. Has anyone tried this yet and found it works? Tia
Bardoe80
in
National Migraine Centre
6 years ago
R/A in neck???
I have a lot of problems and pain in my neck, I receive
Botox
for my dystonia but my dystonia nurse says it is made worse by the RA attacking my neck, when I asked the RA nurse she said " you can't get RA in your neck" this really confused me. Is this true??
I have a lot of problems and pain in my neck, I receive
Botox
for my dystonia but my dystonia nurse says it is made worse by the RA attacking my neck, when I asked the RA nurse she said " you can't get RA in your neck" this really confused me. Is this true??
sharlynn
in
NRAS
6 years ago
Positive thoughts post severe viral meningitis
Physio in my neck and spine was key to recovery from the migraine and
Botox
. So I hope this post helps those of you who are suffering from VM. I could hardly move for 12 months and now I have climbed 2 of Britain’s highest mountains.
Physio in my neck and spine was key to recovery from the migraine and
Botox
. So I hope this post helps those of you who are suffering from VM. I could hardly move for 12 months and now I have climbed 2 of Britain’s highest mountains.
Bonkitty
in
Meningitis Now
6 years ago
Recently Diagnosed
I started
Botox
injections last week but haven't had any relief yet, I need to be patient I suppose! Just wondering if anyone finds exercise helps? I used to exercise a lot (running and gym) but am finding it too painful at the moment and my neck seems more spasmodic afterwards.
I started
Botox
injections last week but haven't had any relief yet, I need to be patient I suppose! Just wondering if anyone finds exercise helps? I used to exercise a lot (running and gym) but am finding it too painful at the moment and my neck seems more spasmodic afterwards.
WillyWonky
in
Dystonia Society
6 years ago
Update on my double vision
Hi Again I wrote 2 months ago re my double vision Moorfields are now doing surgery to align the eye rather than
botox
.
Hi Again I wrote 2 months ago re my double vision Moorfields are now doing surgery to align the eye rather than
botox
.
Hidden
in
Thyroid UK
6 years ago
4 years post viral meningitis and still suffering horrible after effects.
He put me on steroids, then
Botox
, topamax, gabapentin, a whole bunch of different “migraine” medications, nerve blocks and nothing worked. After 2 years he just gave up and I was left to find another doctor.
He put me on steroids, then
Botox
, topamax, gabapentin, a whole bunch of different “migraine” medications, nerve blocks and nothing worked. After 2 years he just gave up and I was left to find another doctor.
fixie2
in
Meningitis Now
6 years ago
Here it is guys. I got my second amniotic graph shot plus a lot more done ready for this. I wasn’t expecting this.
She performed the amniotic graph injections to both sides of my Pudendal nerve,
Botox
injections, bladder installation for my interstitial cystitis and she took 3 biopsies of my bladder for my bladder was very ugly and very bad as she said.
She performed the amniotic graph injections to both sides of my Pudendal nerve,
Botox
injections, bladder installation for my interstitial cystitis and she took 3 biopsies of my bladder for my bladder was very ugly and very bad as she said.
Debra13
in
Pelvic Pain Support Network
6 years ago
Cervical dystonia, bipolar and over active thyroid has now change to underactive has anyone got three of these illnesses?
Hi everyone I'm new to to health unlocked, would love to get some feedback to my situation, I was diagnosed with cervical dystonia and get
Botox
injections every 8 to 10 weeks, I had a nervous breakdown about 4 years ago and was hospitalised 3 times for about 8 weeks each time and was diagnosed with
Hi everyone I'm new to to health unlocked, would love to get some feedback to my situation, I was diagnosed with cervical dystonia and get
Botox
injections every 8 to 10 weeks, I had a nervous breakdown about 4 years ago and was hospitalised 3 times for about 8 weeks each time and was diagnosed with
Shellyok
in
Thyroid UK
6 years ago
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