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medication and herbal remedies?
Hey guys, sorry for this post, its most likely been done before loads of times just wanted to check if my dad is on the right meds, or if there is anything he could be taking to help at the moment he takes; stalevo 200/50/200 amantadine 100mg rotigotine patches 8mg and has anyone tried any herbal
Hey guys, sorry for this post, its most likely been done before loads of times just wanted to check if my dad is on the right meds, or if there is anything he could be taking to help at the moment he takes; stalevo 200/50/200 amantadine 100mg rotigotine patches 8mg and has anyone tried any herbal
Mustafa128h
in
PSP Association
8 years ago
Swollen feet and ankles
Has anyone had problems with swollen feet and ankles. I take levo/carb and amantadine.
Has anyone had problems with swollen feet and ankles. I take levo/carb and amantadine.
canuckchief
in
Cure Parkinson's
8 years ago
Hello I would like to introduce myself.
My name is Mary Myrtle and I was diagnosed with CBD in January 2013 but had symptoms well before that. I am new to this forum and would like to share information with you. I have tried a range of medications such as baclofen etc and none of them seemed to have any beneficial effects. I am currently taking
My name is Mary Myrtle and I was diagnosed with CBD in January 2013 but had symptoms well before that. I am new to this forum and would like to share information with you. I have tried a range of medications such as baclofen etc and none of them seemed to have any beneficial effects. I am currently taking
MaryMyrtle
in
PSP Association
8 years ago
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Amantadine
Has anyone tried Amantadine as a mono therapy?
Has anyone tried Amantadine as a mono therapy?
nourilo
in
Cure Parkinson's
8 years ago
Amantadine
Has anyone taken amantadine for PD?
Has anyone taken amantadine for PD?
nourilo
in
Cure Parkinson's
8 years ago
Fatigue
I've written about fatigue plenty before. But I never tire of bleating away, moaning about my condition. Fatigue, I hate it. Lunchtime, on Monday, I was in the elevator with a colleague. Me - "Do you feel tired?" Him - "No". Only three hours into the day, but 15 years into daily, constant fatigue
I've written about fatigue plenty before. But I never tire of bleating away, moaning about my condition. Fatigue, I hate it. Lunchtime, on Monday, I was in the elevator with a colleague. Me - "Do you feel tired?" Him - "No". Only three hours into the day, but 15 years into daily, constant fatigue
monkeybus
in
AMN EASIER
8 years ago
The effect CBD has on my Parkinson's symptoms
"Adding CBD to a consistent treatment regimen gives me one to two hours of improved mobility daily. Improved symptom management is difficult to quantify with PD. But in general when I can get five to six hours of sleep the same time of day, and am not titrating my Sinemet, Amantadine, or Deep Brain Stimulator
"Adding CBD to a consistent treatment regimen gives me one to two hours of improved mobility daily. Improved symptom management is difficult to quantify with PD. But in general when I can get five to six hours of sleep the same time of day, and am not titrating my Sinemet, Amantadine, or Deep Brain Stimulator
Hidden
in
Cure Parkinson's
9 years ago
There has to be stuff out there.....
Hello All, I am an advocate of my father who has PSP. I have been reading everything that I have found in relation to PSP. He has done a couple of clinical trials. One with CoQ10 and one with TPI-287. Neither seemed to have much effect, but as you know its hard to tell because he has good days and
Hello All, I am an advocate of my father who has PSP. I have been reading everything that I have found in relation to PSP. He has done a couple of clinical trials. One with CoQ10 and one with TPI-287. Neither seemed to have much effect, but as you know its hard to tell because he has good days and
mattgo
in
PSP Association
9 years ago
Hard weekend...Amantadine withdraw?
WOW... I am thankful the weekend is over.... You NEVER EVER hear me say that. We took Terry off Amantadine on Tuesday morning and by Friday morning he was completely clueless as to where he was, what he was doing, what was going on. All he wanted to do was sleep. He wasn't able to walk, eat, talk.
WOW... I am thankful the weekend is over.... You NEVER EVER hear me say that. We took Terry off Amantadine on Tuesday morning and by Friday morning he was completely clueless as to where he was, what he was doing, what was going on. All he wanted to do was sleep. He wasn't able to walk, eat, talk.
ahaigwood3
in
PSP Association
9 years ago
Increasing Saliva in my mouth and keep wanting to clear my throat.
Hello everyone, I noticed that in the last few weeks my mom keeps wanting to clear her throat, and she said that she feels that there is a lot of Saliva accumulating in her mouth. recently she stopped Amantadine for 2 weeks, but she started Amantadine back again 6 days ago. (which I think it might help
Hello everyone, I noticed that in the last few weeks my mom keeps wanting to clear her throat, and she said that she feels that there is a lot of Saliva accumulating in her mouth. recently she stopped Amantadine for 2 weeks, but she started Amantadine back again 6 days ago. (which I think it might help
leelit
in
Cure Parkinson's
9 years ago
Night Terror and Vivid dreams
Hello, My Mom is 70 yo and she has parkinson for 15 years, she is currently taking Amantadine 2/day, selegelin 2/day, mirapex 3/day and trihexyphenidyl 1/day. She has Night Terros every night for the past few years and she is getting worse, she talks, screams and fights during the night, My dad can
Hello, My Mom is 70 yo and she has parkinson for 15 years, she is currently taking Amantadine 2/day, selegelin 2/day, mirapex 3/day and trihexyphenidyl 1/day. She has Night Terros every night for the past few years and she is getting worse, she talks, screams and fights during the night, My dad can
leelit
in
Cure Parkinson's
9 years ago
AMANTADINE
HELLO ALL OF YOU IN THE UK --- DOES ANYONE KNOW IF AMANTADINE IS READILY AVAILABLE IN THE UK HERE IN FRANCE WE HAVE TO ORDER IT ABOUT 2/3 WEEKS BEFORE I NEED IT AS IT HAS TO BE ORDERD FROM GERMANY -- THANK YOU FOR HELPING ME LOVE FROM SHASHA
HELLO ALL OF YOU IN THE UK --- DOES ANYONE KNOW IF AMANTADINE IS READILY AVAILABLE IN THE UK HERE IN FRANCE WE HAVE TO ORDER IT ABOUT 2/3 WEEKS BEFORE I NEED IT AS IT HAS TO BE ORDERD FROM GERMANY -- THANK YOU FOR HELPING ME LOVE FROM SHASHA
shasha
in
PSP Association
9 years ago
sinemet cr
I'd like to hear from those who have tried sinemet cr. I just started taking it this week along with regular sinemet and amantadine and it seems to be helping a great deal.
I'd like to hear from those who have tried sinemet cr. I just started taking it this week along with regular sinemet and amantadine and it seems to be helping a great deal.
bicyclingwithpd
in
Cure Parkinson's
9 years ago
Recently diagnosed with AMN
Warning, this post contains links. Mods, if this is not allowed, please don't ban me, just delete this post. I always thought the problem was the varicose veins in my legs. I was 36 at the time. I'll get them stripped sooner or later, I thought. Legs got heavier and heavier, I started to fall over
Warning, this post contains links. Mods, if this is not allowed, please don't ban me, just delete this post. I always thought the problem was the varicose veins in my legs. I was 36 at the time. I'll get them stripped sooner or later, I thought. Legs got heavier and heavier, I started to fall over
monkeybus
in
AMN EASIER
9 years ago
Any other medication for symptoms ?
Hi everyone.. My mam was put on amantadine 5 months ago and during that 5 month she really seemed to be a lot better, it helped with her swollowing, speech stiffness everything really.. Now unfortunately it seems like it has stopped working :( we were told if it did help at all it would only be short
Hi everyone.. My mam was put on amantadine 5 months ago and during that 5 month she really seemed to be a lot better, it helped with her swollowing, speech stiffness everything really.. Now unfortunately it seems like it has stopped working :( we were told if it did help at all it would only be short
Maxine12
in
PSP Association
9 years ago
IM SURPRISED THAT SOMEONE ELSE H MSA ,I THINK IT'S FAR WORSE THAN ANY OF THE OTHER COUSINS....................
THANKS JB.........., FOR SGGESTING AMANTADINE, ONCE I TOOK & H AD HALUSINATIONS. HOW DO YOU USE CINNAMEN ? MY DR TOLD ME THAT PAPAYA IS GOOD IT HELPS W/ DIGESTION & LOT'S OF GOOD INGREDIENTS . I 'M NEW AT THIS.............. MSA SO ....... ANYONE THAT HAS ANY SUGGESTIONS ON HOW TO COPE
THANKS JB.........., FOR SGGESTING AMANTADINE, ONCE I TOOK & H AD HALUSINATIONS. HOW DO YOU USE CINNAMEN ? MY DR TOLD ME THAT PAPAYA IS GOOD IT HELPS W/ DIGESTION & LOT'S OF GOOD INGREDIENTS . I 'M NEW AT THIS.............. MSA SO ....... ANYONE THAT HAS ANY SUGGESTIONS ON HOW TO COPE
GenaBenedict
in
PSP Association
9 years ago
Amantadine syrup
Is anyone using amantadine syrup. If so how much are you using and how much are you suplied with. We have just changed from 2 x 100mg tablets a day to 10ml syrup once a day which equals 1x 100mg tablet. Also the one bottle we have been prescribed by gp is 150ml so that is only 15 days at half the amount
Is anyone using amantadine syrup. If so how much are you using and how much are you suplied with. We have just changed from 2 x 100mg tablets a day to 10ml syrup once a day which equals 1x 100mg tablet. Also the one bottle we have been prescribed by gp is 150ml so that is only 15 days at half the amount
jzygirl
in
PSP Association
9 years ago
Guideline Summary for PATIENTS and THEIR FAMILIES
Parkinson's may progress less quickly when the main symptom is tremor. > DIAGNOSIS AND PROGNOSIS OF NEW ONSET PARKINSON DISEASE > INITIATION OF TREATMENT FOR PARKINSON DISEASE (2002) > NEUROPROTECTIVE AND ALTERNATIVE THERAPIES FOR PARKINSON DISEASE http://tools.aan.com/professionals/practice/guidelines
Parkinson's may progress less quickly when the main symptom is tremor. > DIAGNOSIS AND PROGNOSIS OF NEW ONSET PARKINSON DISEASE > INITIATION OF TREATMENT FOR PARKINSON DISEASE (2002) > NEUROPROTECTIVE AND ALTERNATIVE THERAPIES FOR PARKINSON DISEASE http://tools.aan.com/professionals/practice/guidelines
Hidden
in
Cure Parkinson's
9 years ago
Uncontrollable body movements with hullucinations.
Recently my mum has started having some really strange episodes. While she is sitting down, she is unable to stand independently, she starts moving her legs in a walking motion, starts talking to people that are not there. Sometimes she thinks she is walking up a hill or riding a bike. She shouts and
Recently my mum has started having some really strange episodes. While she is sitting down, she is unable to stand independently, she starts moving her legs in a walking motion, starts talking to people that are not there. Sometimes she thinks she is walking up a hill or riding a bike. She shouts and
hemel1
in
PSP Association
9 years ago
PAGF
HI all I have been diagnosed with this wierd problem (pure akinesia gaite freezing) after first being dx'd with Parkinsons then PSP. I am on 100 mg of Amantadine 4 times a day. Does anyone else have this problem and how do you cope?
HI all I have been diagnosed with this wierd problem (pure akinesia gaite freezing) after first being dx'd with Parkinsons then PSP. I am on 100 mg of Amantadine 4 times a day. Does anyone else have this problem and how do you cope?
Ken_Butler
in
Cure Parkinson's
9 years ago
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