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Experiences with
Benepali
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COVID positive
Do I do my injection of
Benepali
tomorrow/ can’t find an answer anywhere Thanks Sue
Do I do my injection of
Benepali
tomorrow/ can’t find an answer anywhere Thanks Sue
swoodge
in
NRAS
3 years ago
Benepali Injections Issues
I have a feeling they’ll be reluctant to take me off
benepali
.
I have a feeling they’ll be reluctant to take me off
benepali
.
Shamrockgirl
in
NRAS
3 years ago
Clicking joints
I’ve newly diagnosed with RA and have just taken my 4th
Benepali
injection. Last week a lot of my joints are clicking quite noisily including my neck, jaw and knee. I don’t have much pain though , just a big in my neck. Has anyone experienced this?
I’ve newly diagnosed with RA and have just taken my 4th
Benepali
injection. Last week a lot of my joints are clicking quite noisily including my neck, jaw and knee. I don’t have much pain though , just a big in my neck. Has anyone experienced this?
Siobhad
in
NRAS
3 years ago
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Monoclonal Antibody Treatment for Covid
I take
Benepali
, Sulfasalazine and Hydroxychloroquine and had a steroid injection in December? Has anyone else on these drugs been told they can get access to the antibody infusion? Thank you xx
I take
Benepali
, Sulfasalazine and Hydroxychloroquine and had a steroid injection in December? Has anyone else on these drugs been told they can get access to the antibody infusion? Thank you xx
Sallyb828
in
NRAS
3 years ago
Methotrexate shortage?
No problem as I have those for
Benepali
. I was due a delivery tomorrow,Friday, but have had a telephone call today to say that as Methotrexate is in short supply I will only have ONE delivered tomorrow and I will be contacted about a further supply. Is anybody else having this problem?
No problem as I have those for
Benepali
. I was due a delivery tomorrow,Friday, but have had a telephone call today to say that as Methotrexate is in short supply I will only have ONE delivered tomorrow and I will be contacted about a further supply. Is anybody else having this problem?
Pythagorus
in
NRAS
3 years ago
A little worried
I have been on
Benepali
now for 2yrs and coping OK.
I have been on
Benepali
now for 2yrs and coping OK.
Kazwilks
in
NRAS
3 years ago
When is a cold just a cold?
Hi I have RA and am on weekly
BENEPALI
injections. Had a multi generational meet up with various family over Christmas. I am vaccinated. Had what I thought was a booster in early November but have since had a letter indicating that was a 3rd injection and I should have a 4th in 6 months time.
Hi I have RA and am on weekly
BENEPALI
injections. Had a multi generational meet up with various family over Christmas. I am vaccinated. Had what I thought was a booster in early November but have since had a letter indicating that was a 3rd injection and I should have a 4th in 6 months time.
Chann
in
NRAS
3 years ago
Sciensus organisation issues again
This is one of a few reasons that I wish I could either have a medication not dealt with by this company, or maybe have
benepali
by infusion, I wouldn’t have a problem going to the hospital once a month?
This is one of a few reasons that I wish I could either have a medication not dealt with by this company, or maybe have
benepali
by infusion, I wouldn’t have a problem going to the hospital once a month?
Shamrockgirl
in
NRAS
3 years ago
Benepali Issues Again
I have heard of medication JAK’s that may do something similar to
Benepali
, but not seeing consultant until next summer, a long time away.
I have heard of medication JAK’s that may do something similar to
Benepali
, but not seeing consultant until next summer, a long time away.
Shamrockgirl
in
NRAS
3 years ago
Benepali painful pen
I have recently started using the
Benepali
pen (8th week) and I find the injection excruciatingly painful (I have tried using Emla cream as I thought is was the from the 'collar' digging in) however, I have found it is actually the medication going in that causes the problem.
I have recently started using the
Benepali
pen (8th week) and I find the injection excruciatingly painful (I have tried using Emla cream as I thought is was the from the 'collar' digging in) however, I have found it is actually the medication going in that causes the problem.
Diamondpainting
in
NRAS
3 years ago
Am changing my biological drug
It only lasts for a week and I need something else for the other week so I am starting Etanercept (
benepali
) and stopping humeria very soon. I have just seen my rumey nurse and she suggests this. I am constantly in pain and I cannot close my hands as they are so swollen.
It only lasts for a week and I need something else for the other week so I am starting Etanercept (
benepali
) and stopping humeria very soon. I have just seen my rumey nurse and she suggests this. I am constantly in pain and I cannot close my hands as they are so swollen.
Carolsos
in
NRAS
3 years ago
Chickenpox and Benepali
I have been using the
Benepali
pen for about 6 six weeks and am on Methotrexate. My daughter has said that my grandson won't be infectious by Tuesday (he also has a baby brother 6 months old who isn't showing any symptoms), I am just really worried about getting Shingles.
I have been using the
Benepali
pen for about 6 six weeks and am on Methotrexate. My daughter has said that my grandson won't be infectious by Tuesday (he also has a baby brother 6 months old who isn't showing any symptoms), I am just really worried about getting Shingles.
Diamondpainting
in
NRAS
3 years ago
Advice
I’m feeling very low and Teary, I’m struggling with my knee as I need a full knee replacement ( I had half a knee 3years ago and it’s failed) I’m on
benepali
started in July but struggling with my hands , they are very swollen and can’t use my right hand .
I’m feeling very low and Teary, I’m struggling with my knee as I need a full knee replacement ( I had half a knee 3years ago and it’s failed) I’m on
benepali
started in July but struggling with my hands , they are very swollen and can’t use my right hand .
Laceygreen
in
NRAS
3 years ago
Travel bag for Biologic pens
I have just had my first
Benepali
injection and talking to the lovely nurse he suggested getting a diabetic travel kit for when we go away.
I have just had my first
Benepali
injection and talking to the lovely nurse he suggested getting a diabetic travel kit for when we go away.
Diamondpainting
in
NRAS
3 years ago
Benepali
Anyone here taking
Benepali
? How long does it take to work? I have just had my 9fn injection, no relief yet.
Anyone here taking
Benepali
? How long does it take to work? I have just had my 9fn injection, no relief yet.
Duttie
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Benepali
Hello Maggie,
Benepali
was my very first biologic, It did work, brilliant, but unfortunately my neutrophils dropped too low to continue.
Hello Maggie,
Benepali
was my very first biologic, It did work, brilliant, but unfortunately my neutrophils dropped too low to continue.
crazylady57
in
NRAS
3 years ago
Anyone on Truxima infusions ?
I was on
Benepali
injections but that became less effective over the couple of years that I was on it. Would be good to hear of other people's experiences of this drug. Thanks all. Much appreciated.☺️ x
I was on
Benepali
injections but that became less effective over the couple of years that I was on it. Would be good to hear of other people's experiences of this drug. Thanks all. Much appreciated.☺️ x
s2202
in
NRAS
3 years ago
What Now?
Been on
benepali
which didn't work, humira caused a rash, rituximab infusions which stopped working and then toxicilzumab. This was the last and rheumy was happy it worked on my RA but it caused extreme pain in shoulders. I tried it for 16 weeks then stopped it for 5 shoulder got much less painful.
Been on
benepali
which didn't work, humira caused a rash, rituximab infusions which stopped working and then toxicilzumab. This was the last and rheumy was happy it worked on my RA but it caused extreme pain in shoulders. I tried it for 16 weeks then stopped it for 5 shoulder got much less painful.
28maggie11
in
NRAS
3 years ago
Sun sensitivity
Methotrexate and
Benepali
. I always slap on sunscreen when playing golf but am not so careful when out and about or gardening.I shall now go for long sleeves but just wonder if anyone else has experienced the same and what have you found best to relieve the symptoms?
Methotrexate and
Benepali
. I always slap on sunscreen when playing golf but am not so careful when out and about or gardening.I shall now go for long sleeves but just wonder if anyone else has experienced the same and what have you found best to relieve the symptoms?
Pythagorus
in
NRAS
3 years ago
Low CRP
I have been on Methotrexate for years and
Benepali
for quite a few My CRP is under 1 can anyone explain how this can be please ?
I have been on Methotrexate for years and
Benepali
for quite a few My CRP is under 1 can anyone explain how this can be please ?
vonniesims
in
NRAS
3 years ago
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